Yu want fɔ no bak bɔt dis sik (Pilocytic Astrocytoma)? Mek wi tok!

Oh, yu ɔ yu pikin kin gɛt ed pen sɔntɛnde we kin kɔntinyu fɔ kam bak? Ɔ yu kin vɔmit ɔltɛm? Di rizin fɔ dis kin bi sɔntin we yu nɔ kin ivin tink bɔt. Tide wi go tɔk bɔt wan sik we tan lɛk se i siriɔs smɔl, bɔt bɔku tɛm dɛn kin rili trit am. Na wan kayn tכmכro na di bren we dεn kכl (Pilocytic Astrocytoma) . Di nem de mek yu fred smɔl, nɔto so? Bɔt nɔ wɔri, lɛ wi tɔk bɔt am ditayli.

Wetin na dis (Pilocytic Astrocytoma)?

Fɔ tɔk am simpul wan, Pilocytic Astrocytoma na wan tumor we de divɛlɔp na di bren. Wi bren gɛt wan kayn sɛl we dɛn kɔl astrosayt . Dis na sɛl dɛn we tan lɛk sta. di men wok we dεn de du na fכ εp di nεv sεl dεm na wi bren, di nyuron dεm we de kכri mεsej, fכ wok fayn fayn wan. So, wan tכmכro we dεn kכl Pilocytic Astrocytoma de divεlכp frכm dεn astrosayt dεm ya.

Di Wol Ɛlth Ɔganayzeshɔn put dɛn tumbu ya na Gret I , we min se dɛn nɔ gɛt bad bad sik . Gret I min se we yu luk am ɔnda maykroskɔp, di sɛl dɛn we de na di tɔŋ kin tan lɛk nɔmal sɛl dɛn, nɔto kansa sɛl dɛn. Dɛn kin gro bak rili sloslo . Bɔku tɛm, dɛn nɔ kin skata to ɔda pat dɛn na di bɔdi. Bɔt dɛn kin gro smɔl. Bɔku tɛm, ɔpreshɔn fɔ pul di tumbu kin mɛn di sik.

Aw kɔmɔn tin dis kin apin?

Pilocytic Astrocytoma na di kayn bren tכmכro we kin kכmכn pan pikin dεm . Na Amɛrika nɔmɔ, dɛn se dis sik kin afɛkt lɛk wan pan ɛvri 100,000 pikin dɛn we nɔ rich 20 ia yet. Dis kayn tin kin mek lɛk 15% pan ɔl di bren tumbu dɛn na pikin dɛn. pan big pipul dεm, i nכ kin kכmכn sכmtεm, i kin mek lεk 5% pan כl di tכmכro dεm na di bren.

Wetin na di sayn dɛm fɔ Pilocytic Astrocytoma?

Di sayn dɛm fɔ Pilocytic Astrocytoma kin difrɛn frɔm wan pɔrsin to ɔda pɔrsin. I dipen mɔ pan di sayz we di tumbu gɛt ɛn di rayt say we i de na di bren . Sɔntɛnde, di tumbu nɔ kin sho ɛni sayn te i big. Bɔt sɔm kɔmɔn sayn dɛn de we yu kin si:

• Di ed we kin at bɔku tɛm .
• Taya, ɔ slip ɔltɛm (Lethargy) .
• Fɔ vɔmit .
• Di chenj we pɔsin de biev, di pɔsin we i bi, ɛn di we aw i de fil . Yu kin trangayes ɛn vɛks pas aw yu bin de du trade.
• Chenj dɛn we de apin na di ebul fɔ tink, lan, ɛn pe atɛnshɔn .
• Stif nɛk .
• Yu nɔ de si fayn, yu nɔ de si tu tɛm, ɔ yu yay nɔ de muv kwik kwik wan .
• Wiknɛs na di limb dɛm ɛn i nɔ kin izi fɔ kɔdinɛt we yu de waka ɔ du wok .
• Precocious puberty bikɔs ɔf di chenj dɛn we de apin na di ɔmon.

