Yu pikin in skin de tik ɛn at? Lɛ wi tɔk bɔt Juvenile Systemic Scleroderma!

Yu dɔn notis se yu smɔl pikin in skin dɔn chenj smɔl wantɛm wantɛm? Sɔntɛm di skin dɔn rɔf smɔl, tayt, ɛn fil difrɛn we yu tɔch am? If yu notis sɔntin lɛk dat, yu fɔ wɔri smɔl. Bikɔs, sɔmtɛm dis kin bi sayn fɔ wan sik wae dɛn kɔl Juvenile Systemic Scleroderma , wae wi de tɔk bɔt tide. Nɔ wɔri, wi go tɔk bɔt dis ditayli.

Wetin na Juvenile Sistɛm Sklɛrodama?

Fɔ tɔk am simpul wan, Juvenile Systemic Scleroderma (we dɛn kin kɔl bak Systemic Sclerosis ) na wan sik we yu pikin in skin kin tik ɛn rigid pas aw i kin bi. Tink bɔt am lɛk rɔba we de tik smɔl smɔl ɛn tan lɛk had plastic. I nɔ jɔs de fɔ di skin nɔmɔ. Sɔntɛnde, i kin afɛkt ɔda ɔgan dɛn we de insay di pikin in bɔdi bak. di wכd ‘sistεm’ min se i kin afekt di pikin in כl bכdi.

Dis na rili wan sik we pɔsin kin gɛt we i de fɛt insɛf . Dat min se wi bɔdi in difɛns sistɛm, di imyun sistɛm, kin mistek bigin fɔ atak in yon wɛlbɔdi sɛl dɛn. insay dis kes fכ Skleroderma, we di imyun sistεm atak di skin sεl dεm dis we, inflameshn כ swel na di skin de apin. biכs fכ dis swel, di protin we dεn k כl kolagen, we de gi wi skin in elastik εn trεnk, de bigin fכ prodyuz pasmak. jכs lεk aw ska kin fכm we injuri apin, dis εksyכs kolagen we dεn de mek de mek di skin fכ f כm כ i de mek di skin at lεk ska.

Yu tink se men kayn Systemic Scleroderma de?

Yɛs, tri men kayn dɛn de. Lɛ wi si wetin dɛn bi.

1. diffuse cutaneous systemic sclerosis: Insay dis kayn we, yu kin si di pikin in skin we de tik ɔlsay na di bɔdi. Dɔn bak, prɔblɛm kin de wit di we aw di ɔgan dɛn we de insay di bɔdi de wok. Imajin, nɔto di an, leg, ɛn fes nɔmɔ, bɔt ples dɛn lɛk chɛst ɛn bɛlɛ kin bigin fɔ tik.

2. Limited cutaneous systemic sclerosis (CREST syndrome): Dis wan spɛshal smɔl. Dɛn kin kɔl am bak CREST syndrome . CREST na akɔdin we dɛn mek bay we dɛn jɔyn di fɔs lɛta dɛn pan di fayv men tin dɛn we de sho se dis sik de apin.

• C - Calcinosis: dis min se di kalsiכm de dכn כnda di skin εn i de fכm sכm sכm sכm sכm sכm sכm sכm dεm.
• R - Raynaud in fεnomen: Dis na we di finga dεm (an εn fut) de tכn wayt, blu, εn afta dat rεd we dεn de pan kol כ we dεn de כnda strεs. I kin at fɔ rigul di bɔdi tɛmpracha.
• E - εsophageal motility dysfunction: dis min se di tכb we de kכri it frכm di trot to di bεlε (di εsophagus) nכ de wok fayn we wi de sכlow. Dis kin mek yu at bɔn.Tin dɛn lɛk dat kin apin.
• S - Sklerodaktili: di skin we de na di finga dεm de tik εn at. Di finga dɛn kin swel ɛn stif, lɛk sosish.
• T - Telangiectasia: di sכm sכm bכdi we de na di skin de big, i de sho lεk spayda wεb כ rεd dכt.

3. Sistem sklerכsis sayn skleroderma: Dis na we di intanεt כgan dεm na di bכdi de afekt witout eni tik כ harden pan di skin. ‘Sine scleroderma’ min ‘witout scleroderma (we di skin de at)’. Dis min se pan ɔl we nɔ big chenj nɔ go apin to di skin, di ɔgan dɛn we de insay di skin kin afɛkt.

