Yu ɔ pɔrsin wae yu sabi gɛt Nyuromaylaytis Ɔptika Spɛktrum Disɔda (NMOSD)? If na so, yu dɔktɔ go dɔn tɛl yu bɔt wan vaysin we dɛn kɔl Inebilizumab (dɛn kin kɔl am: ee-ne-bi-li-su-mab). Fɔ yɛri nem lɛk dat kin mek yu fred smɔl. Bɔt nɔ wɔri. Tide, wi go tɔk bɔt dis drɔg, wetin i de du, ɛn wetin yu nid fɔ tek tɛm wit we yu de yuz am.
So, wetin na dis drɔg we dɛn kɔl Inebilizumab?
Fɔ tɔk am simpul wan, `Inebilizumab` (brand nem: UPLIZNA) na wan spɛshal protin. insay mεdikal sayns, wi kin kכl dis `monoclonal antibody`. di men wok we i de du na fכ kכntrכl di sik kכndishכn `Neuromyelitis Optica Spectrum Disorder (NMOSD)`.
NMOSD na wan kכndyushכn we wi bכdi in imyun sistεm de atak in כwn nεv sεl dεm, spεshal wan dεm na di yay εn spεnal kכd. So wetin dis drɔg `Inebilizumab` de du na fɔ tɔch da fɔlt imyun sistɛm prɔses, stɔp am, ɛn minimiz di damej we di sik de kɔz.
Yu dɔktɔ kin gi yu dis mɛrɛsin bak fɔ ɔda tin dɛn, so if yu gɛt ɛnitin fɔ wɔri bɔt, duya aks yu dɔktɔ bɔt am.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin fɔ tek mɛrɛsin
Bifo yu bigin dis tritmɛnt, i rili impɔtant fɔ tɛl yu dɔktɔ bɔt yu kɔmplit wɛlbɔdi istri. Speshali, yu fɔ rili tɛl am bɔt dɛn pɔynt dɛn ya.
| Wetin yu nid fɔ no | Wetin mek na so i bi? (Simply) |
|---|---|
| Prɔblɛm dɛn we de na di imyun sistɛm: If yu gɛt ɔda tin dɛn we di imyun sistɛm wik. | Bikɔs dis mɛrɛsin de chenj di we aw di imyun sistɛm de wok, i impɔtant fɔ no bɔt ɛni prɔblɛm we de. |
| Infεkshכn dεm naw: If yu gεt fiva, kol, kכf, כ vayral infεkshכn lεk chikinpoks כ hεpi. | Dis mɛrɛsin de ridyus yu ebul fɔ fɛt infɛkshɔn, so wan infɛkshɔn we dɔn de kin wɔs. |
| Alɛji: If yu gɛt alɛji to Inebilizumab ɔ ɔda mɛrɛsin, it, ɔ day. | Dis impɔtant fɔ mek yu nɔ gɛt siriɔs alɛji we kin apin we dɛn gi yu di mɛrɛsin. |
| Bɛlɛ: If yu gɛt bɛlɛ, yu de tray fɔ gɛt bɛlɛ, ɔ yu de gi pikin in bɛlɛ. | dis mεdisin kin bכn di pikin we de insay di bεlε, so i rili implεnt fכ tכk bכt dis. |
Aw a go gi yu dis mɛrɛsin?
``Inebilizumab`` nɔto mɛrɛsin fɔ tek na os. na injεkshכn we dεn gi tru wan vein wit salin (intravenous infusion) . Dɛn kin gi dis tritmɛnt na ɔspitul ɔ klinik ɔnda di sɔpɔtishɔn fɔ di mɛdikal wokman dɛn we tren.
Bifo yu trit yu, dɛn kin gi yu ɔda mɛrɛsin (fɔ ɛgzampul, mɛrɛsin fɔ alɛji) fɔ ridyus di risk fɔ alɛji to di mɛrɛsin.
Bifo ɛni tritmɛnt sɛshɔn, dɛn go gi yu wan spɛshal infɔmeshɔn liflet (`MedGuide`) bɔt dis mɛrɛsin. I impɔtant fɔ tek tɛm rid ɛn ɔndastand am ɛni tɛm.
Wetin fɔ du if di doz fɔ di mɛrɛsin go ɔp?
Dɛn kin gi dis na ɔspitul, so di chans fɔ mek dis apin rili smɔl. Bɔt if yu tink se yu dɔn tek di mɛrɛsin tumɔs, tɛl di dɔktɔ dɛn wantɛm wantɛm. If nɔto dat, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital . Ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu.
Wetin a go du if a mis di de fɔ tek di mɛrɛsin?
