Yu dɔn ɛva notis ɔ yɛri se sɔm pipul dɛn, mɔ yɔŋ pikin dɛn, gɛt tɔŋ we big pas dɛn mɔt? Sɔntɛnde yu kin si se di tɔŋ de kɔmɔt na di mɔt. Dis na wetin wi kin kɔl `Macroglossia` na mɛdikal sayɛns. Di nem kin tan lɛk se na big tin, bɔt nɔ fred. Tide wi go tɔk bɔt dis insay wan simpul we we yu go ɔndastand.

So, wetin rili na ‘Macroglossia’? Aw yu no?

Fɔ tɔk am simpul wan, `Macroglossia` na abnɔmal big tɔŋ we yu kɔmpia am wit di sayz fɔ di mɔt. I kin mɔs bi pan yɔŋ pikin dɛm, bɔt i kin apin bak pan big pipul dɛm. Bɔku tɛm, na tin we dɛn bɔn wit. dat min se i de sho se i gεt sכm jεnεtik kכndishכn dεm lεk `Beckwith-Wiedemann syndrome` כ `Down syndrome`. Dɔn bak, `Macroglossia` kin apin bikɔs ɔf sɔm kayn kansa, siriɔs infɛkshɔn, ɔ ivin leta.

Yu go de tink se, ‘Mi pikin in tong luk big smɔl, a nɔ no if insɛf gɛt dis.’ So, pe atɛnshɔn to dɛn sayn ya:

• Tɔŋ we de kɔmɔt na yu mɔt ɔltɛm: Dis na di men ɛn klia sayn. I tan lɛk se nɔto inof rum fɔ kip di tɔŋ na di mɔt.
• I nɔ kin izi fɔ yu fɔ blo:
• Sɔntɛnde , yu kin yɛri lawd ay ay sawnd we yu de blo.I kin tan lɛk se pɔsin de wispa. Insay mɛrɛsin, wi kin kɔl dis `stridor`.
• Ɔ, yu kin blo wit sawnd we de snor , mɔ we yu de slip. Dɛn kɔl dis `stertor`.
• I nɔ izi fɔ swɛla (dysphagia): Big tɔŋ kin mek i nɔ izi fɔ ol, it, ɛn swɛla it fayn fayn wan. Yɔŋ pikin dɛn kin gɛt prɔblɛm fɔ sok dɛn mama in milk ɔ ivin drink frɔm bɔtul. Dɛn kin fil bak lɛk se dɛn de chok we dɛn de it.
• Drɔl: We di tɔŋ tu big fɔ lɔk di mɔt fayn, di saliva kin kɔmɔt bɔku tɛm. Yu go notis se di pilo wet wit saliva.
• I nɔ izi fɔ tɔk: I kin at fɔ kɔl wɔd dɛn ɛn fɔ tɔk klia wan. Dis na bikɔs di tɔŋ na ɔgan we de ɛp bɔku wit di we aw pɔsin de tɔk. We yu nɔ ebul fɔ kɔl lɛta dɛn fayn, yu tɔk kin mek yu nɔ tɔk fayn.

Di impɔtant tin fɔ mɛmba na dat if yu pikin gɛt wan ɔ mɔ pan dɛn sik ya, i kin bi Macroglossia. Bɔt i impɔtant fɔ mɛmba se dɛn sayn ya kin bi bak pan wan sik we de mek wi gɛt sik .

Yu kin de wɔnda if dis na kɔmɔn sik. Infakt, `Macroglossia` na wan sik we nɔ kin apin so ɔltɛm. I nɔ kin izi fɔ tɔk di rayt we ɔmɔs pipul dɛn gɛt am. Na bikɔs bɔku tɛm i kin apia as sayn fɔ ɔda sik.

Wetin mek dis `Macroglossia` kin apin? Wetin na di tin dɛn we kin mek i apin?

