We yu dɔktɔ tɛl yu se yu gɛt wan liva kɔndishɔn we dɛn kɔl PBC, ɔ `Primary Biliary Cholangitis`, yu kin fil bad bad wan ɛn wɔri. "Wetin go apin to mi liva? A go nid fɔ gɛt liva transplant?" Sɔntɛm yu go de wɔnda. Bɔt nɔ wɔri. Infakt, nɔto ɔlman we gɛt PBC nid fɔ gɛt liva transplant. Insay dis atikul, wi go tɔk bɔt ustɛm dɛn nid fɔ transplant yu liva, wetin na di rizin dɛn, ɛn aw yu dɔktɔ disayd fɔ du dis.
Fɔs, lɛ wi si wetin mek nɔto ɔl PBC pasɛnt nid fɔ gɛt liva transplant.
Fɔ tɔk am simpul wan, PBC na sik we de gro sloslo . Ɛspɛshali if yu kech am kwik ɛn fala yu dɔktɔ in instrɔkshɔn, i kin tek 15 to 20 ia fɔ mek di sik go te to di stej we i rili bad. Bɔrku pipul kin ebul fɔ kɔntrol dɛn sik wit de rayt mɛrɛsin ɛn liv nɔrmal layf fɔ lɔng tɛm ɛn nɔr gɛt ɛni big big sayd ɛfɛkt.
Dat min se no rizin nɔ de fɔ fred fɔ gɛt liva transplant jɔs bikɔs yu gɛt PBC. Na fɔ smɔl pipul dɛn nɔmɔ we gɛt sik we rili bad ɛn we nɔ go mɛn.
Imajin, if dɛn no se yu gɛt di sik smɔl let, ɔ if yu gɛt wan agresiv kayn sik we de skata kwik kwik wan, na da tɛm de yu fɔ tink bɔt fɔ transplant yu liva.
So, ustɛm yu fɔ tink bɔt fɔ transplant yu liva?
Yu dɔktɔ ɛn di mɛdikal tim go luk sɔm tin dɛn fɔ disayd if yu nid fɔ transplant yu liva. Dis nɔto tin we pɔsin kin disayd fɔ du wan tɛm nɔmɔ. Dɛn go kɔntinyu fɔ wach aw yu sik ɛn kam fɔ no wetin de apin.
Lɛ wi si wetin na dɛn men rizin dɛn de na di tebul we de dɔŋ ya.
| Rizin fɔ rifer fɔ liva transplant | Wetin dis min? |
|---|---|
| Di tritmɛnt we nɔ de wok fayn | If yu nɔ ebul fɔ kɔntrol di sik wit di mɛrɛsin dɛn we dɛn gi yu, fɔ ɛgzampul , Ursodeoxycholic acid (UDCA) ɛn Obeticholic acid (OCA) , ɛn di damej pan yu liva de kɔntinyu. |
| Liva we nɔ de wok fayn | If di liva gɛt siriɔs skata (dɛn kɔl dis sirosis ) ɛn di liva nɔ ebul fɔ du in men wok dɛn lɛk fɔ klin di blɔd ɛn mek di prɔtin dɛn we di bɔdi nid, . |
| Di we aw ɔda siriɔs prɔblɛm dɛn kin apin | If PBC kin mek ɔda siriɔs wɛlbɔdi prɔblɛm dɛn we kin mek yu layf de pan denja, lɛk we yu de blɔd na yu dijestiv sistɛm (GI trakt) ɔ yu liva kansa, yu go nid fɔ tink bɔt fɔ transplant. |
| Di sayn dɛn we pɔsin nɔ go ebul fɔ bia | Sɔntɛnde, ivin if di liva nɔ de wok fayn, if dɛn nɔ ebul fɔ kɔntrol di sik dɛn lɛk fɔ it we yu nɔ ebul fɔ bia ɔ fɔ taya pasmak wit mɛrɛsin, dɛn kin se yu fɔ transplant am fɔ mek yu layf bɛtɛ. |
Simptom dɛm wae di dɔktɔ de pe atɛnshɔn mɔ to
Apat frɔm dɛn men tin ya, yu dɔktɔ go de luk fɔ ɔda tin dɛn. Fɔ ɛgzampul:
- Yu yay ɛn yu skin de tɔn yɔlɔ (jaundice)?
- Yu tink se di bɛlɛ kin ful-ɔp wit wata (ascites)?
- Yu de vɔmit blɔd?
- Yu tink se yu nɔ ebul fɔ mɛmba ɛn nɔ no natin (Hepatic encephalopathy)?
