Yu de wɔri bɔt lumps ɔ bumps na yu bɔdi? Dɛn tin ya kin bi nyurofibromas. Lɛ wi tɔk bɔt dɛn!

Yu dɔn ɛva notis smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl. Ɔ yu dɔn ɛva si pɔsin we yu sabi gɛt wan? Na nɔmal tin fɔ fil smɔl fɔ fred ɛn wɔri we yu si dɛn tin ya. Bɔt nɔto ɔl di lumps dɛn kin denja. Tide wi go tɔk bɔt wan pan dɛn kayn lump ya, we na wan sik we dɛn kɔl nyurofibroma. Nɔ wɔri, wi go tɔk bɔt dis ditayli ɛn simpul wan.

Wetin na Nyurofibroma?

Fɔ tɔk am simpul wan, nyurofibroma na fayn tumbu we de gro along yu nerve cells. Na tru tru wan pan wan grup we nɔ kin apin so ɔltɛm we dɛn kɔl nyurofibromatosis. Sɔm pipul dɛm wae dɛn bɔn wit nyurofibromatosis kin gɛt dɛn tumbu ya na dɛn skin, ɔnda dɛn skin, ɔr dip insay dɛn bɔdi.

Bɔt na di tin ya, bɔku pan di nyurofibroma dɛn nɔ kin mek ɛni big prɔblɛm wit wɛlbɔdi biznɛs . Bɔt sɔntɛnde, if dɛn big smɔl, dɛn kin afɛkt bɔku bɔku nerv dɛn ɛn mek dɛn gɛt siriɔs wɛlbɔdi prɔblɛm. If na so i bi, dɔktɔ dɛn go pul dɛn wit ɔpreshɔn.

Udat dɛn dis kayn tin kin afɛkt mɔ?

Infakt, dɛn kin bɔn pipul dɛn wit dɛn nyurofibromas ya. Bɔt di wɔndaful tin na dat, we dɛn tumbu ya rili bigin fɔ apia, i kin tek sɔm ia. Bɔku tɛm, dɛn kin si dɛn klia wan we dɛn yɔŋ.

Statistikin sho se lɛk wan pan ɛvri 3,000 pikin dɛn kin gɛt wan sik we dɛn kɔl Nyurofibromatosis Tayp 1 (NF1) . Dɛn kin no am bifo dɛn ol 10. Na lɛk 25% pan di pikin dɛn we gɛt NF1, ɔ lɛk wan pan ɛvri 4, kin gɛt tumbu we kin big fɔ mek dɛn gɛt siriɔs wɛlbɔdi prɔblɛm.

Aw Nyurofibroma kin afɛkt wi bɔdi?

Di we aw nyurofibroma kin afɛkt ɛnibɔdi kin difrɛn bad bad wan. I dipen pan di kayn tumbu, aw i big, ɛn usay i de na di bɔdi.

• Fɔ sɔm pipul dɛn, dɛn tin ya kin tan lɛk smɔl smɔl bɔmp ɔ pat pan di skin we tik.
• Bɔt fɔ sɔm pipul dɛn we gɛt big nyurofibroma, dɛn kin afɛkt dɛn insay ɔgan ɛn ivin di spɛnal kɔd.

Tink bɔt am, sɔntɛnde i kin tan lɛk se smɔl bɔl de fɔm insay di bɔdi. Di ifɛkt we i gɛt dipen pan usay i de.

Yu tink se dɛn lumps ya kin bi kansa?

Dis na prɔblɛm we bɔku pipul dɛn gɛt. Bɔku pan di nyurofibroma dɛn nɔ kin bi bad bad tin. Dɛn na benign.

Bɔt,wan spɛshal kayn de we dɛn kɔl Plɛksifɔm nyurofibromas. Na lɛk 10% pan dis kayn, ɔr lɛk wan pan ɛvri tɛn, gɛt di potenshal fɔ bi kansa. So, i rili impɔtant fɔ mek dɔktɔ chɛk yu if yu gɛt wan lump lɛk dis.

Wetin na di sayn dɛm fɔ Nyurofibroma?

Di sayn dɛm fɔ nyurofibroma kin difrɛn. As wi bin dɔn tɔk, dɛn kin dipen pan di kayn tumbu, di sayz, ɛn usay di tumbu de. I sɔprayz fɔ no se sɔm pipul dɛn we gɛt nyurofibroma nɔ kin sho ɛni sayn. Bɔt sɔntɛnde, dɛn kin mek pɔsin gɛt tin dɛn lɛk fɔ paralayz ɔ ivin blaynd.

