Yu pikin dɔn stɔp fɔ tɔk wantɛm wantɛm? Yu tink se na wan sik we dɛn kɔl Landau-Kleffner Syndrome?

Yu pikin bin de rɔn rawnd ɛn ple ɛn tɔk fayn fayn wan. Bɔt yu tink se di we aw i de tɔk dɔn go dɔŋ wantɛm wantɛm? Ɔ yu dɔn notis se i nɔ kin izi fɔ am fɔ ɔndastand wetin yu de tɔk? Sɔntɛnde, i kin gɛt sik we de mek i sik? If yu pikin gɛt wan ɔ mɔ pan dɛn tin ya, yu nid fɔ du sɔm risach. Bikɔs dis kin bi bikɔs ɔf wan sik we nɔ kin apin so ɔltɛm we dɛn kɔl Landau-Kleffner Syndrome (LKS) . Nɔ wɔri, lɛ wi tɔk bɔt dis ditayli.

Wetin na di sik we dɛn kɔl Landau-Kleffner Syndrome?

Fɔ tɔk am simpul wan, Landau-Kleffner Syndrome (LKS) na wan sik we kin afɛkt wi pikin dɛn bren. di men tin we de insay dis na dat di pikin in ebul fכ tכk εn כndastand langwej (we wi kכl na mεdikal sayns (Aphasia) ) de dכn sכmtεm כ wan wan. Dɔn bak, bɔku pan di pikin dɛn we gɛt dis sik kin gɛt sik we dɛn kɔl seizure, we kin apin we dɛn de slip.

Tink bɔt am, bɔku smɔl smɔl ilɛktrik mɛsej dɛn de we de go bak ɛn kam insay wi bren. Na dɛn ilɛktrik signal ya de ɛp wi fɔ wok fayn we wi de tɔk, yɛri, tink, ɛn du ɔltin. Pikin dεm we gεt LKS gεt sכm abnכmaliti na dis ilektrikal signal sistεm na dεn bren. Dis na di rizin we mek i nɔ kin izi fɔ dɛn fɔ ɔndastand langwej ɛn fɔ tɔk.

Udat dis LKS sityueshɔn kin afɛkt mɔ?

Dis sik we dɛn kɔl LKS, dɛn kin si am pan pikin dɛn we ol bitwin 3 ɛn 8. Bɔt sɔntɛnde i kin afɛkt pikin dɛn we ol lɛk 2 ia, ɛn pikin dɛn we dɔn big, lɛk yɔŋ pipul dɛn. Dɛn kin tɔk bak se bɔy pikin dɛn kin gɛt dis sik smɔl pas gyal pikin dɛn.

Aw LKS de afɛkt mi pikin?

If yu pikin gɛt LKS, i kin wantɛm wantɛm ɔ smɔl smɔl i nɔ kin ebul fɔ tɔk igen. I nɔ kin izi bak fɔ dɛn fɔ ɔndastand wetin yu de tɔk ɛn wetin ɔda pipul dɛn de tɔk. Dis na wetin wi kɔl (aphasia) .

Imajin, yu pikin bin de rid poem, siŋ siŋ, ɛn tɔk to yu nɔ stɔp. Bɔt naw i nɔ de tɔk wan wɔd, ɔ i jɔs de luk yu we yu de tɔk, lɛk se i nɔ ɔndastand ɛnitin, aw i at fɔ bi ɔnɛs?

Na lɛk 70% pan di pikin dɛn we gɛt LKS kin gɛt ɛpileptik sik, ɔ kɔnvulshɔn, we dɛn de slip. Sɔm pikin dɛn kin gɛt dɛn kayn sik ya bak insay di de.

Yu tink se di sik we dɛn kɔl Landau-Kleffner syndrome na di sem wit ɔtizm?

Nɔ, dis na mistek we bɔku pipul dɛn kin tink. Landau-Kleffner Syndrome nɔto ɔtizm. Bɔt sɔntɛnde, di sayn dɛm fɔ dɛn tu kin fiba, so i kin at fɔ no di difrɛns. Dɔktɔ dɛn kin no di tu sik dɛn bay we dɛn kin du EEG tɛst (ilɛktro ɛnsɛfalogram) we di pikin wek ɛn slip.

Yu tink se ɔda nem dɛn de fɔ LKS?

Yes, sɔmtɛm dɔktɔ dɛn kin kɔl dis sik bak "Acquired Aphasia with Epilepsy." Dat min se, i min sɔntin lɛk "tɔk prɔblɛm we kin apin wit ɛpilepshi ɛn we pɔsin kin gɛt leta."

Aw kɔmɔn dis LKS kɔndishɔn?

Landau-Kleffner Syndrome na wan sik wae nɔr kin bɔrku. I nɔ kin izi fɔ mek di wan dɛn we de du risach tɔk klia wan ɔmɔs pipul dɛn rili gɛt am. Na dat rare.

