Yu kin fil taya ɔl di de? Ivin afta yu dɔn slip fayn, we yu wek na mɔnin, yu bɔdi kin fil lɛk se i nɔ gɛt ɛni ɛnaji? Yu bɔdi de pen sote yu nɔ ebul fɔ ivin du di wok dɛn we yu de du ɛvride? Dis nɔ kin bi jɔs nɔmal taya. Tide wi de tɔk bɔt Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), wan sik wae de ambɔg bɔrku pipul dɛm ɛn kin ivin kripul dɛn layf.
Fɔ tɔk am simpul wan, dis na tin we rili kɔmpleks. Di sayn dɛm kin difrɛn frɔm wan pɔrsin to ɔda pɔrsin. Pan ɔl we yu kin taya pasmak ɛn yu mɔsul dɛn kin fil pen, ɔda pɔsin in big prɔblɛm kin bi we yu nɔ de mɛmba tin ɛn taya ilɛksɛf i slip bɔku. So we yu de trit dis, yu ɛn yu dɔktɔ fɔs fɔ pe atɛnshɔn pan us sayn dɛn de afɛkt yu layf pas ɔl.
Yu tink se wan patikyula mɛrɛsin de fɔ dis sik?
Fɔ tɔk tru, no wan mɛrɛsin nɔ de fɔ di sik we dɛn kɔl Chronic Fatigue Syndrome (CFS). Nɔr patikyula mɛrɛsin nɔr de bak we dɛn dɔn gri fɔ spɛshal fɔ di sik. Bɔt nɔ wɔri. Mɛrɛsin ɛn ɔda tritmɛnt dɛn de we kin ɛp fɔ kɔntrol yu sik dɛn. Sɔm pan dɛn tin ya na dɔktɔ kin gi dɛn, ɛn ɔda wan dɛn kin bi tin dɛn we dɛn nɔ kin bay na kɔt fɔ mek pɔsin nɔ fil pen.
De tin wae impɔtant pas ɔl na fɔ tɔk to yu dɔktɔ ɛn kam wit tritmɛnt plan wae go woke fɔ yu. Nɔ jɔs go tek mɛrɛsin bay wetin pipul dɛn we de arawnd yu de tɔk.
Mɛrɛsin wae de ɛp fɔ gɛt difrɛn sayn dɛm
Naw lɛ wi si us kayn tritmɛnt dɔktɔ go gi yu bay di men tin dɛn we de sho se yu gɛt di sik.
Wetin yu kin du fɔ prɔblɛm wit slip?
Bɔrku pipul dɛm wae gɛt ME/CFS gɛt sɔm kayn slip prɔblɛm. So, fɔ slip fayn na nɛt (ɔ at ɔl bɛtɛ slip pas aw yu bin de slip bifo) kin ɛp fɔ mek yu nɔ taya na di de.
Fɔs, yu dɔktɔ go chɛk if yu gɛt gud abit fɔ slip. Dat min se yu fɔ go slip di sem tɛm, wek di sem tɛm, ɛn mek yu bedrum kwayɛt, dak, ɛn kol.
If dɛn tin ya nɔ ɛp yu fɔ slip, yu dɔktɔ kin tɛl yu fɔ gi yu tin fɔ ɛp yu fɔ slip we yu nɔ de bay, lɛk wan mɛrɛsin we dɛn kɔl antihistamine. Di bad tin na dat, sɔmtɛm di tin dɛn we di mɛrɛsin kin du kin las fɔ pas 8 awa. Yu kin fil bak fɔ slip di nɛks de. Dat na sɔntin we wi de tray fɔ avɔyd. Bɔt nɔto ɔl di mɛrɛsin dɛn kin wok di sem we fɔ ɔlman. So aks yu dɔktɔ us kayn we fayn fɔ yu ɛn aw fɔ yuz am.
If dat nɔ wok, dɔktɔ kin gi yu wan mɛrɛsin fɔ slip. Di gol fɔ dɛn tin ya na fɔ kɔrɛkt di we aw yu de slip wit di smɔl smɔl doz fɔ di shɔt tɛm. Dɛn nɔ kin advays fɔ yuz dɛn fɔ lɔng tɛm.
| Drug tayp / kategori | Men wan de ɛp |
|---|---|
| Mɛrɛsin dɛn lɛk Ɛszopiklɔn (Lunesta), Zolpidem (Ambien) . | I de ɛp yu fɔ slip kwik kwik wan. |
| Di mɛrɛsin dɛn we de mek pɔsin nɔ fil bad lɛk Amitriptyline, Doxepin, Trazodone | I de ɛp yu fɔ slip ɛn kɔntinyu fɔ slip. |
| Benzodiazepin dɛn we dɛn kin yuz | E kin ɛp fɔ slip ɛn wɔri, bɔt kin kɛr risk fɔ gɛt adikshɔn. |
Ɔl dɛn mɛrɛsin ya gɛt sayd ɛfɛkt. Slip we yu de slip na de, diziz, ɛn we yu nɔ de mɛmba tin bak na di sayn dɛm fɔ ME/CFS. So yu fɔ tɔk to yu dɔktɔ bɔt di gud ɛn bad tin dɛn we pɔsin kin du we i tek wan mɛrɛsin ɔ nɔ tek am.
