Yu kin fil bak se yu nɔ ebul fɔ kɔntrol yu slip insay di de? Ɔ yu kin fil lɛk se yu go fɔdɔm ɛn fɔdɔm na grɔn we yu laf ɔ yu sɔprayz? We wi de tɔk bɔt mɛrɛsin, wi kin kɔl dis sik Narcolepsy. So, wan spɛshal mɛrɛsin wae dɛn kin gi fɔ trit dis sik na Sodium Oxybate. I kin kam insay di fɔm fɔ sɔlv. Tide, wi go tɔk bɔt dis mɛrɛsin insay simpul wɔd dɛn, aw fɔ yuz am, tin dɛn we wi fɔ tek tɛm wit, ɛn di bad tin dɛn we kin apin to am.
Wetin kin rili apin wit dis mɛrɛsin?
Fɔ tɔk am simpul wan, dis mɛrɛsin we dɛn kɔl sodium oxybate de kɔntrol yu narkolepsi.
- Slip we yu de slip na de: Dis mɛrɛsin de wok bay we i de afɛkt yu bren ɛn ridyus di slip we yu nɔ ebul fɔ kɔntrol de. Dis kin ɛp yu fɔ slip fayn na nɛt.
- Katapleksi: Sɔm pipul dɛn kin gɛt di mɔsul dɛn we kin wik wantɛm wantɛm, lɛk we dɛn de laf ɔ we dɛn kin sɔprayz. Dɛn kɔl dis katapleksi. Dis mɛrɛsin kin ridyus bak fɔ mek dɛn kayn tin ya kin apin.
Dis na mɛrɛsin we dɛn kin gi pɔsin we dɔktɔ fɔ gi am. Nɔto mɛrɛsin we yu kin tek fɔ yusɛf.
Tin dɛn we yu fɔ tɛl yu dɔktɔ bifo yu tek mɛrɛsin
If yu gɛt ɛni wan pan di sik dɛn we de dɔŋ ya, mek shɔ se yu tɛl yu dɔktɔ bifo yu bigin dis mɛrɛsin. Dis mɛrɛsin nɔ fayn fɔ ɔlman. I kin denja wit sɔm kɔndishɔn.
| Yu kɔndishɔn ɔ yu abit | Wetin mek yu fɔ tɛl di dɔktɔ? |
|---|---|
| If yu de drink rɔm | Fɔ tek dis mɛrɛsin wit rɔm kin rili denja. I kin mek pɔsin in layf de pan denja, lɛk we i nɔ de blo fayn. |
| Pwɛl hat, tink bɔt fɔ kil insɛf, ɔr ɔda kayn maynd sik | Dis mɛrɛsin kin mek sɔm kayn maynd wɔs, so i impɔtant fɔ mek di dɔktɔ no bɔt dis. |
| Sik dɛm wae de kam pan pɔrsin wae de blo (e.g. Sleep Apnea) ɔr sik dɛm wae de kam pan pɔrsin in lכng | Di mɛrɛsin kin slo fɔ blo. Dis kin denja fɔ pɔrsin wae dɔn ɔlrɛdi gɛt prɔblɛm wit in brith. |
| Liva ɔ kidni sik | Bikɔs dis ɔgan de involv fɔ pul di mɛrɛsin na di bɔdi, i kin nid fɔ chenj di doz fɔ di mɛrɛsin. |
| If yu gɛt at sik, yu blɔd prɛshɔn, ɔ yu de it tin dɛn we nɔ gɛt bɔku sɔl | Dis mɛrɛsin gɛt bɔku bɔku sɔdiɔm (sɔl), so i kin afɛkt pipul dɛn we gɛt dɛn sik ya. |
| Wan tin we nɔ kin apin so ɔltɛm we dɛn kɔl succinic semialdehyde dehydrogenase deficiency | Dis na wan sik we nɔ kin apin we pɔsin kin gɛt we i kam pan jɛnɛtiks. Dɛn nɔ kin gi pipul dɛn we gɛt dis sik dis mɛrɛsin. |
| If yu gɛt bɛlɛ, yu de tray fɔ gɛt bɛlɛ, ɔ yu na mama we de gi pikin in bɛlɛ | Yu fɔ tɔk to yu dɔktɔ bɔt di prɔblɛm dɛn we kin apin to yu pikin we nɔ gɛt bɛlɛ ɔ di pikin we de gi yu in bɛlɛ. |
Aw a fɔ yuz dis mɛrɛsin?
Di we aw fɔ yuz dis mɛrɛsin difrɛn smɔl, so fala dɛn instrɔkshɔn ya gud gud wan.
- Fɔ fala yu dɔktɔ in instrɔkshɔn: Ɔltɛm tek di rayt doz lɛk aw yu dɔktɔ tɛl yu fɔ tek. Rid di instrɔkshɔn dɛn we de na di mɛrɛsin lɛbl gud gud wan.
- Kɔrɛkt mɛzhɔmɛnt: Yuz di spɛshal ɔral sirinj ɔ mɛzhɔmɛnt kɔp we kam wit di mɛrɛsin fɔ mɛzhɔ am. Nɔ yuz ti spɔnj we yu kin yuz na os ɔ sup spɔnj. Dɛn nɔ go gi yu kɔrɛkt mɛzhɔmɛnt.