Wetin kin mek pɔsin gɛt di sik we dɛn kɔl Landau-Kleffner?

Bɔrku tɛm, bɔrku pikin dɛm wae gɛt LKS nɔr kin ebul fɔ fɛn wan patikyula kɔz fɔ dɛn sik. Dis na di trut. So nɔ tink tumɔs bɔt am ɔ blem yusɛf.

כltu, lεk 20% pan di pikin dεm we gεt LKS gεt sכm chenj dεm (mכtεshכn) na dεn jin dεm. spεshal wan, dεn fכnshכn se chenj dεm na wan jin we dεn kכl (GRIN2A) de riliyt to dis. Dɛn chenj ya we kin apin na di jɛnɛtiks kin kɔmɔt frɔm wan pan di mama ɛn papa. Bɔt nɔto ɔlman we gɛt dis jɛnɛtik chenj go gɛt LKS. Sɔm pikin dɛn kin gɛt chenj dɛn bak na ɔda jin dɛn. Sɔntɛnde, di pikin kin gɛt dis jin muteshon fɔ di fɔs tɛm (dɛn kin kɔl dis de novo mutation ) we nɔbɔdi nɔ de na di famili.

Risach pipul dɛn biliv se dɛn chenj ya we de apin na di jɛnɛtiks kin mek di ilɛktrik signal sistɛm na di bren nɔ wok fayn, ɛn dis kin mek dɛn signal dɛn de nɔ wok fayn. Dɛn abnɔmal signal ya na dɛn kin mek di simptom dɛm fɔ LKS.

Dɛn de du risach bak fɔ no if sɔntin de bitwin LKS ɛn wi bɔdi in imyun sistɛm . dεn biliv se dis kכndyushכn kin kכz fכ wan כtoimyun rεspכ ns we di imyun sistεm in כwn sεl dεm de atak di bכdi in כwn sεl dεm.

Wetin na di sayn dɛm wae de sho se yu gɛt Landau-Kleffner syndrome?

Nɔto ɔl pikin dɛn we gɛt LKS de sho di sem sik. I kin difrɛn frɔm wan pikin to ɔda pikin.

If yu pikin gɛt LKS, yu kin notis tin dɛn lɛk:

• Fɔ fil lɛk se i nɔ ebul fɔ yɛri yu we yu de tɔk: Sɔntɛm i nɔ go ansa we yu de tɔk to am. I tan lɛk se i nɔ yɛri yu.
• I nɔ izi fɔ ɔndastand wetin yu ɛn ɔda pipul dɛn se: Sɔntɛm yu nɔ go ebul fɔ ɔndastand ivin simpul instrɔkshɔn dɛn.
• I nɔ de tɔk bɛtɛ ɔ i nɔ de tɔk igen: Pikin we bin de tɔk fayn trade nɔ kin tɔk atɔl igen, ɔ i kin jɔs ebul fɔ tɔk sɔm wɔd dɛn wit big prɔblɛm.
• Nyu divɛlɔpmɛnt delay: Nɔ ebul fɔ du tin di we we fit di ej.
• Yu kin chenj yu maynd ɔ yu nɔ kin ebul fɔ lan: Yu nɔ kin lɛk fɔ du skul wok ɛn i nɔ kin izi fɔ yu fɔ mɛmba tin dɛn.
• Di chenj we i de biev: Di pikin kin fil bad fɔ dɛn langwej prɔblɛm ya, we kin mek i gɛtPrɔblɛm fɔ bihayvya lɛk fɔ nɔr de rɛst, nɔr ebul fɔ kɔnsɛntret (dis kin tan lɛk di sayn dɛm fɔ Atɛnshɔn-Dɛfisit Hyperactivity Disorder - ADHD), vɛks, ɛn fidget kin apin.

Imajin aw smɔl pikin kin fil se i nɔ ebul fɔ du natin we i nɔ ebul fɔ tɛl in mama ɛn papa wetin i want fɔ tɔk, we i nɔ ɔndastand wetin dɛn de tɔk? Dat nɔr ebul fɔ du natin ɛn fɔ fil bad na in kin kɔmɔt sɔmtɛm pan dis kayn bihayvya.

Pikin dɛn we gɛt LKS mɔ:

• Sɔntɛm yu nɔ go ebul fɔ tɔk.
• Di chans de fɔ mek yu gɛt sik dɛn we de mek yu sik.
• I gɛt bak chans fɔ gɛt prɔblɛm wit aw pɔsin de biev (lɛk Attention-Deficit Hyperactivity Disorder - ADHD) .

Aw dɔktɔ dɛn kin no se i gɛt di sik we dɛn kɔl Landau-Kleffner syndrome?

