Yu ɔ pɔsin we yu sabi gɛt kansa we dɛn kɔl multiple myeloma ? If na so, dis na bɔt wan tritmɛnt we rili advans, we gɛt spɛshal tritmɛnt. Yu dɔktɔ go dɔn tɛl yu bɔt dis tritmɛnt. I nɔ tan lɛk rɔm pil. I de yuz yu yon sɛl dɛn fɔ tren dɛn fɔ fɛt kansa. Lɛ wi tɔk bɔt am insay simpul wɔd dɛn.
Fɔ tɔk am simpul wan, wetin na dis mɛrɛsin we dɛn kɔl Idecabtagene Vicleucel?
Wan ɔda nem fɔ dis na ABECMA. Dis nɔto rili rɛgyula pil ɔ vaysin. Dis na rili spɛshal tritmɛnt. Fɔ tɔk di kɔrɛkt tin, dis na tritmɛnt we de tek yu yon imyun sɛl dɛn, chenj dɛn na lab so dat dɛn go ebul fɔ fɛt di kansa sɛl dɛn , dɔn put dɛn bak na yu bɔdi.
Tink bɔt am dis we. Wi gɛt sɛl dɛn na wi bɔdi we tan lɛk sojaman dɛn we de no ɛn atak ɛnimi dɛn. Wi kin kɔl dɛn imyun sɛl. Bɔt sɔntɛnde, dɛn kansa sɛl dɛn ya kin rili kɔni. Dɛn kin ayd frɔm dɛn sojaman dɛn ya.
So wetin dis tritmεnt de du na, yu tek sכm pan dεn sojaman dεm (imyun sεl dεm) kכmכt na yu bכdi εn gi dεm spεshal "tren" so dat dεn go no di kεnsar sεl dεm. Dɔn yu kin put dɛn sojaman dɛn de bak we yu dɔn tren. Naw dɛn no aw fɔ go stret to di kansa sɛl dɛn ɛn pwɛl dɛn. Dis kin mek di kansa sɛl dɛn nɔ de skata, ɔ at ɔl i kin mek i slo bɔku.
Aw di prɔses fɔ gi dis tritmɛnt de wok?
Dis nɔto sɔntin we pɔsin kin du insay wan de. Dis na prɔses we kin apin insay sɔm step dɛn.
1. Fɔ gɛda yu sɛl dɛn: Di fɔs tin we yu go du na fɔ gɛda sɔm imyun sɛl dɛn frɔm yu blɔd. Dɛn kin du dis tru wan spɛshal mashin. Dɛn kin du dis sɔm wiks bifo dat.
2. Sεl modifyush כn (tren): dεn kin sεnd di sεl dεm we dεn tek frכm yu to spεshal labכtכri. Na de, dɛn kin chenj dɛn sɛl dɛn ya jɛnɛtiks so dat dɛn go ebul fɔ no ɛn atak di kansa sɛl dɛn.
3. Fɔ pripia yu bɔdi: Fɔ sɔm dez bifo dɛn put yu sɛl dɛn we yu dɔn tren bak na yu bɔdi, dɛn go gi yu wan kɔs fɔ kemotɛrapi na ɔspitul. Dis na fɔ rɛdi yu bɔdi fɔ gɛt di nyu sɛl dɛn we dɛn dɔn tren.
4. fכ gi di tritmεnt: fכ finish, dεn de gi di sεl dεm we dεn tren tru wan vein ( infusion) .) de injekt insay yu bɔdi. Ɔl dis kin apin na ɔspitul ɔ klinik, ɔnda di strikt sɔpɔt fɔ wan mɛdikal tim.
Dɛn go gi yu wan spɛshal buklet (MedGuide) bɔt dis tritmɛnt. I rili impɔtant fɔ tek tɛm rid ɛn ɔndastand am. If ɛnitin de we yu nɔ ɔndastand, nɔ fred fɔ aks di dɔktɔ.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin tritmɛnt
Fɔ mek yu sef, i impɔtant fɔ mek yu tɛl yu dɔktɔ kɔmplit diskripshɔn bɔt yu wɛlbɔdi biznɛs bifo yu tek dis tritmɛnt. Mek shɔ se yu tɛl dɛn bɔt dɛn tin ya mɔ.
| Wɛlbɔdi kɔndishɔn ɔ prɔblɛm | Wetin mek dat impɔtant? |
|---|---|
| If yu gɛt infekshɔn naw | Bikɔs di tritmɛnt kin afɛkt di imyun sistɛm, wan infɛkshɔn we dɔn de kin wɔs. |
| If yu gɛt wan sik we de mek yu bɔdi wam | Bikɔs dis tritmɛnt de mek di imyun sistɛm wok, risk de fɔ mek dɛn kayn tin ya wɔs. |
| If yu nɔ tu te yet ɔ yu de kam fɔ gɛt di vaysin | Sɔm vaysin (espɛshali layf vayrɔs vaysin) kin intarakt wit dis mɛrɛsin. |
| If yu gɛt alɛji to ɔda mɛrɛsin, it ɔ tin dɛn | If yu gɛt histri bɔt alɛji, i impɔtant fɔ mek di mɛdikal tim no bɔt am. |
| If yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛ | Nɔto inof infɔmeshɔn de fɔ no if dis tritmɛnt sef we uman gɛt bɛlɛ. Yu fɔ du bɛlɛ tɛst bifo yu bigin fɔ trit yu fɔ mek shɔ se yu nɔ gɛt bɛlɛ. |
| If mama de gi in pikin in bɛlɛ | Tɔk to yu dɔktɔ bɔt if di tin dɛn we de insay di mɛrɛsin kin pas to yu pikin tru in mama in milk. |
Tin dɛm wae yu fɔ tek tɛm wit mɔ wae yu de trit yu ɛn afta yu dɔn trit yu
Afta yu dɔn gɛt dis tritmɛnt, yu go nid fɔ tek kia ɔf yusɛf gud gud wan. Di mɛdikal tim go de wach yu bak gud gud wan.