Udat kin gɛt di sik we dɛn kɔl Juvenile Systemic Scleroderma? Aw i kɔmɔn?

Dis sik we dɛn kɔl Juvenile Systemic Scleroderma kin rili afɛkt ɛnibɔdi we ol ɛni ej, ilɛksɛf na man ɔ uman. Bɔt i nɔ kin izi fɔ mek yɔŋ pikin dɛn, dat na pikin dɛn we nɔ rich 10 ia yet, gɛt am. Di wɔd ‘juvenile’ insɛf min se dis na sik we de afɛkt pikin dɛn. If yu luk di statystik na kɔntri lɛk Amɛrika, dɛn se na bitwin 5,000 ɛn 7,000 pikin dɛn we gɛt Scleroderma. Na lɛk 2% pan di ɔl pipul dɛm wae gɛt Scleroderma kin afɛkt dis sik bifo dɛn rich 10. Ɔda 7% kin gɛt dis sik bitwin di ej 10 ɛn 19. So, dɛn kin tek dis as sik we nɔ kin bɔku .

Wetin na di sayn dɛm fɔ Juvenile Systemic Scleroderma?

pan dis kכndyushכn, di sayn dεm kin afekt di pikin in skin εn di כgan dεm we de insay. Apat frɔm dat, bɔku pikin dɛn we gɛt Systemic Scleroderma kin gɛt wan sik bak we dɛn kɔl Raynaud’s phenomenon .

Di sayn dɛm we de afɛkt di skin ɛn di tisu dɛm

Fɔs, lɛ wi luk aw dis kin afɛkt di skin ɛn di tin dɛn we gɛt fɔ du wit am:

• Di skin kin lɔs in elastik. I kin rɔf, tayt, ɛn i nɔ kin fayn fɔ si.
• Di wok we di an dɛn de du kin go dɔŋ. Di skin kin tayt, mɔ na di finga ɛn an, we kin mek i nɔ izi fɔ bɛn di an ɛn ol tin dɛn.
• rεd bכdi vεsεl dεm de sho na di skin, spεshal wan na di an, fes, εn rawnd di nel dεm (telangiectasias). Dɛn tin ya kin tan lɛk smɔl smɔl spayda wɛb dɛn.
• kalsinɔsis na we smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl. Sɔntɛnde, dɛn tin ya kin fil tranga.

Fɔs, di skin na di an ɛn fut kin tan lɛk se i dɔn swel ɛn i dɔn big. As tɛm de go, di pikin in skin kin tayt, tik, ɛn i kin gɛt wrinkles, say dɛn we kin sink, ɔ smɔl smɔl ol dɛn. Fɔ ɛgzampul, sɔm pikin dɛn finga dɛn kin swel lɛk sosish, dɔn dɛn kin at ɛn shayn.

Simptom dεm we de afekt di intanεt כgan dεm

Sistem Skleroderma kin afekt di intanεt כgan dεm na pikin bak. Di sayn dɛm kin bi:

• Di jɔyn dɛn kin swel, dɛn kin stif, ɛn dɛn kin fil pen. Lɛk at at sik.
• Ɔlsa na di finga dɛn. Dɛn ɔlsa ya kin tek lɔng tɛm fɔ wɛl.
• Prɔblɛm dɛn we de na di dijestiv sistɛm. Fɔ ɛgzampul, at pwɛl, i nɔ kin izi fɔ swɛla, di stɔl we nɔ de kɔmɔt (dayarɛa), ɛn bɛlɛ kin kramp.
• Prɔblɛm dɛn we pɔsin kin gɛt we i de blo. Yu kin gɛt kɔf ɔltɛm ɔ yu kin gɛt prɔblɛm fɔ blo.
• Prɔblɛm dɛn na di kidni. Dis kin mek bak yu blɔd prɛshɔn (haypa prɛshɔn) .
• Fɔ fil taya ɔltɛm. Fɔ taya kwik ivin afta yu dɔn du smɔl tin.
• Di mɔsul dɛn we wik.