Bɔku tin dɛn de we kin mek pɔsin gɛt makroglosia. Na smɔl tɛm nɔmɔ, dɛn kin bɔn sɔm pipul dɛn wit big tɔŋ we nɔ gɛt ɛni ɔda wɛlbɔdi prɔblɛm. Bɔt i kin mɔs bi se i kin apin as sayn fɔ wan ɔndalayn mɛdikal kɔndishɔn. Sɔm pan dɛn kayn tin ya kin bi we pɔsin bɔn wit (jɛnɛtik), ɔda wan dɛn kin kam bikɔs ɔf wan mɛrɛsin we kin kam leta we i dɔn liv. Sɔm ɔpreshɔn ɛn mɛrɛsin dɛn kin mek bak macroglossia.

Lɛ wi si wetin na dɛn rizin ya.

Wetin na di kɔndishɔn dɛn we pɔsin kin bɔn wit (jɛnɛtik)?

dis kכndyushכn we dεn kכl ``Macroglossia,'' de sho se i gεt nכmba כf jεnεtik sik dεm. Na sɔm pan dɛn:

• Beckwith-Wiedemann syndrome: Dis na wan sik we de afɛkt di we aw pikin dɛn de gro. insay dis, di pikin in bכdi saiz εn di כgan dεm we de insay de kin big pas aw i nכmal. Dɔn bak, pikin dɛn we gɛt dis sik kin gɛt sɔm kayn kansa we dɛn kin gɛt we dɛn smɔl. di tin we impɔtant pas ɔl na dat, lɛk 90% pan di pikin dɛn we gɛt Beckwith-Wiedemann syndrome gɛt makroglosia, we min se dɛn gɛt big tɔŋ.
• Hurler/Hunter syndrome - mucopolysaccharidosis: Dis na grup fכ sik dεm we de afekt di we aw wi bכdi de brok dכn di shuga mכlikul dεm. Insay dis kɔndishɔn, di tɔŋ kin big bak.
• Daun sindrom: Sɔntɛm yu dɔn yɛri bɔt dis. Dɛn kin bɔn pikin dɛn we gɛt Daun sindrom wit ɛkstra kromozom. Dis kin mek chenj na di divɛlɔpmɛnt na dɛn bren ɛn bɔdi, we kin mek dɛn gɛt prɔblɛm wit dɛn bɔdi ɛn maynd. Makroglosia na wan tin bak we kin mek pɔsin gɛt Daun sindrom.

Wetin na di kɔndishɔn dɛn we dɛn kin gɛt?

sכmtεm, di tכng kin big bikoz fכ sכm mεdikal kכndyushכn dεm we nכ de we dεn bכn am. fכ egzampl, i kin kכz fכ mεtabolik כ εndokrin sik dεm, kכndyushכn lεk haypotayroydism, כ infεkshכn lεk difteria.

Na sɔm kayn tin dɛn ya we kin apin:

• Amyloidosis: Dis na sik we gɛt fɔ du wit wan prɔtin. insay dis, dis protin de put insay di tisu dεm εn כgan dεm, we de mek dεn nכ de wok fayn fayn wan. Di men sayn fɔ Amyloidosis na di mɔt na Macroglossia.
• Di we aw pɔsin kin gɛt di sik we dɛn kɔl haypotayroyd:Dis na wan sik we kin rili kɔmɔn. Wetin kin apin ya na dat yu tayroyd gland nɔ de mek inof tayroyd ɔmon ɛn pul am insay di blɔd. Dis kin mek yu mɛtabolism slo. Hypothyroidism na wan kɔmɔn tin we kin mek pɔsin gɛt makroglossia, mɔ pan pikin dɛn.
• Acromegaly: Dis na wan sik we nɔ kin apin so ɔltɛm. Wetin kin apin ya na dat yu bɔdi de mek tumɔs ɔmon we de mek yu gro. Pipul wae gɛt akromegali kin gɛt big big tɔŋ, jaw, an, ɛn fut we nɔrmal.
• Difteria: Dis na infεkshכn we de pas. Dis kin mek bak di tɔŋ swel.

Us kayn tɔŋ dɛn kin mek yu gɛt makroglosia?

Makroglosia kin bi bak wan sayn fɔ sɔm benign ɛn kansa tɔŋ dɛm.