Lɛ wi tek wan luk pan dɛn kayn nyurofibromas ya ɛn di sayn dɛm we gɛt fɔ du wit dɛn:

Nyurofibroma dɛn we de na di say we dɛn de

Dɛn kin kɔl dis bak cutaneous neurofibromas.

• Dɛn tin ya kin apin lɛk smɔl smɔl bɔmp dɛn ɔlsay na di bɔdi .
• Dɛn kin apin to pipul dɛm wae ol bitwin 20 ɛn 40 ia.
• Dɛn bɔmp ya kin it ɛn i kin at bak we yu prɛs am .

Difyuz nyurofibroma dɛn

Dis na ɔda wan we de pan di sem kayn nyurofibroma we de na di bɔdi.

• Dɛn kin si dɛn tin ya mɔ na di ed ɛn nɛk .
• I de sho lɛk say we tik ɛn rayz na di skin.
• Yu kin fil lɛk se yu de swɛt ɔ yu kin fil lɛk se yu de fil we yu tɔch am.

Plɛksifɔm nyurofibroma dɛn

dis kayn nyurofibroma de divεlכp pan grup dεm fכ nεv dεm.

• Dɛn tin ya kin apin mɔ pan pikin dɛn we gɛt Nyurofibromatosis Tayp 1.
• dis growth dεm kin gro big wan as tεm de go εn sכmtεm dεn kin tan lεk bכku big lumps pan כ כnda di pikin dεm skin.
• Dɛn tin ya kin put prɛshɔn pan di spɛnal kɔd ɔ di periferik nɛv dɛm, ɛn dis kin mek yu gɛt sayn dɛm lɛk paralayz , wik, ɛn swɛt .
• pan sɔm pikin dεm we gεt Plexiform neurofibromas, di prεshכn fכ dεn tכmכro dεm ya na di spayna kin mek wan kכndyushכn we dεn kכl skoliosis . I impɔtant fɔ no dis, bikɔs as mama ɛn papa, wi nid fɔ rili sɛnsitiv we sɔntin lɛk dis afɛkt pikin.

Aw dɛn bɔmp dɛn ya tan lɛk? (Aw a luk)

di nyurofibroma tכmכro dεm we de fכm pan כ כnda di skin, de luk bכku difrεnt frכm plexiform nyurofibroma dεm we de fכm dip insay di bכdi.

• Lokalized nyurofibromas / Kutan nyurofibromas:Dis na lumps (nodul) we gɛt kɔlɔ lɛk di skin . Dɛn kin de na di trɔnk, ed, nɛk, an, ɛn leg. Dɛn saiz lɛk pis . Dɛn saf we yu tɔch dɛn ɛn dɛn gɛt smɔl mushy tɛkstɔr . If yu pres pan wan lump lɛk dis, i go sink insay di skin, ɛn we yu pul yu an, i go pop bak ɔp. Dɔktɔ dɛn kɔl dis "buttonhole sign." I tan lɛk ol na shirt usay dɛn put bɔtin.
• Difyuz nyurofibromas: Dɛn kin tan lɛk wan say we rɛd ɛn rayz na di skin .
• Plɛksifɔm nyurofibromas: Dɛn kin tan lɛk big big bɔdi we dɛn dɔn push kɔmɔt na di bɔdi. Dɔktɔ dɛn kin tɔk se dɛn "lɛk bag we gɛt wom ɔnda di skin." If yu si sɔntin lɛk dis, i go fayn fɔ mek yu go to dɔktɔ wantɛm wantɛm.

Wetin na Nyurofibromatosis Tayp 1 (NF1)?

Nyurofibromatosis Tayp 1 (NF1) na wan sik we kin afɛkt lɛk 1 pan ɛvri 3,300 pikin dɛn we dɛn jɔs bɔn. Nyurofibroma na jɔs wan sayn fɔ dis sik (NF1). Ɔda sayn dɛn de we kin sho se yu gɛt dis sik:

• Café-au-lait spots: Dɛn spat ya na layt brawn, kɔfi kɔlɔ, big spat. Dɛn spat ya kin big as tɛm de go.
• di growth dεm we nכ de du bad na di pat we gεt kכla (iris): dεn kכl dεn tin ya bak Lisch nodules.
• di tכmכro dεm na di optik nεv: dεn kכl dεn tin ya optik path gliomas.

If yu tink se yu pikin gɛt wan ɔ mɔ pan dɛn sik ya, i impɔtant fɔ go to dɔktɔ we de mɛn pikin dɛn fɔ advays.

Wetin na di tin dɛn we kin mek pɔsin gɛt nyurofibroma?