Bɔrku tɛm, dis sik nɔr kin mek yu fil pen. So, sɔm pikin dɛn nɔ kin ivin no se dɛn gɛt Scleroderma. Na dat mek pikin we dɛn no se gɛt Systemic Sclerosis fɔ go to dɔktɔ ɔltɛm fɔ chɛk if i gɛt ay blɔd prɛshɔn, lɔng, kidni, bɛlɛ, ɛn at prɔblɛm.

Di tin we Raynaud bin du

Dis na wan sayn we rili spɛshal. Di tin we kin apin to Raynaud na we di pikin in finga ɛn fut finga dɛn kin chenj in kɔlɔ we i kol ɔ we i strɛs. Fɔs dɛn kin tɔn wayt , dɔn dɛn kin tɔn blu , ɛn leta dɛn kin tɔn rɛd . Dis na sayn wae yu kin si wae de sik de bigin. Sɔmtɛm dis kin bi di fɔs tin we de sho se Sistɛm Sklɛrosis de.

Ɔda sayn dɛm wae kin apun wit de sik wae de kam wit Raynaud na:

• Fɔ fil taya ɔltɛm
• Pen na di jɔyn dɛn
• I nɔ izi fɔ swɛla it
• Bɛlɛ de at
• Inflameshɔn na di chɛst
• Rɔnbɛlɛ
• I nɔ kin izi fɔ yu fɔ blo

Wetin mek Juvenile Systemic Scleroderma kin apin?

Fɔ tru, wi nɔ stil no di rayt tin we kin mek pɔsin gɛt Juvenile Systemic Scleroderma . Bɔt risach dɔn sho se we di sɛl dɛn we de layn insay wi blɔd vesel dɛn pwɛl, dat kin mek di kɔnɛktiv tisu sɛl dɛn na di skin we dɛn kɔl fibroblast, kin wok pasmak. dis fibroblast dεm na di sεl dεm we de mek protin dεm lεk kolagen. So, di simptom dεm fכ Systemic Scleroderma de kכz fכ dis כva prodyushכn fכ kolagen.

Wetin mek pikin in skin tayt so?

insay Systemic Scleroderma, di skin kin tayt biכs fכ wan protin we dεn kכl kolagen we pasmak insay di pikin in tisu dεm. As wi bin dɔn tɔk bifo tɛm, di imyun sistɛm in wok na fɔ protɛkt di bɔdi frɔm infɛkshɔn ɛn sik. כltu, insay pikin we gεt Skleroderma, di imyun sistεm de כva riak εn de tray fכ protεkt di bכdi wit in כwn hεlty sεl dεm – dat na, i de atak in yon sεl dεm . dis kin mek di pikin in sεl dεm kin bigin fכ mek tu mכch kolagen. dis kolagen we pasmak de go na di pikin in skin εn di insay כgan dεm, we de mek i tan lεk se i at, tik, we lεk ska.

Aw dɛn kin no bɔt di sik we dɛn kɔl Systemic Scleroderma?

Yu pikin in dɔktɔ go no se i gɛt Systemic Scleroderma bay we i tink bɔt sɔm tin dɛn.

• Di sayn dɛm ɛn sayn dɛm na yu bɔdi, lɛk we yu skin tik ɛn chenj na di finga dɛm.
• Spɛshal chenj dɛn na di skin, lɛk di say dɛn we tik, dɛn saiz, shep, ɛn kɔlɔ.
• Wan kɔmplit mɛdikal istri ɛn fɔ chɛk in bɔdi go gi infɔmeshɔn bɔt di sik dɛn we di pikin bin gɛt trade ɛn if ɛnibɔdi na di famili dɔn gɛt di sem kayn sik.

Us tɛst dɛn kin yuz fɔ no if pɔsin gɛt di sik we dɛn kɔl Systemic Scleroderma?

Dɛn kin du difrɛn tɛst dɛn fɔ no ɔda tin dɛn we tan lɛk sklerodama, fɔ no aw di sklerodama de wok, ɛn fɔ no if ɔda ɔgan dɛn apat frɔm di skin de afɛkt. di tεst fכ di כtoimyun protin dεm kin gi sכm aidia fכ di kכs fכ di sik. Na smɔl tɛm nɔmɔ, dɔktɔ dɛn kin du bayɔpsi fɔ di skin .