- Fɔ pripia di mɛrɛsin: Yu fɔ miks di mɛrɛsin we dɛn tɛl yu fɔ it wit smɔl wata ɛn drink am. Yu dɔktɔ go ɛksplen aw fɔ du dis.
- Tek am ɛmti bɛlɛ: Yu fɔ tek dis mɛrɛsin fɔ at le 2 awa afta yu dɔn it.
- Di tu doz rijim: Dis na di wan we impɔtant pas ɔl. Dɛn go tɛl yu fɔ tek tu dos na nɛt.
1. Fɔs doz: We yu de go slip, .Go na bed ɛn drink am we yu de na bed.
2. Sɛkɔn doz: Tek am 2.5 to 4 awa afta di fɔs doz. Yu go nid fɔ sɛt alam fɔ dis.
- Wetin a go du if a mis wan doz? If yu mis wan doz, skip am. Jɔs tek di nɛks doz na di tɛm we dɛn dɔn sɛtul. Nɔ ɛva tek tu dos di sem tɛm.
Wetin yu go du if yu tek bɔku mɛrɛsin? (Ovados) .
If yu tink se yu dɔn tek bɔku mɛrɛsin, na imejensi. Wantɛm wantɛm, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital, ɔ go na di Imejɛnsi Dipatmɛnt (ETU) na di ɔspitul we de nia yu.
I rili impɔtant: Dis mɛrɛsin na fɔ yu nɔmɔ. Nɔ ɛva sheb am wit ɛni ɔda pɔsin. Dis na mɛrɛsin we pɔsin kin yuz di rɔŋ we, so fɔ gi ɔ sɛl am to ɔda pɔsin na bad tin we pɔsin kin pɔnish.
Tin dɛn we yu fɔ tek tɛm wit mɔ we yu de tek mɛrɛsin
Yu nid fɔ tink bɔku bɔt yu sef we yu de yuz dis mɛrɛsin.
- Slip kwik kwik wan: Dis mɛrɛsin de mek yu fil bad bad wan klos to jɔs afta yu tek am. Na dat mek i fayn fɔ tek di fɔs doz rayt bifo yu go slip. Nɔ du ɛni ɔda tin afta yu dɔn tek di mɛrɛsin.
- Drayv ɛn mashin: Nɔ drayv, yuz mashin, ɔ du ɛni ɔda tin we nid fɔ de wach fɔ at le 6 awa afta yu tek di mɛrɛsin.
- Nɔ drink rɔm ɔltogɛda: Nɔ drink rɔm ɔltogɛda we yu de tek dis mɛrɛsin. If yu tek dɛn tu togɛda, i kin mek yu gɛt prɔblɛm dɛn lɛk we yu nɔ ebul fɔ blo fayn.
- Di bihayvya wae gɛt fɔ du wit slip: Dis na spɛshal tin wae yu kin si wit dis drɔg. Imajin, yu tek di drɔg ɛn slip. Bɔt we yu nɔ ivin no, yu kin kɔmɔt na bed, kuk, kɔl pɔsin, ɔ drayv motoka (‘slip-driving’). Bɔt di nɛks mɔnin yu nɔ mɛmba ɛni wan pan dɛn tin ya. Dis na tin we rili denja. If yu si sɔntin lɛk dis de apin to yu ɔ yu famili, tɛl yu dɔktɔ wantɛm wantɛm.
- Di chenj na yu maynd: If yu ɔ yu famili notis ɛni chenj na yu bihayvya, nyu ɔr de pwɛl hat sik, yu de tink bɔt fɔ kil yusɛf, yu de wɔri pasmak, ɔr yu nɔr de mɛmba ɔltɛm, tɛl yu dɔktɔ wantɛm wantɛm.
Wetin na di sayd ɛfɛkt dɛm we dis mɛrɛsin kin gɛt?
Lɛk ɛni mɛrɛsin, dis wan kin gɛt sayd ɛfɛkt. Sɔm pan dɛn siriɔs, sɔm pan dɛn kɔmɔn.
| Tayp fɔ di sayd ɛfɛkt | Sayn dɛn |
|---|---|
| Siriɔs sayd ɛfɛkt dɛn we nid fɔ go to dɔktɔ wantɛm wantɛm | |
| Alɛji we pɔsin kin gɛt | Skin rash, it, swel na di fes, lip, tong ɔ trot. |
| Sɛntral nervɔs sistɛm diprɛshɔn (CNS Dipreshɔn) . | Fɔ blo sloslo ɔ shalɔ, i nɔ kin izi fɔ blo, yu kin gɛt diziz pasmak, yu nɔ kin no natin. |
| Di chenj dɛn we de apin na di maynd ɛn di we aw pɔsin de biev | Wae yu de wɔri, nɔr de rεst, yu de tink bɔt aw pɔrsin de fil, yu de tink bɔt fɔ kil yusɛf, yu de fil bad mɔr. |
| Slip apnɛa fɔ slip | Snor lawd wan, chok/stɔp ɛn bigin fɔ blo bak we yu de slip, fil fɔ slip pasmak insay di de. |
| Fɔ waka we yu de slip | Slip waka ɔ du ɔda tin dɛn we yu nɔ ivin no. |
| Kɔmɔn sayd ɛfɛkt dɛm we dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Ɔda | Bedwet, diziz, ed pen, nɔr kin want fɔ it, nɔs, vɔmit. |
Prɔblɛm kin de wit ɔda mɛrɛsin dɛn?
