Sɔntɛnde, yu kin fil lɛk se yu leg ɛn an dɛn de stɔp smɔl smɔl, ɔ yu trɛnk de go dɔŋ? Yu kin fil se yu nɔ strɔng lɛk aw yu bin de waka, ɛn sɔntɛm yu kin ivin lɔs yu balans? Pan ɔl we dɛn tin ya na sayn dɛn we yu nɔ go pe atɛnshɔn to, sɔntɛnde, rizin kin de we rili siriɔs biɛn dɛn. Na dat na Primary Lateral Sclerosis, ɔ PLS fɔ shɔt.
Mek wi jos si wetin dis PLS min?
Fɔ tɔk am simpul wan, PLS na wan sik we de go bifo pan nyuromɔskular. I kin mek yu mɔsul dɛn wik smɔl smɔl ɛn/ɔ stif. Bɔku tɛm, di sayn dɛn kin bigin na yu leg. As tɛm de go, dis wik ɛn stif kin go to ɔda mɔsul dɛn na yu bɔdi.
Tink bɔt dis we: wi mɔsul dɛn de wok lɛk ilɛktrik tin. Dɛn nid fɔ gɛt di ‘kɔrɛnt’, di mɛsej frɔm di bren, jɔs lɛk aw i fɔ gɛt. insay PLS, di nεv sεl dεm we dεn kכl Upper Motor Neurons (UMN), we lεk ‘ways’ we de kכri dεn mεsej dεm ya, de pwεl.
I sɔri fɔ no se naw, no mɛrɛsin nɔ de fɔ PLS. So di tritmɛnt de mɔ fɔ kɔntrol yu sik dɛn ɛn ɛp yu fɔ du ɛvride wok izi wan. Fɔ ɛgzampul, fɔ ɛp yu fɔ yuz tik ɔ tin fɔ waka.
Aw PLS kɔmɔn?
PLS na rili wan kɔndishɔn we nɔ kin apin so ɔltɛm. Nɔr statystik nɔr de yet bɔt ɔmɔs pipul dɛn kin gɛt am.
Wetin na di difrɛns bitwin PLS ɛn ALS? PLS kin bi ALS?
Yu go dɔn yɛri bɔt ALS, ɔ Amyotrophic Lateral Sclerosis. PLS ɛn ALS ɔl tu na sik dɛn we de na di nerv ɛn mɔsul dɛn. Bɔt impɔtant tin dɛn de we difrɛn bitwin dɛn tu.
di men difrεns na dat PLS de כnli afekt yu כp mכtal nyuron dεm (UMN) . dis na di nεv dεm we de kכri mεsej frכm di bren to di spεnal kכd. insay ALS, dεn UMN dεm ya de afekt bak, lεk di lכw mכtal nyuron dεm (LMN) , we de kכri mεsej frכm di spεnal kכd to di mכsul dεm.
Naw yu go de wɔnda, ‘So, pɔsin we gɛt PLS kin gɛt ALS leta?’ Yɛs, chans de fɔ mek i ebul. Sɔntɛnde, di fɔs sayn dɛm fɔ ALS kin tan lɛk PLS. If yu gɛt sɔm sayn dɛm we de afɛkt di UMN nɔmɔ, dɛn kin no se yu gɛt PLS fɔs. Bɔt if leta yu gɛt ALS simptom dɛm we de afɛkt ɔl tu di UMN ɛn LMN, yu dɔktɔ kin chenj yu diagnosis to ALS.
infakt, plεnti kes dεm we lεk PLS kin bi di fכs sayn dεm fכ ALS we de afekt di UMN (`UMN-predominant ALS`). Na dat mek dɔktɔ dɛn se fɔ mek dɛn no se yu gɛt PLS, yu nid fɔ gɛt di sayn dɛn fɔ at le tri to 4 ia .
Wetin na di sayn dɛm fɔ PLS?
Di sayn dɛm fɔ PLS kin apin sloslo.Yu nɔ go fil big difrɛns wantɛm wantɛm.