כltu, bifo LKS bigin, di pikin in divεlכpmεnt, lεk fכ tכk εn waka, na nכmal tin fכ dεn ej. Yu go notis se dɛn chenj di we aw dɛn de tɔk wantɛm wantɛm. Ɔ, yu dɔktɔ kin notis dɛn sayn ya we yu kɛr yu pikin go to wɛl pikin.

LKS kin tranga smɔl fɔ no, so i impɔtant fɔ tɛl yu dɔktɔ bɔt ɛni chenj we yu notis pan yu pikin in bihayvya, ivin di smɔl wan dɛn.

Us tɛst dɛn dɔktɔ dɛn kin yuz fɔ no if pɔsin gɛt LKS?

Yu pikin in dɔktɔ kin tɛl yu fɔ du dɛn tɛst ya:

• Ilɛktroɛnsɛfalogram (EEG): Dis de mɛzhɔ di ilɛktrik wok we yu pikin in bren de du. Dis na tɛst we nɔ de mek pɔsin fil pen. I de mek di dɔktɔ si aw yu pikin in bren de wok.
• Dɛn kin du dis (EEG) tɛst tu tɛm, wan tɛm we di pikin de slip ɛn wan tɛm we dɛn wek . We wi go slip, wi bren wef dɛn kin slo smɔl smɔl. Bɔt we wi go insay dip slip (REM slip phase), di bren wev dɛn kin wok bak. כltu, di (EEG) rεkכd dεm fכ pikin dεm we gεt LKS sho se abnכmal bren wev aktiviti de kכntinyu tru כl di stej dεm we dεn de slip.
• Odiometry / Hearing test: Dɛn kin du dis tɛst fɔ si if di pikin ebul fɔ yɛri. Sɔntɛnde, i kin nid bak fɔ chɛk if pɔsin we nɔ de yɛri fayn na in de mek pɔsin gɛt prɔblɛm wit in langwej.
• MRI fɔ dɛn bren: Dis kin ɛp fɔ mek shɔ se no ɔda siriɔs sik nɔ de, lɛk we dɛn gɛt tumbu na dɛn bren.
• Evalueshɔn bay sayɛnsman: Dis impɔtant fɔ gɛt asɛsmɛnt fɔ di pikin in bihayvya, in sɛns, ɛn aw i ebul fɔ lan.

Aw dɛn kin trit di sik we dɛn kɔl Landau-Kleffner syndrome?

We dɛn de trit pikin dɛn we gɛt LKS, di dɔktɔ dɛn kin yuz mɛrɛsin mɔ, di tritmɛnt fɔ tɔk, ɛn tritmɛnt fɔ di we aw dɛn de biev . Di kwik we dɛn bigin fɔ tɔk tɛrapi, na di mɔ di pikin in chans fɔ gɛt in langwej bak.Sɔntɛnde, dɔktɔ dɛn kin tɛl yu bak fɔ it spɛshal it (ketogenic diet) fɔ kɔntrol di sik we dɛn kɔl epilepsy.

Us mɛrɛsin dɛn kin gi fɔ LKS?

Yu dɔktɔ kin gi yu mɛrɛsin dɛn lɛk:

• Antikonvulsant mεdikeshכn dεm: dεn kin yus dεm fכ kכntrכl di sik we de mek yu sik.
• Kɔtikosterɔyd: Dɛn wan ya de wok bay we dɛn de ridyus di wok we di imyun sistɛm de du ɛn kɔntrol di tin dɛn lɛk we di bren de swel.

Dɛn kin du ɔpreshɔn fɔ LKS?

Na smɔl tɛm nɔmɔ, dɔktɔ dɛn kin du ɔpreshɔn pan in bren we dɛn kɔl Multiple Subpial Transections . Bɔt i nɔ klia yet ɔmɔs bɛnifit dɛn go pruv frɔm dis ɔpreshɔn. So, i impɔtant fɔ tek tɛm chɛk di gud ɛn bad tin dɛn we di ɔpreshɔn gɛt bifo yu du am.

Aw kwik mi pikin go wɛl afta i dɔn bigin fɔ trit am?

Nɔbɔdi nɔ de "dis na di bɛst we" fɔ trit LKS. Yu pikin kin bɛtɛ smɔl smɔl wit di tritmɛnt fɔ tɔk ɛn ɔda tritmɛnt dɛn. Bɔt sɔntɛnde, yu pikin nɔ kin du di tritmɛnt fayn. Yu dɔktɔ go de wach yu pikin in kɔndishɔn ɔltɛm ɛn ajɔst di tritmɛnt plan as nid de.

Wetin a go du fɔ ridyus di risk fɔ mek mi pikin gɛt Landau-Kleffner syndrome?

