Yu kin gɛt blu, rɛd, ɛn pen finga ɛn fut finga dɛn bak insay di kol sizin, mɔ we yu go na ples lɛk Nuwara Eliya? Sɔntɛnde yu kin gɛt smɔl smɔl sɔri? Pan ɔl we bɔku pipul dɛn kin tink se dis na jɔs kɔmɔn kol, sɔntɛnde dis kin bi wan sik we nid fɔ pe atɛnshɔn smɔl. Tide wi de tɔk bɔt ‘Chilblain Lupus’, we na wan kayn lupus we nɔ kin bɔku bɔt we rili impɔtant.
Wetin na Chilblain Lupus?
Fɔ tɔk am simpul wan, Chilblain Lupus na wan kayn lupus we nɔ kin bɔku ɛn we kin afɛkt wi skin. pan mεdikal, wi kin kכl am ``cutaneous lupus erythematosus כ CLE.`` Pɔsin we gεt dis kכndyushכn kin divεlכp rεd כ pepul lεsin dεm we de mek i fil pen, plek, na in skin we i de pan kol.
Di wɔd "chilblain" rili min "kol sɔri." Dis na di rayt tin we kin apin pan dis kɔndishɔn. Kol wɛda kin mek yu gɛt dɛn sik ya, ɔr kin mek wan sik wae dɔn de, wɔs.
Bɔku tɛm, sɔm pipul dɛn kin gɛt Chilblain Lupus afta dɛn dɔn no se dɛn gɛt di men kayn lupus, ``systemic lupus erythematosus''. Bɔt ɔda pipul dɛn kin gɛt dis sik we dɛn nɔ no bɔt ɛni sik bifo tɛm. Bɔt di pen ɛn diskɔmfɔt we dis sik kin kam wit kin rili bad. If yu notis se yu finga dɛn de it ɛn rayz, mɔ na yu finga ɛn fut finga dɛn, i go fayn fɔ mek yu go to dɔktɔ wantɛm wantɛm ɛn gɛt tritmɛnt.
Wetin na di sayn dɛm fɔ dis sik?
Chilblain Lupus kin bi mεntal rεd כ pepul pat כ lεsin dεm na di skin. Dɛn kin si dɛn tin ya mɔ pan:
- Na di finga dɛn na di an
- Na di il dɛn
- Na di fut dɛn we de na di fut
- Na di fut finga dɛn
Bɔt nɔto ɔltɛm, dɛn lɛsin ya kin apin bak na di an, di ni, di nos, ɔ di yes. Ɔl dɛn tin ya kin rili bad we di wɛda kol ɔ wet.
Apat frɔm dɛn men sayn ya, sɔm ɔda sayn dɛm de wae yu kin si. Lɛ wi si wetin dɛn bi.
| Di sayn we de sho se di sik de | Wan simpul ɛksplen |
|---|---|
| Blista ɔ ɔlsa | wund dεm we nכ de hεl na di skin sεf biכs fכ di bכdi we de kכmכt fayn. |
| Di kɔlɔ we di skin kin chenj (Depigmentation) . | Sɔm say dɛn na di skin kin lɔs dɛn kɔlɔ ɛn dɛn kin gɛt pale. |
| Fishɔ na di il | Dip krak krak dɛn na di skin na di il dɛn. |
| Di skin we de tik (Hyperkeratosis) . | di skin we tik usay di skin lεsin dεm dכn apin. |
| Di tin we Raynaud bin du | We yu de na kol, blɔd nɔ de flɔ to di finga ɛn fut finga dɛn fɔ sɔm tɛm. Dis kin mek di finga dɛn tɔn wayt, blu, ɔ rɛd. |
Wetin mek Chilblain Lupus kin gɛt? Wetin na di tin dɛn we kin mek i apin?
Tu men tin dɛn de we kin mek pɔsin gɛt Chilblain Lupus. Wan na jenɛtik , ɛn di ɔda wan na wan wan tɛm .
Di tin dɛn we kin mek pɔsin gɛt frɔm dɛn mama ɛn papa
Dis kכndyushכn kin kכz fכ sכm chenj dεm na wi jin dεm. in patikyula, dεn fכnshכn se chenj dεm na di jin dεm `(TREX1)` εn `(SAMHD1)` de afekt dis. fכ simpul tεm dεm, di `TREX1` jin de εp fכ ripa wi DNA, εn di `SAMHD1` jin de involv insay di fכnshכn fכ wi imyun sistεm. If difεkt de na dεn jin dεm ya, i kin bi wan kכz fכ Chilblain Lupus na di famili εn pan yכŋ pikin dεm.