Di sayn dɛm wae yu kin si na di fɔs tɛm:
Fɔs, yu kin fil tin dɛn lɛk dis:
- Stif na di leg dɛn. I kin tan lɛk se yu leg dɛn dɔn stɔp.
- Di mɔsul dɛn na yu leg dɛn kin wik. Yu kin fil lɛk se yu nɔ strɔng lɛk aw yu bin gɛt trade.
- I kin at fɔ waka, ɔ fɔ kip yu balans. Yu kin stɔp ɔ fɔdɔm.
- Mɔsul dɛn kin spam ɔ kramp we kin mek yu fil pen.
Di sayn dɛm wae kin sho wae de sik de go bifo:
As de sik de go bifo, ɔda sayn dɛm lɛk dis kin kam:
- di mכsul dεm na di finga dεm, an dεm, εn an dεm dεn kin sכft εn wik. I kin at fɔ ɔndastand smɔl smɔl tin dɛn ɔ fɔ rayt.
- I nɔ izi fɔ kɔntrol di we aw yu de pis. Dis kin mek yu nɔ ebul fɔ pis kwik kwik wan ɛn yu nɔ kin ebul fɔ pis.
- Pen kin apin na di lכw bכdi εn di nεk.
Di sayn dɛm we nɔ kin apin so ɔltɛm we kin afɛkt di mɔsul dɛm na di tɔŋ:
Dis nɔ kin apin so ɔltɛm, bɔt sɔm pipul dɛn kin gɛt di tɔŋ mɔsul dɛn bak we dɛn kin afɛkt. If dis apin:
- Slɔr tɔk (dysarthria) kin apin. I kin at fɔ kɔl wɔd dɛn klia wan.
- I nɔ izi fɔ swɛla (dysphagia). Yu kin fil lɛk se yu de chok we yu de swɛla it ɔ drink.
Wetin kin mek pɔsin gɛt PLS?
Bɔrku tɛm, wi stil nɔr no di rayt kɔz fɔ PLS. Na dat na di trut.
כltu, rεli rεli, wan kayn PLS de we de afekt yכng pikin dεm εn yכng big pipul dεm (`juvenile primary lateral sclerosis`). dis kin kכz fכ chenj na dεn DNA di tεm we dεn bכn.
Wetin kin apin to wi bɔdi frɔm PLS?
PLS na nyuromɔskular kɔndishɔn. i de mεntal afekt di mכtal nyuron dεm na yu bren εn di nεv fayb dεm we de kכmכt frכm dεn nyuron dεm to di spεnal kכd. dεn kכl dεm bak di כp mכtal nyuron dεm ( UMN).
Imajin, we yu want fɔ muv yu leg, yu bren kin sɛn mɛsej. dis mεsej de travul along di nεv fayb dεm to nyuron dεm na di spεnal kכd, εn frכm de to di mכsul dεm we yu want fכ du na yu leg. We di mɔsul dɛn gɛt dis mɛsej, dɛn kin muf.
insay PLS, dεn UMN nεv sεl dεm ya de day sכmtεm (dεjεnεreshכn). Dɔn, di mɔsul dɛn nɔ kin gɛt di mɛsej dɛn we dɛn nid fayn fayn wan, so di mɔsul dɛn nɔ kin wok lɛk aw dɛn bin de tink.
Dis na sik we pɔsin kin gɛt frɔm in mama ɛn papa?
PLS nɔ kin bi tin we pɔsin kin gɛt frɔm in mama ɛn papa. Dis min se yu kin gɛt am ilɛksɛf nɔbɔdi nɔ gɛt am na yu famili. Bɔrku tɛm, i kin apin randomly, wit nɔr famili histri bɔt dis sik.
Udat de pan ay risk fɔ gɛt PLS?
PLS kin rili afɛkt ɛnibɔdi. Bɔrku tɛm, dɛn kin no bɔt am arawnd di ej 50. Bɔt i kin afɛkt pipul dɛm wae nɔr rich 50 ia, pipul dɛm wae dɔn ol, ɛn ivin pikin dɛm. I kin bɔku smɔl pan man dɛn.