Na sɔm ɔda tɛst dɛn fɔ Systemic Scleroderma:

• di bכdi tεst dεm: fכ mכsu di כtoimyun protin lεvεl εn di kidni fכ wok.
• εks-ray tεst: Luk fכ chenj dεm na di pikin in skin, in bon dεm, εn di כgan dεm we de insay (lεk in lכng εn in intestin).
• tεst dεm fכ chεk di sכlow prכsεs na di εsophagus: Dis min se fכ luk di wok we di tכb we de kכri it frכm di mכt to di bεlε de du.
• Pulmonary function test: Na tɛst fɔ no if di pikin in lɔng dɛn de wok fayn fayn wan.
• Hat ultrasound (Echocardiography): Si aw yu pikin in at de wok.

Udat kin no se yu gɛt Juvenile Systemic Scleroderma?

Na yu pikin in jenɛral prɛktishɔn, rεumatɔlɔjis we spɛshal pan dɛn kayn sik ya, wan dεmatɔlɔjis , ɔ wan tim ɔf dɔktɔ dɛn we spɛshal pan sɔm patikyula pat dɛn na di bɔdi (dijestiv sistɛm, at, lɔng, kidni) kin no, wach, ɛn trit am.

Aw dɛn kin trit Juvenile Systemic Scleroderma?

di men gol dεm fכ di sεstεmik sklεrodεma tritmεnt na fכ stכp inflameshn, fכ mek di kכndyushכn nכ wכs, εn fכ mek di intanεt כgan dεm nכ damej.

Fɔ protɛkt di skin

We yu protɛkt yu skin, dat kin ɛp fɔ mek blɔd flɔ to yu skin ɛn yu an ɛn fut dɛn. Dis impɔtant mɔ fɔ pikin dɛn we gɛt di sik we dɛn kɔl Raynaud . Na sɔm tin dɛn we yu kin du fɔ protɛkt yu pikin in skin:

• Nɔ wund di say dɛn we di sik afɛkt, mɔ di finga dɛn ɛn fut finga dɛn.Ivin smɔl kray wata kin bi big prɔblɛm.
• Protɛkt yu pikin in an ɛn fut frɔm di kol. Kip di rum wam. Insay di kol sizin (na say dɛn we kol lɛk di ayland dɛn na wi kɔntri), drɛs yu pikin wit ɛkstra layt klos, lɛk hat we gɛt iaflap, mit, ɛn wam sɔks. Wul wam pas kɔtɔn ɔ sintetik klos. Dɔn bak, i bɛtɛ fɔ wɛr bɔku tin layers pan klos pas wan tik layers.
• Nɔ smok ɔ put yu pikin pan smok.
• Nɔ gi yu pikin kol mɛrɛsin we gɛt di tin we dɛn kɔl pseudoephedrine.
• Protɛkt yu pikin frɔm di san we de shayn pasmak. Yuz tin dɛn we de protɛkt yu frɔm di san lɛk aw yu dɔktɔ tɛl yu.
• Nɔ yuz sop, skrab (stringent, bɔdi ɔ fes skrab, harsh ditajɛn) pan yu pikin in skin.
• Yuz loshan fɔ mek yu pikin in skin smol lɛk aw di dɔktɔ tɛl am.

Fizik tɛrapi

Besik strɛch ɛn gayd ɛksɛsayz program dɛm, we di fizik thɛrapist ɛn ɔkupeshɔn tɛrapist dɛn kin du, kin ɛp fɔ mek di pikin kɔntinyu fɔ fleksibul, di rεnj fɔ muv na di jɔyn dɛm, di mɔsul dɛm trɛnk, ɛn di blɔd flɔ to di say dɛm we di sik afɛkt. Dɛn tritmɛnt ya kin ɛp bak fɔ mek di jɔyn dɛn nɔ kɔntrakt, we na fɔ mek di jɔyn dɛn stif. If nid de, di dɔktɔ kin tɛl yu fɔ yuz splint ɔ bres.

Ɔpreshɔn

Na smɔl tɛm nɔmɔ, i kin nid fɔ du ɔtpidik ɔpreshɔn ɔ kɔsmɛtik ɔpreshɔn fɔ kɔrɛkt di siriɔs jɔyn ɔ skin we nɔ fayn ɔ skata. Bɔt bifo dɛn du di ɔpreshɔn, di sik fɔ dɔn de na remission , we min se i nɔ de wok fɔ sɔm ia.

