Wetin na Snedɔn Sindrom? Yu gɛt spat dɛn lɛk dis na yu skin? Mek wi tok!

Yu dɔn ɛva notis se sɔm pipul dɛn kin gɛt pepul spat na dɛn skin, mɔ na dɛn an ɛn fut, we tan lɛk nɛt? Sɔntɛnde, dɛn kin kɔmplen bak bɔt diziz ɛn ed we de at. Tide wi go tɔk bɔt wan sik wae nɔr kin bɔrku wae gɛt di sem kayn sik, bɔt nɔrbɔdi nɔr kin tɔk bɔt am bɔrku. Dɛn kɔl dis Sneddon Syndrome.

Wetin na Snedɔn Sindrom? Fɔ tɔk am simpul wan...

Fɔ tɔk am simpul wan, Sneddon Syndrome na sik we de afɛkt di smɔl ɛn midul saiz blɔd vesel dɛm na yu bɔdi. Tink bɔt dɛn blɔd vesel dɛn ya lɛk paip dɛn we de kɛr wata. Insay dis sik, di smol smol smol sεl dεm we de insay yu bכdi we dεn kכl εndoteyl, de gro fast fast εn pas aw i fכ gro. Wetin kin apin da tɛm de? Dɛn ɛkstra sɛl dɛn ya kin ridyus di ples we de insay di blɔd vesel dɛn, jɔs lɛk aw dɔti kin stɔp na paip, i kin at fɔ mek wata flɔ. Dis kin mek di blɔd nɔ de flɔ.

Dis na wan sik wae nid fɔ wach fɔ sɔm tɛm, as e kin wɔs smɔl smɔl as tɛm de go. Pipul wae gɛt dis sik kin gɛt bɔrku blɔd klɔt. Dɛn kin gɛt prɔblɛm wit dɛn skin bak ɛn gɛt prɔblɛm wit dɛn nyurolɔjik. Sɔntɛnde dɛn kin kɔl am Sneddon-Champion syndrome. Wan ɔda nem na livedo reticularis racemosa. Dis sik kin mek sɔm pipul dɛn gɛt strok ɛn transient ischemic attack (TIA).

Aw dis sik kin kɔmɔn? Udat dɛn kin kɔmɔn pan am pas ɔlman?

Infakt, Sneddon Syndrome na wan sik we nɔ kin bɔku. Statistikin, dɛn se na 4 pipul dɛn nɔmɔ pan wan milyɔn kin gɛt dis sik ɛvri ia. Dat na lɛk wan pan ɔl tu ɛn af ɔndrɛd tawzin pipul dɛn.

Dɔn bak, dis sik kin bɔku pan uman dɛn pas man dɛn. Na lɛk 80% pan di pipul dɛm wae gɛt Sneddon syndrome na uman dɛm. Dɛn kin no se dɛn gɛt dis sik arawnd 40 ia.

Wetin na di sayn dɛm fɔ dis? Aw yu no am?

Pɔrsin wae gɛt Sneddon Syndrome kin gɛt difrɛn kayn sayn dɛm. Bɔt nɔto ɔl dɛn sayn ya kin apin wan tɛm. Sɔm sayn dɛm kin apia sɔm ia afta di nyurolɔjik prɔblɛm bigin. Ɔ sɔm pipul dɛn kin gɛt prɔblɛm wit dɛn yay ɔ ed kin at fɔs. Na sɔm pan di sayn dɛm wae de sho se yu gɛt dis sik:

• Wan pɔtn lɛk mɛsh na di skin:Dis na de fɔs sayn wae bɔrku pipul kin notis. Di skin kin gɛt sɔm rɛd-pɔpul spat dɛn, we fiba fishnɛt ɔ di patɛns we de pan sɔm snek dɛn. Dis nɔ de mek pɔsin fil pen. If dɛn spat ya apia na yu an ɛn yu leg, apia na kol, ɛn nɔ de igen we yu wam, dɛn kin kɔl am livedo reticularis. Bɔt if dis patna de na yu chɛst, bɛlɛ, ɔ yu bɔdi, ɛn i nɔ de lɔs ivin we yu wam, dɛn kin kɔl am livedo racemosa.
• Ed we de at: Bɔku tɛm, sɔm tɛm dɛn kin gɛt bad bad ed pen.
• Diziz: Na filin fɔ spin.
• Strɔk ɛn TIA: As wi bin dɔn tɔk, dɛn tin ya na sɔm pan di wan dɛn we rili siriɔs.
• Di chenj we yu de biev ɛn di we aw yu de tink: I kin chenj pan yu abit, di we aw yu de tink, ɛn di we aw yu de mɛmba.
• Kidni prɔblɛm: Dis nɔ kin bɔku smɔl, bɔt sɔm pipul dɛn kin gɛt prɔblɛm wit dɛn kidni bak.

