Yu pikin kin slip bɔku tɛm na klas? Sɔntɛm di ticha se, "Yu bɔy pikin/ gyal pikin kin slip ɔltɛm na klas, i kin bost bad bad wan." Ɔ i kin slip wantɛm wantɛm we i de ple wit in padi dɛn? Sɔm mama ɛn papa dɛn kin tink se dis na sɔntin we dɛn kin du bikɔs dɛn de bost, ɔ na ɔda tin bikɔs dɛn nɔ kin slip fayn na nɛt. Bɔt sɔm tɛm dis kin bi wan mɔr siriɔs nyurolɔjik kɔndishɔn we gɛt fɔ du wit di bren. Wi de tɔk bɔt dat tide. Wi kin kɔl dis kɔndishɔn Narkɔlepsi.
Fɔ tɔk am simpul wan, wetin na sik we dɛn kɔl narkolepsi?
Narkolepsi na wan sik wae de mek pikin in bren nɔr kin ebul fɔ kɔntrol aw i de slip ɛn aw i de wek. I tan lεk se wi bכdi in "internal klok" de disrupt. Na mɔtalman, dis kin gɛt di big impak pan di we aw pikin kin ebul fɔ wek.
Wan pan di fɔs sayn dɛm fɔ dis nyurolɔjik kɔndishɔn na fɔ slip pasmak de , we kin ambɔg di pikin in ebul fɔ lan, ple, ɛn fɔ de wit in padi dɛm.
Pikin we gɛt dis sik kin fil taya ɛn slip ɔl di de. Sɔmtɛm, dɛn kin gɛt "slip atak" wantɛm wantɛm ɛn slip we dɛn de du sɔntin. Tink bɔt di denja dɛn we kin apin if dɛn slip wantɛm wantɛm we dɛn de waka na strit, ple, ɔ it. So, dis na kɔndishɔn we wi nɔ fɔ tek am layt.
Tu men kayn Narkɔlepsi de:
Yɛs, dis tin we kin apin kin apin to tu pat mɔ. Smɔl difrɛns de bitwin dɛn tu.
| Tayp fɔ sik we dɛn kɔl narkolepsi | Na jɔs diskripshɔn |
|---|---|
| Tayp 1 (Dɛn bin de kɔl am Narkɔlepsi wit Katapleksi) | Insay dis kayn we, di pikin kin gɛt bak we i kin slip pasmak na de ɛn wan sik we dɛn kɔl katapleksi . Dis na we di bɔdi in mɔsul dɛn kin wik wantɛm wantɛm ɛn fil lɛk se dɛn nɔ de kɔntrol dɛnsɛf igen. Apat frɔm dat, di lɛvɛl we wan kemikal we dɛn kɔl haypokrɛtin, we de ɛp di bren fɔ de wach, nɔ bɔku. Insay dis kayn we, di bɔdi kin gɛt wet bak wantɛm wantɛm. |
| Tayp 2 we de na di wɔl (Fɔs dɛn bin de kɔl am Narcolepsy without Cataplexy) | Insay dis kayn we, di pikin kin jɔs slip pasmak na de. Di katapleksi kɔndishɔn we wi bin dɔn tɔk bɔt nɔ kin apin. Dɔn bak, di lɛvɛl dɛn we di haypokrɛtin de na di bren nɔ kin afɛkt. |
De impɔtant tin na dat ɔl tu kayn kin afɛkt pikin in ɛvride layf, so i rili impɔtant fɔ no di sayn dɛm.
Wetin na di sayn dɛm wae de sho se pikin dɛn gɛt narkɔlepsi?
Nɔto ɔl pikin dɛm wae gɛt narkolepsi kin gɛt ɔl dɛn sik ya di sem we. Sɔm sayn dɛn kin bigin kwik, ɛn ɔda wan dɛn kin kam leta. Fo men sayn dɛn de we de sho se yu gɛt dis sik.
