Yu pikin gɛt dak pat dɛn we nɔ gɛt kɔlɔ na in skin? (Juvenile Lokalized Sklɛrodama) .

Yu dɔn ɛva notis wan say na yu pikin in bɔdi, sɔntɛm na in leg ɔ in bɛlɛ, we chenj in kɔlɔ wantɛm wantɛm ɛn fil lɛk se i at smɔl we yu tɔch am? As mama ɔ papa, yu go dɔn fred smɔl ɛn wɔri we yu si am. "Wetin na dis? Wetin mek dis apin?" Sɔntɛm yu bin dɔn tink. Nɔ fred. Bɔrku tɛm, dis kin kam wit dis sik wae wi de tɔk bɔt tide, `Juvenile Localized Scleroderma`. Pan ɔl we di nem kɔmplikt smɔl, lɛ wi tɔk bɔt am simpul wan, di we we yu go ɔndastand.

Fɔ tɔk am simpul wan, wetin na Juvenile Localized Scleroderma?

Mek wi stat wit di nem. Di wɔd `Scleroderma` na tu Grik wɔd dɛm: "sclera" min 'had', ɛn "derma" min 'skin'. I jɔs min "had skin" . "Juvenile" na bikɔs i kin apin to pikin ɛn yɔŋ pipul dɛn. "Localized" na biכs i de limited to spεshal εria dεm na di bכdi, dat na di skin, di tisu dεm we de כnda di skin, εn sכmtεm di mכsul dεm εn bon dεm. Wan ɔda nem fɔ dis na `Morphea`.

Dis na wan sik we pɔsin kin gɛt we i de fɛt insɛf . Fɔ tɔk am simpul wan, wi bɔdi in difɛns sistɛm, di imyun sistɛm, kin kray smɔl ɛn bigin fɔ atak in yon wɛlbɔdi skin. Fɔ ansa dis atak, di pikin in skin kin bigin fɔ swel, ɔ i kin inflam.

dis swel de mek di kכnektiv tisu sεl dεm na di skin de prodyuz tu mכch wan protin we dεn kכl `kolagen` . `Kכlagen` na sכmtin we de gi trεnk εn fכm fכ plεnti tisu dεm na di bכdi, inklud wi skin. Bɔt we i bɔku tumɔs, lɛk skata afta pɔsin wund, di skin kin tik ɛn i kin at. Wi kin kɔl dis bak `fibrosis` . Yu kin si dis na yu pikin in bɔdi as wan say we at ɛn we nɔ gɛt kɔlɔ lɛk dis.

Wae na de men kayn dis sik?

Bɔku men kayn dɛn de we dɛn kɔl Localized Scleroderma. Ɛni kayn sik kin gɛt difrɛn sayn dɛn smɔl. Lɛ wi tek wan luk pan wetin dɛn bi.

Wan spɛshal kayn: "En coup de sabre".

Dis na wan sabtayp fɔ `Linear Morphea`. we pikin gεt dεn spat dεm ya we lεk strεk na in fes כ in skel, wi kin kכl di kכndyushכn "en coup de sabre." Dis na Frɛnch wɔd we min "lɛk se dɛn kɔt am wit sɔd." Na bikɔs i tan lɛk layn we dɔn chenj in kɔlɔ, ɛn sɔntɛnde i kin sink dɔŋ di fɔɛd.

Wetin na di sayn dɛm we di pikin de sho?

Dɛn sayn ya kin chenj as tɛm de go. Dɛn kin bigin wit smɔl say we tan lɛk brus.

• di εli stej: wan rεd כ pepul pat כ plek de sho pan di pikin in skin. Na dis stej, di skin nɔ kin tranga ɛn i kin fil lɛk se i nɔmal.
• Midul stej: As tɛm de go, di say kin at, i kin swel, ɛn i kin big smɔl. Di midul pan di spat kin wayt ɔ yɔlɔ, i kin tan lɛk waks, ɛn i kin shayn. I kin bi se pink ɔ pepul halo de rawnd am.
• Leta: As tɛm de go, afta di inflamɛns dɔn stɔp, di skin we afɛkt kin tɔn brawn (hyperpigmented) ɔ wayt (hypopigmented). Sɔntɛnde, di skin kin tan bak.

If i siriɔs, dɛn spat ya kin afɛkt di dip tisu dɛm, we kin mek yu gɛt sɔm sayn dɛm lɛk:

• Pen ɛn nɔ fil fayn.
• I nɔ ebul fɔ muv di an ɛn di mɔsul dɛn fayn fayn wan.
• If i apin na yu fes, i kin mek yu gɛt prɔblɛm wit yu tit ɔ yu yay.

Wetin mek pikin dɛn kin gɛt dis?

Fɔ tɔk tru, dɛn nɔ dɔn fɛn di rayt tin we kin mek dis apin yet , bɔt dɔktɔ dɛn biliv se i kin bi se na sɔm tin dɛn we kin mek i apin.

