Yu kin fil taya pasmak ɔl di de? Yu kin wek ɛn fil se yu taya, ɛn ilɛksɛf yu slip na nɛt, da taya de nɔ kin go? Sɔntɛnde, yu kin tink se dis na jɔs we yu taya bikɔs yu wok pasmak. Bɔt i kɔmplikt pas dat, ɛn i kin bi wɛlbɔdi prɔblɛm we wi fɔ rili pe atɛnshɔn to. Tide wi go tɔk bɔt dis kayn taya we pɔsin kin taya ɔltɛm, we dɛn kɔl am na mɛrɛsin as `Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Sɔntɛnde dɛn kin kɔl am `Systemic Exertion Intolerance Disease (SEID)`.
Fɔ tɔk am simpul wan, dis na tin we yu bɔdi in batri nɔ de chaj fayn. Dis kin mek yu taya tumɔs fɔ du di tin dɛn we yu de du ɛvride. Sɔntɛnde, ivin fɔ du sɔntin we simpul lɛk fɔ go na stɔ, fɔ du smɔl wok na os, ɔ fɔ rayt lɛta, dat kin mek yu sik dɛn wɔs. Dis sik kin te fɔ lɛk 6 mɔnt, ɔr ivin ia. Di tin we impɔtant pas ɔl na dat dis taya nɔ de stɔp, ilɛksɛf yu rɛst ɛn slip fayn.
Dɔktɔ kin ɛp yu fɔ no dis sik ɛn kɔntrol yu sayn dɛm, bɔt dɛn fɔ no fɔs se na sik.
Wetin na di men sayn dɛm fɔ dis sik?
If yu gɛt ME/CFS, yu go mɔs gɛt dɛn tri "kɔr" simptom ya. Lɛ wi tek wan luk pan wetin dɛn bi.
| Di men simptom | Fɔ ɛksplen simpul wan... |
|---|---|
| Taya we pɔsin nɔ go ebul fɔ bia | Fɔ fil taya pasmak fɔ pas 6 mɔnt, we kin mek i nɔ izi fɔ du ivin di men tin dɛn we yu kin du ɛvride. Dis na big chenj we yu kɔmpia am to wetin yu bin de du na yu layf trade. |
| Malayz we dɛn kin du afta dɛn dɔn ɛksɛsayz (PEM) . | Dis na di tin wae de mek dis sik difrɛn pas ɔl. Afta ivin di smɔl smɔl tin wae yu dɔn du na yu bɔdi ɔr yu maynd (e.g., yu waka fɔ shɔt tɛm, rid buk), de sik kin rili bad fɔ sɔm awa ɔr dez. |
| Slip we nɔ de mek pɔsin fil fayn | Ilɛksɛf yu slip fayn, yu kin stil fil se yu nɔ gɛt layf we yu wek na mɔnin. Fɔ fil taya, lɛk se yu dɔn wek ɔl nɛt. |
Wetin na Pɔst-Ɛksɛshɔnal Malays (PEM)?
I impɔtant fɔ ɛksplen dis smɔl mɔ. Imajin se yu de du wan simpul wok we yu kin du, lɛk fɔ klin di os. Pɔsin we gɛt wɛlbɔdi kin fil taya smɔl, bɔt i go dɔn afta sɔm tɛm. Bɔt pɔsin we gɛt ME/CFS, afta i dɔn du da simpul wok de, sɔntɛm 12-48 awa afta dat, i kin gɛt sɔm sayn dɛn wantɛm wantɛm lɛk bad bad bɔdi pen, ed we de at, i nɔ kin izi fɔ pe atɛnshɔn, in trot kin at, ɛn i kin taya pasmak . Dis sik kin te fɔ sɔm dez, ivin sɔm wik.