1. Fɔ slip pasmak na de
2. Katapleksi - we di mכsul dεm wik wan wan
3. Slip paralayz
4. Fɔ si/yɛri difrɛn tin dɛn we yu de slip ɔ wek (Hallucinations) .
Apat frɔm dat, yu kin si dɛn sayn ya bak:
- Distɔb slip
- Fɔ slip fɔ sɔm sɛkɔn dɛn we yu nɔ no wetin yu de du (Automatic behaviors) .
- We yu gɛt bɔku bɔku wet wantɛm wantɛm
- Di pikin we dɛn kin bɔn bifo tɛm
Naw lɛ wi luk dɛn men sayn ya sɔmtin.
Fɔ slip pasmak na di de
Bɔku tɛm, dis na di fɔs sayn. I pas fɔ jɔs bi "slip." I kin ambɔg klos to ɔltin we di pikin de du na os, na skul, ɛn wit in padi dɛn.
Si if dɛn tin ya kin apin to yu pikin:
- Fɔ fil taya pasmak ɔl di de, mɔ we yu sidɔm, rid buk, ɔ rayd motoka.
- "Slip atak" kin apin. Dat min se yu kin slip wantɛm wantɛm, we yu nɔ ebul fɔ kɔntrol.
- Kɔntinyu fɔ slip di de afta i ol 5 ia, ɔ i kin slip lɔng pas di avɛrej pikin (tu to tri awa).
- Ivin if yu tek slip na di de ɛn wek, yu go fil slip bak afta sɔm tɛm.
- Di ed kin fil lɛk se i slo, i kin fɔgɛt, ɛn i nɔ kin gɛt trɛnk.
- I kin izi fɔ lɛ pɔsin nɔ pe atɛnshɔn ɛn pe atɛnshɔn pan sɔntin.
- Fɔ vɛks, fɔ vɛks, fɔ du tin pasmak, ɔ fɔ gɛt pwɛl hat fɔ natin.
Katapleksi - we di mɔsul dɛn wik wantɛm wantɛm
Dis na wan rili patikyula sayn. Katapleksi na we di mɔsul dɛn we de na di bɔdi nɔ gɛt trɛnk wantɛm wantɛm, fɔ shɔt tɛm. Dis kin las frɔm sɔm sɛkɔn to sɔm minit.
Dis kin fil lɛk se yu ni dɛn de go swɛ, ɔ yu ɔl bɔdi kin fil lɛk se yu nɔ gɛt bɛtɛ trɛnk ɛn yu kin fɔdɔm na grɔn.
Yu go notis dɛn tin ya fɔs na yu pikin in fes:
- Di huk nɔ gɛt layf ɛn di mɔt de opin.
- Di aylid dɛn ebi ɛn dɛn kin drɔp.
- Stik aut tong.
- Wɔd dɛn kin tan lɛk we dɛn de tɔk.
- Sho di we aw pɔsin de muv ɔ di we aw i de sho in fes we nɔ kɔmɔn.
Di impɔtant tin na dat dis katapleksi stet kin apin we wan strɔng filin lɛk gladi at, laf, vɛks, fred, ɔr gladi gladi de kam. Imajin se we yu pikin laf lawd wan we i de mek jok, i kin bɛn in ni wantɛm wantɛm ɛn sidɔm na grɔn. Ɔ we i gladi afta i dɔn win gem, i kin drɔp wetin i ol na grɔn.
Na lɛk 70% pan di pikin dɛm wae gɛt narkolepsi kin gɛt dis sik. Bɔt pan yɔŋ pikin dɛn, dɛn kin mistek kɔl am se dɛn nɔ de pe atɛnshɔn, dɛn kin gɛt sik, dɛn kin fɔdɔm, ɔ jɔs na we fɔ mek dɛn pe atɛnshɔn to dɛn .
