Sɔntɛnde, yu dɔktɔ kin gi yu mɛrɛsin we gɛt nem we yu ɔ pɔsin na yu famili nɔ no smɔl. Lonafarnib na wan pan dɛn kayn mɛrɛsin ya we dɛn kin gi fɔ rili spɛshal kɔndishɔn. So tide, lɛ wi tɔk bɔt dis mɛrɛsin wit padi ɛn simpul we, aw fɔ yuz am, ɛn wetin yu nid fɔ tek tɛm wit.
Wetin na Lonafarnib rili?
Fɔ tɔk am simpul wan, Lonafarnib na wan mɛrɛsin we dɛn kin yuz fɔ trit rili rare jenɛtik kɔndishɔn lɛk Hutchinson-Gilford progeria syndrome. I kin kam bak ɔnda di brand nem Zokinvy.
De impɔtant tin na dat dis nɔr de mɛn dis sik. Bɔt i kin ɛp fɔ kɔntrol di tin dɛn we de apin ɛn di sayn dɛn we di sik kin gɛt ɛn ɛp di pɔsin fɔ liv bɛtɛ layf.
Yu dɔktɔ kin gi yu dis mɛrɛsin bak fɔ ɔda sik dɛn, so if yu gɛt ɛni kwɛstyɔn, aks yu dɔktɔ bɔt am.
Tin dɛn we yu fɔ tɛl yu dɔktɔ bifo yu tek mɛrɛsin
Bifo yu bigin dis mɛrɛsin, i rili impɔtant fɔ tɛl yu dɔktɔ bɔt yu kɔmplit wɛlbɔdi istri. Ɛspɛshali if yu gɛt ɛni wan pan di sik dɛn we de dɔŋ ya, mek shɔ se yu tɛl yu dɔktɔ.
- Ay sik: If yu gɛt ɛni sik we gɛt fɔ du wit yu yay.
- di chenj dεm we de apin na di minral lεvεl dεm: If di tεst dεm we dεn bin dכn du bifo dεn fכnshכn lכw כ hכy lεvεl fכ minral dεm (ilεktrolayt) lεk kalsiכm, potashכm, εn sכdiכm na di bכdi.
- Kidni prɔblɛm: Ɛni mɛrɛsin we gɛt fɔ du wit di kidni.
- Liva sik: Ɛni mɛrɛsin we gɛt fɔ du wit di liva.
- Alɛji: If yu gɛt ɛni alɛji to dis mɛrɛsin, Lonafarnib, ɔda mɛrɛsin, it, ɔ day.
- Bɛlɛ: If yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛ.
- Fɔ gi pikin in bɛlɛ: If yu na mama we de gi pikin in bɛlɛ.
Aw ɛksaktɔli a kin yuz dis mɛrɛsin?
Fɔ mek yu gɛt di bɛst pan di mɛrɛsin, i impɔtant fɔ tek am di rayt we.
- Dis mɛrɛsin fɔ tek wit it .
- Swɛla di kapsul ɔl wit wan glas wata. Nɔ chew, krɔs, ɔ brok di kapsul.
- If i nɔ izi fɔ yu fɔ swɛla:If yu ɔ pikin gɛt prɔblɛm fɔ swɛla di kapsul wantɛm wantɛm, yu kin tek tɛm opin am ɛn miks di mɛrɛsin insay wit 5-10 ml spɛshal wata we dɛn kɔl Ora Blend SF, Ora-Plus, ɔrɛnj jus, ɔ 1-2 ti spɔnj apul sos.
- Wan rili impɔtant wɔnin: Nɔ tek dis mɛrɛsin wit grep ɔrɛnj ɔ di jus fɔ Sɛvil ɔrɛnj, we sɔm pipul dɛn kin kɔl bita ɔrɛnj.
- If dɛn miks di mɛrɛsin wit ɛnitin, dɛn fɔ drink di miksɔp insay 10 minit .
- Kɔntinyu fɔ tek di mɛrɛsin te di dɔktɔ tɛl yu fɔ stɔp.
If yu gi am to smɔl pikin dɛn...
Dɔktɔ dɛn kin tɔk bak se dis mɛrɛsin fɔ pikin dɛn we dɔn pas 12 mɔnt pan sɔm spɛshal kes dɛn. Bɔt dɛn kin du am ɔnda spɛshal tin dɛn we dɛn fɔ tek tɛm wit. So, if yu de gi pikin dis mɛrɛsin, tek tɛm tɔk to yu dɔktɔ ɛn gɛt advays.
Wetin yu fɔ du if yu mis wan doz ɔ yu tek tumɔs?
If yu mis wan doz fɔ mɛrɛsin
If yu mis wan doz, tek am as yu mɛmba if i pas 8 awa te yu nɛks doz. Bɔt if i nɔ rich 8 awa te yu tek di nɛks doz, skip di doz we yu mis ɛn tek yu nɛks doz di tɛm we yu dɔn sɛtul. Nɔ ɛva tek tu dos di sem tɛm.
Ovados fɔ yuz am
If yu tink se yu dɔn tek dis mɛrɛsin tumɔs, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital wantɛm wantɛm , ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu.
Tin dɛn we yu fɔ mɛmba we yu de tek mɛrɛsin
- Ɔda mɛrɛsin dɛn: Dis mɛrɛsin kin wok wit bɔku ɔda mɛrɛsin dɛn, so gi yu dɔktɔ wan kɔmplit list fɔ ɔl di ɔda mɛrɛsin dɛn we yu de tek (inklud vaytamɛn dɛn, ɛbul mɛrɛsin dɛn, ɛn sɔpɔtmɛnt dɛn).
