Na nɔmal tin fɔ fil ebi ebi lod we yu dɔktɔ tɛl yu ɔ sɔmbɔdi na yu famili gɛt siriɔs nyurolɔjik kɔndishɔn lɛk Amyotrophic Lateral Sclerosis (ALS). Riluzole na spɛshal mɛrɛsin we de ɛp fɔ kɔntrol aw dis sik de go bifo, dat na fɔ mek di sik go bifo smɔl smɔl. So tide, lɛ wi tɔk bɔt dis impɔtant mɛrɛsin simpul wan, lɛk se wi de ɛksplen am to wi padi.
Wetin na Riluzole?
Fɔ tɔk am simpul wan, Riluzole na wan mɛrɛsin we de slo di prɔgrɛs fɔ Amyotrophic Lateral Sclerosis (ALS) , we na wan nyurodijɛnɛraytiv sik (we dɛn kin kɔl bak Lu Gehrig in sik). I nɔ de mɛn di sik ɔl, bɔt i kin ɛp fɔ kɔntrol di damej we de pan di nerve cells ɛn gi sɔm rilif. Dɔktɔ dɛn kin gi dis mɛrɛsin bak fɔ ɔda sik dɛn. If yu gɛt ɛni kwɛstyɔn bɔt am, i go fayn fɔ aks yu dɔktɔ.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin fɔ tek mɛrɛsin
I rili impɔtant fɔ mek yu dɔktɔ no gud gud wan bɔt yu wɛlbɔdi biznɛs bifo i gi yu dis mɛrɛsin. Mek shɔ se yu tɛl yu dɔktɔ if yu gɛt ɛni wan pan di sik dɛn we de dɔŋ ya.
| Di tin we de apin to yu | Wetin mek i impɔtant fɔ tɛl di dɔktɔ? |
|---|---|
| Liva sik | Dis mɛrɛsin kin kɔmɔt mɔ na di bɔdi tru di liva. If yu gɛt ɛni prɔblɛm wit yu liva, yu kin nid fɔ ajɔst yu doz ɔ yu kin nid fɔ du spɛshal tɛst. |
| Alɛji dɛn we pɔsin kin gɛt | If yu gɛt ɛni alɛji fɔ riluzole, ɔda mɛrɛsin, it, ɔ tin dɛn we de mek yu nɔ pwɛl, duya mek wi no bifo tɛm. |
| If yu gɛt bɛlɛ ɔ yu de op fɔ bɔn pikin | No kɔmplit infɔmeshɔn stil de bɔt aw dis mɛrɛsin sef we uman gɛt bɛlɛ. So, yu fɔ tɔk bɔt dis wit yu dɔktɔ ɛn disayd bɔt di bɛnifit ɛn di prɔblɛm dɛn we i go gɛt. |
| If mama de gi in pikin in bɛlɛ | Bikɔs no klia infɔmeshɔn nɔ de bɔt if dis mɛrɛsin de pas to di pikin tru in mama in milk, i impɔtant fɔ tɛl di dɔktɔ if yu na mama we de gi pikin in bɛlɛ. |
Aw ɛksaktɔli a kin yuz dis mɛrɛsin?
Fɔ mek yu gɛt di bɛst pan di mɛrɛsin, i rili impɔtant fɔ yuz am di rayt we.
- Swɛla dis pil ɔl wit wan glas wata.
- Tek yu mɛrɛsin di rayt tɛm, lɛk aw yu dɔktɔ tɛl yu. If dɛn tɛl yu fɔ tek am tu tɛm insay di de, tray fɔ lɛf sɔm awa bitwin di tu tɛm dɛn.
- Di tin we impɔtant pas ɔl: Dɛn fɔ tek dis mɛrɛsin we yu ɛmti bɛlɛ . Dat min se, tek am at le wan awa bifo ɔ tu awa afta yu it. Nɔ tek am wit it. Dis kin mek di mɛrɛsin nɔ go insay di bɔdi.
- Nɔ stɔp fɔ tek yu mɛrɛsin wantɛm wantɛm if yu dɔktɔ nɔ advays yu.
- Dis mɛrɛsin na fɔ yu nɔmɔ. Nɔ ɛva sheb yu mɛrɛsin wit ɔda pipul dɛn.
Wetin a go du if a mis wan doz?
If yu fɔgɛt fɔ tek wan doz, tek am jɔs lɛk aw yu mɛmba. Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek yu nɛks doz, skip di doz we yu mis ɛn tek yu nɛks doz di tɛm we yu dɔn sɛtul. Nɔ tek tu dos wan tɛm fɔ ɛni rizin.
Speshal pɔynt dɛn fɔ tink bɔt ɛn di sayd ɛfɛkt dɛn
Yu fɔ no bɔt dɛn tin ya we yu de tek mɛrɛsin.
