Wi ɔl no aw i nɔ kin izi fɔ liv wit ALS, ɔ Amyotrophic Lateral Sclerosis. Na sik we de go bifo ɛn we de afɛkt di nervɔs sistɛm. Dɛn kin gɛt mɛrɛsin wae kin ɛp fɔ kɔntrol aw de sik de go bifo, dat na fɔ slo fɔ mek di sik nɔr de go bifo. Tide wi go tɔk bɔt wan pan dɛn kayn rili impɔtant drɔgs ya, Riluzole, spɛshal wan in ɔral fim.
Wetin na dis mɛrɛsin we dɛn kɔl Riluzole?
Fɔ tɔk am simpul wan, Riluzole na wan mɛrɛsin we de slo di prɔgrɛs fɔ Amyotrophic Lateral Sclerosis (ALS) , we dɛn kin kɔl bak "Lou Gehrig in sik."
Di impɔtant tin na dat dis mɛrɛsin nɔ go ebul fɔ mɛn ALS ɔltogɛda. Bɔt i kin mek di sik nɔr de du wɛl kwik kwik wan ɛn ɛp di pɔrsin fɔ liv bɛtɛ layf fɔ smɔl tɛm.
Sɔntɛnde, yu dɔktɔ kin gi yu dis mɛrɛsin fɔ ɔda sik dɛn, so if yu gɛt ɛni kwɛstyɔn, aks yu dɔktɔ.
Tin dɛn we yu fɔ tɛl yu dɔktɔ bifo yu yuz di mɛrɛsin
Bifo yu bigin fɔ tek dis mɛrɛsin, i impɔtant fɔ tɛl yu dɔktɔ dɛn tin ya. Nɔ ayd dis infɔmeshɔn, bikɔs i rili impɔtant fɔ yu sef.
- If yu gɛt liva sik: Riluzole de klin frɔm di bɔdi mɔ tru di liva. So if yu liva nɔ de wok fayn, i kin afɛkt dis mɛrɛsin.
- If yu dɔn gɛt alɛji fɔ Riluzole ɔ ɛni ɔda mɛrɛsin, it, ɔ day: Dis rili impɔtant, bikɔs alɛji kin rili bad.
- If yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛ: Dɛn nɔ dɔn rili no if dis mɛrɛsin sef we yu gɛt bɛlɛ, so i impɔtant fɔ tɔk to yu dɔktɔ bɔt dis.
- If yu na mama we de gi pikin in mama in bɛlɛ: Yu nid fɔ mek shɔ se di mɛrɛsin pas to di pikin tru in mama in milk, so tɛl yu dɔktɔ bɔt dis bak.
Aw ɛksaktɔli yu de yuz dis fim?
Dis nɔto sɔntin we yu de swɛla lɛk pil. Dis na fim we de sɔlv na yu mɔt. So fala dɛn step ya kɔrɛkt wan.
1. Fɔs, was ɛn dray yu an dɛn fayn fayn wan. Nɔ tɔch di fim wit wet an.
2. Na onli opin di sial pouch wen taim fo tek di medisin. Nɔ opin am bifo tɛm.
3. Tek tɛm pul di fim na di paket.
4. Hol da fim de dairekt pan yu tong .
5. Dɔn lɛ i sɔlv na yu mɔt. I go sɔlv insay sɔm tɛm. Afta i dɔn sɔlv, swɛla am wit sɔm saliva. No nid fɔ drink wata.
6. Nɔ kɔt, krɔs, ɔ chew dis fim ɛni tɛm.
7. Di tin we impɔtant pas ɔl: Dɛn fɔ tek dis mɛrɛsin ɔltɛm we yu ɛmti bɛlɛ . Dat min se, tek am wan awa bifo ɔ tu awa afta yu dɔn it. If yu tek am wit it, dat kin mek di mɛrɛsin nɔ go insay di bɔdi.
8. Tek yu mɛrɛsin di tɛm we dɛn tɛl yu fɔ tek, lɛk aw yu dɔktɔ tɛl yu. Nɔ tek pas di doz we dɛn tɛl yu fɔ tek.
9. Nɔ stɔp fɔ tek dis mɛrɛsin wantɛm wantɛm if yu nɔ gɛt dɔktɔ advays.
If yu gi dis mɛrɛsin to smɔl pikin dɛn...
Dɛn kin gi dis mɛrɛsin to big pipul dɛn. If yu de gi am to pikin dɛm, yu fɔ tɔk to pikin dɛm bɔt am ɛn jɔs du am pan in advays.
Wetin fɔ du if yu tek bɔku mɛrɛsin?
If yu tink se yu dɔn tek mɔ pas di doz we dɛn tɛl yu fɔ tek, go na di ɔspitul Imejɛnsi Dipatmɛnt (ETU) we de nia yu wantɛm wantɛm . Ɔ kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital .
Dɛn dɔn gi yu dis mɛrɛsin fɔ yu nɔmɔ. Dɛn dɔn gi am fɔ yu mɛrɛsin kɔndishɔn. So, nɔ ɛva sheb am wit ɛni ɔda pɔsin.
Wetin a go du if a mis wan doz fɔ tek mɛrɛsin?
If yu mis wan doz, tek am jɔs afta yu mɛmba. Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek yu nɛks doz, skip di doz we yu mis ɛn tek yu nɛks doz di tɛm we yu dɔn sɛtul. Nɔ ɛva tek dabl doz.