Di tin we impɔtant pas ɔl na dat if yu gɛt wan ɔ tu pan dɛn sik ya, mɔ if yu gɛt ed we de at ɛn diziz wit di skin we tan lɛk mɛsh, yu fɔ rili go to dɔktɔ fɔ advays.

Wetin mek Sneddon Syndrome kin apin? Wetin na di kɔz?

Dis na rili sɔntin we dɔktɔ dɛn stil nɔ ebul fɔ no. Dɛn nɔr dɔn fɛn di rayt tin we kin mek pɔsin gɛt Sneddon Syndrome yet. Na dat mek dɛn kɔl am idiopathic, we min se dɛn nɔ no di kɔz. Bɔt bikɔs dɛn dɔn si se dis sik de rɔn na sɔm famili dɛn, dɛn tink se sɔntɛm wan tin we de na di bɔdi de .

Dɔn bak, sɔm tɛm dɛn, Sneddon syndrome kin apin togɛda wit ɔda ɔtoimyun kɔndishɔn dɛn . Autoimyun sik na jɔs wan tin we wi bɔdi in imyun sistɛm de atak wi yon bɔdi in sɛl dɛn. If yu gɛt Sneddon syndrome, i kin gɛt fɔ du wit wan pan dɛn sik ya:

• Lupus we gɛt di sik
• Antifosfolipid sindrom we gɛt di sik
• Di sik we Behçet gɛt
• Miks kɔnɛktiv tisu sik

Aw dɛn kin no dis? Us tɛst dɛn dɛn kin du?

If yu dɔktɔ sɔspɛkt se yu gɛt Sneddon Syndrome bay di sayn dɛm we yu gɛt, dɛn go ɔda fɔ du sɔm difrɛn tɛst dɛm. Dɛn tɛst ya go luk fɔ:

• Yu blɔd: Chɛk fɔ si if yu gɛt sayn dɛn fɔ ɔtoimyun sik ɛn prɔblɛm wit blɔd we de klɔt.
• Yu at: Chɛk aw blɔd de pas na yu at ɛn blɔd vesel dɛn.
• Yu bren:Chek fɔ si if yu bren dɔn pwɛl. I kin bi bikɔs ɔf wan strok.
• Yu skin: Dɛn kin tek smɔl pat pan di skin ɛn chɛk am (skin biopsy) fɔ si if ɛni sɛl chenj de we de sho dis sik.

Dɛn tɛst ya kin inklud spɛshal tɛst dɛn fɔ tek imej . Fɔ ɛgzampul:

• MRI skan (magnɛtik rɛsɔnans imej - MRI skan) .
• CT skan `(kɔmpyut tomografi - CT skan)`
• Angiogram (spɛshal ɛkstrem rayt fɔ si aw di blɔd vesel dɛn de) .

Dɔktɔ dɛn kin ebul fɔ kɔnfɔm dis sik kɔrɛkt wan afta dɛn dɔn du ɔl dɛn tɛst ya.

Aw dɛn kin trit am? (Tritment) Wetin na di opshɔn dɛm?

Dɛn nɔr stil ɔndastand di bɛst we fɔ trit Sneddon Syndrome gud gud wan. Wan rizin fɔ dis na bikɔs na smɔl pipul dɛm wae gɛt dis sik so i nɔr kin izi fɔ fɛn inof pipul dɛm fɔ du big klinik trial.

Bɔt difrɛn tritmɛnt dɛn de fɔ di sik we de sho se pɔsin gɛt di sik. Fɔ ɛgzampul, yu dɔktɔ kin gi yu mɛrɛsin dɛn lɛk:

• Antikoagulant ɔ antiplatelet mɛrɛsin dɛn: Dɛn wan ya de mek blɔd nɔ klɔt ɛn mek i izi fɔ mek blɔd flɔ.
• Vasodilators: Fɔ ɛgzampul, nifedipine. Dɛn tin ya kin mek di blɔd vesel dɛn big ɛn mek di blɔd flɔ mɔ. Bɔku tɛm dis kin mek pɔsin fil fri frɔm di sik dɛn we de na di skin.
• di angiotensin-converting enzyme inhibitors (ACE inhibitors): dεn ya de εp fכ stכp di abnכmal growth fכ dεn εndoteyl sεl dεm we wi bin dכn tכk bכt.