Dɛn sayn ya kin min se i nɔ kin izi fɔ di liva fɔ du in wok fayn fayn wan. Dɛn kayn tɛm ya, ilɛksɛf di sik we yu gɛt nɔ rili bad, yu dɔktɔ go disayd fɔ rifer yu fɔ mek dɛn transplant yu liva.
Aw di prɔses we dɛn kin rifer fɔ mek dɛn transplant yu liva kin apin?
Yu jenɛral dɔktɔ go rifer yu to ɛpatɔlɔjis , dɔktɔ we spɛshal pan sik dɛn na di liva ɛn gal blad. If i chɛk yu sik gud gud wan ɛn si se i nid fɔ transplant yu, dɛn go sɛn yu to spɛshal sɛnta na ɔspitul we de du ɔpreshɔn fɔ transplant yu liva.
Dis na smɔl tin we kin tek lɔng tɛm.
1. Mit di spɛshal tim: Wan big tim we gɛt ɔspitul dɔktɔ dɛn, liva spɛshal pipul dɛn, nɔs dɛn, ɛn soshal woka dɛn go chɛk yu.
2. Test: Dɛn kin du bɔku tin lɛk blɔd tɛst ɛn skan fɔ si if yu bɔdi go ebul fɔ bia wit dis kayn big ɔpreshɔn.
3. Fɔ put yu na di wet list: If ɔltin fayn, dɛn go put yu na di nashɔnal wet list fɔ wet fɔ gɛt liva.
I kin tek sɔm mɔnt, sɔntɛnde i kin tek lɔng tɛm fɔ mek yu gɛt liva. Dɛn kin gɛt liva frɔm pɔsin we dɔn day, ɔ frɔm pɔsin we de alayv, lɛk pɔsin na in famili, we gi pat pan dɛn liva.
Di impɔtant tin na dat jɔs bikɔs yu dɔktɔ dɔn rifer yu fɔ transplant nɔ min se yu go gɛt di ɔpreshɔn tumara. I jɔs min se yu dɔn tek di fɔs step fɔ rɛdi yusɛf fɔ am tumara bambay, if i nid fɔ bi.
Wetin a fɔ du?
Di tin we impɔtant pas ɔl fɔ mek yu du na fɔ nɔ fred ɛn fɔ kɔntinyu fɔ tɔk to yu dɔktɔ ɔltɛm.
- Go na klinik dɛn di rayt tɛm: Nɔ skip ɛni klinik. I impɔtant fɔ wach yu kɔndishɔn.
- Tek yu mɛrɛsin jɔs lɛk aw yu dɔktɔ tɛl yu fɔ tek am: Tek yu mɛrɛsin di rayt tɛm ɛn di rayt doz.
- Wɛlbɔdi layf: Stɔp fɔ drink rɔm kpatakpata. It di it we balans. Kɔnsul yu dɔktɔ fɔ ɔda advays bɔt dis.
- Aks kwɛstyɔn dɛn: Tɔk to yu dɔktɔ opin wan bɔt wetin yu de fred, wetin yu de dawt, ɛn wetin yu de wɔri bɔt. Nɔ fred fɔ aks kwɛstyɔn lɛk, "Dɔkta, aw mi ripɔt dɛn de? A fɔ tink bɔt fɔ transplant?"
Fɔ liv wit PBC kin tranga, bɔt mɛmba se, wit di advans tritmɛnt dɛm wae de tide, bɔrku pipul kin ebul fɔ kɔntrol di sik fayn fayn wan ɛn liv gud layf.
Mɛsej we dɛn kin kɛr go na os
- Nɔto ɔlman we gɛt PBC go nid fɔ gɛt liva transplant. Bɔrku tɛm dis na sik wae de go bifo pasmak.
- Dɛn fɔ jɔs tink bɔt fɔ transplant liva we di tritmɛnt nɔ wok, if di liva nɔ ebul fɔ ɔpreshɔn atɔl (liva nɔ wok), ɔ if ɔda siriɔs prɔblɛm dɛn apin.
- Di las tin we yu fɔ disayd if yu nid fɔ transplant ɔ nɔ nid fɔ gɛt transplant na yu spɛshal dɔktɔ de disayd, bay we yu de chɛk yu blɔd, di sayn dɛn we yu gɛt, ɛn ɔl di wɛlbɔdi biznɛs.
- Di bɛst tin we yu go du na fɔ fala wetin yu dɔktɔ tɛl yu fɔ tek, tek yu mɛrɛsin lɛk aw dɛn tɛl yu fɔ du, ɛn go na klinik.
- Tɔk opin wan wit yu dɔktɔ bɔt ɛni kwɛstyɔn ɔr tin wae de mɔna yu bɔt yu sik.
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