Us kɔmplikɛshɔn kin apin bikɔs ɔf PLS?
As PLS de go bifo, yu kin si am se i nɔ izi fɔ waka we yu nɔ gɛt ɛni ɛp. Yu go nid fɔ yuz tik, tin fɔ waka, ɔ wilchia. Apat frɔm dat, as yu mɔsul dɛn de wik, yu kin lɔs yu balans ɛn fɔdɔm izi wan. If yu du dat, yu go wund.
Aw dɛn kin no se pɔsin gɛt PLS?
Dɔktɔ go no se i gɛt PLS afta dɛn dɔn chɛk in bɔdi, ɛgzam fɔ di nyurolɔjik, ɛn sɔm ɔda spɛshal tɛst dɛn. Dɛn go rivyu yu sayn dɛm ɛn tray fɔ pul ɔda sik dɛm wae gɛt di sem kayn sayn dɛm, lɛk ALS ɔr multiple sclerosis. Dɛn kin yuz dɛn tɛst ya fɔ no if pɔsin gɛt di sik:
- Blɔd tɛst dɛn.
- Ilektrodaygnostik egzamεn dεm - dεn ya de chεk aw yu nεv dεm εn mכsul dεm de wok fayn fayn wan. εgzampl dεm na di nεv kכndukshכn stכdi dεm εn nidul εlektrod stכdi dεm.
- Wan MRI (Magnetic Resonance Imaging) tɛst fɔ di bren ɛn di spɛnal kɔd.
- Sεribrospεnal fכluid (CSF) analisis. dis kin bi bay we yu tek sכm wata frכm yu spayna (wan lכmba pankshכn כ spεnal tap) fכ luk fכ abnכmal tin dεm we spεshal fכ nyuromכskular sik dεm.
Wetin na di tritmɛnt dɛm fɔ PLS?
Di tritmɛnt fɔ PLS na fɔ ɛp yu fɔ kɔntrol yu sik dɛn. Dis kin inklud:
- Mɛrɛsin fɔ mek di mɔsul dɛn nɔ stif, fɔ mek i nɔ ebul fɔ waka, ɛn fɔ mek i nɔ izi fɔ swɛla.
- Fizik tritmɛnt fɔ ridyus di mɔsul dɛn we wik, fɔ mek di mɔsul dɛn ebul fɔ chenj, ɛn fɔ mek di jɔyn dɛn muv fayn fayn wan.
- Divays dɛm we de ɛp fɔ du ɛvride ɛn fɔ muv. Fɔ ɛgzampul, wan tik, pɔsin we de waka, ɔ wilchia.
- Spich therapy ɔr divays fɔ ɛp wit prɔblɛm wae de wit yu fɔ tɔk.
Di mɛrɛsin dɛn we dɛn kin gi fɔ di PLS simptom dɛn:
Sɔm pan di mɛrɛsin dɛm wae dɛn kin gi pɔrsin fɔ gɛt PLS sik na:
- fכ di mכsul dεm stiff: `(Baclofen)` εn `(Tizanidine)`
- Mɔsul dɛn we de kramp: `(Quinine)`
- Fɔ rilaks di mɔsul dɛm: `(Diazepam)`
Ɛni bad tin de we di tritmɛnt kin du?
Yɛs, lɛk ɔl di mɛrɛsin dɛn, dis wan kin gɛt sayd ɛfɛkt. Di sayd ɛfɛkt dɛn kin difrɛn difrɛn wan bay di mɛrɛsin we dɛn de tek. So, i rili impɔtant fɔ tɔk to yu dɔktɔ bɔt di bad tin dɛn we kin apin to yu bifo yu bigin fɔ tek ɛni mɛrɛsin.
Yu tink se dɛn kin ebul fɔ avɔyd ɔ mɛn PLS?
Bikɔs dɛn nɔ no di rayt tin we kin mek pɔsin gɛt PLS, naw, no we nɔ de fɔ mek i nɔ kam.