- Ɔspitul ɔbshɔbishɔn: Afta tritmɛnt, dɛn go kip yu na ɔspitul fɔ at le 7 dez ɛn di mɛdikal tim go chɛk yu ɛvride.
- Blɔd tɛst : Yu go nid fɔ du blɔd tɛst ɔltɛm.
- Fɔ drayv ɛn fɔ yuz mashin dɛn: Dis rili impɔtant. Yu fɔ avɔyd fɔ drayv ɔ yuz ebi ebi mashin fɔ at le 8 wik (2 mɔnt) afta yu dɔn trit yu, bikɔs dis mɛrɛsin kin afɛkt yu kɔnsɛntreshɔn, di ebul fɔ disayd, ɛn balans.
- Patient Wallet Card: Dɛn go gi yu wan spɛshal kad. Kip am wit yu ɔltɛm . Sho am to ɔl di dɔktɔ ɛn nɔs dɛn we de trit yu. I gɛt infɔmeshɔn bɔt siriɔs sayd ɛfɛkt dɛm we yu kin gɛt.
- Risk fɔ gɛt infɛkshɔn: Dis tritmɛnt de mek yu gɛt mɔ risk fɔ gɛt infɛkshɔn. If yu gɛt sɔm sayn dɛn lɛk fiva, kol, trot we de at, ɔ kɔf , nɔ fɔ tek mɛrɛsin fɔ yusɛf ɛn kɔl yu dɔktɔ wantɛm wantɛm . Minimize yu exposure to sik pipul dem.
- Nɔ gi ɛnitin: Yu nɔ go ɛva gi blɔd, ɔgan, tisu, ɔ sɛl afta yu dɔn gɛt dis tritmɛnt.
- Ɔda kansa risk: Dis mɛrɛsin kin gɛt smɔl risk fɔ gɛt sɔm ɔda kayn kansa. Tɔk to yu dɔktɔ bɔt dis.
Wetin a go du if a tek bɔku mɛrɛsin?
Bikɔs na wan mɛdikal tim na di ɔspitul de gi dis mɛrɛsin, chans nɔ de fɔ mek yu gɛt ɔvados. If ɛni prɔblɛm de, di mɛdikal tim go tɛl di ETU (Imergency Treatment Unit) ɔ di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital wantɛm wantɛm .
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni pawaful mɛrɛsin, dis wan kin gɛt bad bad tin dɛn. Sɔm kin nid fɔ go to dɔktɔ wantɛm wantɛm, ɛn ɔda wan dɛn nɔmal.
| Sayd ɛfɛkt we pɔsin kin gɛt | Tɔk bɔt |
|---|---|
| If yu gɛt dɛn sik ya, tɛl yu dɔktɔ wantɛm wantɛm. | |
| Alɛji we pɔsin kin gɛt | Skin rash, it, swel na di fes, lip, tong ɔ trot. |
| Saytokin Rilis Sindrom (CRS) . | Fiva, kol, taya pasmak, nɔs, ed pen, diziz, at fɔ blo, at bit kwik kwik wan. (Dis na bikɔs di imyun sistɛm de ɔva aktiv) |
| Prɔblɛm dɛn we de na di nervɔs sistɛm | Kɔnfyushɔn, i nɔ kin izi fɔ waka, i nɔ kin balans, i kin gɛt sik, i nɔ kin izi fɔ tɔk, i kin chenj di we aw yu de si. |
| Sayn dɛn we de sho se pɔsin gɛt di sik | Fiva, bɔdi we de at, trot we de at, kɔf, wund we nɔ de wɛl, pen we yu de pis. |
| Brus ɔ blɔd we nɔ kɔmɔn | Ivin smɔl bɔmp kin mek big brus, blɔd kɔmɔt na di nos ɛn di gam. |
| Di rɛd blɔd sɛl dɛn we nɔ bɔku | Taya we nɔ kɔmɔn, diziz, ed we de at, i nɔ kin izi fɔ blo. |
| Bɔku tɛm, dɛn tin ya nɔ kin siriɔs, bɔt if dɛn kɔntinyu fɔ de, tɛl yu dɔktɔ. | |
| Kɔmɔn sayd ɛfɛkt dɛn | Bɛlɛ kin at, taya, ed kin at, nɔ kin want fɔ it, mɔsul dɛn kin pen, nɔs, anklɛ, an, ɔ fut kin swel. |
Mɛsej we dɛn kin kɛr go na os
- Idecabtagene Vicleucel na wan tritmɛnt we rili advans, we pɔsin kin yuz fɔ yu yon imyun sɛl fɔ fɛt kansa.
- Dis na tritmɛnt we dɛn kin gi insay difrɛn step dɛn, na ɔspitul, ɔnda strikt dɔktɔ in sɔpɔtishɔn.
- Ɔltɛm yu fɔ no bɔt sɔm kayn siriɔs sayd ɛfɛkt (CRS, nyurolɔjik dizayd) afta yu dɔn trit yu. So, i impɔtant fɔ wach ɔspitul.
- Nɔ drayv ɔ ɔpreshɔn mashin kɔmplit wan fɔ at le 8 wiks afta yu dɔn trit yu.
- Ɔltɛm kip di ‘Patient Wallet Card’ we dɛn gi yu wit yu ɛn sho am to dɔktɔ dɛn.
- If yu gɛt ɛni sayn fɔ sho se yu gɛt di sik, lɛk fiva ɔ kɔf, tɛl yu dɔktɔ wantɛm wantɛm.
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