Nyurofibroma na wan sayn fɔ di kɔndishɔn nyurofibromatosis tayp 1 (NF1). dis kכndyushכn de kכz fכ wan mכtεshכn כ chenj na wan jin we dεn kכl NF1 jin. di NF1 jin de kכri di instrכkshכn dεm fכ mek wan protin we dεn kכl nyurofibromin.

Naw luk, dis prɔtin we dɛn kɔl Nyurofibromin rili impɔtant. Na wan prɔtin we de mek di tumbu nɔ de wok . dat min se na wetin nכmal fכ stכp di sεl dεm fכ gro tu fast εn divayd we dεn nכ de kכntro. Aw i kin du dat? כda protin de we dεn kכl Ras protin, we de εp di sεl dεm fכ gro εn sheb. Dat Ras protin na Nyurofibromin de manej am.

so, we dat `(NF1)` jin de mute, i de stכp fכ stכp di sεl gro. Dɔn di sɛl dɛn kin bɔku we dɛn nɔ ebul fɔ kɔntrol ɛn dɛn kin mek tumbu dɛn. Yu ɔndastand?

dis kכndishכn `(NF1)` kin pas to pikin dεm if wan pan di mama εn papa gεt dis jεnεtik mכtεshכn. Sɔntɛm dɛn mama ɛn papa dɛn de gɛt am frɔm dɛn mama ɛn papa. Bɔt i sɔprayz fɔ no se 50% pan di pipul dɛm wae gɛt `(NF1)`, dat na lɛk af, nɔr gɛt ɛni famili histri bɔt dis sik. dis min se dis kכndyushכn kin apin ivin if nyu jεnεtik mכtεshכn apin.

Aw dɔktɔ dɛn kin no bɔt dis?

Bɔku tɛm, dɔktɔ dɛn kin fɔs fɔ chɛk dɛn bɔdi fɔ no if yu gɛt nyurofibroma. Dis min se dɛn kin luk yu ɛn chɛk fɔ si if yu gɛt lumps.

Apat frɔm dat, dɛn kin yuz imej tɛst dɛn lɛk dɛn wan ya:

• CT skan (Computed Tomography scan) ɛn MRI scan (MRI - Magnetic Resonance Imaging): Dɛn kin yuz dɛn tɛst ya fɔ fɛn rili smɔl tumbu dɛn. Dɛn kin ɛp bak fɔ no usay di tumbu de ɛn if di ɔpreshɔn go afɛkt di tisu ɔ di ɔgan dɛn we de rawnd am.
• PET scan (Positron Emission Tomography scan): Dis tɛst de ɛp dɔktɔ dɛn fɔ no if di tumbu nɔ fayn ɔ i bad.

Wetin na di tritmɛnt fɔ nyurofibroma?

Dɔktɔ dɛn gɛt bɔku we dɛn fɔ mɛn nyurofibroma:

• Monitoring: If yu nyurofibroma na benign ɛn nɔ de kɔz ɛni big prɔblɛm, yu dɔktɔ go tɛl yu fɔ kam insay fɔ chɛk-ap ɔltɛm fɔ si if ɛni chenj de.
• Plastik ɔpreshɔn: Yu dɔktɔ kin se yu fɔ du plastic ɔpreshɔn fɔ pul di tin dɛn we nɔ bad na di skin ɔ ɔnda di skin.
• Ɔpreshɔn: If yu gɛt nyurofibroma we de prɛs yu bon ɔ yu ɔgan dɛn, yu dɔktɔ kin se yu fɔ du ɔpreshɔn fɔ pul bɔku pan di tumbu, ɔ bɔku pan di tumbu as yu ebul, ɛn nɔ pwɛl yu ɔgan ɔ tisu dɛn.

Ɛni bad tin de we kin apin we pɔsin du ɔpreshɔn?

Di sayd ɛfɛkt dɛn we dɛn kin gɛt we dɛn du ɔpreshɔn pan nyurofibroma kin difrɛn frɔm wan ɔpreshɔn to ɔda ɔpreshɔn. Fɔ ɛgzampul, di bad tin dɛn we kin apin we dɛn du ɔpreshɔn fɔ pul di tumbu dɛn na di skin difrɛn frɔm di wan dɛn we dɛn kin du ɔpreshɔn fɔ pul di tɔŋ dɛn na di spayna. If yu de plan fɔ du nyurofibroma ɔpreshɔn, i impɔtant fɔ aks yu dɔktɔ bɔt di bad tin dɛn we di ɔpreshɔn go du.

Yu tink se we de fɔ mek dɛn tin ya nɔ apin?

Nyurofibroma na wan sik we pɔsin kin gɛt frɔm in jɛnɛtiks, so i nɔ kin izi fɔ mek dɛn tɔŋ ya nɔ gro .