Di sik kin apin so ɔltɛm, bɔt i nɔ kin rili bɔku.

usai dεn (Pilocytic Astrocytoma) tכmכro dεm de fכm?

bכku tεm, dεn tכmכro dεm ya (Pilocytic Astrocytoma) de divεlכp na wi sεntri nεv sεstem , we na di bren εn spεnal kכd. Dɛn kin si dɛn mɔ na wan pat we dɛn kɔl di sɛribɛl . di sεribεl na di pat pan wi bren we de na di bak, bכtכm, usay di ed εn nεk de mit.

apat frכm dat, dεn tכmכro dεm ya kin divεlכp bak na dεn ples dεm ya, pan כl we i sכm sכm:

• Optic nerve - Na di nerve we de kכnekt wi yay to wi vishכn.
• haypothalamus - na imכtant pat na di bren we de kכntro di כmon dεm.
• Brenstem - di pat we de kכnekt di bren to di spεnal kכd.
• Spinal kɔd .

Wetin kin mek dis apin?

Infakt, wi stil nɔ no bɛtɛ bɛtɛ wan wetin kin mek dɛn astrosayt sɛl dɛn ya gro wantɛm wantɛm we wi nɔ ebul fɔ kɔntrol dɛnsɛf ɛn mek wan tumbu. Bɔt risach dɔn sho bɔku tin dɛn we kin mek dis apin:

• jεnεtik chenj dεm : dεn fכnshכn sכm chenj dεm na di jin (BRAF) we de sho se dεn de sho dis.
• Eksposure to ionizing radiation : We yu de gɛt redyushɔn tɛrapi as tritmɛnt fɔ ɔda kayn kansa, fɔ ɛgzampul, lukimiya ɔ limfoma.

apat frכm dat, dεn kin si Pilocytic Astrocytoma bak wit sכ m jεnεtik kכndishכn dεm . Ɛgzampul dɛn:

• (Nyurofibromatosis Tayp 1) .
• (Li-Fraumeni sindrom) we gɛt di sik.
• (Tubɔrɔs sklɛrosis) .

Us prɔblɛm dɛn dis kin mek?

sכm komplikashכn dεm kin apin bikoz fכ di Pilocytic Astrocytoma. Dɛn tin ya na:

• I nɔ de si fayn igen .
• Ay dɛn we de bɔl .
• We yu de lɔs yu wet ɔ yu go gɛt mɔ wet .

insay kes dεm we rili rεs εn siriכs, di say εn di sayz we di tכmכro de kin mek prεshכn pan di bren stεm (bren stεm kכmprεshכn) כ wan kכndyush כn we dεn kכl haydrosεfalus, we kin mek yu layf de pan denja.

Aw dɛn kin no dis sik (Pilocytic Astrocytoma)?

Dɔktɔ go fɔs no yu ɔ yu pikin bay we i go chɛk dɛn bɔdi, lisin gud wan to di sayn dɛn we yu gɛt, ɛn tek yu mɛdikal istri . Dɔn dɛn go du tɛst fɔ no ɔda tin dɛn we kin mek pɔsin gɛt di sem kayn sik.

Skan (Radiology) fɔ no if pɔsin gɛt Pilocytic Astrocytoma

Bɔku tɛm dɛn kin fɛn dis tumbu ɛn dɛn kin kɔnfyus di diagnosis.Wan skan we dɛn kɔl (MRI - Magnɛtik Rizɔnans Imej). Sɔntɛnde, yɔŋ pikin dɛn we gɛt sayn dɛn fɔ gɛt prɔblɛm wit dɛn nervɔs sistɛm kin gɛt prɔblɛm fɔ de stil we dɛn de du di skan (MRI). If dɛn kayn tin ya apin, dɔktɔ dɛn kin se dɛn fɔ du (CT scan - Computed Tomography scan) . Dɛn skan dɛn ya kin no di sayz, shep, ɛn di rayt say we di tumbu de. Dis kin rili ɛp fɔ plan di tritmɛnt.

Wetin na di tritmɛnt fɔ Pilocytic Astrocytoma?

Di men tritmɛnt we dɔktɔ dɛn kin se fɔ Pilocytic Astrocytoma na fɔ ɔpreshɔn fɔ pul di tumbu . bכku tεm, if dεn kin pul di tכmכro kכmplit wan dis we, di Pilocytic Astrocytoma kכndishכn kin kכmplit kכl.

Bɔt sɔntɛnde, di sayz ɛn di say we di tumbu de, kin mek i nɔ izi fɔ pul am ɔl. If i gɛt bɔku prɔblɛm dɛn, di dɔktɔ we de du di ɔpreshɔn kin pul wan pat nɔmɔ pan di tɔŋ ɛn wach di sayz ɛn di we aw di pat we lɛf de gro as tɛm de go. If di tumbu kam bak ɔ di pat we lɛf gro bak, dɛn kin du ɔda ɔpreshɔn.

Wan ɔda tritmɛnt we nɔ kin bɔku na di tritmɛnt we dɛn kin yuz fɔ mɛn pipul dɛn we gɛt raytin . Yu dɔktɔ kin pik dis tritmɛnt bay usay di tumbu de, aw i nɔ izi fɔ mek dɛn du di ɔpreshɔn, ɔ if yu gɛt ɔda kayn kemotɛrapi. Yu dɔktɔ go disayd us tritmɛnt go fayn fɔ yu.

imכtant, wit di advansmεnt dεm na jεnεtik tεst , inklud mכlikul tεst fכ Pilocytic Astrocytoma, tεst afta di כpεrayshכn kin no sכm pan di mכtεshכn dεm we de mek di simptom dεm, lεk BRAF v600E. Tritmɛnt dɛn de we FDA dɔn gri fɔ fɔ dɛn muteshon ya. Yu kin fit bak fɔ gɛt ɛkspirimɛnt tritmɛnt ɔ klinik trial . Dɛn tin ya go bɛnifit yu ɛn ɔda pipul dɛn. So, tɔk to yu dɔktɔ bɔt fɔ mek dɛn du dɛn mɔlikul tɛst ya pan yu tumbu tisu afta dɛn dɔn du di ɔpreshɔn.

Ɛni bad tin de we di tritmɛnt kin du?

Sɔm sayd ifɛkt dɛn kin apin afta dɛn dɔn ɔpreshɔn fɔ pul di Pilocytic Astrocytoma tumor. Fɔ ɛgzampul:

• Blɔd we de kɔmɔt .
• Sik we de prɛd .
• De swɛl .
• Pen .
• Ed de at .
• Haydrosɛfalɔs we dɛn kɔl .

Yu dɔktɔ we de du ɔpreshɔn go tɔk to yu bɔt dɛn sayd ɛfɛkt ya bifo yu bigin fɔ trit yu, ɛn dɛn go tek tɛm fɔ mek dɛn sayd ɛfɛkt ɔ kɔmplikeshɔn ya nɔ apin we dɛn de du di ɔpreshɔn.

Redyushɔn tɛrapi kin mek sɔm sayd ɛfɛkt dɛn bak:

• Taya .
• Nɔs ɛn vɔmit .
• Rɔnbɛlɛ.
• Ed de at .
• Di ia we de lɔs .
• Skin alɛji, we de rɛd .
• Fɔd nɔ kin te .
• Fɔ pis ɔltɛm ɔ di nid fɔ pis kwik kwik wan .

Aw kwik a go wɛl afta dɛn dɔn trit mi?

(Pilocytic Astrocytoma) I kin tek sɔm wiks fɔ mek yu bɔdi wɛl afta dɛn dɔn du di ɔpreshɔn fɔ pul di tumbu. Yu dɔktɔ go gi yu instrɔkshɔn bɔt aw fɔ kia fɔ yusɛf ɔ yu pikin afta dɛn dɔn du di ɔpreshɔn. If yu gɛt ɛni kwɛstyɔn, aks yu dɔktɔ.

Wetin na di prɔgnosis fɔ dis kɔndishɔn?

Fɔ wan Gret I (Pilocytic Astrocytoma), di prɔgnosis rili gud . Dis na bikɔs na tumbu we nɔ gɛt bad bad sik ɛn i nɔ kin go ɔda pat dɛn na di bɔdi. Di kwik we dɛn fɛn di tumbu ɛn trit am, na di mɔ di chans fɔ mek i wɛl . Dɔn bak, yu jenɛral wɛlbɔdi, yu ej, ɛn ɔda tin dɛn go afɛkt di we aw dɛn de no di sik. Dipen pan yu sik, yu dɔktɔ kin gi yu mɔ kɔrɛkt diagnosis.

Wetin na di rεt we de liv fכ (Pilocytic Astrocytoma)?

di layf we pikin ɛn yɔŋ pipul dɛn we dɛn dɔn no se gɛt Pilocytic Astrocytoma bifo dɛn ol 20 ia rili ay . Wan stכdi sho se di 10 ia sכvayv rεt pas 92%. Dis rεt de inkrεs if di sכja dεm kin pul di tכmכro kכmplit wan.

Yu tink se dɛn kin ebul fɔ mek dɛn nɔ gɛt Pilocytic Astrocytoma?

Bikɔs di wan dɛn we de stɔdi bɔt dis sik stil nɔ ɔndastand klia wan wetin kin mek dɛn gɛt dɛn tumbu ya, naw no we nɔ de fɔ mek dɛn nɔ gɛt dɛn .

Ustɛm yu fɔ go to dɔktɔ?

If yu tink se yu ɔ yu pikin gɛt di sik we dɛn kɔl Pilocytic Astrocytoma, go to dɔktɔ wantɛm wantɛm. Mɔ:

• Di ed we kin at bɔku tɛm .
• Di chenj dɛn we de apin na di we aw pɔsin de si tin .
• Di chenj dɛn we de apin na di we aw pipul dɛn de biev .
• Nɔ ebul fɔ kɔntrol di bɔdi, i nɔ kin izi fɔ mek yu ebul fɔ wok togɛda .

Dɔn bak, tɛl yu dɔktɔ if yu notis ɛni wan pan dɛn tin ya afta dɛn dɔn du di ɔpreshɔn fɔ pul di tumbu:

• Siri pen we pɔsin kin fil .
• De swɛl .
• Di kɔlɔ we di skin kin chenj na di say we dɛn du di ɔpreshɔn .

If yu fil se sɔntin nɔ fayn, tɔk to dɔktɔ.

Us kwɛstyɔn dɛn yu fɔ aks di dɔktɔ?

Nɔ fɔgɛt fɔ aks dɛn kwɛstyɔn ya we yu go si yu dɔktɔ:

• Yu tink se a rili nid ɔpreshɔn?
• Wetin na di sayd ɛfɛkt dɛm we di tritmɛnt kin gɛt?
• Aw mi (ɔ mi pikin) fɔ kia fɔ misɛf afta dɛn dɔn ɔpreshɔn mi?
• Us prɔblɛm dɛn a fɔ wach fɔ afta dɛn dɔn du di ɔpreshɔn?
• Wetin na di tin dɛn we a go ebul fɔ du fɔ mek a wɛl?
• Ɛni klinik trial de we gɛt fɔ du wit mi kɔndishɔn?

Fɔ dɔn, tin dɛn we wi fɔ mɛmba

Na nɔmal tin fɔ mek yu fred ɛn fil bad we yu kam fɔ no se yu, yu pikin, ɔ pɔsin we yu lɛk gɛt bren tumbu. Bɔt Pilocytic Astrocytoma na wan sik we dɛn kin trit ɛn mɛn bɔku tɛm . Bɔrku tɛm, i nɔ kin skata to ɔda pat na di bɔdi, ɛn i kin wɛl ɔl if dɛn pul di tumbu.

Yu mɛdikal tim go ɛp yu fɔ fɛn di tritmɛnt plan we go fayn fɔ yu. Dɛn go du dɛn bɛst bak fɔ mek yu nɔ gɛt prɔblɛm ɛn mek yu tinap bak kwik kwik wan. So tek yu at!

` pilocytic astrocytoma, bren tumor, pikin kansa, astrocytoma, bren ɔpreshɔn, simptom, tritmɛnt