Di men tin na, lɛk aw wi bin dɔn tɔk, di we aw di imyun sistɛm de wok . Apat frɔm dat, dɛn kin tink se sɔm tin dɛn we de apin na di say we dɛn de, fɔ ɛgzampul, wan infɛkshɔn, wan trauma na di skin, ɛn ɔda tin dɛn na dɛn kin mek dis sik. Bɔt dis nɔto sik we pɔsin kin pas.

Aw dɔktɔ kin no bɔt dis?

We yu kɛr yu pikin go to dɔktɔ, di fɔs tin we i go du na fɔ tek tɛm chɛk di pikin ɛn aks yu bɔt di sayn dɛn we i gɛt. Bɔku tɛm yu kin gɛs if dis na `Localized Scleroderma` bay we yu luk di kayn spat dɛm na di skin.

Fɔ kɔnfirm di diagnosis, yu kin nid bak fɔ du tɛst lɛk dɛn wan ya:

• Skin Biopsy: Dis na fɔ tek wan rili smɔl pat pan di skin we gɛt di sik ɛn chɛk am ɔnda maykroskɔp. Dis kin mek wi ebul fɔ si di chenj dɛn we dɔn apin na di sɛl dɛn na di skin.
• MRI skan (Magnetic Resonance Imaging): Dis kin si aw dip di skin lesion dɔn go ɛn if di mɔsul ɔ bon dɛn we de ɔnda di skin dɔn afɛkt.

Wetin na di tritmɛnt dɛm fɔ dis?

Di men gol fɔ tritmɛnt na fɔ kɔntrol di swɛlin (inflammation) na di skin, stɔp di sik fɔ skata mɔ, ɛn ridyus di skata (fibrosis) na di skin. Di tritmɛnt dipen pan di kayn sik ɛn aw i siriɔs na di pikin.

Bɔku tritmɛnt dɛn de we yu kin pik:

• Kɔtikosterɔyd: Dɛn kin gi dɛn tin ya as krim we dɛn kin put pan pɔsin, tablɛt we dɛn kin tek bay mɔt, ɔ injɛkshɔn we dɛn kin put insay in bɛlɛ.
• Ɔda kayn krim fɔ di skin: Krim dɛn we gɛt mɛrɛsin lɛk `Calcipotriene`, `tacrolimus`, `pimecrolimus`.
• Immunomodulating agents: If di sik rili bad, dɛn kin gi drɔgs lɛk `Methotrexate` ɔ `Mycophenolate Mofetil` fɔ kɔntrol di ɔva aktiviti na di imyun sistɛm.
• fyzikal tεrapi εn mכsεj: dεn tin ya rili imכtant fכ mek di mכsul dεm strכng εn fכ mεnten gud joyn mobiliti, spεshal wan pan kכndishכn dεm lεk `Linear Morphea`.
• Layt tɛrapi (Fototɛrapi): .Dis tritmɛnt de yuz ɔltra vayolɛt rayt fɔ mek di dak say dɛn na di skin sof. Bɔt dis kin mek yu skin ol ɔ kansa na yu skin, so di dɔktɔ go tek tɛm ɛksplen dis.
• Plastik ɔpreshɔn: We di sik nɔ de wok atɔl, dɛn kin du ɔpreshɔn fɔ mek di skin luk bak.

Aw yu go ɛp yu pikin as mama ɔ papa?

Apat frɔm di mɛrɛsin, bɔku tin dɛn de we yu kin du na os fɔ protɛkt yu pikin in skin.

• Nɔ yuz sop ɛn ditajɛn we at fɔ yuz: Prɔdak dɛn we gɛt ebi sɛnt kin mek yu pikin in skin dray ɛn it mɔ ɛn mɔ.
• Yuz mɔstizayza we fayn fɔ yu skin: Put gud mɔstizayza we fayn fɔ di skin we gɛt sɛnsitiv skin bɔku tɛm insay di de.
• Wat wit wata we wam: Nɔ was wata we wam ɔ kol pasmak.
• Protɛkt yusɛf frɔm di san: Mek shɔ se yu put gud tin fɔ protɛkt yusɛf frɔm di san we yu de go na do.
• Mek di ples wam na yu os: If di briz dray, if yu yuz humidifier kin ɛp fɔ mek yu skin nɔ dray.

Aw dis tin kin afɛkt di pikin in layf?

Pan ɔl we dis kin mek yu fred, di tru tin na dat pikin dɛn we gɛt Juvenile Localized Scleroderma kin liv kɔmplit nɔmal layf .

No tin nɔ de we de ambɔg di pikin fɔ go skul, ple wit in padi dɛn, ple spɔt, ɛn tek pat pan famili aktiviti dɛn lɛk aw i kin du. Infakt, ɛksesaiz na fayn tin bikɔs i de mek di mɔsul dɛn strɔng. Nɔ nid nɔ de fɔ gɛt spɛshal it ɛn drink, jɔs fɔ gi yu gud it we balans, na in go du fɔ yu.

Sɔntɛnde, di spat dɛm na di skin kin mek di pikin fil fayn smɔl ɛn shem na sosayti. If na so i bi, yu wok as mama ɔ papa na fɔ tɔk to di pikin wit lɔv, mek i ɔndastand se dis nɔto in fɔlt, ɛn mek i gɛt kɔnfidɛns pan insɛf.