We yu dɔktɔ gi yu ɔ yu pikin wan mɛrɛsin we dɛn kɔl Nitisinone, i nɔmal fɔ mek yu fred smɔl ɛn fred. Dis na bikɔs dis nɔto mɛrɛsin we dɛn kin yuz bad bad wan. Bɔt nɔ wɔri. Insay dis atikul, wi go tɔk bɔt dis mɛrɛsin insay wan rili simpul we we yu go ɔndastand. Jɔs lɛk aw yu padi go ɛksplen am to yu.
Wetin na dis mɛrɛsin we dɛn kɔl Nitisinone?
Fɔ tɔk am simpul wan, Nitisinone na wan mɛrɛsin we de mek di amino asid tayrozin we de na wi bɔdi nɔ brok. Dɛn kin yuz am mɔ fɔ trit wan sik we nɔ kin apin so ɔltɛm, we dɛn kɔl hereditary tyrosinemia type I.
Imajin, pɔrsin wae gɛt dis sik nɔr kin ebul fɔ daygεst ɔr brok tayrosin fayn fayn wan. Dɔn i kin gɛda na di bɔdi ɛn pwɛl di ɔgan dɛn lɛk di liva ɛn di kidni. Di drɔg we dɛn kɔl Nitisinone de stɔp da bad bad akyumuleshɔn de. Dis drɔg de kam bak ɔnda di brand nem Orfadin.
Wetin a fɔ tɛl di dɔktɔ bifo a yuz dis mɛrɛsin?
Bifo yu dɔktɔ gi yu dis mɛrɛsin, i rili impɔtant fɔ no yu kɔmplit wɛlbɔdi istri. So, mek shɔ se yu tɛl am bɔt dɛn tin ya:
- Tɛl wi if yu gɛt alɛji fɔ Nitisinone ɔ ɛni ɔda mɛrɛsin, it, ɔ day .
- If yu gɛt bɛlɛ, ɔ yu de op fɔ bɔn pikin jisnɔ, se so.
- If yu na mama we de gi pikin in bɛlɛ, tɛl wi bɔt am bak.
Bay dis infɔmeshɔn, yu dɔktɔ go disayd if dis mɛrɛsin fayn fɔ yu ɔ if dɛn nid fɔ chenj di doz.
Aw ɛksaktɔli yu kin yuz dis mɛrɛsin?
Fɔ mek yu gɛt di bɛst pan di mɛrɛsin, i impɔtant fɔ yuz am di rayt we.
- Tek dis mɛrɛsin wit wan glas wata.
- Di tin we impɔtant pas ɔl na fɔ tek dis mɛrɛsin fɔ at le wan awa bifo yu it. Nɔ tek am wit it. Dis na bikɔs if yu tek am wit it, dat kin mek di mɛrɛsin nɔ go insay di bɔdi.
- If yu de gi am to yɔŋ pikin dɛn, yu kin tek tɛm opin di kapsul, sɔlv di mɛrɛsin paoda insay smɔl wata, fɔmula, ɔ apul sos, ɛn gi dɛn wit spun. Bɔt yu fɔ gi dɛn wantɛm wantɛm afta yu dɔn sɔlv am, ɛn i nɔ fayn fɔ kip am.
- Tek di rayt doz lɛk aw yu dɔktɔ tɛl yu. Nɔ tek pas di mɔni we dɛn dɔn tɛl yu fɔ ɛni rizin.
- Nɔ stɔp fɔ tek di mɛrɛsin wantɛm wantɛm if yu dɔktɔ nɔ advays yu.
Dis mɛrɛsin na fɔ yu nɔmɔ. Nɔ sheb am wit ɛni ɔda pɔsin fɔ ɛni rizin.
We dɛn gi am to smɔl pikin dɛn
Dɛn kin ivin gi dis mɛrɛsin to pikin dɛn we dɛn jɔs bɔn ɔnda sɔm tin dɛn we dɛn dɔn pik. Bɔt duya tɔk bɔt dis wit yu dɔktɔ we de mɛn pikin dɛn ɛn fala in instrɔkshɔn dɛn gud gud wan.
Wetin a go du if a tek bɔku mɛrɛsin?
If yu tink se yu dɔn tek mɔ pas di doz we dɛn tɛl yu fɔ tek, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta wantɛm wantɛm na di Kɔlɔmbɔ Nashɔnal Ospital, ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu.
Wetin yu kin du if yu mis apɔntinmɛnt fɔ tek mɛrɛsin?
Tek di doz we yu mis as yu mɛmba. Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek di nɛks doz, skip di doz we yu mis ɛn tek di nɛks doz di tɛm we yu dɔn sɛtul. Nɔ ɛva tek dɛbul doz fɔ mek di doz we yu dɔn fɔgɛt.
Tin dɛn we yu fɔ tek tɛm wit we yu de yuz dis mɛrɛsin
Bɔku impɔtant tin dɛn de we yu fɔ pe atɛnshɔn to we yu de tek dis mɛrɛsin.