• Limfanjioma: Dis na tכmכro we nכ de kεnsar we de divεlכp na di limfatik sistεm. i kin mek di wata we fulכp fכ fכm pan di mכkus mεmbran dεm we de insay di mכt, we kin mek bak di tכng big.
• εmanjioma: Dis dεm na tכmכro dεm bak we nכ gεt kεnsar . Dɛn kin mek dɛn frɔm blɔd vesel dɛn.
• Limfoma: Dis na kansa we de afɛkt di limfatik sistɛm.

Aw dɔktɔ dɛn kin no kɔrɛkt wan bɔt dis sik?

We yu ɔ yu pikin go to dɔktɔ, di fɔs tin we dɛn go du na fɔ chɛk in bɔdi . Dis go min se dɛn fɔ chɛk di tɔŋ, di ed, ɛn di nɛk gud gud wan. Afta dat, dɛn kin du sɔm tɛst fɔ no if dɛn gɛt macroglossia ɛn ɛni ɔndalayn kɔndishɔn we kin mek dɛn gɛt am.

Sɔm pan dɛn tɛst dɛn de na:

• `CT Scan` (Computed Tomography - CT scan): Dis involv fɔ yuz X-ray ɛn kɔmpyuta fɔ tek klia tri-dimɛnshɔnal (3D) pikchɔ dɛm fɔ yu ɔ yu pikin in mɔt, ed, ɛn nɛk. Dis kin gi yu bɛtɛ aidia bɔt wetin de insay.
• Magnetic Resonance Imaging (MRI) scan: Dis na tɛst we nɔ de mek pɔsin fil pen, we dɛn kin yuz big magnet, redio wev, ɛn kɔmpyuta fɔ mek pikchɔ dɛn we rili klia bɔt di ɔgan dɛn ɛn di tin dɛn we de insay di bɔdi.

Na bay di infɔmeshɔn we dɛn kin gɛt frɔm dɛn tɛst ya, di dɔktɔ dɛn kin no wetin mek di sik we dɛn kɔl ‘Macroglossia’ ɛn di tritmɛnt we fit am pas ɔl.

Wetin dɛn kin du fɔ trit dis sik we dɛn kɔl ‘Macroglossia’?

Sɔntɛnde, i kin sɔprayz fɔ no se sɔm pikin dɛn we gɛt makroglosia we dɛn smɔl, as dɛn de big, dɛn fes bon dɛn kin divɛlɔp, we kin mek di tɔng fit insay di mɔt, ɛn dis sik kin bɛtɛ fɔ insɛf. Jɔs lɛk sus we fit di bɔdi, di mɔt sɛf kin gro fɔ fit di tɔŋ.

Bɔt nɔto ɔltɛm dis kin bi. We dɔktɔ dɛn de trit macroglossia, dɛn kin fɔs no ɛn trit di ɔndalayn kɔndishɔn we mek i kam. Na da tɛm de nɔmɔ dɛn kin trit di sayn dɛn we de sho se pɔsin gɛt makroglosia.

Di tritmɛnt fɔ makroglosia kin inklud:

• Mɛrɛsin: Dɛn kin gi mɛrɛsin lɛk kɔtikosterɔyd fɔ mek di tɔng nɔ swel.
• Ɔtodɔnt tritmɛnt: If big tɔŋ dɔn afɛkt di say we di tit dɛn de, dis tritmɛnt kin ɛp fɔ kɔrɛkt am.
• Ɔpreshɔn: Sɔntɛnde, mɔ if siriɔs prɔblɛm de lɛk fɔ mek i nɔ izi fɔ blo ɔ fɔ swɛla, i kin nid fɔ du ɔpreshɔn fɔ mek di tɔng nɔ big. Bɔt na lɛk 10% pan di pipul dɛn we gɛt makroglosia nid fɔ gɛt ɔpreshɔn.

A kin ridyus di risk fɔ mek mi pikin gɛt makroglosia?

Bɔrku tɛm, macroglossia na tin we dɛn bɔn wit, we min se i gɛt fɔ du wit di jenɛtik kɔndishɔn, so natin nɔ de we wi kin du fɔ mek i nɔ apin. Bɔt sɔntɛnde, i kin kam bak wit sik dɛn we kin kam wit ɔda pipul dɛn, so if yu protɛkt yusɛf frɔm dɛn kayn sik dɛn de, dat kin mek yu nɔ gɛt dis prɔblɛm to sɔm mak. Fɔ ɛgzampul, i impɔtant fɔ gɛt vaysin fɔ sik dɛn lɛk difteria.