Ɔda tin dɛm wae kin miks wit dis mɛrɛsin
Sɔm mɛrɛsin kin miks wit Riluzole ɛn afɛkt di we aw i de wok ɔ di sayd ɛfɛkt dɛn we i gɛt. Fɔ ɛgzampul:
- Allopurinol we dɛn kɔl
- Pils dɛn we dɛn kin yuz fɔ kɔntrol pikin
- Siproflɔksasin we dɛn kɔl
- Fluvoxamin we dɛn kɔl fluvoxamine
- Methoxsalen we dɛn kɔl Methoxsalen
- Methyldopa we gɛt di sik
- Mɛksilɛtin we dɛn kɔl
- Sɔlfasalazin we dɛn kɔl
- Tiabɛndazɔl we dɛn kɔl
- Vemurafenib we gɛt di sik
- Zileuton we de na di wɔl
Dis list nɔ kɔmplit. So, gi yu dɔktɔ wan kɔmplit list fɔ ɔl di mɛrɛsin dɛn we yu de yuz (we yu dɔktɔ gi yu ɔ we yu bay na famasi), ɔyl dɛn, vaytamɛn dɛn, ɛn sɔpɔtmɛnt dɛn we yu de tek. Dɔn bak, mek shɔ se yu tɛl yu dɔktɔ if yu de smok ɔ drink rɔm.
Tin dɛn we yu fɔ tink bɔt we yu de tek mɛrɛsin
- Yu fɔ chɛk yu dɔktɔ ɔltɛm: Mek shɔ se yu go na yu dɔktɔ in apɔntinmɛnt. Tɛl am aw yu de du wit di mɛrɛsin ɛn if yu sik dɔn bɛtɛ ɔr dɔn wɔs.
- Wach ɔut fɔ di infɛkshɔn dɛn:If yu gɛt sɔm sayn dɛn lɛk fiva, kol, trot we de at, ɔ kol, nɔr de mɛn yusɛf ɛn kɔl yu dɔktɔ wantɛm wantɛm. Dis mɛrɛsin kin ridyus di bɔdi in ebul fɔ fɛt sik (immunity) smɔl. So, tray fɔ de fa frɔm pipul dɛn we sik.
- Tek tɛm wit mɛrɛsin dɛn we de mek yu fil pen: Nɔ tek mɛrɛsin lɛk aspirin, asetaminofɛn, ɛn ibuprofen we yu nɔ gɛt yu dɔktɔ in advays. Dɛn tin ya kin stɔp yu fiva ɛn mek i nɔ izi fɔ no if yu gɛt infekshɔn.
- If yu de smok: If yu smok, dat kin mek dis mɛrɛsin nɔ wok fayn. If yu na pɔsin we de smok, ɔ yu de tink fɔ lɛf fɔ smok, tɔk to yu dɔktɔ bɔt am.
- Drɔw ɛn diziz: Dis mɛrɛsin kin mek yu fil fɔ slip ɛn diziz. So, nɔ drayv, ɔpreshɔn mashin, ɔ du ɔda tin dɛn we nid fɔ pe atɛnshɔn te yu no aw dis mɛrɛsin de afɛkt yu. Ɛspɛshali if yu dɔn ol, nɔ tinap fɔ sidɔm ɔ tinap wantɛm wantɛm. Du dɛn tin ya smɔl smɔl.
Us sayd ɛfɛkt dɛn we a go gɛt?
Lɛk ɛni mɛrɛsin, dis wan kin mek sɔm pipul dɛn gɛt sayd ɛfɛkt. Sɔm pan dɛn tin ya siriɔs, sɔm kin kɔmɔn.
| Klasifikɛshɔn fɔ di sayd ɛfɛkt dɛn | |
|---|---|
| 🚨 Sayd ifekt dɛm we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
| Alɛji we pɔsin kin gɛt | Skin rash, it, swel na di lip, tong ɔ fes. |
| Sayn dɛn we de sho se pɔsin gɛt di sik | Fiva, kol, trot we de at. |
| Di sayn dɛn we de sho se pɔsin in liva wund | Dak yɔlɔ ɔ brawn urine, yu yay ɔ yu skin de yɔlɔ, pen na di ɔp rayt pat na di bɛlɛ, yu nɔ de want fɔ it, yu nɔ de fil fayn, yu stɔl de shayn, yu taya we nɔ kɔmɔn. |
| 👍 Tin dɛm we nɔ kin siriɔs, bɔt dɛn fɔ ripɔt to dɔktɔ if dɛn kɔntinyu | |
| Kɔf | Wan kɔf we de kɔntinyu fɔ kɔf. |
| Ed de at | Yu ed kin at ɔltɛm. |
| Nɔs ɛn vɔmit | Bɛlɛ de at, nɔs. |
| We pɔsin taya | Fɔ fil taya pas aw i kin fil. |
If yu gɛt ɛni ɔda kayn sik we nɔ kɔmɔn we dɛn nɔ tɔk bɔt na dis list, tɔk to yu dɔktɔ bɔt dɛn bak.
Mɛsej we dɛn kin kɛr go na os
- Riluzole nɔto mɛrɛsin fɔ ALS, na mɛrɛsin we de mek di sik slo.
- Tek dis fim ɔltɛm wit ɛmti bɛlɛ . Dat min se wan awa bifo yu it ɔ tu awa afta yu it.
- Put di fim na yu tɔng ɛn lɛ i sɔlv. Nɔ ɛva chew, kɔt, ɔ krɔs.
- Go to dɔktɔ wantɛm wantɛm if yu gɛt sayn dɛn we de sho se yu liva dɔn pwɛl (yu yay de yɔlɔ, yu urine dak) ɔ yu gɛt siriɔs alɛji.
- I impɔtant fɔ tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn we yu de tek.
- Dis mɛrɛsin na fɔ yu nɔmɔ. Nɔ sheb am wit ɛni ɔda pɔsin.
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