1. Fɔ chɛk yu dɔktɔ ɔltɛm: Go na yu dɔktɔ in apɔntinmɛnt dɛn di rayt tɛm. Yu kin nid fɔ mek dɛn du impɔtant blɔd wok fɔ si aw di mɛrɛsin de wok na yu bɔdi. Nɔ skip dɛn.
2. Special Diet: Dis na di tin we impɔtant pas ɔl ɛn we pɔsin fɔ du. We yu de tek dis mɛrɛsin, yu go gɛt fɔ strikt fɔ stɔp di it dɛn we gɛt di amino asid dɛn we dɛn kɔl tayrozin ɛn fɛnylalanin . Yu dɔktɔ ɛn pɔsin we sabi bɔt it go gi yu klia list fɔ di it dɛn we yu fɔ it ɛn we yu nɔ fɔ it. Fɔ fala dis it strikt wan impɔtant fɔ mek di tritmɛnt go bifo.
Wetin na di sayd ɛfɛkt dɛm we dis mɛrɛsin kin gɛt?
Lɛk ɛni mɛrɛsin, Nitisinone kin mek yu gɛt sayd ɛfɛkt. Pan ɔl we nɔto ɔlman kin gɛt dɛn, i impɔtant fɔ no bɔt dɛn.
| Klasifikɛshɔn fɔ di sayd ɛfɛkt dɛn | |
|---|---|
| Sayd ɛfɛkt dɛm we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
| Alɛji dɛn we pɔsin kin gɛt | Skin rash, it, swel na di fes, lip ɔ tong. |
| Prɔblɛm dɛn we gɛt fɔ du wit di yay | di we aw yu de si kin chenj, di yay kin pen, i kin rεd, i kin fil fכ layt. |
| Liva prɔblɛm dɛn | di urine we dak, di stɔl we de shayn, pen na di ɔp rayt say na di bɛlɛ, di yay ɔ di skin we de yɔlɔ (lɛk janda). |
| Di kɔmɔn sayn dɛm | I nɔ kin want fɔ it igen, i nɔ kin fil fayn, i kin gɛt fiva, ɛn i nɔ kin fil fayn. |
| Ɔda siriɔs sayn dɛn | Blɔd ɔ brus we nɔ kɔmɔn, we de mek yu fil pen na di an ɛn di fut. |
| Sayd ɛfɛkt dɛn we nɔ kin siriɔs, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Bɛlɛ nɔ kin fil fayn | Dayarɛa (we pɔsin kin blo). |
| Skin ɛn ia kin chenj | Dray skin, ia we de lɔs. |
If yu notis ɛnitin we nɔ kɔmɔn we nɔ de na dis list, tɔk to yu dɔktɔ bɔt am bak.
Aw yu kin kip mɛrɛsin sef?
Fɔ mek dis mɛrɛsin kɔntinyu fɔ gɛt di kwaliti, i rili impɔtant bak fɔ kip am kɔrɛkt wan.
- Mek shɔ se yu kip am na frij. I fɔ de na di tɛmpracha bitwin 2 ɛn 8 digri sɛlshiɔs (36 ɛn 46 digri F.
- Nɔ kip am na friza fɔ ɛni rizin. Nɔ mek di mɛrɛsin friz.
- Nɔ lɛf am usay pikin dɛn go ebul fɔ ol am.
- Trowe di mɛrɛsin we dɔn pas.
Dis infɔmeshɔn pepa na jɔs sɔmari. If yu gɛt ɛni ɔda kwɛstyɔn, duya nɔ shem fɔ aks yu dɔktɔ.
Mɛsej we dɛn kin kɛr go na os
- Nitisinone na spɛshal mɛrɛsin we dɛn kin gi fɔ trit wan sik we nɔ kin apin so ɔltɛm we dɛn kɔl hereditary tyrosinemia type I.
- Dis mɛrɛsin fɔ tek wan awa bifo yu it . Nɔ tek am wit it.
- Nɔ stɔp fɔ tek di mɛrɛsin wantɛm wantɛm if yu nɔ gɛt dɔktɔ advays.
- Fɔ it spɛshal it we dɛn de du dis tritmɛnt. Fɔ fala di instrɔkshɔn dɛn we yu dɔktɔ ɛn pɔsin we sabi bɔt it gi yu di rayt we.
- If yu gɛt ɛni siriɔs sayd ɛfɛkt lɛk yu yay pen, yu skin yɔlɔ, ɔ blɔd we nɔ kɔmɔn , tɛl yu dɔktɔ wantɛm wantɛm.
- Kip di mɛrɛsin fayn fayn wan na frij , usay pikin dɛn nɔ go ebul fɔ rich.
💬 Comments (0)
No kɔmɛnt nɔ de yet. Ad yu kɔmɛnt ya fɔ di fɔs tɛm.
Ad yu kɔmɛnt