If mi pikin gɛt Macroglossia, wetin a fɔ ɛkspɛkt?

Wi no naw se makroglosia kin bi wan sayn fɔ wan ɔndalayn prɔblɛm, ilɛksɛf na wan sik we dɛn bɔn wit ɔ ɔda sik. So, di ki na fɔ no ɛn trit da ɔndalayn kɔndishɔn de.

If yu pikin gɛt macroglossia, i kin dɔn ɔlrɛdi de gɛt tritmɛnt fɔ di ɔndalayn kɔndishɔn we mek i gɛt am. Di tin we yu fɔ put fɔs na fɔ fala da tritmɛnt plan de. Tɔk to yu dɔktɔ bɔt dis. I go tɛl yu wetin fɔ ɛkspɛkt ɛn ustɛm fɔ si am bak.

Us kwɛstyɔn dɛn a fɔ aks di dɔktɔ?

If yu pikin gɛt macroglossia, yu go mɔs gɛt bɔku kwɛstyɔn dɛn. Wetin mek dis bin apin ɛn wetin fɔ ɛkspɛkt frɔm tritmɛnt. Na sɔm kwɛstyɔn dɛn we yu kin aks yu dɔktɔ:

• Wetin rili na `Macroglossia`?
• Aw dis go afɛkt mi pikin? Yu tink se i go afɛkt di layf we wi de liv ɛvride?
• Wetin mek mi pikin divεlכp `Macroglossia`? Wetin na di men tin we mek i apin?
• Us tritmɛnt dɛn yu kin advays? Aw dɛn tritmɛnt dɛn de kin wok fayn?
• Aw lɔng di tritmɛnt go tek? Us sayd ɛfɛkt dɛn a kin ɛkspɛkt?
• Wan spɛshal we de we a fɔ kia fɔ mi pikin na os? (e.g. fɔ it, fɔ put slip)

Nɔ ɛva fred fɔ aks dɛn kwɛstyɔn ya. I rili impɔtant fɔ mek yu klin ɔl di dawt dɛn we yu gɛt. Di dɔktɔ go ɛksplen ɔltin to yu.

Fɔ dɔn, tin dɛn fɔ mɛmba (Take-Home Message) .

Makroglosia, ɔ wan tɔng we dɔn big, kin mek yu fred smɔl. Bɔt bɔku tɛm, na sayn fɔ wan ɔndalayn mɛdikal kɔndishɔn. Di tin we impɔtant pas ɔl na fɔ nɔ panik ɛn go to dɔktɔ wantɛm wantɛm.

• If yu tink se yu pikin in tɔŋ big pasmak, ɔ if dɛn gɛt ɛni wan pan di sayn dɛn we wi dɔn tɔk bɔt, go to dɔktɔ we de mɛn pikin dɛn ɔ dɔktɔ we de mɛn dɛn yes, nos, ɛn trot (ENT).
• Yu kin kɔntrol makroglosia bay we yu no di ɔndalayn kɔz ɛn trit am di rayt we.
• Fɔ sɔm pikin dɛn, dis sik kin bɛtɛ fɔ insɛf as dɛn de ol.
• I rili impɔtant fɔ tek tɛm fala di dɔktɔ dɛn instrɔkshɔn ɛn fɔ gi di pikin di sɔpɔt ɛn lɔv we i nid.

Mɛmba se nɔto yu wangren de. Ɔda mama ɛn papa dɛn de we kin gɛt dis kayn tin. If di rayt mɛrɛsin gayd yu ɛn yu dedikeshɔn, yu go ebul fɔ du di bɛst tin fɔ yu pikin.

`Makroglosia, Tɔng we dɔn big, Pikin dɛn tɔŋ, I nɔ izi fɔ blo, I nɔ izi fɔ swɛla, Makroglosia, Beckwith-Wiedemann syndrome, Down syndrome, Tɔng we big, Tɔng sik