- Protekshɔn frɔm infɛkshɔn: If yu tek dis mɛrɛsin, i kin mek yu bɔdi nɔ gɛt bɛtɛ wɛlbɔdi smɔl. So, if yu gɛt sɔm kayn sik lɛk fiva, kol, trot we de at, ɔ kɔf, nɔr de mɛn yusɛf ɛn tɛl yu dɔktɔ. Tray fɔ de fa frɔm pipul dɛn we sik as yu ebul.
- Vision Care: Yu dɔktɔ kin want fɔ chɛk yu vision bifo yu bigin fɔ tek dis mɛrɛsin ɛn we yu de tek am. Tɛl yu dɔktɔ wantɛm wantɛm if yu notis ɛni chenj na yu yay, lɛk we yu nɔ de si fayn.
- We uman gɛt bɛlɛ ɛn we i bɔn pikin:Dis rili impɔtant. Nɔ gɛt bɛlɛ we yu de tek dis mɛrɛsin. I kin rili ambɔg di pikin we nɔ bɔn yet. If yu de plan fɔ bɔn pikin, tɔk to yu dɔktɔ bɔt am bifo yu bigin dis mɛrɛsin. Dis mɛrɛsin kin afɛkt bak di we aw man ɛn uman kin bɔn pikin. Tɔk to yu dɔktɔ bɔt dis bak.
Sɔm sayd ɛfɛkt dɛn we pɔsin kin gɛt
Lɛk ɛni mɛrɛsin, Lonafarnib kin mek sɔm sayd ɛfɛkt. Sɔm pan dɛn kin siriɔs ɛn dɛn fɔ ripɔt dɛn wantɛm wantɛm.
| Tayp fɔ di sayd ɛfɛkt | Ficha dɛn fɔ luk fɔ |
|---|---|
| Sayd ɛfɛkt dɛn we dɛn fɔ ripɔt to di dɔktɔ wantɛm wantɛm | |
| Liva we dɔn pwɛl | di yay ɔ di skin de yɔlɔ, di urine we de dak yɔlɔ/brawn, pen na di ɔp rayt say na di bɛlɛ, i nɔ de want fɔ it. |
| Kidni dɛn we dɔn pwɛl | I nɔ izi fɔ pis ɔ chenj di urine we de kɔmɔt. |
| Di kɔndishɔn dɛn we kin mek pɔsin gɛt sik | Fiva, kol, kɔf, trot we de at. |
| di chenj dεm we de na di potashכm lεvεl na di bכdi | Hat de bit fast ɔ nɔ de bit ɔltɛm, yu chɛst de pen, yu mɔsul dɛn de shek shek, yu de fil lɛk yu ed layt. |
| Anemia we nɔ gɛt bɛtɛ blɔd | I nɔ kin izi fɔ blo, yu kin gɛt blay, yu kin taya pasmak, yu kin fɔdɔm. |
| Vishɔn kin chenj | Blɔr vishɔn ɔ ɛni ɔda chenj. |
| I nɔ kin want fɔ it ɛn i nɔ kin gɛt bɔku bɔku bɔdi | I nɔ kin want fɔ it ɔ i nɔ kin gɛt bɔku bɔku bɔdi we i nɔ bin de ɛkspɛkt. |
| Sayd ɛfɛkt dɛn we nɔ kin siriɔs, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Prɔblɛm dɛn we de na di dijestiv sistɛm | Bɛlɛ de at, nɔs, vɔmit, dayarɛa. |
| Ɔda prɔblɛm dɛn we kin apin | Kɔf, ed pen, jɔyn pen, mɔsul pen, taya. |
Dis list nɔ kin gɛt ɔl di sayd ɛfɛkt dɛn. If yu gɛt ɛnitin we nɔ kɔmɔn, tɔk to yu dɔktɔ bɔt am.
Aw yu kin kip mɛrɛsin?
- Kip am sef, usay pikin ɛn animal dɛn we yu lɛk nɔ go ebul fɔ rich.
- Stɔr na rum tɛmpracha (bitwin 20-25 digri sɛlshiɔs). Protɛkt frɔm ɔt ɛn mɔs we pasmak.
Mɛsej we dɛn kin kɛr go na os
- Lonafarnib na mɛrɛsin we dɛn kin yuz fɔ rili spɛshal mɛrɛsin. Ɔltɛm tek am jɔs lɛk aw yu dɔktɔ tɛl yu fɔ tek am, insay di kɔrɛkt doz.
- Bifo yu bigin fɔ tek di mɛrɛsin, tɛl yu dɔktɔ bɔt ɛni ɔda sik we yu gɛt ɛn ɛni ɔda mɛrɛsin we yu de tek.
- Go to dɔktɔ wantɛm wantɛm if yu gɛt ɛni siriɔs sayd ɛfɛkt, lɛk we yu de si chenj, fiva, ɔ sayn dɛn we de sho se yu liva dɔn pwɛl.
- Nɔ gɛt bɛlɛ we yu de tek dis mɛrɛsin. Tɔk to yu dɔktɔ bɔt dis.
- Dis mɛrɛsin na fɔ yu nɔmɔ. Nɔ ɛva sheb am wit ɔda pipul dɛn.
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