Slip paralayz
Dis na tin we bɔku pipul dɛn dɔn ɛkspiriɛns, bɔt i kin mek pɔsin fred bad bad wan. Slip paralayz na wan sik wae yu nɔr kin ebul fɔ muv yu bɔdi ɔr tɔk wae yu de kam slip, ɔr we yu wek na mɔnin.
Ivin if dis kin las fɔ sɔm sɛkɔn ɔ minit ɛn afta dat i go, di pikin kin fil bad bad wan, lɛk se dɛn dɔn trɔp ɛn nɔ ebul fɔ aks fɔ ɛp. Dis kin gɛt big impak pan di pikin in maynd wɛlbɔdi. Bɔrku tɛm, dis sik kin go if ɔda pɔrsin tɔch di bɔdi.
Fɔ si/yɛri difrɛn tin dɛn (Hallucinations) .
Dis na ɛkspiriɛns dɛn we tan lɛk drim we tan lɛk se na rial tin bɔt nɔto so. Dɛn kin apin ɔ we yu de kam fɔ slip (hypnagogic hallucinations) ɔ we yu wek frɔm slip (hypnopompic hallucinations).
Bɔku tɛm, pikin dɛn kin si ɔ yɛri tin dɛn we kin mek dɛn fred, lɛk animal dɛn pikchɔ ɔ animal dɛn sawnd. Bɔrku tɛm, dis sik kin apun wit de slip paralayz wae wi bin dɔn tɔk bɔt.
Wetin mek pikin dɛn kin gɛt sik we dɛn kɔl narkolepsi?
nכ wan εksakεt kכz de fכ dis, bכt dεn kin mεntal tink se i bi fכ wan prכblεm na di εria na di pikin in bren we de kכntro slip εn wek (di haypothalamus).
Spɛshal wan, Tayp 1 narkɔlepsi kin kam bikɔs di kemikal we de na di bren we dɛn kɔl hypocretin , we kin ɛp fɔ mek wi nɔ de slip. Bɔku tin dɛn de we kin mek dis apin:
- Awtoimyun kɔndishɔn: Fɔ tɔk am simpul wan, di pikin in yon imyun sistɛm kin mistek atak di wɛlbɔdi sɛl dɛn na di bren we de mek haypokrɛtin, ɛn dis kin mek da kemikal de nɔ de igen. Sɔmtɛm, dis sik kin apin afta wan simpul infɛkshɔn.
- Famili istri:If sɔmbɔdi na di famili gɛt dis sik, sɔm kayn jenɛtik link kin de fɔ mek di pikin gɛt am bak.
- Bren injuri ɔ tumor: Na smɔl tɛm nɔmɔ dis sik kin apin bikɔs di say we de kɔntrol slip dɔn pwɛl bikɔs ɔf injuri na di bren, tumbu, ɔ ɔda mɛrɛsin.
Wetin na di prɔblɛm dɛn we kin apin we pɔsin gɛt narkolepsi?
Dis sik kin afɛkt difrɛn tin dɛn na di pikin in layf.
- Poor skul pefomans.
- I nɔ kin izi fɔ mit padi dɛn ɛn kɔntinyu fɔ gɛt tayt padi biznɛs wit ɔda pipul dɛn.
- Prɔblɛm dɛn na yu maynd (dipreshɔn, wɔri).
- Prɔblɛm fɔ bihayvya (lɛk di atɛnshɔn dɛfisit haypa aktiviti disɔda - ADHD).
- Fisikal aksidɛnt bikɔs ɔf di atak we pɔsin kin slip wantɛm wantɛm.
Aw dɔktɔ dɛn kin no bɔt dis sik?
If yu tink se yu pikin gɛt dɛn sik ya, di fɔs tin we yu fɔ du na fɔ go to yu dɔktɔ, mɔ to dɔktɔ we de mɛn pikin dɛn.
Di dɔktɔ go chɛk di pikin ɛn aks yu bɔt di sayn dɛm ɛn aw i de slip. Sɔntɛnde, di pikin nɔ kin ɔndastand ɔl in sik dɛn, so wetin yu si na in impɔtant pas ɔl.
