Yu pikin in lɔng nɔ de divɛlɔp fayn? (Pulmonary Hypoplasia) Lɛ wi lan bɔt am!

Di gladi at we yu kin gɛt we yu luk pikin we dɛn jɔs bɔn, nɔ go ebul fɔ ɛksplen am, nɔto so? Bɔt sɔntɛnde, wit da gladi at de, smɔl fred kin kam na yu maynd, mɔ if yu si se i nɔ izi fɔ di pikin fɔ blo. Na dis kayn tɛm, wan pan di kwɛstyɔn dɛn we kin kam na mama ɛn papa dɛn maynd na, "Sɔmtin de we nɔ rayt wit mi pikin?". Tide wi go tɔk bɔt dis kayn siriɔs, bɔt rili impɔtant kɔndishɔn we wi fɔ no bɔt. dat min se di pikin in lכng dεm nכ de divεlכp fayn, wan kכndyushכn we wi mεdikal kכl `(Pulmonary Hypoplasia)`.

Wetin na `(Pulmonary Hypoplasia)`? Lɛ wi ɔndastand am simpul wan.

Fɔ tɔk am simpul wan, Pulmonary Hypoplasia na we yu pikin in lכng dεm nכ de divεlכp lεk aw dεn bin de εkspεkt we i de insay di bεlε. Dis na congenital condition , we min se dεn de de we dεn bכn dεm. Bɔrku tɛm, na ɔda ɔndalayn wɛl bɔdi prɔblɛm kin kam wit am. dat min se di lכng dεm nכ gεt inof rum fכ gro na di bεlε. Sɔntɛnde, dɔktɔ dɛn kin no dis sik bifo dɛn bɔn di pikin, we i gɛt bɛlɛ, tru ɔltra saund skan. כda tεm dεm, dεn kin no am rayt afta dεn bכn di pikin כ fכ de afta.

Naw luk, insay wi lכng dεm, sכm sכm εya sak dεm de we dεn kכl alveoli. Na dɛn wan ya de ad di ɔksijɛn we wi de tek insay di blɔd. Dɔn di blɔd kin kɛr dis ɔksijɛn go na di tisu dɛn ɔlsay na di bɔdi. So, if di lכng dεm nכ de divεlכp fayn, dεn ay sak dεm ya dεn tu nכ de bכku. Wetin kin apin da tɛm de? di כda כgan dεm εn di tisu dεm na di bכdi nכ de gεt inof כksijεn. Dis kin mek di at wok tranga wan, ɛn di blɔd prɛshɔn na di lɔng dɛn kin ivin go ɔp (pulmonary hypertension). Tink bɔt am, jɔs lɛk aw smɔl plant nɔ go ebul fɔ gro fayn if i nɔ gɛt wata, ples, ɛn tin fɔ it.

Us sayn dεm di pikin de sho?

If pikin we dɛn jɔs bɔn gɛt Pulmonary Hypoplasia, dɛn kin sho sɔm sayn dɛn lɛk:

• Wan blu kɔlɔ to di skin, lip, ɔ finga nel (`(cyanosis)`) . dis kin apin we di bכdi in tisu dεm nכ de gεt inof כksijεn. Spɛshal wan, dis blu kɔlɔ kin apin we ɔksijɛn nɔ bɔku na di blɔd.
• Nos dɛn we de flay . Dis min se di pikin de tray tranga wan fɔ blo bikɔs i nɔ izi. Jɔs lɛk we wi de rɔn ɛn fɔdɔm, wi kin blo wi nos ɛn blo.
• I nɔ kin izi fɔ yu fɔ blo. Di pikin kin mek sawnd we i de blo ɔ we i de blo.
• di rεt fכ brith we de go כp (tachypnea) . If di pikin de blo fast pas aw i fɔ blo, dat na sayn bak.

If yu pikin gɛt wan ɔ mɔ pan dɛn sayn ya, i go fayn fɔ mek yu go to dɔktɔ wantɛm wantɛm. Dɛn tin ya kin bi sayn dɛm bak fɔ ɔda sik dɛm wae de mek yu nɔr de blo fayn, so i impɔtant fɔ gɛt di rayt diagnosis kwik kwik wan.

