Fɔ sɔm pipul dɛm, mɔr di wan dɛm wae de liv wit sik lɛk Smith-Magenis Syndrome, slip kin bi big chalenj. I kin taya fɔ nɔ ebul fɔ slip fayn na nɛt ɛn fɔ slip na de. So, insay kes dɛm lɛk dis, Tasimelteon na spɛshal mɛrɛsin we dɔktɔ dɛn kin advays fɔ ɛp fɔ rigul di bɔdi in natura slip patɛn. Tide, wi go tɔk bɔt dis mɛrɛsin insay simpul wɔd dɛn, aw fɔ yuz am, ɛn wetin fɔ tek tɛm wit.
Wetin kin rili apin wit dis mɛrɛsin?
Fɔ tɔk am simpul wan, Tasimelteon na mɛrɛsin we de ɛp fɔ rigul yu bɔdi in natura slip ɛn wek saykl. Wi bren gɛt wan sistɛm we de wok lɛk natura klok. Insay kɔndishɔn lɛk Smith-Magnesium syndrome, dis klok kin ambɔg, we kin mek pɔsin nɔ ebul fɔ slip na nɛt ɛn i kin slip pasmak na de. Dis mɛrɛsin de wok bay we i de mek yu slip bak ɛn ɛp yu fɔ slip di rayt tɛm. Dɛn kin yuz am mɔ as sɔspɛns, ɛn i de bak ɔnda di brand nem HETLIOZ LQ.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin fɔ tek di mɛrɛsin
Bifo dɛn gi yu Tasimelteon, i rili impɔtant fɔ mek yu dɔktɔ no gud gud wan bɔt yu wɛlbɔdi prɔblɛm. Mek shɔ se yu tɛl yu dɔktɔ if yu gɛt ɛni wan pan dɛn tin ya:
- If yu gɛt ɛni sik na yu liva .
- If yu na pɔsin we de smok .
- If yu dɔn gɛt alɛji fɔ Tasimelteon ɔ ɛni ɔda mɛrɛsin, it, ɔ day.
- If yu gɛt bɛlɛ ɔ yu de op fɔ gɛt bɛlɛ insay di nɛks tɛm .
- If yu na mama we de gi pikin in bɛlɛ .
Bay dis infɔmeshɔn, di dɔktɔ go disayd if dis mɛrɛsin fayn fɔ yu ɔ nɔ fayn fɔ yu ɛn di doz we dɛn fɔ gi yu.
Aw ɛksaktɔli a kin yuz dis mɛrɛsin?
Fɔ mek yu gɛt di bɛst pan dis mɛrɛsin, i rili impɔtant fɔ yuz am kɔrɛkt wan.
- Oral mεdikeshכn: Dis na כral mεdikeshכn we de kam insay di fכm lεk likid (suspension).
- Na di rayt tɛm: Yu fɔ drink dis di sem tɛm ɛvri nɛt bifo yu go slip .
- Shek gud gud wan: Yu fɔ shek di mɛrɛsin bɔtul fayn fayn wan bifo yu yuz am.
- Kɔrɛkt mɛzhɔmɛnt: Yuz di spɛshal mak we dɛn kin mak wit ɔral sirinj, spun, ɔ drɔp we kin kam wit di mɛrɛsin fɔ mɛzhɔ am. Nɔ mɛzhɔ wit ti spɔnj ɔ tebul spɔnj we yu gɛt na os, bikɔs dɛn tin ya nɔ kɔrɛkt.
- Na ɛmti bɛlɛ: Dɛn kin tek dis mɛrɛsin na ɛmti bɛlɛ.I bɛtɛ fɔ drink am. Dat min se yu fɔ drink am fɔ at le af awa bifo yu it, ɔ tu awa afta yu it.
- Kɔntinyu fɔ yuz am: Kɔntinyu fɔ yuz di mɛrɛsin lɛk aw dɛn tɛl yu te yu dɔktɔ tɛl yu fɔ stɔp.
Di tin we impɔtant pas ɔl na fɔ tek di kɔrɛkt doz di rayt tɛm, lɛk aw di dɔktɔ tɛl yu. Ɛn dis mɛrɛsin na fɔ yu nɔmɔ. Nɔ ɛva sheb am wit ