Sɔntɛnde, i nɔ kin izi fɔ yu fɔ grap na chia? Yu leg dɛn kin fil wik we yu de klaym stej? Ɔ yu kin fil lɛk se yu nɔ gɛt trɛnk na yu an we yu es sɔntin? Pan ɔl we wi kin tink se dɛn tin ya na nɔmal tin we kin apin bikɔs wi taya, sɔntɛnde, sik kin de biɛn dis we wi nɔ yɛri bɔku bɔt. Tide wi de tɔk bɔt dis kayn sik we nɔ kin bɔku, bɔt i fayn fɔ mek wi no bɔt am. Dat na di sik we dɛn kɔl Polymyositis.
Fɔ tɔk am simpul wan, wetin na Polymyositis?
Polymyositis na wan sik we nɔ kin apin so ɔltɛm. Na sik we pɔsin kin gɛt we i de fɛt insɛf . Tink bɔt dis we: wi imyun sistɛm tan lɛk ami we de protɛkt wan kɔntri. Di wok we da ami de du na fɔ protɛkt wi bɔdi bay we dɛn de fɛt di jem ɛn vayrɔs dɛn we de kɔmɔt na do. Bɔt insay Polymyositis, dis ami nɔ kin go fayn ɛn bigin fɔ atak wi yon wɛlbɔdi mɔsul dɛn instead fɔ atak wi ɛnimi dɛn we de na do.
Fɔ tɔk am simpul wan, di tin dɛn we wi yon bɔdi de protɛkt wi de atak wi . Dɛn kɔl dis Myositis, we min se di mɔsul dɛn kin inflamɛns ɔ swel. Insay polymyositis , di wɔd "poly" min "bɔku." dis min se pan dis kכndyushכn, di mכsul dεm na difrεn pat dεm na di bכdi kin afekt di sem tεm.
Bɔku tɛm dis kin afɛkt di mɔsul dɛn we de nia di midul pat na wi bɔdi. Fɔ ɛgzampul:
- An (especially sholda ɛn an) .
- Hip ɛn shɔl
- Chɛst ɛn bak
- Di mɔsul dɛn na di nɛk
Dɛn nɔ dɔn fɛn di rayt tin we kin mek pɔsin gɛt dis sik yet. Ɛn no mɛrɛsin nɔ de fɔ am yet. Bɔt nɔ wɔri. If dɛn gɛt di rayt tritmɛnt ɛn manejmɛnt, bɔku pipul dɛn dɔn ebul fɔ kɔntrol dɛn sik ya ɛn liv nɔmal layf.
Wetin na di sayn dɛm fɔ dis sik?
Di sayn dɛm fɔ polymyositis kin difrɛn frɔm wan pɔrsin to ɔda pɔrsin. Bɔt sɔm kayn sik de wae kin kam ɛn de prɔblɛm wae dɛn kin kam wit ɛvride. Lɛ wi luk dɛn na wan tebul.
| Di sayn we de sho se di sik de | Fɔ ɛksplen am simpul wan |
|---|---|
| Di mɔsul dɛn we wik | Dis na di men sayn we de sho se yu gɛt dis sik. Di mɔsul dɛn, mɔ na di sholda, hip, ɛn shɔl, kin wik. I kin at fɔ grap na chia, klaym stej, ɛn es wet. |
| Mɔsul dɛn kin pen ɛn stiff | Mɔsul dɛn kin at, dɛn kin fil pen ivin we dɛn tɔch am. Yu kin fil stiff, mɔ we yu wek na mɔnin. |
| I nɔ kin izi fɔ swɛla (Dysphagia) . | We yu trot mɔsul dɛn wik, dat kin mek i nɔ izi fɔ swɛla it ɛn drink, ɛn i kin mek yu fil lɛk se yu de chok. |
| I nɔ izi fɔ blo (Dyspnea) . | If di chɛst mɔsul dɛn wik, i kin at fɔ blo ɛn i kin fil lɛk se yu de blo. |
| I nɔ izi fɔ tɔk | If di mɔsul dɛn na yu trot ɛn nɛk afɛkt, yu vɔys kin chenj ɛn i nɔ kin izi fɔ tɔk klia wan. |
| Ɔda tin dɛn we de apin | I kin bi bak se yu kin taya ɔltɛm, yu jɔyn dɛn kin pen, yu kin wik, yu nɔ kin gɛt bɔku bɔku bɔdi, ɛn yu kin gɛt fiva. |
Di tin we impɔtant pas ɔl na dat if i nɔ izi fɔ yu fɔ blo ɔ fɔ swɛla it ɔ drink , na imejensi. If na so i bi, yu fɔ go na di imejensi rum (ETU) na ɔspitul wantɛm wantɛm.
Wetin na di tin dɛm wae kin mek yu gɛt polymyositis ɛn tin dɛm wae kin mek yu gɛt dis sik?
As wi bin dɔn tɔk bifo tɛm, dɛn nɔ dɔn fɛn ɛni patikyula kɔz fɔ dis. Bɔt sɔm tin dɛn kin mek i izi fɔ mek dis sik apin.
Di tin dɛn we kin mek i apin
- Ɔda ɔtoimyun sik dɛm: If yu dɔn gɛt ɔda ɔtoimyun sik lɛk `(Lupus)`, `(Rheumatoid arthritis )`, `(Scleroderma)`, yu de pan ay risk fɔ gɛt Polymyositis.
- Vayral infεkshכn: Sכmtεm wan vayral infεkshכn lεk `(COVID-19)`, `(Influenza)` (flu), di kכmכn kol, `(HIV)` kin bi trig fכ dis kכndyushכn.
Udat dɛn de pan big risk?
- Fɔ uman dɛn: Uman dɛn kin gɛt dis sik lɛk tu tɛm pas man dɛn.
- Fɔ pipul dɛm wae ol bitwin 30-60 ia: Pan ɔl wae i kin kam pan ɛni ej, dɛn kin no dis sik mɔr na dis ej grup.
- Fɔ di wan dɛn we gɛt ɔda sik dɛn we dɛn kin gɛt we dɛn de fɛt dɛnsɛf.
Aw yu go fɛn dis, Dɔktɔ?
We yu go to dɔktɔ wit di sayn dɛn we yu bin dɔn tɔk bɔt, i go aks yu fɔs bɔt yu sik dɛn ditayli. Dɔn i go chɛk yu mɔsul dɛn. Apat frɔm dat, i go ɔda fɔ mek dɛn du bɔku tɛst dɛn fɔ no di sik kɔrɛkt wan.
| Tɛst | Wetin yu si pan dis? |
|---|---|
| Tɛst fɔ Blɔd | dis tεst de luk pan sכm εnzym dεm we de kכmכt na di bכdi we di mכsul dεm dεn dכn pwεl εn di kayn antibodi dεm we de kכmכt agens wi כwn bכdi. |
| MRI skan we dɛn kin du | Dis kin mek yu si klia wan tin dɛn lɛk fɔ swel ɛn inflamɛns na di mɔsul dɛn. |
| EMG tɛst (Ɛlektromayografi) . | Dis de luk di ilɛktrik aktiviti we di mɔsul dɛn de du. Dis kin no ɛni abnɔmal tin we de na di we aw di mɔsul dɛn de wok. |
| Mɔsul Bayɔpsi | Dis min se dɛn fɔ tek wan rili smɔl pat pan di mɔsul we afɛkt ɛn chɛk am ɔnda maykroskɔp. Dis kin ɛp fɔ no ustɛm di mɔsul dɔn pwɛl. |
Aw dɛn kin trit am?
As wi bin dɔn tɔk, no mɛrɛsin nɔ de fɔ dis sik. Bɔt di tritmɛnt na fɔ kɔntrol di inflamɛns na di mɔsul dɛm, ridyus di sayn dɛm, ɛn ɛp yu fɔ wok as nɔmal as yu ebul. Bɔrku pipul kin go na remission wit tritmɛnt.
Bɔku men we dɛn de fɔ trit pɔsin:
- Kɔtikosterɔyd: Dɛn wan ya na pawaful klas fɔ mɛrɛsin we de ridyus di inflamɛns. Bɔrku tɛm dis na di fɔs tritmɛnt fɔ bigin wit.
- Immunosuppressants: Dɛn drɔgs ya de wok bay we dɛn de ridyus di wok we wi imyun sistɛm de du smɔl, we de ridyus di damej we wi yon tisu dɛn de du.
- Intravenous immunoglobulin (IVIG): Dis na tritmɛnt we difrɛn smɔl. I involv fɔ gi yu bɔdi di antibodi dɛm we dɛn tek frɔm pipul dɛm we gɛt wɛlbɔdi tru wan salin sɔlvushɔn. Fɔ tɔk am simpul wan, i tan lɛk we yu gi yu imyun sistɛm ɔda tin ɛn ridayrɛkt in fɔs. Dis kin mek di nɔmba fɔ di atak dɛn we yu kin atak yu mɔsul dɛn nɔ bɔku.
- Fizik Tɛrapi: Dis rili impɔtant. Wan dɔktɔ we de mɛn yu bɔdi go tich yu ɛksesaiz dɛn we go ɛp fɔ mek yu mɔsul dɛn strɔng ɛn mek dɛn ebul fɔ chenj chenj. Dis kin ɛp fɔ mek yu mɔsul dɛn nɔ wik.
Ustɛm a fɔ go to dɔktɔ?
I rili impɔtant fɔ go to dɔktɔ kwik kwik wan pan dis kayn mɛrɛsin.
- If yu gɛt nyu mɔsul dɛn we wik ɔ pen, mɔ if i nɔ stɔp insay sɔm dez, go to dɔktɔ wantɛm wantɛm .
- If yu dɔn ɔlrɛdi de gɛt tritmɛnt ɛn yu fil lɛk se yu sik de wɔs, ɔ if yu fil se di mɛrɛsin nɔ de wok, tɛl yu dɔktɔ .
| Go na ɔspitul in Imejɛnsi Tritmɛnt Yunit (ETU) wantɛm wantɛm! | |
|---|---|
| If yu gɛt prɔblɛm fɔ blo ɔ yu fil lɛk se yu de swɛla. | |
| If i nɔ izi fɔ yu fɔ swɛla it ɔ drink ɔ if yu de chok ɔltɛm. | |
| If wan pat na di bɔdi we nɔmal fɔ muv nɔ ebul fɔ muv wantɛm wantɛm . | |
Dis na sik we pɔsin kin gɛt frɔm in mama ɛn papa?
Sɔm stɔdi dɔn sho se i kin gɛt sɔntin fɔ du wit dis sik. Dis min se if pɔsin na di famili gɛt am, ɔda pipul dɛn kin gɛt smɔl chans fɔ gɛt am. Bɔt dɛn nɔ pruv am 100% yet. So, jɔs bikɔs yu gɛt dis sik, yu nɔ nid fɔ wɔri se yu pikin dɛn go mɔs gɛt am.
Polymyositis na wan sik wae de kam wae yu de liv yu layf wae nid for de manej. Bɔt i nɔ nid fɔ stɔp yu fɔ liv. If dɛn tek di rayt tritmɛnt, di tritmɛnt fɔ dɛn bɔdi, ɛn chenj dɛn layf, bɔku pipul dɛn kin kɔntrol dɛn sik ɛn liv gladi layf. Di tin we impɔtant pas ɔl na fɔ pe atɛnshɔn to di chenj dɛn we de apin na yu bɔdi ɛn go to dɔktɔ di rayt tɛm.
Mɛsej we dɛn kin kɛr go na os
- Polymyositis na wan sik we nɔ kin apin so ɔltɛm we wi yon imyun sistɛm kin atak wi mɔsul dɛm.
- Di mɔsul dɛn we wik, pen, i nɔ kin izi fɔ swɛla ɛn blo na di men sayn dɛm.
- Pan ɔl we no kɔmplit mɛrɛsin nɔ de fɔ dis, dɛn kin kɔntrol di sik dɛn fayn fayn wan wit mɛrɛsin ɛn fizik tritmɛnt.
- If yu gɛt prɔblɛm fɔ blo ɔ fɔ swɛla, tek am se na imejensi ɛn go na ɔspitul in Imejɛnsi Dipatmɛnt (ETU) wantɛm wantɛm.
- If yu gɛt ɛnitin fɔ wɔri bɔt yu sik ɔr tritmɛnt, tɔk to yu dɔktɔ opin wan.
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