Dɛn kin gi dis tritmɛnt bay we dɛn dɔn plan fɔ du am. So, i rili impɔtant fɔ gɛt tritmɛnt di rayt tɛm. If fɔ sɔm rizin yu nɔ ebul fɔ atɛnd di de we yu dɔn sɛtul, kɔl yu dɔktɔ ɔ ɔspitul wantɛm wantɛm ɛn mek dɛn no, so dat dɛn go ebul fɔ sɛtul fɔ di nɛks de we yu go ebul fɔ kam.
Tin dɛn we yu fɔ tek tɛm mɔ bɔt we yu de tek di mɛrɛsin
Yu dɔktɔ go wach yu gud gud wan we yu de tek dis mɛrɛsin, ɛn i impɔtant fɔ mek yu no bɔt dɛn tin ya.
- Risk fɔ gɛt infɛkshɔn: Bikɔs dis mɛrɛsin de stɔp yu imyun sistɛm to sɔm mak, yu kin gɛt mɔ risk fɔ gɛt infɛkshɔn . If yu gɛt ɛni sayn fɔ gɛt di sik lɛk fiva, kol, trot we de at, kɔf, kol simptom, ɔ pen we yu de pis, .Tɛl yu dɔktɔ wantɛm wantɛm. Nɔ de mɛn yusɛf. Tray fɔ de fa frɔm pipul dɛn we sik.
- Bɔrku alɛji: Sɔm pipul kin gɛt siriɔs alɛji fɔ dis mɛrɛsin. If yu gɛt ɛni skin rash, it, swel na yu fes, lip, ɔ yu tɔng we yu de gi yu di injɛkshɔn ɔ jɔs afta yu dɔn gi yu di injɛkshɔn, tɛl di dɔktɔ dɛn wantɛm wantɛm.
- Fɔ avɔyd fɔ gɛt bɛlɛ: If yu na uman, nɔ gɛt bɛlɛ we yu de tek dis mɛrɛsin ɛn fɔ 6 mɔnt afta yu dɔn stɔp di tritmɛnt . Dis mɛrɛsin kin ambɔg di pikin we nɔ bɔn yet bad bad wan. If yu de plan fɔ gɛt bɛlɛ, tɔk to yu dɔktɔ bɔt am.
Spɛshal Notis: Na smɔl tɛm nɔmɔ, dis mɛrɛsin kin mek sɔm pipul dɛn gɛt siriɔs, layf de pan denja infɛkshɔn na di bren (dɛn kɔl am `Progressive Multifocal Leukoencephalopathy - PML`). So, if yu gɛt ɛni prɔblɛm ɔ chenj na yu yay, tink, tɔk, waka, ɔ balans , tɛl yu dɔktɔ wantɛm wantɛm .
Di sayd ɛfɛkt dɛn we di mɛrɛsin kin gɛt
Lɛk ɛni mɛrɛsin, `Inebilizumab` kin mek sɔm sayd ɛfɛkt. Sɔm pan dɛn tin ya fɔ ripɔt wantɛm wantɛm, ɛn ɔda wan dɛn nɔ kin rili siriɔs.
| Sayd ɛfɛkt dɛm we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
|---|---|
| Siriɔs alɛji dɛn | Skin rash, it, swel na di fes, lip, tong, i nɔ izi fɔ blo. |
| Sayn dɛn we de sho se pɔsin gɛt di sik | Fiva, kol, trot we de at, kɔf, urinary tract infection. |
| Bɔku tɛm i nɔ kin siriɔs (bɔt tɛl yu dɔktɔ if i kɔntinyu fɔ de) . | |
| Di bɔdi de pen | Bak pen, joyn pen. |
| Ed de at | Di ed we nɔ kin at to we nɔ kin at. |
| Diskɔmfɔt na di say we dɛn injɛkshɔn | Pen, rɛd, ɔ swel na di say we dɛn injekt am. |
Dis list nɔ de inklud ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. Apat frɔm dat, if yu gɛt ɛnitin we nɔ kɔmɔn, tɔk to yu dɔktɔ bɔt dat.
Mɛsej we dɛn kin kɛr go na os
- `Inebilizumab` na wan spεsifi k mεdisin we dεn gi tru wan vein na כspitul fכ `Neuromyelitis Optica Spectrum Disorder (NMOSD).`
- Bifo yu bigin fɔ trit yu, tɛl yu dɔktɔ bɔt ɔl yu mɛrɛsin, alɛji, ɛn ɔda mɛrɛsin dɛn we yu de tek.
- If yu gɛt sayn dɛm fɔ infekshɔn lɛk fiva ɛn kɔf we yu de tek dis mɛrɛsin, go to dɔktɔ wantɛm wantɛm.
- Nɔ gɛt bɛlɛ we yu de trit yu ɛn fɔ 6 mɔnt afta yu dɔn stɔp am. Tɔk to yu dɔktɔ bɔt dis.
- Nɔ fred fɔ aks yu dɔktɔ fɔ mek i klarify yu bɔt ɛni prɔblɛm ɔ dawt we yu go gɛt. Dɛn de de fɔ ɛp yu.
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