Afta dat, dɛn kin rifer yu fɔ sɔm tɛst fɔ no if yu gɛt di sik.
| Di we aw dɛn de du di tɛst | Wetin kin jɔs apin |
|---|---|
| Kip wan Slip Dayari | Fɔ sɔm wiks, dɛn go aks yu fɔ rayt tin dɛn lɛk we yu pikin de go slip, ustɛm i wek, ɛn aw lɔng i de slip insay di de. |
| Divays we dɛn kɔl aktigraf | Dis na smɔl tin we tan lɛk wristwatch. i de mכsu di pikin in muvmεnt dεm εn kכlekt data bכt we di pikin de slip εn we i wek. |
| Polisomnogram (PSG) we dɛn kɔl . | Dis na tɛst we dɛn kin du fɔ wan nɛt na wan ples usay dɛn kin stɔdi bɔt aw pɔsin kin slip. we di pikin de slip, dεn kin kכntinyu fכ mכsu tin dεm lεk in bren wev, at rεt, brith, yay εn leg muvmεnt. |
| Bɔku Slip Latɛns Tɛst (MSLT) . | Dis na di de afta di PSG tɛst. Insay dis, dɛn kin aks di pikin fɔ slip smɔl ɛvri tu awa. Dɛn kin mɛzhɔ aw kwik di pikin kin slip ɛn aw kwik dɛn kin go insay dip slip (REM slip). |
Sɔntɛnde, dɛn sayn ya kin tan lɛk ɔda sik dɛn we dɛn kin gɛt we dɛn smɔl (e.g., ADHD, we pɔsin kin gɛt sik), we kin mek dɛn nɔ no di sik fayn . So, dɛn tɛst ya rili impɔtant fɔ mek dɛn no di sik kɔrɛkt wan.
Tritmɛnt de fɔ sik we dɛn kɔl narkolepsi?
Bɔt i sɔri fɔ no se, no mɛrɛsin nɔ de yet fɔ gɛt narkolepsi. Bɔt pan ɔl we na sik we pɔsin kin gɛt fɔ ɔl in layf, tritmɛnt dɛn de we rili fayn we kin ɛp fɔ kɔntrol di sik dɛn ɛn ɛp di pikin fɔ liv nɔmal layf.
Dɛn kin sheb di tritmɛnt mɔ to tu pat:
1. Di mɛrɛsin dɛn we dɛn kin yuz
2. Fɔ chenj di we aw pɔsin de biev ɛn di we aw i de liv in layf
Tritmɛnt wit mɛrɛsin
Yu dɔktɔ kin gi yu difrɛn mɛrɛsin fɔ ridyus di slip we yu de slip na de, fɔ kɔntrol di katapleksi, fɔ ridyus di sayn dɛm lɛk we yu nɔ de slip fayn ɛn we yu de si tin dɛn we yu de si.
Fɔ ɛgzampul:
- Di tin dɛn we de mek pɔsin want fɔ du sɔntin
- Ejen dɛn we de mek pipul dɛn wek
- Sɛntral nervɔs sistɛm dipreshɔn
- Di mɛrɛsin dɛn we de mek pɔsin nɔ fil bad
Di tin we impɔtant pas ɔl na dat yu dɔktɔ go disayd di mɛrɛsin ɛn di doz we fit yu pikin. Dis kin tek sɔm wiks. So, i rili impɔtant fɔ fala di dɔktɔ in instrɔkshɔn dɛn di rayt we.
Di chenj we pɔsin de biev ɛn di we aw i de liv in layf
Apat frɔm mɛrɛsin, smɔl chenj dɛn we pikin kin chenj na in layf kin mek big chenj.
- Mek yu pikin fɔ go slip ɔltɛm: Mek yu pikin yus fɔ go slip ɛn wek di sem tɛm ɛvride.
- Mek yu pikin yus fɔ shɔt slip: Gi yu pikin shɔt 20-30 minit slip we i fil se i de slip mɔ.