Ɔda tin dɛn we dɛn nid fɔ no if pɔsin gɛt di sik
Apat frɔm di tri men sayn dɛm we wi dɔn tɔk bɔt, fɔ mek dɔktɔ no di kɔrɛkt we aw yu gɛt ME/CFS, yu fɔ gɛt at le wan pan di tu sayn dɛm we de dɔŋ ya.
- Prɔblɛm dɛn we kin apin we pɔsin de tink:
Bɔku pipul dɛn kin kɔl dis "bren fɔg." I min se yu gɛt prɔblɛm fɔ pe atɛnshɔn, yu nɔ ebul fɔ pe atɛnshɔn, yu gɛt prɔblɛm fɔ fɛn wɔd, yu nɔ ebul fɔ mɛmba nyu tin dɛn, ɛn yu de tink kwik kwik wan. I tan lɛk se yu ed kɔba wit fɔg.
- Di sayn dɛm kin wɔs we yu tinap ɔ sidɔm (Orthostatic Intolerance):
Wetin kin apin pan dis kayn tin na wae de sik kin wɔs wae yu tinap ɔr sidɔm stret fɔ sɔm tɛm. Yu kin fil lɛk yu ed de tɔn, yu yay kin blak, yu kin fil wik, yu nɔ kin si fayn, ɛn yu kin ivin fil lɛk se yu gɛt tin dɛn we de flɔt bifo yu yay. Dis na di rizin we mek bɔku tɛm yu kin fil lɛk se yu go fɔdɔm.
Ustɛm wi fɔ go to dɔktɔ?
If yu gɛt wan ɔ mɔ pan di sayn dɛn we wi dɔn tɔk bɔt na dis atikul, mɔ if de taya dɔn de fɔ sɔm mɔnt, duya nɔ jɔs tink se na jɔs taya. Dis na sɔntin we yu fɔ tɔk to yu dɔktɔ bɔt.
Sɔntɛnde, dɛn sik ya kin kam bikɔs ɔf ɔda mɛrɛsin, lɛk tayroyd prɔblɛm, blɔd, ɛn pwɛl hat. So, e fayn fɔ no di rial tin wae kin mek yu gɛt dɛn sik ya. Na dɔktɔ nɔmɔ go ebul fɔ du dat.
We yu go to yu dɔktɔ, mek shɔ se yu ɛksplen ɔltin bɔt yu sik dɛn, ivin di de we dɛn bigin, we dɛn wɔs (PEM), ɛn aw yu de slip. If nid de, rayt dɛn tin ya na notbuk. Dis go ɛp di dɔktɔ fɔ ɔndastand yu sik.
Yu kin aks yu dɔktɔ bɔt in ɛkspiriɛns fɔ trit ME/CFS. Bikɔs dis na kɔmpleks sik, yu kin aks fɔ mek dɛn sɛn yu to ɔda dɔktɔ we spɛshal pan dis eria. Nɔ fred fɔ tɔk bɔt am.
Mɛsej we dɛn kin kɛr go na os
- Kronik Fatigue Syndrome (ME/CFS) nɔr kin jɔs de fɔ fil taya. Na siriɔs, lɔng tɛm wɛl bɔdi prɔblɛm wae kin rili ambɔg yu ɛvride layf.
- Di tri men sayn dɛm na wae yu taya pasmak wae de te pas 6 mɔnt, yu de wɔs afta yu dɔn du smɔl tin (PEM), ɛn yu nɔr de slip fayn.
- Apat frɔm dat, prɔblɛm wit mɛmori ɛn tink (bren fɔg) ɔr di sayn dɛm wae de wɔs wae yu tinap (ɔrthostatic intolerance) na kɔmɔn tin.
- If yu gɛt dɛn sik ya, nɔ ignore dɛn. Mek shɔ se yu go to yu dɔktɔ fɔ mek dɛn no yu di rayt we ɛn fɔ gayd yu.
- Difrɛn we dɛn de fɔ mɛn dis sik. So nɔ lɔs op. Di fɔs ɛn impɔtant tin we yu fɔ du na fɔ go to dɔktɔ.
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