LKS na wan jenɛtik kɔndishɔn. Dis min se natin nɔr de fɔ rili du fɔ mek yu nɔr gɛt Landau-Kleffner Syndrome ɔr fɔ ridyus yu risk fɔ gɛt am. Nɔto yu fɔlt.

Yu tink se dɛn kin mɛn di sik we dɛn kɔl Landau-Kleffner syndrome kpatakpata?

Sɔm pikin dɛn kin ebul fɔ tɔk ɛn ɔndastand langwej bak. Ɔda wan dɛn kin lan sɔm langwej dɛn bak. Pikin dɛm wae bigin fɔ gɛt di sik afta dɛn ol 6 ia ɛn wae bigin fɔ tɔk tɛrapi kwik kin gɛt di bɛst chans fɔ wɛl. Bɔku tɛm, di sik kin stɔp we pɔsin dɔn big.

Wetin a fɔ ɛkspɛkt if mi pikin gɛt LKS?

I kin tek lɔng tɛm fɔ mek yu pikin wɛl frɔm LKS. Yu go si sɔm impɔtant tin dɛn as tɛm de go. Dɔn bak, sɔntɛnde, di langwej skil kin bɛtɛ ɛn afta dat i kin go dɔŋ bak (dɛn kin kɔl dis rilaps) . Yu dɔktɔ kin tɛl yu fɔ lan spɛshal ɛdyukeshɔn klas ɔ fɔ lan sayn langwej , i go dipen pan wetin yu pikin nid.

Dis waka at fɔ waka. Bɔt nɔto yu wangren de. Dɔktɔ dɛn, pipul dɛn we de mɛn pipul dɛn we de tɔk, yu famili, ɛn padi dɛn ɔl de fɔ ɛp yu ɛn yu pikin. Di tin we impɔtant pas ɔl na fɔ trit yu pikin wit lɔv ɛn peshɛnt, ɛn yu nɔ fɔ lɛf fɔ gɛt op.

Aw a go tek kia ɔf mi pikin wit LKS?

Fɔ fala yu dɔktɔ in instrɔkshɔn dɛn gud gud wan fɔ mek yu pikin gɛt wɛlbɔdi. If yu pikin gɛt ɛni nyu sayn, mek yu dɔktɔ no wantɛm wantɛm. Dis we ya, dɛn kin gɛt di tritmɛnt we dɛn nid wantɛm wantɛm.

Landau-Kleffner Syndrome kin mek pikin dɛm we nɔmal fɔ divɛlɔp nɔr kin ebul fɔ tɔk ɛn ɔndastand langwej. Pikin dεm we gεt LKS kin gεt abnכmal bren aktiviti we dεn de slip εn bכku tεm dεn kin gεt sik. Dɔktɔ dɛn kin trit LKS wit mɛrɛsin ɛn tɔk tɛrapi. As tɛm de go ɛn if dɛn trit pikin dɛn di rayt we, dɛn kin ebul fɔ lan dɛn langwej bak.

Impɔtant tin dɛn fɔ mɛmba (Take-Home Message) .

• LKS na wan sik we nɔ kin apin so ɔltɛm bɔt i kin rili siriɔs: i kin mek pikin nɔ ebul fɔ tɔk ɛn ɔndastand langwej igen.
• Di sik kin kam pan pɔsin we yu de slip: Dis na di men tin we de apin to LKS.
• Nɔto ɔltɛm dɛn kin no di tin we kin mek i apin: Pan ɔl we bɔku tin dɛn we kin mek pɔsin gɛt jɛnɛtiks kin ɛp fɔ du sɔntin, i nɔ kin gɛt ɛni patikyula tin bak we kin mek i apin.
• Nɔr kɔnfyus am wit ɔtizm: Dɛn kin difrɛns pan dɛn tu tru (EEG) tɛst.
• Fɔ no di sik kwik kwik wan ɛn fɔ trit am rili impɔtant: di kwik we aw dɛn bigin fɔ tɔk, na di mɔ di rizɔlt go bɛtɛ.
• Di we aw dɛn kin wɛl kin difrɛn frɔm wan pikin to ɔda pikin: sɔm pikin dɛn kin wɛl ɔl, ɔda wan dɛn kin wɛl smɔl. Fɔ peshɛnt ɛn fɔ kɔntinyu fɔ sɔpɔt am rili impɔtant.
• Nɔto yu wangren de: Mɛdikal advays, famili sɔpɔt, ɛn lɔv na big tin fɔ mek pikin ebul fɔ win dis prɔblɛm.

A op se dis infɔmeshɔn go ɛp yu. If yu pikin gɛt ɛni wan pan dɛn sik ya, duya go to dɔktɔ we sabi du di wok kwik kwik wan.

` Landau-Kleffner Syndrome, LKS, epilepsy, difεlεns fכ tכk, langwej prכblεm, pikin dεm sik, bren ilektrikal aktiviti, EEG