Yu pikin in dɔktɔ kin tink se fɔ transplant bon mɛrɔ we dɛn kin yuz fɔ insɛf as di tritmɛnt we dɛn go yuz. Naw dɛn de chɛk ɔda tritmɛnt dɛn.

Wetin na di mɛrɛsin dɛm wae dɛn kin gi fɔ Systemic Scleroderma?

Yu dɔktɔ kin gi yu difrɛn mɛrɛsin fɔ trit yu pikin in sik. Fɔ ɛgzampul:

• Kɔtikosterɔyd: I de ridyus di inflamɛns na di mɔsul dɛn, di jɔyn dɛn, ɛn di skin. Stɛroyd kin ɛp bak fɔ trit di fɔs stej dɛm fɔ inflamɛns na di insay ɔgan dɛm. כltu, stεroyd dεm nכ kin bכku bכku wan insay di leta fibrotik stej dεm fכ sεstεmik sklεrosis.
• Nɔn-stɛroyd anti-inflammatory drɔgs (NSAID): Fɔ ɛgzampul , ibuprofen ɛn naproxenSɔntɛnde dɛn kin yuz mɛrɛsin lɛk NSAID fɔ ridyus di jɔyn inflamɛns pan pikin dɛn we gɛt at at. Bɔt dɛn fɔ tek tɛm fɔ mek dɛn nɔ yuz NSAID pasmak we di kidni nɔ de wok fayn.
• כda imyun mכdulet mεdikeshכn dεm: dεn kin gi dεn fכ ridyus di כtoimyun rεspכns εn fכ mek di inflameshn εn ska we de afta dat.
• Drug dɛm wae de mek di blɔd vesel dɛn big ɛn mek di blɔd flɔ fayn: Dɛn kin yuz dɛn tin ya fɔ trit di sik we Raynaud kin gɛt .

If mi pikin gɛt Systemic Scleroderma, wetin a fɔ ɛkspɛkt?

No patikyula mɛrɛsin nɔ de fɔ sklɛroda. Bɔt yu kin ɛp yu pikin fɔ kɔntrol di sik ɛn liv wit am.

Systemic Scleroderma na wan sik we nɔ de mɛn , we de te, ɛn we de go bifo smɔl smɔl. I kin las fɔ sɔm mɔnt ɔ ia. Di we aw yu pikin de si tin dipen pan aw di sik dɛn de ɔlsay ɛn aw bɔku pan di bɔdi (espɛshali di skin ɛn di ɔgan dɛn we de insay) de afɛkt.

Pikin dɛn we gɛt prɔblɛm wit dɛn lɔng, at, ɔ kidni kin gɛt bɔku prɔblɛm dɛn lɛk we dɛn jɔyn dɛn kin kɔntrakt ɛn we dɛn kin chenj dɛn kɔsmɛtik. Dis kכndyushכn kin afekt di pikin in bon dεm bak.

Bɔku tɛm, di sistɛm Sklɛroda nɔ kin go ɔlsay, bɔt i kin de na di sem lɛvɛl fɔ sɔm ia ɛn i nɔ kin wɔs.

Aw lɔŋ yu kin liv wit Juvenile Systemic Scleroderma?

Di layf we pikin we dɛn no se gɛt Systemic Scleroderma kin liv kin difrɛn difrɛn wan bay aw di sik bad, mɔ if i dɔn afɛkt dɛn insay ɔgan dɛn. I impɔtant fɔ tɔk to yu dɔktɔ bɔt dis fɔ mek yu ɔndastand am klia wan.

Yu tink se dɛn kin ebul fɔ mek dɛn nɔ gɛt di sik we dɛn kɔl Juvenile Systemic Scleroderma?

Bikɔs wi nɔ no di rayt kɔz, no patikyula we nɔ de fɔ mek dɛn nɔ gɛt Systemic Scleroderma.

Aw a go kia fɔ mi pikin we dɛn dɔn no se gɛt Systemic Scleroderma?

Pikin dɛm we gɛt Systemic Scleroderma fɔ liv as nɔmal layf as i pɔsibul. Dɛn fɔ go skul, ple, ɛn tek pat pan di tin dɛn we dɛn kin du. In jɛnɛral, nɔ limit nɔ de fɔ di kayn fyzikal aktiviti we pikin dɛn kin du (as lɔng as i sef). Ɛksesaiz kin ɛp fɔ mek yu nɔ gɛt trɛnk ɛn i kin mek yu mɔsul dɛn gɛt mɔ trɛnk, i kin ebul fɔ chenj, ɛn i kin bia.

