We yu dɔktɔ gi yu wan vaysin we dɛn kɔl Ravulizumab (we dɛn kin gɛt mɔ ɔnda di brand nem ULTOMIRIS), i nɔmal fɔ gɛt bɔku kwɛstyɔn. Dis na drɔg we rili spɛshal, bɔt i rili pawaful. Dis nɔto mɛrɛsin fɔ di kɔmɔn kol ɔ flu. So a go tok boht am na simpul we we yu go andastan.
Fɔ tɔk di kɔrɛkt tin, us kayn mɛrɛsin na Ravulizumab?
Fɔ tɔk am simpul wan, Ravulizumab na wan mɛrɛsin we de kɔntrol wan abnɔmal prɔses we de apin na wi bɔdi in imyun sistɛm. Sɔntɛnde wi yon imyun sistɛm kin wok pasmak ɛn bigin fɔ atak wi yon wɛlbɔdi sɛl dɛn. Dɛn kayn tɛm dɛn de, dis mɛrɛsin kin ɛp fɔ kɔntrol da tin de we dɛn nɔ want.
Dis de pan wan spɛshal klas ɔf drɔgs we dɛn kɔl monoklɔnal antibodi . Dat min se na protin we dɛn mek na di lɛbɔraytri we dɛn de yuz spɛshal tɛknɔlɔji. Lɛk homing mishɔl, i kin go na di rayt say we di prɔblɛm de na di bɔdi ɛn kɔntrol am.
Dɔktɔ dɛn kin yuz dis mɛrɛsin fɔ mɛn sɔm men tin dɛn:
- Atypical Hemolytic Uremic Syndrome (aHUS): Dis na wan sik we di rɛd blɔd sɛl dɛn kin brok ɛn blɔd kin klɔt na smɔl smɔl blɔd vesel dɛn , we kin mek pɔsin gɛt tin dɛn lɛk anemia .
- Paroxysmal Nocturnal Hemoglobinuria (PNH): Dis na kכndyushכn bak we de involv fכ pwεl di rεd bכdi sεl dεm.
- Myasthenia Gravis : Dis na sik we de kam pan di nerv ɛn mɔsul dɛm. I kin mek di mɔsul dɛn wik kwik kwik wan ɛn mek pɔsin taya.
- Nyuromyelitis Optica Spectrum Disorder (NMOSD): Insay dis sik, di nεv dεm na di yay εn di spεnal kכd kin inflam.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu tek dis mɛrɛsin
Okay, naw bifo i gi yu dis mɛrɛsin, di dɔktɔ go aks yu sɔm kwɛstyɔn dɛn. Bɔt sɔm tin dɛn de we yu fɔ rili tɔk bak. Na bikɔs yu sef na di tin we impɔtant pas ɔl.
- Yu gɛt ɛni infɛkshɔn naw? Tɛl yu dɔktɔ bɔt ɛni infekshɔn, lɛk fiva, kɔf, ɔ kol .
- Yu gɛt ɛni alɛji?If yu gɛt ɛni alɛji to dis Ravulizumab mɛrɛsin ɔ ɛni ɔda mɛrɛsin, it, ɔ day, mek shɔ se yu tɛl wi.
- Yu gɛt bɛlɛ? Ɔ yu de op fɔ gɛt pikin? Tɔk to yu dɔktɔ bɔt dis opin wan.
- Yu na mama we de gi pikin in bɛlɛ? I rili impɔtant fɔ tɛl di dɔktɔ bɔt dis bak.
Nɔ ayd dis infɔmeshɔn. Di dɔktɔ go disayd di tritmɛnt we go fayn ɛn we sef fɔ yu bay di kɔrɛkt infɔmeshɔn we yu gi yu.
Aw dɛn kin gi dis mɛrɛsin to di bɔdi?
Dis nɔto pil ɔ srɔp we yu kin kɛr go na os. Dis na injεkshכn we yu kin gεt insay wan vein. So yu go gɛt dis tritmɛnt na ɔspitul ɔ klinik. Dɔktɔ ɔ nɔs we tren go gi yu am.
- MedGuide liflet: Bifo ɛni tritmɛnt sɛshɔn, dɛn go gi yu wan spɛshal liflet (wan `MedGuide`) we gɛt infɔmeshɔn bɔt dis mɛrɛsin. Rid am gud gud wan ɛn nɔ fred fɔ aks ɛni kwɛstyɔn we yu go gɛt.
- Yuz am pan pikin dɛm: Yu go de wɔnda if dɛn kin gi dis to yɔŋ pikin dɛm. Yɛs, dɛn kin yuz am fɔ pikin dɛn we yɔŋ lɛk wan mɔnt fɔ sɔm mɛrɛsin dɛn we dɛn dɔn pik. Bɔt dɛn fɔ tek tɛm du am ɛn ɔnda spɛshal pɔsin we de kia fɔ am.
- If yu tek di mɛrɛsin pasmak: If yu tink se dɛn dɔn gi yu tumɔs pan dis mɛrɛsin, yu fɔ go na di ɔspitul in Imejɛnsi Tritmɛnt Yunit (ETU) wantɛm wantɛm . Ɔ kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital fɔ advays.