- Mek ples fɔ slip fayn: Yu bedrum fɔ kwayɛt, dak, kol, ɛn fayn. Nɔ wach TV ɔ yuz yu fon we yu sidɔm na bed.
- Stɔp fɔ it kafin: Nɔ it soda, kɔfi, ti, ɛn chɔklɛt sɔm awa bifo yu go slip.
- Ɛksesaiz: I fayn fɔ ɛksesaiz fɔ at le 20 minit insay di de. Bɔt i nɔ fayn fɔ mek yu du ɛksɛsayz tri awa bifo yu go slip.
- Nɔ du tin dɛn we denja: Kip yu pikin ɔnda big pɔsin we i de du tin dɛn lɛk fɔ swim ɛn kuk we go denja if i slip wantɛm wantɛm.
- Gɛt sɔpɔt frɔm di skul: Tɛl di ticha ɛn prinsipal bɔt yu pikin in kɔndishɔn. Dis go ɛp dɛn fɔ gɛt di say dɛn we dɛn nid fɔ slip (e.g., fɔ alaw di pikin fɔ slip insay di de).
- Gi sɔpɔt saikolojik: Fɔ liv wit dis sik kin tranga fɔ di pikin in filin, so i rili impɔtant fɔ gi dɛn di sɔpɔt frɔm pɔrsin wae sabi bɔt mɛntɛl hεlth.
Aw yu, as mama ɔ papa, go ɛp yu pikin?
As mama ɔ papa, yu na yu pikin in trɛnk pas ɔlman na dis waka. I kin tek sɔm tɛm fɔ gɛt kɔrɛkt diagnosis ɛn fɛn di rayt tritmɛnt plan. Peshɛnt insay da tɛm de.
Stay in kɔntakt wit di skul ticha dɛn. Ɛksplen di tin we de apin to yu pikin to dɛn. Tɔk to dɛn bɔt di we dɛn we yu go ɛp yu pikin fɔ lan.
Mɛmba se nɔto yu wangren de du dis. We yu wok as tim wit yu dɔktɔ, yu pikin in ticha dɛn, ɛn if nid de, pipul dɛn we sabi bɔt mental wɛlbɔdi biznɛs, dat kin gi yu pikin di trɛnk we i nid fɔ bia wit dis sik.
Fɔ dɔn, if yu pikin de slip pasmak na de, nɔ jɔs kɔl am "lɛsin," bɔt tɔk to dɔktɔ bɔt am. Di kwik we dɛn no se i gɛt dis sik, na di mɔ dɛn go ɛp yu pikin fɔ gɛt fayn fayn pikin dɛn.
Mɛsej we dɛn kin kɛr go na os
- Narkolepsi nɔto les, na nyurolɔjik kɔndishɔn we gɛt fɔ du wit di bren.
- Di men sayn dɛm na wae yu de slip pasmak na de ɛn yu de lɔs yu kɔnshɛns wantɛm wantɛm (Cataplexy) we de kam wit strɔng filin dɛm lɛk fɔ laf.
- If yu gɛt dɛn sik ya, yu go mɔs go to dɔktɔ we de mɛn pikin dɛn.
- Sɔntɛm dɛn kin nid spɛshal stɔdi bɔt aw pɔsin de slip fɔ mek dɛn ebul fɔ no di sik kɔrɛkt wan.
- Pan ɔl we dɛn nɔ gɛt kɔmplit mɛrɛsin, di mɛrɛsin ɛn chenj dɛn we dɛn kin chenj in layf kin kɔntrol di sik dɛn fayn fayn wan ɛn ɛp di pikin fɔ liv in layf we nɔmal.
- If di pikin de pan denja bikɔs i de slip wantɛm wantɛm, kɛr dɛn go na di ɔspitul we de nia am wantɛm wantɛm na di Imejɛnsi Tritmɛnt Yunit (ETU).
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