Wetin mek dis kin apin? Wetin na di men tin dɛm we kin mek pɔsin gɛt `(Pulmonary Hypoplasia)`?

כda hεlth kכndyushכn dεm we de mek di lכng dεm nכ de divεlכp fayn fayn wan na di pikin. dis kכndyushכn dεm de mek di lכng dεm nכ gεt di spεs we dεn nid fכ gro. Dɛn tin ya we kin apin na dɛn wan ya:

• lכw amniotic fluid (oligohydramnios) : we di amniotic fluid nכ de rawnd di pikin, i kin put prεshכn pan di lכng dεm εn mek i nכ gro fayn. dis wata de wok lεk kushכn fכ di pikin εn i de εp di lכng dεm fכ divεlכp.
• Congenital Diaphragmatic Hernia (CDH) : di dayafragm na wan mכsul we de separet di chεst εn di bεlε. if ol de insay am εn sכm pan di bכdi כgan dεm (lεk di intestכn dεm εn di liva) kכmכt na di chεst, sכm ples de fכ di lכng dεm. Dɔn di lɔng dɛn nɔ kin ebul fɔ blo ɛn gro fayn fayn wan.
• Omphalocele : insay dis kכndishכn, sכm pan di pikin in כgan dεm de kכmכt tru di כmbilikal kכd, we wan mεmbran de kכba. dis kin chenj di prεshכn we de insay di pikin in bεlε bak εn afekt di lכng divεlכpmεnt.
• di mεmbran dεm we de rכp fכ lכng tεm (PROM) : we di amniotic sak rכp bifo di pikin bכn, we dεn kכl PROM, di wata lεvεl dεm kin dכn εn afekt di lכng divεlכpmεnt.
• Sistik lכng sik : Dis na tכmכro dεm we nכ de kεnsar we de tek spεs na di lכng dεm εn de ambɔg di nכmal lכng tisu dεm we de gro.
• di at we de big bikoz fכ di at prכblεm : fכ egzampl, we di at de big bikoz fכ di at sik dεm we dεn bכn wit lεk ``tricuspid atresia`` כ ``Ebstein's anomaly``, i kin put prεshכn pan di lכng dεm.
• di dayafragm we nɔ de wok ɔ we nɔ de wok : di dayafragm na mɔsul we impɔtant fɔ mek di lɔng dɛn wok fayn fayn wan. If prɔblɛm de wit di wok we i de du, i kin afɛkt di divɛlɔpmɛnt bak na di lɔng.

Bɔt sɔmtɛm, dɔktɔ dɛn nɔ kin ebul fɔ fɛn wan patikyula kɔz fɔ ``Pulmonary Hypoplasia.`` Wi kin kɔl am praymari pulmonary hypoplasia . Dis kin apin pan lɛk 10% to 15% pan di kes dɛm.

Udat de pan denja pas ɔl fɔ gɛt dis sik?

sכm kכndishכn dεm we uman bεlε kin put di pikin pan inkrεs risk fכ pulmonary hypoplasia, lεk oligohydramnios εn prεmaturity. Dɛn tin ya na:

• Infεkshכn : Infεkshכn we dεn kin gεt wit mami εn dadi biznεs (STI) כ baktriyal infεkshכn lεk baktriyal vaginosis kin mek yu wata brok bifo tεm.
• Sכt sכt sεvikal lεngth . Dis kin bi bak wan rizin fɔ bɔn pikin bifo tɛm ɛn PROM.
• Fɔ ɛkspɛkt fɔ gɛt bɔku bɔku pikin dɛn, lɛk twins ɔ triplɛt pikin dɛn . dis kin mek prכblεm lεk di sכm spεs na di bεlε εn di lכw wata lεvεl.
• Amniocentesis : Dis na tεst we dεn kin du we uman bεlε. Bɔt nɔto ɔltɛm di bag we gɛt wata kin pwɛl ɛn wata kin lik.
• di ay blɔd prɛshɔn ɔ prɛeklampsia we uman gɛt bɛlɛ. dis kin afekt di wok we di plasεnta de du, i kin mek di pikin in it εn כksijεn dכn, εn i kin mek i lכs wata bak.
• Dayabitis : If di mama gɛt dayabitis, i kin mek sɔm prɔblɛm dɛn bak.
• Dihaydreshɔn : If di mama nɔ drink inof wata, di amniɔtik fluid lɛvɛl kin go dɔŋ.

Dis na di rizin we mek i rili impɔtant fɔ fala yu dɔktɔ in instrɔkshɔn dɛn gud gud wan ɛn fɔ go klinik dɛn di rayt tɛm we yu gɛt bɛlɛ. We yu tek kia ɔf yu wɛlbɔdi, dat kin afɛkt yu pikin in wɛlbɔdi dairekt wan.

Us ɔda prɔblɛm dɛn dis kin mek pɔsin gɛt?

di tru tin we di lכng dεm nכ de divεlכp fayn kin mek prכblεm wit כda pat dεm na di pikin in bכdi. dis na di komplikashכn dεm we kin apin bikoz fכ `(Pulmonary Hypoplasia):`

• כksijεn lεvεl lכw na di bכdi (hypoxemia) : Dis na di men prכblεm. I kin pwɛl di bren ɛn ɔda pat dɛn.
• di bכdi prεshכn na di pikin in lכng dεm (pulmonary hypertension) : di bכdi vεsul dεm na di lכng dεm de sכm, we de put εkstra prεshכn pan di at.
• di trakya we wik ɔ we nɔ de divɛlɔp fayn (tracheomalacia) : Dis kin mek di trachea kɔnstrikt we yu de blo.
• Nyumothorax : di briz de lik frכm di lכng, i de kכlekt rawnd di lכng, εn di lכng de kכllaps.
• Prɔblɛm dɛn we yu kin gɛt we yu de blo : Fɔ ɛgzampul, di brɔnkopulmonari displasia. dis kin kam leta, spεshal wan pan pikin dεm we dεn bכn bifo tεm, we dεn kכnεkt dεm to ventilator.
• כda komplikashכn dεm we kin apin bikoz fכ di כndalayn kכndishכn we mek di pulmonary hypoplasia. Fɔ ɛgzampul, i nɔ kin izi fɔ it, i nɔ kin yɛri fayn, ɛn i kin delay fɔ mek i gro .

"Yu kin fil frayd we yu yɛri ɔl dis. Bɔt mɛmba se, fɔ mek yu no na di bɛst step fɔ fes tin lɛk dis. Tɔk to yu dɔktɔ dɛm ɛn aks ɔl di kwɛstyɔn dɛm we yu gɛt."

Aw dɔktɔ dɛn kin no bɔt dis sik?

Bɔku tɛm, dɔktɔ kin no se i gɛt Pulmonary Hypoplasia we dɛn de du ɔltrasɔund skan ɔltɛm we uman gɛt bɛlɛ. di skan de mכsu di saiz fכ di pikin in lכng dεm εn di chεst sεkכnfεnshכn. Dɛn kin du MRI (magnetic resonance imaging) skan bak fɔ kɔnfɔm di diagnosis. MRI kin mek yu si klia wan bɔt di volyum na di lɔng dɛn.

Sɔntɛnde, dɔktɔ go no dis sik we dɛn bɔn am ɔ sɔm dez afta dɛn bɔn am. If yu pikin gɛt prɔblɛm fɔ blo, dɔktɔ go du ɛkstrem na in chɛst fɔ chɛk fɔ si if i gɛt pulmonary hypoplasia ɔ ɔda tin we de na in lɔng. di εks-ray kin sho di sayz εn di kכndishכn fכ di lכng dεm.

Wetin na di tritmɛnt dɛm fɔ dis?

Di tritmɛnt fɔ Pulmonary Hypoplasia dipen pan di kɔz, aw di sik tranga, ɛn if dɛn bin no se i gɛt bɛlɛ ɔ afta dɛn bɔn am. di men gol fכ tritmεnt na fכ gi di pikin di כksijεn we i nid fכ liv εn fכ εp in lכng dεm fכ divεlכp as i ebul. If dɛn bɔn yu pikin wit Pulmonary Hypoplasia, yu go nid fɔ ɛp am fɔ blo te dɛn lɔng dɛn dɔn divɛlɔp fɔ blo fɔ dɛnsɛf, ɔ te dɔktɔ dɛn go gi am ɔda tritmɛnt.

Na sɔm pan di tritmɛnt dɛm we ɔbstetrician-gynecologist ɔ neonatologist kin yuz:

• Amnioinfusion : if di lכw lεvεl fכ di amniotic fluid de we uman bεlε, dis prosidכs de artificially infuse di fluid. Dis kin ɛp fɔ ridyus di prɛshɔn pan di lɔng dɛn ɛn ɛp fɔ mek di bɔdi gro.
• di pikin כpεrayshכn כ כpεrayshכn afta dεn bכn am : fכ egzampl, if wan kכndyushכn de we dεn kכl CDH, dεn kin du כpεrayshכn fכ kכrekt am. Sɔntɛnde dɛn kin du dis ɔpreshɔn we di pikin stil de na di bɛlɛ.
• כksijεn tεrapi : dεn de gi di pikin כksijεn tru wan kanula na in nos כ wan mask we dεn put oba di fes.
• Mekanikal ventilashɔn : Dis min fɔ kɔnɛkt ventilatɔ to mashin ɛn ɛp fɔ brith atifishal wan. Dɛn kin du dis bay we dɛn put wan tiub insay di briz paip.
• Extracorporeal Membrane Oxygenation (ECMO) : Dis na wan tritmɛnt we rili spɛshal, we kɔmpleks. Wan mashin de ad ɔksijɛn to di blɔd ɛn pul di kabon dayɔgzayd we i de gi di pikin in lɔng ɛn in at fɔ rɛst. Dɛn kin yuse am pan tin dɛn we rili bad we ɔl di ɔda tritmɛnt dɛn nɔ wok.

Wetin kin apin if dɛn bɔn yu pikin wit Pulmonary Hypoplasia?

If dɛn bɔn yu pikin wit in lɔng dɛn we nɔ de divɛlɔp bɛtɛ, wan dɔktɔ we de mɛn pikin dɛn we dɛn jɔs bɔn (dɔktɔ we spɛshal pan pikin dɛn we dɛn jɔs bɔn) ɛn ɔda spɛshal pipul dɛn go chɛk am. Dipen pan aw di sik tranga ɛn ɔda ɔgan dɛn we di sik afɛkt, di mɛdikal tim kin gɛt:

• Spɛshal Kidni (Nɛfrɔlɔjis) .
• Pulmonologists (spɛshal pipul dɛn we sabi aw fɔ blo) .
• Di dɔktɔ dɛn we de mɛn di at (Cardiothoracic surgeons) .
• Gastroenterologists (spɛshal pipul dɛn na di dijestiv sistɛm) .

bכku tεm dεn kin trit pikin dεm we gεt ``(Pulmonary Hypoplasia)`` witInsay di nyu bɔbɔ in intensiv kia yunit (NICU), di pikin dɛn kin gɛt spɛshal kia ɛn dɛn kin wach dɛn ɔltɛm. Bɔku tɛm dɛn kin gɛt lɔng tɛm prɔblɛm wit dɛn lɔng ɛn ɔda wɛlbɔdi prɔblɛm dɛn. Dis inklud infεkshכn we yu kin gεt bכku tεm na di rεspiretכri, kכndyushכn lεk asma, εn divεlכpmεnt delay. Bɔt sɔm pikin dɛn we gɛt Pulmonary Hypoplasia nɔ kin gɛt siriɔs sik lɛk aw dɛn de ol, ɛn dɛn lɔng kin kɔntinyu fɔ divɛlɔp ɛn dɛn sik kin bɛtɛ.

Aw i pɔsibul fɔ liv wit dis sityueshɔn?

na tru se bebi dεm we nכ de divεlכp lכng kin liv. Bɔt ɔlman in sityueshɔn difrɛn. di ebul fכ liv wit `(Pulmonary Hypoplasia)` de dipכnt pan dεn tin ya:

• Di kayn we aw di sik kin tranga. Aw fa di lɔng dɛn dɔn divɛlɔp.
• Di men tin we mek i apin. Wetin na di ɔndalayn sik we mek di `(Pulmonary Hypoplasia)` ɛn aw i tranga.
• Ilɛksɛf dɛn bin no am we dɛn gɛt bɛlɛ ɔ afta dɛn bɔn am. If dɛn no am kwik, sɔntɛnde i pɔsibul fɔ mek dɛn du sɔntin kwik kwik wan.
• Ɛni ɔda prɔblɛm dɛn de we kin apin?

Ɔl togɛda, dɛn se di rεt we de day bikɔs ɔf Pulmonary Hypoplasia pas 55%. Jɛnɛral wan i nɔ kin izi fɔ liv wit di wan dɛn we rili bad fɔ Pulmonary Hypoplasia. I sɔri fɔ tɔk dis, bɔt i impɔtant fɔ no di tru. Bɔt we di sayɛns bɔt mɛrɛsin dɔn go bifo, di we aw dɛn kin ɛp dɛn kayn bebi dɛn de dɔn bɛtɛ tide.

Wi kin du ɛnitin fɔ mek dis nɔ apin?

Nɔr wan we nɔr de fɔ mek pɔrsin nɔr gɛt Pulmonary Hypoplasia, bikɔs bɔrku tɛm i kin bi bikɔs ɔf ɔda sik. Bɔt di bɛst we fɔ ridyus di prɔblɛm dɛn we kin apin to yu pikin we dɛn bɔn yu pikin na fɔ fala di advays we yu dɔktɔ we de mɛn pikin dɛn gi fɔ mek yu gɛt bɛlɛ we gɛt wɛlbɔdi. Yu kin tek kia ɔf yusɛf bay we:

• Manej yu sik dɛn we nɔ de mɛn, lɛk dayabitis ɛn ay blɔd prɛshɔn.
• Go to yu dɔktɔ ɛvride we yu gɛt bɛlɛ. Da we de, if ɛni prɔblɛm de, yu kin no am kwik kwik wan.
• Nɔ smok ɛn drink rɔm ɔltogɛda. dis dεm kin gεt dairekt nεgεtiv impak pan di pikin in divεlכpmεnt.
• Drink bɔku wata. I rili impɔtant fɔ drink at le 2-3 lita wata wan de.
• Protɛkt yusɛf frɔm di sik dɛn we pɔsin kin gɛt we i de du mami ɛn dadi biznɛs (STI) ɛn ɔda sik dɛn we pɔsin kin gɛt.

We yu de chɛk yu uman we de mɛn pikin ɛn dɔktɔ we de mɛn uman dɛn ɔltɛm, dat kin ɛp fɔ no di prɔblɛm dɛn we kin apin kwik kwik wan. Sɔntɛnde, dɔktɔ dɛn kin trit di ɔndalayn kɔz fɔ Pulmonary Hypoplasia we uman gɛt bɛlɛ. Dis kin ɛp fɔ mek dɛn nɔ bɔn yu pikin wit in lɔng dɛn we nɔ de divɛlɔp.

Fɔ dɔn, yu fɔ se...

If dɛn bɔn yu pikin wit Pulmonary Hypoplasia, wan tim fɔ dɔktɔ dɛn go de wit yu ɛvri step na di rod. Dɛn go ɛksplen aw di sik bad, di tritmɛnt we yu go pik, ɛn wetin go apin tumara bambay. Nɔ shek fɔ aks ɛni kwɛstyɔn we yu go gɛt so dat yu go ebul fɔ disayd fɔ du gud tin bɔt aw fɔ kia fɔ yu pikin – ɔ yu yon wɛlbɔdi.

"If i pɔsibul, mek yu yon pɔsin sɔpɔt grup we gɛt pipul dɛn we yu trɔst ɛn lɛk. Dat min se pipul dɛn lɛk yu man, mama, papa, brɔda ɛn sista dɛn, ɛn yu bɛst padi dɛn. Dɛn sɔpɔt go bi big trɛnk fɔ fes ɛni chalenj we go kam yu we. I rili impɔtant fɔ de strɔng. Nɔ giv ɔp op."

Wi op se dis infɔmeshɔn go ɛp yu. Mɛmba se ɔltɛm, go to dɔktɔ we sabi du di wok fɔ mek dɛn gi yu advays. Dis atikul na fɔ jɔs fɔ no bɔt ɔltin.

` Pulmonary Hypoplasia, כnda divεlכpmεnt fכ di lכng dεm, nyu bכn pikin dεm, respiratory distress, kכndyushכn dεm we dεn bכn wit, NICU, bεlε in hεlth, bεlε kכmplikεshכn dεm