- Nɔ sheb: Dɛn gi dis mɛrɛsin fɔ yu nɔmɔ. Nɔ ɛva sheb am wit ɔda pipul dɛn.
Tin dɛn we yu fɔ tek tɛm wit we yu de tek mɛrɛsin
Yu nid fɔ tek tɛm smɔl we yu de tek dis mɛrɛsin.
- Si yu dɔktɔ ɔltɛm: Yu dɔktɔ go de chɛk yu ɔltɛm fɔ si if yu sik de go bifo ɔr de wɔs. Mek shɔ se yu go pan dɛn de dɛn de.
- Tek tɛm wit infɛkshɔn: Dis na di tin we impɔtant pas ɔl. Yu risk fɔ gɛt infɛkshɔn kin go ɔp smɔl we yu de tek dis mɛrɛsin. So if yu gɛt sɔm sayn dɛn lɛk fiva, kol, bɔdi we de at, trot we de at, ɔ wund we de wɛl sloslo, nɔ go fɔ tek mɛrɛsin fɔ yusɛf . Kɔl yu dɔktɔ wantɛm wantɛm ɛn gɛt advays. Dɔn bak, nɔ fɔ go na say dɛn we pipul dɛn sik.
- Vaysin: Fɔ mek yu nɔ gɛt di sik, yu dɔktɔ kin tɛl yu fɔ tek sɔm vaysin bifo yu bigin dis tritmɛnt.
- Kad fɔ di pɔsin we sik:Dɛn go gi yu wan spɛshal kad (`Patient Wallet Card`). Kip am wit yu ɔltɛm . Sho am ivin if yu go si ɔda dɔktɔ. I gɛt infɔmeshɔn bɔt di siriɔs sayd ɛfɛkt dɛm we kin apin wit dis mɛrɛsin.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, Ravulizumab kin mek sɔm pipul dɛn gɛt sayd ɛfɛkt, bɔt nɔto ɔlman kin gɛt am. Di tin we impɔtant pas ɔl na fɔ tɛl yu dɔktɔ if yu notis ɛnitin we nɔ kɔmɔn.
| Tayp fɔ di sayd ɛfɛkt | Tɔk bɔt |
|---|---|
| Sayd ɛfɛkt dɛn we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
| Alɛji we pɔsin kin gɛt | Skin rash, it, swel na di fes, lip, tong ɔ trot. |
| Di sayn dɛn we de sho se pɔsin gɛt Mɛningaytis | Fiva, nɛk pen ɔ stif, i nɔ izi fɔ si layt, ed we de at bad bad wan, nɔs, vɔmit, kɔnfyushɔn. |
| Sik we de prɛd | Fiva, kol, kɔf, trot we de at, wund we nɔ de wɛl, pen we yu de pis, ɛn bɔdi nɔ de fil fayn. |
| Riakshɔn dɛn we pɔsin kin du wit infushɔn | Chɛst pen, at fɔ blo, fɔdɔm. |
| Lɔw blɔd prɛshɔn | Diziz, faint, blurred vishɔn. |
| Sayd ɛfɛkt dɛm we dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Kɔmɔn sayd ɛfɛkt dɛn | Dayarɛa, fiva, ed pen, nɔs, vɔmit. |
Dis mɛrɛsin kin miks wit ɔda mɛrɛsin dɛn?
Yɛs, sɔm mɛrɛsin dɛn kin miks wit dis. fכ egzampl, mεdikeshכn dεm lεk `Efgartigimod` εn `Immune globulin (IVIG)`.
So, tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek - ilɛksɛf na fɔ ɔda kɔndishɔn, vaytamɛn, tradishɔnal mɛrɛsin, ɔ sɔpɔtmɛnt. Dɔn bak, tɛl yu dɔktɔ if yu de smok ɔ drink rɔm.
Mɛsej we dɛn kin kɛr go na os
- Ravulizumab na spɛshal mɛrɛsin we dɛn kin gi insay wan vein na ɔspitul. Dɛn kin yuz am fɔ trit sɔm siriɔs sik dɛn we pɔsin kin gɛt.
- Bifo yu bigin fɔ trit yu, tɛl yu dɔktɔ bɔt ɔl yu mɛrɛsin, alɛji, ɛn ɔl ɔda mɛrɛsin dɛn we yu de tek.
- Yu fɔ no mɔ bɔt di sayn dɛn we de sho se yu gɛt di sik (lɛk fiva, trot we de at) we yu de tek dis mɛrɛsin. If dis apin, go to dɔktɔ wantɛm wantɛm.
- Ɔltɛm kip di `Patient Wallet Card` we dɛn gi yu wit yu.
- Nɔ mis di tritmɛnt apɔntinmɛnt dɛn we dɛn dɔn sɛtul fɔ. If yu nɔ ebul fɔ atɛnd, duya tɛl di dɔktɔ ɔ di klinik bifo tɛm.
- If yu gɛt ɛni kwɛstyɔn, wɔri, ɔr wɔri bɔt dis mɛrɛsin, nɔr fred fɔ tɔk bɔt am wit yu dɔktɔ.
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