I kin apin we nɔ gɛt ɛni rizin
Fɔ sɔm pipul dɛn, dis nɔto tin we dɛn kin gɛt frɔm dɛn mama ɛn papa. I kin apin wantɛm wantɛm we pɔsin big. Dɛn nɔ dɔn fɛn di rayt rizin yet.
Udat de pan big risk fɔ gɛt dis?
Pan ɔl we dis sik kin afɛkt ɛnibɔdi, i kin bɔku pan pipul dɛn we dɔn ol . Pipul dɛn we de na say dɛn we kol ɛn wet ɔltɛm kin gɛt mɔ prɔblɛm bak.
Apat frɔm dat, sɔm ɔda mɛrɛsin dɛn kin mek yu gɛt Chilblain Lupus.
- Anorexia nervosa: Dis na siriɔs prɔblɛm we de mek pɔsin in layf de pan denja fɔ it.
- Intestinal lymphoma: Dis na wan kayn kansa we nɔ kin apin so ɔltɛm we kin apin na di limfatik sistɛm na wi smɔl intestinal.
- Bɛlɛ: Sɔm uman dɛn kin gɛt dis sik ivin we dɛn gɛt bɛlɛ.
Us prɔblɛm dɛn kin apin if dɛn nɔ trit am?
If dɛn nɔ trit dis sik fayn, di wund dɛn na di skin kin gɛt baktri . Dɛn pipul ya kin gɛt mɔ risk fɔ gɛt infεkshɔn na dɛn skin lɛk ``sεlulayt``.
Dɔn bak, pɔsin we gɛt Chilblain Lupus kin dɔn gɛt di sik we dɛn kɔl systemic lupus erythematosus, we na di kayn we we kin ambɔg bɔku bɔku sistɛm dɛn na di bɔdi.
Dis na di rizin we mek wi se if yu notis ɛnitin we nɔ kɔmɔn na yu skin, mɔ wund we nɔ de wɛl, yu nɔ fɔ ignore am ɛn go to dɔktɔ.
Aw dɔktɔ kin no dis kɔrɛkt wan?
If yu gɛt dɛn kayn sik ya, dɛn kin sɛn yu to dɔktɔ we de mɛn yu bɔdi ɔ dɔktɔ we de mɛn yu bɔdi .
Di men tɛst fɔ no dis sik na fɔ tek bayɔpsi na di skin . Dis involv fɔ tek wan rili smɔl pat pan di skin frɔm wan lɛshɔn na yu skin ɛn chɛk am ɔnda maykroskɔp na lɛbɔtri. Dis tɛst kin kɔnfirm if yu gɛt Chilblain Lupus ɔ ɔda sik na yu skin.
Wetin na di tritmɛnt dɛm fɔ dis?
If yu Chilblain Lupus nɔ tu bad, yu kin jɔs nid fɔ protɛkt yusɛf frɔm di kol. Dɔn bak, if yu de smok, yu dɔktɔ go mɔs advays yu fɔ lɛf fɔ smok. Smok kin mek wi blɔd vesel dɛn nɔ izi, ɛn dis kin mek dɛn sik ya wɔs.
If di sik nɔ bɔku ɔ i rili bad, di dɔktɔ kin gi yu difrɛn mɛrɛsin dɛn.
| Di kayn drɔg we dɛn kin yuz | Di wok we i de du |
|---|---|
| Antibayɔtiks | Fɔ trit baktriyal infɛkshɔn na di wund dɛn na di skin. fכ egzampl: `dikloksasilin`, `εritromaysin`. |
| Di tin dɛn we dɛn kin yuz fɔ fɛt malaria | Fɔ ridyus inflamɛns, taya, ɛn joyn pen na di bɔdi. Fɔ ɛgzampul: `haydroksiklorokin`. |
| Drɔg dɛn we de kɔntrol di imyun (Calcineurin inhibitors) . | fכ ridyus di aktiviti fכ di imyun sistεm εn kכntrכl inflameshn. fכ egzampl: `takrolimus`, `maykofεnolet mכfεtil`. |
| Di wan dɛn we de blok di chanɛl dɛn we gɛt kalsiɔm | Fɔ opin di blɔd vesel dɛn ɛn mek i izi fɔ mek di blɔd flɔ. Fɔ ɛgzampul: `nifedipine`. |
| Stɛroyd ɔntmɛnt dɛn | Fɔ ridyus di swel ɛn inflamɛns na di skin. Fɔ ɛgzampul: `fluocinolone acetonide`. |
| Sistem stεroyd dεm | Fɔ ridyus di swel ɛn inflamɛns ɔlsay na di bɔdi. Fɔ ɛgzampul: `prednisɔn`. |
Na smɔl tɛm nɔmɔ, yu dɔktɔ kin tɛl yu fɔ du ɔpreshɔn. Dis kin min fɔ ɔpreshɔn fɔ pul di lɛsin ɛn put skin graft frɔm ɔda say we gɛt wɛlbɔdi na di bɔdi.