Yɛs. Dis mɛrɛsin kin miks wit ɔda mɛrɛsin dɛn.
Nɔ it: Nɔ drink rɔm ɛn ɔda tin dɛn we yu kin yuz fɔ slip kpatakpata we yu de tek dis mɛrɛsin. If yu tek dɛn togɛda, dat kin mek yu nɔ ebul fɔ blo ɛn i kin ivin put yu layf pan denja.
Apat frɔm dat, prɔblɛm kin apin bak wit dɛn mɛrɛsin ya:
- Mɛrɛsin fɔ alɛji, kɔf, ɛn kol (Antihistamines) .
- Sɔm mɛrɛsin fɔ pwɛl hat (e.g. Amitriptyline, Fluoxetine, Sertraline) .
- Sɔm mɛrɛsin fɔ ɛpilepshi (e.g. Phenobarbital) .
- Jɛnɛral anestetik dɛn
- Mɛrɛsin dɛn we dɛn kin gi fɔ rilaks di mɔsul dɛn we dɛn de du ɔpreshɔn
- Di tin dɛn we dɛn kin yuz fɔ mɛn pen (espɛshali mɔfin) .
- Mɛrɛsin dɛn lɛk Divalproex sodium, Valproic acid
Dis list nɔ kɔmplit. So, tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn, vaytamɛn dɛn, ɛbul mɛrɛsin dɛn, ɛn sɔpɔtmɛnt dɛn we yu de tek.
Mɛsej we dɛn kin kɛr go na os
- Ɔltɛm tek dis mɛrɛsin jɔs lɛk aw yu dɔktɔ tɛl yu fɔ tek, di rayt doz, ɛn di rayt tɛm. Ɛspɛshali fala di tu-dos rijim na nɛt.
- Nɔ tek dis wit rɔm ɔ ɔda tin fɔ slip fɔ ɛni rizin. I rili denja.
- Yu fɔ no bɔt tin dɛn we nɔ kɔmɔn lɛk fɔ slip ɛn fɔ drayv we yu de slip. If dis apin, tɛl yu dɔktɔ wantɛm wantɛm.
- If yu gɛt chenj na yu maynd, aw yu de biev, ɔ yu de tink bɔt fɔ kil yusɛf, go to dɔktɔ wantɛm wantɛm.
- Stɔr dis na say we sef usay ɔda pipul dɛn nɔ go ebul fɔ rich. Nɔ ɛva sheb am wit ɔda pipul dɛn.
👩🏽 ⚕️ Ɔda kwɛstyɔn dɛn (FAQ dɛn)
💬 Wetin dɛn kin yuz Sɔdiɔm Ɔksibɛt (Sɔdiɔm Ɔksijɛt / Xyrem) fɔ?
Dis na kɔntrol sɔbstans (GHB) we nɔ de na rɛgyula famasi ɛn na CNS dipreshɔn we dɛn kin pul ɔnda rili strikt rigyuleshɔn! Dɛn kin yuse am fɔ trit wan siriɔs sik we dɛn kɔl ‘Narcolepsy’. Dat min se, di sik pipul dɛm we kin fɔdɔm wantɛm wantɛm na slip we dɛn nɔ ebul fɔ kɔntrol (Cataplexy) we dɛn de waka/drayv motoka, ɛn di sik pipul dɛm we de sɔfa wit pasmak de slip (EDS).
💬 Aw dis mɛrɛsin (Sodium Oxybate) de ɛp fɔ gɛt narkɔlepsi?
Di tin na, yu nɔ de tek dis mɛrɛsin na de, bɔt bifo yu go slip na nɛt (ɛn wek bak na midul nɛt)! wetin dis de du na fכ fכs di sikman fכ dip, dip slip (Slow-wave slip) na nɛt (GABA-B Receptor Activation). We yu slip fayn na nɛt, di slip we yu nɔ ebul fɔ kɔntrol (EDS) ɛn di katapleksi we kin kam wantɛm wantɛm insay di de kin wɛl ɔl.
💬 Wetin na di sayd ɛfɛkt dɛm we rili denja (Blak Bɔks Wɔnin) fɔ dis drɔg (Xyrem)?
Dis na drɔg we de dairekt insay di ‘Strit Drugs / Date Rape Drug - GHB’ kategori! If yu tek dis wit alkol/slip pils, chans de fɔ mek yu gɛt pwɛl hat ɛn day/kɔm! Dɔn bak, if yu kɔntinyu fɔ tek dis, yu kin gɛt siriɔs pwɛl hat, slip, ɛn saykosis (so, dis kin ɔlrɛdi kɔmɔt tru wan ɔfishal rɛjista REMS program).
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