Wetin kin apin if a gɛt nyurofibroma?

Jɛnɛral wan, bɔrku pipul dɛm wae gɛt nyurofibroma nɔr kin afɛkt di sik . Bɔt di wan dɛn we gɛt bɔku ɔ big tumbu kin wɔri bɔt aw dɛn luk ɛn fil se i de afɛkt dɛn kwaliti layf. If yu gɛt dis sik, tɔk to yu dɔktɔ bɔt ɔpreshɔn fɔ pul di tumbu dɛn we yu de si we de mek yu nɔ fil fayn ɛn yu de tink bɔt yusɛf. Nyurofibromas nɔ kin rili kam bak afta dɛn dɔn du di ɔpreshɔn.

Aw a go tek kia ɔf misɛf if a gɛt nyurofibroma?

Nyurofibromas na benign tumor, ɛn dɛn nɔ kin gɛt siriɔs wɛlbɔdi prɔblɛm . Bɔt sɔntɛnde, pipul dɛn we gɛt bɔku nyurofibroma, ɔ di wan dɛn we gɛt big tumbu kin fil se dɛn de tink bɔt dɛnsɛf bɔt aw dɛn tan. Insay dɛn kayn tin ya, ɔpreshɔn kin bi fayn tin fɔ du.

If dɛn no se yu gɛt benign tumor, i nɔ kin mek yu fred ɔ mek yu fred lɛk aw dɛn no se yu gɛt kansa tumor. Bɔt ivin wan benign tumor lɛk nyurofibroma kin gɛt impak pan yu layf.

Dɛn tin ya kin afɛkt di we aw yu de luk. Sɔm pipul dɛn kin gɛt nyurofibromas, we kin gro big fɔ afɛkt di ɔgan ɛn tisu dɛn we de nia dɛn. If dɛn dɔn no se yu gɛt nyurofibromas, aks yu dɔktɔ bɔt ɔpreshɔn fɔ pul yu nyurofibromas.

Dɔn bak, mɛmba se nyurofibroma kin bi wan sayn fɔ wan sik we nɔ kin apin so ɔltɛm, we dɛn kin gɛt frɔm dɛn mama ɛn papa we dɛn kɔl nyurofibromatosis, we kin mek yu gɛt siriɔs wɛlbɔdi prɔblɛm. So, i rili impɔtant fɔ aks yu dɔktɔ if yu lump na sayn fɔ nyurofibromatosis.

Mɛsej we dɛn kin kɛr go na os

Okay, so na sɔm pan di impɔtant tin dɛn we yu nid fɔ mɛmba frɔm wetin wi dɔn tɔk bɔt:

• Nyurofibroma na wan kayn tכmכro we de kכmכt frכm di nεv sεl dεm εn i nכ kin du bad .
• Dɛn tin ya kin bi sayn fɔ wan jɛnɛtik kɔndishɔn we dɛn kɔl nyurofibromatosis.
• Pan ɔl we bɔku tɛm dɛn tin ya nɔ kin mek big big prɔblɛm wit yu wɛlbɔdi biznɛs, sɔm big ɔ plexiform kayn kin mek yu gɛt prɔblɛm .
• Smɔl pasɛnt pan di kayn Plɛksifɔm dɛn gɛt risk fɔ gɛt kansa .
• Di sayn dɛm kin difrɛn, frɔm wae yu skin kin bɔmp, yu nɔr kin fil fayn, yu kin fil pen, ɛn sɔm tɛm dɛn kin ivin pwɛl yu nerv bad bad wan.
• Dɛn kin no di sik bay we dɛn de du mɛrɛsin ɛn if nid de, dɛn kin du CT, MRI, ɛn PET skan.
• Di tritmɛnt na fɔ wach, ɔ ɔpreshɔn if nid de.
• Dɛn wan yaDɛn nɔ kin ebul fɔ avɔyd am bikɔs na in jɛnɛtiks, bɔt dɛn kin ebul fɔ kɔntrol di sayn dɛm.
• If yu gɛt ɛnitin fɔ tink bɔt wan lump lɛk dis, i go fayn fɔ mek yu nɔ fred ɛn go to dɔktɔ .

Mɛmba se nɔto yu wangren de. If yu no bɔt dɛn kayn tin ya ɛn gɛt di ɛp we yu nid fɔ ɛp yu fɔ gɛt wɛlbɔdi, dat kin ɛp yu fɔ gɛt wɛlbɔdi.

` nyurofibroma, nyurofibromatosis, NF1, skin lumps, nεv tכmכro, kafe-au-lait spat, jεnεtik sik dεm