Dɔn bak, i sɔri fɔ no se naw, no tritmɛnt nɔ de we go ebul fɔ mɛn PLS ɔltogɛda.
Wetin na di layf we pɔsin we gɛt PLS kin liv? Wetin dɛn go ɛkspɛkt?
PLS nɔ de afɛkt di we aw yu de liv yu layf dairekt wan. Pɔsin wae gɛt PLS kin gɛt nɔrmal layf, jɔs lɛk pɔrsin wae nɔr gɛt dis sik.
Aw yu de sho yu sik kwik kwik wan ɛn aw i kin wɔs kwik kwik wan kin difrɛn frɔm wan pɔsin to ɔda pɔsin. in jεnarכl, praymar lateral skler כsis de go bifo bכku sכmtεm, ova ia, sכmtεm dεn de kכl dεk. Bɔt if yu fil wantɛm wantɛm se yu sik de wɔs, go to yu dɔktɔ wantɛm wantɛm.
Mɛrɛsin kin ɛp fɔ ridyus yu sik ɛn ɛp yu fɔ du yu woke ɛvride ɛn nɔr kin ambɔg yu. Yu kin tink bɔt fɔ yuz ken, waka, ɔ wilchia fɔ ɛp yu fɔ fil sef ɛn gɛt kɔnfidɛns we yu de go rawnd.
Ustɛm yu fɔ go to dɔktɔ?
If yu notis se yu mɔsul dɛn de chenj smɔl smɔl , lɛk we yu de stif ɔ we yu wik, tɔk to yu dɔktɔ. If dɛn dɔn no se yu gɛt PLS, if ɛni mɛrɛsin we yu de tek de mek yu sik dɛn wɔs, ɔ if yu de gɛt sayd ɛfɛkt, tɛl yu dɔktɔ bɔt dat bak.
Di tin we impɔtant pas ɔl: If yu fɔdɔm ɔ yu wund pan aksidɛnt, go na di imejensi rum wantɛm wantɛm.
Kwɛstyɔn dɛn we yu fɔ aks yu dɔktɔ
If yu gɛt PLS, yu go gɛt bɔku kwɛstyɔn dɛn fɔ aks yu dɔktɔ. Fɔ ɛgzampul:
- Us tritmɛnt dɛn go ɛp fɔ kɔntrol mi sik dɛn?
- Wetin na di sayd ɛfɛkt dɛm we di tritmɛnt kin gɛt?
- Aw a go no if mi sik go wɔs as tɛm de go?
- Us ɛgzampul dɛn a kin du fɔ mek mi mɔsul dɛn kɔntinyu fɔ wok?
- A nid fɔ yuz tik ɔ tin fɔ waka?
Fɔ dɔn, wan Mɛsej we dɛn kin kɛr go na os
Fɔ ajɔst to wan sik we de go bifo we de afɛkt yu ebul fɔ muv yu bɔdi kin rili tranga. Sɔm pan di tin dɛn we yu bin de ɛnjɔy fɔ du, kin kam tranga smɔl smɔl. Pan ɔl we praymari latɛral sklɛrosis (PLS) kin go bifo smɔl smɔl, i kin afɛkt yu ɛvride layf.
If dɛn chenj ya na yu bɔdi de afɛkt yu maynd bak, yu kin gɛt fridɔm bay we yu tɔk to pɔsin we sabi bɔt mental wɛlbɔdi biznɛs .Na notin fɔ shem, bɔku pipul dɛn nid ɛp na tɛm lɛk dis.
If yu notis se yu mɔsul dɛn dɔn chenj, go to dɔktɔ wantɛm wantɛm. Dɛn kin gi yu mɛrɛsin ɔr divays fɔ muv fɔ ɛp yu fɔ bi mɔ indipɛndɛnt ɛn kɔmfyut. Mɛmba se nɔto yu wan de pan dis waka.
` Praymari lateral sklerכsis, PLS, mכsul wik, nyuropati, mכtal nyuron, ALS, simptom dεm
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