Yu de fil sɔri bikɔs ɔf di wayt pat na yu skin, wan sik we dɛn kɔl ‘Vitiligo’? Dis na rili prɔblɛm we bɔku pipul dɛn gɛt. Pan ɔl we dis nɔ kin mek pɔsin gɛt siriɔs sik, i nɔmal fɔ lɛ pɔsin fil bad smɔl we i de mit di sosayti. Bɔt gud nyus de. Naw, gud tritmɛnt de fɔ dis. Tide wi go tɔk bɔt wan krim we dɛn kin yuz fɔ du dis kayn spɛshal tritmɛnt we.
Wetin na Mɛtɔkssalɛn?
Fɔ tɔk am simpul wan, Methoxsalen na mɛrɛsin we de ɛp fɔ mek di skin gɛt bak di kɔlɔ we dɔn lɔs ɛn mek i fil fayn to layt. Dɛn kin yuse am fɔ trit di sik we dɛn kɔl vitiligo.
Bɔt dis nɔto jɔs krim we yu kin put pan yu skin. I de wok togɛda wit wan spɛshal tritmɛnt. Wi kin kɔl am PUVA tritmɛnt . Dat min se, na tritmɛnt we de miks wan mɛrɛsin we dɛn kɔl Psoralen (wan klas ɔf drɔgs we Methoxsalen de pan) wit UVA (ultraviolet A) layt.
Tink bɔt am dis we. Yu dɔktɔ go put dis Methoxsalen krim na di say dɛn nɔmɔ we yu gɛt wayt ed. Dɔn afta sɔm tɛm, wan spɛshal mashin go yuz ɔltra vayolɛt A (UVA) layt fɔ tɔch dɛn say dɛn de. Bikɔs di mɛrɛsin dɔn mek yu skin fil lɛk layt, we dis layt hit am, di sɛl dɛn we de mek di skin (melanocytes) de mek yu skin wok, ɛn smɔl smɔl di wayt ed dɛn go bigin fɔ gɛt kɔlɔ bak.
Di impɔtant tin na dat, dis nɔto mɛrɛsin we yu kin kɛr go na os ɛn yuz. Dis na tritmɛnt we dɛn fɔ du na ɔspitul ɔ klinik ɔnda di sɔpɔtishɔn fɔ dɔktɔ ɔ tren mɛdikal pɔshɔnal.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin dis tritmɛnt
Dis tritmɛnt nɔ fayn fɔ ɔlman. So, we yu de tɔk to yu dɔktɔ, i impɔtant fɔ tɔk if yu gɛt ɛni wan pan di sik dɛn we de dɔŋ ya. I rili impɔtant fɔ mek yu sef.
| Yu sityueshɔn ɔ prɔblɛm we yu gɛt | Wetin mek dat impɔtant? |
|---|---|
| If yu gɛt bɛlɛ, yu de tray fɔ gɛt bɛlɛ, ɔ yu de gi pikin in bɛlɛ. | dis mεdisin εn layt tεrapi kin afekt di pikin we de insay di bεlε. |
| eni ay kכndyushכn (e.g. katarakt , if dεn dכn pul di lens fכ di yay). | PUVA tritmɛnt kin afɛkt di yay bak, so spɛshal protɛkshɔn nid fɔ de. |
| If yu dɔn gɛt ɔ yu gɛt kansa na yu skin naw. | Dis tritmɛnt kin mek yu gɛt kansa na yu skin smɔl, so i nɔ go fayn if yu dɔn gɛt dis kayn histri. |
| Speshal mεdikal kכndyushכn dεm lεk at sik, (Porphyria) כ (Xeroderma pigmentosum) . | If dɛn kayn tin ya de, PUVA tritmɛnt kin mek kɔmplikeshɔn. |
| If yu gɛt fotosɛnsitiviti na di skin to layt. | Dis mɛrɛsin kin mek di skin sɛnsitiv bak to layt, so if yu dɔn ɔlrɛdi gɛt dis kayn sik, i kin rili siriɔs. |
| If yu jɔs dɔn du redyushɔn tɛrapi. | If yu jɔyn redyushɔn tɛrapi ɛn PUVA, dat kin mek di bad bad tin dɛn we kin apin to di skin bɔku. |
| If yu gɛt alɛji to ɔda mɛrɛsin, it, day, ɔ tin dɛn we de mek yu nɔ pwɛl. | Di dɔktɔ kin no bifo tɛm bɔt aw pɔsin kin gɛt alɛji fɔ di mɛrɛsin. |
Wetin a go du if a tek dis mɛrɛsin tumɔs?