Tritmɛnt fɔ bɔdi pen
Pen na kɔmɔn tin fɔ bɔrku pipul dɛm wae gɛt ME/CFS. Hɛd pen, mɔsul ɛn jɔyn pen na di wan dɛn we kin apin mɔ. Yu dɔktɔ kin gi yu mɛrɛsin fɔ mɛn pen we yu nɔ de bay (e.g. Panadol, Aspirin, Ibuprofen) ɔ mɛrɛsin dɛn we strɔng pas dat. Sɔmtɛm, dɛn kin yuse mɛrɛsin lɛk tricyclic antidepressants bak fɔ ɛp fɔ gɛt pen we nɔr de dɔn. If i nɔ izi fɔ kɔntrol yu pen, yu dɔktɔ kin sɛn yu to dɔktɔ we sabi bɔt pen.
Ɔtostatik Intolɛreshɔn
Dis na ɔda prɔblɛm we kin kam wit ME/CFS. Di sayn dɛm na fɔ fil diziz we yu tinap, yu nɔ de si fayn, yu kin fɔdɔm, ɛn yu at kin bit kwik kwik wan. If yu gɛt ɛni wan pan dɛn sayn ya, mek shɔ se yu tɛl yu dɔktɔ. Mεdikeshכn dεm lεk Fludrocortisone, Midodrine, εn Propranolol kin εp fכ kכntrכl dis kכndyushכn.
Lɛ wi lan bɔt tin dɛn we de mek pɔsin fil bad ɛn tin dɛn we de mek pɔsin in at pwɛl.
Yu tink se i fayn fɔ yuz tin dɛn we de mek pɔsin fil fayn?
Sɔntɛnde, dɔktɔ dɛn kin gi dɛn tin dɛn we de mek pɔsin fil fayn, we dɛn kin yuz fɔ trit tin dɛn lɛk ADHD, fɔ ɛp fɔ taya ɛn mɛmba prɔblɛm dɛn we kin apin wit ME/CFS. Bɔt siriɔs prɔblɛm dɛn de we pɔsin kin gɛt we i yuz dɛn.
Imajin, we yu tek dis mɛrɛsin, yu kin gɛt bɔku trɛnk wantɛm wantɛm. So yu de tray fɔ du bɔku wok insay wan de. Bɔt di nɛks de, yu taya pas aw yu bin taya bifo, lɛk se yu go ‘krash’. Dis kin jɔs mek yu kɔndishɔn wɔs. Dɔn bak, sɔm pan dɛn mɛrɛsin ya kin mek pɔsin adikshɔn. So, dɛn kin se dɛn fɔ tek dɛn tin ya we dɛn de tek dɛn mɛrɛsin ya we nɔ bɔku ɛn na dɔktɔ we gɛt gud ɛkspiriɛns wit dɛn mɛrɛsin ya nɔmɔ kin gi dɛn.
Antidipreshɔn ɛn mental wɛlbɔdi
Klose to haf pan pipul dɛm wae gɛt ME/CFS kin gɛt pwɛl hat sɔm tɛm na dɛn layf. Dis nɔ de sɔprayz. E kin kɔmɔn fɔ fil pwɛl hat wae yu taya ɔltɛm ɛn yu de fil pen.
If yu gɛt dis kayn sik, yu kin tɔk to yu dɔktɔ fɔ disayd if fɔ yuz mɛrɛsin fɔ mek yu nɔ gɛt pwɛl hat fayn fɔ yu. Difrɛn kayn dɛn de, lɛk SSRI, SNRI, ɛn TCA. Yu dɔktɔ go pik di mɛrɛsin we go fayn fɔ yu ɛn we nɔ gɛt bɛtɛ sayd ɛfɛkt.
Apat frɔm mɛrɛsin, tɔk tɛrapi/saykotɛrapi na big ɛp dis tɛm. If yu ebul fɔ tɔk bɔt aw yu de fil ɛn aw yu de tink, dat kin mek yu fil fayn.
Dis tɛm ya, drɔgs we de na di risach stej
Dɔktɔ ɛn sayɛnsman dɛn de kɔntinyu fɔ du risach bɔt nyu mɛrɛsin dɛn fɔ ɛp fɔ gɛt dis sik. Dɛn dɔn ɔlrɛdi stɔdi bɔt mɛrɛsin dɛn lɛk Ampligen, low-dose naltrexone (LDN), ɛn rituximab. Dɔn bak, dɛn de invɛstigat antivayral ɛn nyuromodulator fɔ si if dɛn kin ɛp fɔ ridyus dɛn sik ya.
Mɛsej we dɛn kin kɛr go na os
- Nɔr wan, difinitiv mɛrɛsin nɔr stil de fɔ Kronik Fatigue Syndrome (ME/CFS).
- Di men gol fɔ tritmɛnt na fɔ kɔntrol di sayn dɛm wae de mɔna yu pas ɔl (nɔr de slip, pen, taya).
- Bifo yu bigin fɔ tek ɛni mɛrɛsin, mek shɔ se yu tɔk to yu dɔktɔ bɔt di gud ɛn bad tin dɛn we i gɛt.
- Bɔku tɛm dɛn kin stat di tritmɛnt wit rili smɔl doz bikɔs pipul dɛn we gɛt ME/CFS kin rili sɛnsitiv to mɛrɛsin.
- Apat frɔm mɛrɛsin, gud slip, advays, ɛn pacing go ɛp yu bɔku pan dis joyn.
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