- Yu fɔ chɛk yu blɔd ɔltɛm: Kɔntinyu fɔ go na klinik ɛn du blɔd tɛst lɛk aw yu dɔktɔ tɛl yu, bikɔs dis impɔtant fɔ si if dis mɛrɛsin de afɛkt yu liva.
- Fiva ɛn Infɛkshɔn: If yu gɛt fiva, kol, trot we de at, ɔ ɔda sayn dɛn we de sho se yu gɛt di sik, nɔ fɔ tek mɛrɛsin fɔ yusɛf. Kɔl yu dɔktɔ wantɛm wantɛm. Dis mɛrɛsin kin mek yu bɔdi nɔr ebul fɔ fɛt sik.
- Smok: Tɛl yu dɔktɔ if yu de smok. If yu smok, dat kin mek dis mɛrɛsin nɔ wok fayn. Dɔn bak, tɛl yu dɔktɔ if yu de plan fɔ lɛf fɔ smok.
- Drɔw ɛn diziz: Yu kin fil smɔl fɔ slip ɛn diziz we yu de tek dis mɛrɛsin.Yu kin fil lɛk se yu ed de tɔn. So, nɔ drayv ɔ yuz mashin te yu no aw dis mɛrɛsin de afɛkt yu. Ɛspɛshali if yu dɔn ol, nɔ fɔ grap ɛn sidɔm kwik kwik wan.
Sɔm sayd ɛfɛkt dɛn we pɔsin kin gɛt
Lɛk ɔl mɛrɛsin, dis wan kin mek yu gɛt sayd ɛfɛkt, pan ɔl we nɔto ɔlman kin gɛt am. Wach fɔ di sayn dɛm we de dɔŋ ya.
| Sayd ɛfɛkt we pɔsin kin gɛt | Tɔk bɔt |
|---|---|
| Siriɔs sayd ɛfɛkt dɛm we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
| Alɛji Riakshɔn dɛn | Skin rash, it, swel na di lip, tong ɔ fes, i nɔ izi fɔ blo. |
| Sayn dɛn we de sho se pɔsin in liva wund | Dak yɔlɔ ɔ brawn urine, yu yay ɔ skin de yɔlɔ, pen na di ɔp rayt pat na di bɛlɛ, nɔs, yu nɔ de want fɔ it, yu taya pasmak. |
| Sayn dɛn we de sho se pɔsin gɛt di sik | Fiva, kol, ɛn trot we de at. |
| Kɔmɔn sayd ɛfɛkt dɛm wae dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu ɔr de mɔna yu | |
| Disɔda dɛn we kɔmɔn | Kɔf, ed pen, nɔs, vɔmit, bɛlɛ pen, jenɛral taya. |
Wetin yu go du if yu tek bɔku mɛrɛsin? (Ovados) .
If yu tink se yu dɔn tek mɔ mɛrɛsin pas aw yu tink, go na di ɔspitul we de nia yu Imejɛnsi Dipatmɛnt (ETU) wantɛm wantɛm . Ɔ, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital fɔ advays.
Ɔda mɛrɛsin dɛm wae kin miks wit dis mɛrɛsin
Tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek, lɛk di mɛrɛsin dɛn we dɛn kin gi yu ɛn di wan dɛn we yu kin bay, vaytamɛn dɛn, ɛn di mɛrɛsin dɛn we dɛn kin yuz fɔ mɛn yu bɔdi. Sɔm pan di mɛrɛsin dɛm wae kin intarakt wit riluzole na:
- Allopurinol we dɛn kɔl
- Pils dɛn we dɛn kin yuz fɔ kɔntrol pikin
- Siproflɔksasin we dɛn kɔl
- Fluvoxamin we dɛn kɔl fluvoxamine
- Methoxsalen we dɛn kɔl Methoxsalen
- Mεdikeshכn dεm lεk sulfasalazine.
Dis list nɔr kɔmplit, so i go fayn fɔ tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛm wae yu de tek.
Mɛsej we dɛn kin kɛr go na os
- Riluzole nɔto mɛrɛsin fɔ ALS, bɔt i de ɛp fɔ kɔntrol aw di sik de go bifo.
- Ɔltɛm tek dis mɛrɛsin wit ɛmti bɛlɛ, dat na wan awa bifo ɔ tu awa afta yu it.
- Mek shɔ se yu tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn we yu de tek, yu abit dɛn (smok, rɔm), ɛn ɛni ɔda mɛrɛsin we yu go gɛt.
- Go to dɔktɔ kwik kwik wan if yu gɛt fiva, sayn dɛm fɔ infekshɔn, ɔ sayn dɛm fɔ se yu liva dɔn pwɛl (lɛk yu skin/ay yɔlɔ) we yu de tek di mɛrɛsin.
- Nɔ ɛva sheb di mɛrɛsin dɛn we dɛn dɔn gi yu wit ɔda pipul dɛn. Ɔltɛm fala wetin yu dɔktɔ tɛl yu fɔ du.
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