Ustɛm a fɔ kɛr mi pikin go to dɔktɔ?

Dɛn fɔ kɛr yu pikin go fɔ chɛk am ɔltɛm. Ɛspɛshali wach fɔ di sayn dɛm we de afɛkt di insay pat dɛm. If yu pikin de fil bad bad wan , i nɔ izi fɔ am fɔ muv sɔm pat dɛn na in bɔdi, ɔ i gɛt sɔm sayn dɛn we de afɛkt in layf ɛvride, .Go to dɔktɔ wantɛm wantɛm.

Us kwɛstyɔn dɛn a fɔ aks mi dɔktɔ?

We yu aks kwɛstyɔn dɛn lɛk dɛn wan ya, dat go ɛp yu:

• Aw siriɔs di sik we mi pikin gɛt?
• Aw a go ɛp fɔ protɛkt mi pikin in skin na os?
• Aw ɔltɛm mi pikin fɔ go na fizik tɛrapi?
• Us sayn dɛm a fɔ luk fɔ if di sik wɔs?
• Yu tink se dɛn nid fɔ du ɔpreshɔn pan mi pikin?

Ɔda kayn sklɛrodama de?

apat frכm di tכp dεm fכ Sεstεmik Sklεrodεma, tu men tכp dεm de fכ Sklεrodεma. Dɛn na:

• Localized scleroderma: Dis kayn kin afɛkt di skin nɔmɔ na sɔm say dɛn na di bɔdi. I kin spre bak to di mɔsul ɔ bon dɛn we de ɔnda am, ɔ i nɔ kin de. I nɔ kin afɛkt di ɔgan dɛn we de insay di bɔdi.
• Systemic scleroderma (dεn kin kכl am bak systemic sclerosis): Dis na wetin wi bin de tכk bכt כlsay na dis atikul. pan dis kכndyushכn, di skin kin tik εnisay na di bכdi. apat frכm di chenj dεm we di skin de chenj, di ska tisu kin divεlכp insay di כgan dεm we de insay lεk di kidni, at, lכng, εn di gεstrointestinal sistεm. Pikin dεm we gεt sistεmik sklεrosis kin gεt limited joyn muvmεnt bikoz fכ di chenj dεm we de na di skin we de sכmtεm.

Di impɔtant tin dɛn we yu fɔ mɛmba na dis atikul

Juvenile Systemic Scleroderma na wan sik we nɔ kin apin to pikin dɛn we kin mek di skin tik ɛn at, sɔm tɛm dɛn kin afɛkt di intanɛnt ɔgan dɛn. Na sik we pɔsin kin gɛt we i de fɛt insɛf.

• Di sayn dɛm: di skin kin tayt, di finga dɛm kin swel, di tin we kin apin to Raynaud (di finga dɛn kin chenj kɔlɔ we kol), di jɔyn dɛn kin pen, di prɔblɛm wit di dijestiv, ɛn i kin at fɔ blo.
• Di tin we mek: Pan ɔl we dɛn nɔ no di rayt tin, dɛn tink se na bikɔs di imyun sistɛm nɔ de wok fayn ɛn di kolagen we dɛn de mek pasmak.
• Tritmɛnt: Kɔntrol di sik, protɛkt di skin, yuz fyzikal tritmɛnt ɛn if nid de, yuz mɛrɛsin. Pan ɔl we nɔr de kɔmplit mɛrɛsin, dɛn kin ebul fɔ kɔntrol di sayn dɛm.
• Di tin we impɔtant pas ɔl: If yu pikin gɛt sɔm sayn dɛn, go to dɔktɔ wantɛm wantɛm. I rili impɔtant fɔ rifer yu pikin fɔ mek dɛn chɛk am ɔltɛm ɛn ɛp am fɔ liv nɔmal layf. Nɔr wɔri, yu kin ebul fɔ bia wit dis kayn tin wit di ɛp fɔ dɔktɔ dɛn.

` Sklerodama, pikin dεm skin sik, skin tayt, kolagen, כtoimyun sik dεm, Raynaud in fεnomen, CREST sεndrכm