Ustɛm a fɔ go to di dɔktɔ?
If yu notis rɛd ɔ pepul, it, ɔ pen na yu finga ɔ fut, il, ɔ yu fut, go to dɔktɔ we yu nɔ go te . I go ebul fɔ no di sik we yu gɛt ɛn bigin di tritmɛnt we yu nid.
We yu go to dɔktɔ, yu kin aks dɛn kwɛstyɔn ya bak:
- "Dɔkta, wetin kin bi di big rizin we mek a de divɛlɔp dis?"
- "I posibul fo mi fo divεlכp sistεmik lupus?"
- "Wetin a fɔ du fɔ mek dɛn injuri ya nɔ apin?"
- "Wetin dem fit du abaut di injuri dem we de nau?"
Yu kin ebul fɔ protɛkt Chilblain Lupus?
Di bɛst tin we yu kin du fɔ ridyus yu risk fɔ gɛt dis sik na fɔ protɛkt yusɛf frɔm di kol . Fɔ du dis, yu kin fala dɛn tin ya.
- Ɛksesaiz ɔltɛm:We yu de du ɛksɛsayz, i de mek di blɔd go fayn ɛn i de mek di bɔdi wam.
- Kip yu os ɛn wokples wam: Ajɔst di say we yu de fɔ protɛkt yusɛf frɔm di kol.
- Sok yu an ɛn fut insay wam wata: If yu du dis bɔku tɛm insay di de, i go mek blɔd go fayn.
- Wom yu an ɛn fut we kol smɔl smɔl: Nɔ du tin lɛk fɔ tɔch dɛn wantɛm wantɛm te faya kech. Wom yu smɔl smɔl fɔ mek yu blɔd go bak.
- Wear wam klos: Wear tik tik sɔks, glɔv, ɛn wam sus we yu de na say we kol.
Lɛk ɔda sik dɛm na di skin, Chilblain Lupus kin mek yu gɛt tranga sik ɛn sɔmtɛm i kin tek sɔm tɛm fɔ fɛn di rayt tritmɛnt. Bɔt nɔ giv ɔp fɔ gɛt op. We yu wok wit dɔktɔ we yu biliv, dat kin ɛp yu fɔ fɛn sɔlv we go wok fɔ yu. Insai dis tɛm, fɔ jɔyn sɔpɔt grup usay yu kin tɔk to ɔda pipul dɛn we gɛt di sem sik kin rili ɛp yu.
Mɛsej we dɛn kin kɛr go na os
- Chilblain Lupus na wan sik we nɔ kin apin na di skin we nɔ kin apin so ɔltɛm we kin mek yu gɛt pen pepul/rɛd lɛsin na di skin we kin mek yu fil bad we yu kol.
- If yu notis dɛn sayn ya na yu an ɛn fut, nɔ ignore dɛn as nɔmal ɛn go to dɔktɔ kwik kwik wan.
- De tin wae impɔtant pas ɔl fɔ mek yu nɔr gɛt dis sik ɛn kɔntrol dis sik na fɔ protɛkt yusɛf frɔm di kol.
- I rili impɔtant fɔ avɔyd fɔ smok ɔltogɛda, bikɔs fɔ smok kin mek yu blɔd vesel dɛn nɔ gɛt bɛtɛ trɛnk ɛn i kin mek di sik dɛn we yu de si, wɔs.
- Pan ɔl we dis na sik we pɔsin kin gɛt fɔ ɔl in layf, if dɛn trit am fayn ɛn kia fɔ am, dɛn kin kɔntrol di sik dɛn fayn fayn wan ɛn liv nɔmal layf.
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