Impɔtant: If yu gɛt Sneddon syndrome, yu fɔ avɔyd fɔ smok ɔltogɛda ɛn yuz bɔn kɔntrol pils we gɛt ɛstrojen. Dɛn tin ya kin mek di sik wɔs.

Wan we de fɔ mek dɛn nɔ gɛt dis sik?

Bɔt i sɔri fɔ no se, bay di infɔmeshɔn we de naw, no we nɔ de fɔ mek dɛn nɔ gɛt Sneddon Syndrome. Bikɔs wi nɔ no di rayt tin we kin mek i apin, i nɔ kin izi fɔ tɔk aw fɔ mek i nɔ apin.

Wetin go apin if dis tin kɔntinyu fɔ apin? (Prognosis) Wetin wi kin ɛkspɛkt fɔ tumara bambay?

Bɔrku tɛm, Sneddon Syndrome kin mek di nervɔs sistɛm chenj. Fɔ ɛgzampul , i kin mek i nɔ ebul fɔ mɛmba tin ɛn i kin at fɔ tɔk smɔl smɔl as tɛm de go. Sɔmtɛm, dɛn kin no bak se pipul dɛm wae gɛt Sneddon Syndrome gɛt dis maynia sik wae kin bigin kwik kwik wan. Na dat mek i impɔtant fɔ no bɔt dɛn sik ya.

Yu tink se wan kɔmplit mɛrɛsin de fɔ mɛn am?

Akɔdin to di mɛdikal infɔmeshɔn we de naw, Sneddon SyndromeDɛn nɔ dɔn fɛn wan kɔmplit ``kyu'' yet. Di tritmɛnt dɛn kin aim fɔ kɔntrol di sayn dɛm ɛn tray fɔ mek di sik nɔ wɔs.

Ustɛm yu fɔ go to dɔktɔ?

If yu gɛt sɔm sayn dɛm fɔ Sneddon Syndrome, lɛk di skin we tan lɛk mɛsh, ed we de at, ɛn diziz, go to dɔktɔ wantɛm wantɛm. Nɔ delay, mɔ if yu gɛt ɔda sayn dɛn wit di say dɛn we de na di skin.

If dɛn dɔn ɔlrɛdi no se yu gɛt Snedɔn sindrom, if yu gɛt nyu sik, ɔ if yu fil se yu sik de wɔs, tɛl yu dɔktɔ wantɛm wantɛm.

Dɔn bak, if yu gɛt ɛni sayn we de sho se yu gɛt strok, nɔ de te. Kɔl 911 wantɛm wantɛm (na Sri Lanka, 1990 Suwaseriya Ambulans Savis) ɔ go na di ɔspitul imejensi dipatmɛnt we de nia yu. Di sayn dɛm fɔ strok kin bi:

• Di ed we kin at bad bad wan wantɛm wantɛm.
• Prɔblɛm fɔ si (lɛk we yu nɔ de si fayn na wan yay, we ɔl tu nɔ de si fayn).
• Wan ɔ ɔl tu say dɛn na di bɔdi nɔ de fil fayn ɔ wik.
• I nɔ izi fɔ waka.
• I nɔ izi fɔ tɔk ɔ ɔndastand wetin ɔda pipul dɛn de tɔk.

Fɔ dɔn, tin dɛn fɔ mɛmba (Take-Home Message) .

Sneddon Syndrome na wan sik wae nɔr kin bɔrku ɛn kin siriɔs. Bɔt if dɛn no se yu gɛt dis sik, tek tɛm fala wetin yu dɔktɔ tɛl yu fɔ du. Tek yu mɛrɛsin di rayt tɛm, kip yu fɔlɔp apɔntinmɛnt, ɛn nɔ mis ɛni tɛst schedule.

Yu kin ɛp yusɛf bay we yu de liv yu layf we go mek yu at pwɛl. Dat min se yu fɔ it di rayt it, yu fɔ du ɛksɛsayz, ɛn nɔ fɔ smok ɛn fɔ kɔntrol di pikin we gɛt ɛstrojen. Dɛn tin ya kin ɛp yu fɔ kɔntrol yu sik. Nɔr wɔri, yu kin liv wit dis sik wit de rayt mɛrɛsin ɛn chenj na yu layf.

` Sneddon syndrome, blɔd vesel sik, skin spat, strok, nyuropathy, livedo reticularis, blɔd klɔt