Di chans fɔ mek dis apin rili smɔl. Bikɔs dɛn nɔ go alaw yu fɔ kɛr dis go na os. Dɔktɔ go gi am. Bɔt if yu tink se sɔntin lɛk dis dɔn apin, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital wantɛm wantɛm . Ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu.
Tin dɛm wae yu fɔ tek tɛm wit wae yu de trit yu
Yu nid bɔku sɔpɔt frɔm yu sayd we yu de du dis tritmɛnt. Tek tɛm mɔ bɔt dɛn tin ya.
Mek di san protɛkshɔn nɔmba wan!
Dis na di tin we impɔtant pas ɔl. Afta yu dɔn put dis mɛrɛsin, yu skin kin rili fil bad we di san de shayn. So ivin we pɔsin de na di san fɔ shɔt tɛm, i kin mek pɔsin bɔn, i kin gɛt blista, ɛn i kin wund bad bad wan.
- Nɔ put yusɛf na di san ɔltogɛda fɔ 24 awa bifo ɛn 48 awa afta yu gɛt PUVA tritmɛnt.
- If yu jɔs put di ɔntmɛnt, nɔ de na di san fɔ 12 to 48 awa afta dat.
- If yu rili nid fɔ go na do, wɛr klos we kɔba yu skin fayn . Wear lɔng-sliv shit, pant, ɛn hat.
- Put sanskrin we gɛt at le SPF 15 ɔ pas dat pan ɔl di say dɛn we di san de shayn. Bɔt yu fɔ aks yu dɔktɔ bifo yu put sanskrin pan say dɛn we dɛn de trit.
- Nɔ avɔyd atifishal layt sɔs dɛn lɛk san lamp ɛn san tan bed dɛn kpatakpata.
Tek wan luk pan wetin yu de it ɛn drink.
Sɔm it dɛn kin mek yu skin fil fayn bak fɔ layt. Fɔ ɛgzampul, lɛmon, fig, pasli, pasnip, mɔstad sid, karɔt, ɛn sɛli. I fayn fɔ tɔk bɔt dɛn it ya wit yu dɔktɔ we yu de tek dis tritmɛnt.
Pe atɛnshɔn to di chenj dɛn we de apin na di skin.
Dis tritmɛnt kin mek yu gɛt kansa na yu skin smɔl we yu yuz am fɔ lɔng tɛm. Dɔn bak, jɔs lɛk we pɔsin de tek di san, di skin kin ol bifo tɛm. So, pe atɛnshɔn to yu skin ɔltɛm.
If yu notis ɛni nyu tin, we nɔ kɔmɔn, lɛk spat, wund, sɔri we nɔ de wɛl, ɔ we di kɔlɔ chenj, ilɛksɛf i smɔl, sho am to yu dɔktɔ wantɛm wantɛm.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, dis wan kin gɛt sayd ɛfɛkt. Sɔm siriɔs, sɔm kɔmɔn. I impɔtant fɔ no bɔt dɛn tin ya.
| Notis yu dɔktɔ wantɛm wantɛm! | |
|---|---|
| Di sayn dɛn we de sho se pɔsin gɛt alɛji | Skin rash , i de it bad bad wan, yu fes, yu lip ɔ yu tɔng de swel. |
| Siriɔs riakshɔn dɛn na di skin | Bɔn, blista, bad bad rɛd ɔ swel na di skin. |
| If i kɔntinyu fɔ de, tɛl di dɔktɔ. | |
| Kɔmɔn prɔblɛm dɛn we kin apin na di skin | Modaret it, dray skin. |
Dis list nɔ de inklud ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. If yu notis ɛnitin we nɔ kɔmɔn, tɔk to yu dɔktɔ bɔt am.
Mɛsej we dɛn kin kɛr go na os
- Methoxsalen nɔto jɔs krim we dɛn kin put pan pɔsin in bɔdi. Na pat pan PUVA tritmɛnt we dɛn kin du ɔnda dɔktɔ in sɔpɔtishɔn.
- I rili impɔtant fɔ protɛkt yusɛf frɔm di san bifo ɛn afta tritmɛnt, ɔdasay yu kin gɛt siriɔs prɔblɛm wit yu skin.
- Tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn, vaytamɛn dɛn, ɛn di sik dɛn we yu de tek bifo yu gɛt tritmɛnt.
- Ripɔt ɛni chenj we nɔ kɔmɔn na yu skin (spɔt, sɔ, bad bad rɛdnɛs) to yu dɔktɔ wantɛm wantɛm.
- Dis nɔto tritmɛnt we go gi yu rizɔlt wantɛm wantɛm. I kin tek 6-9 mɔnt ɔ mɔ fɔ si ful rizɔlt. So peshɛnt ɛn fala wetin yu dɔktɔ tɛl yu .
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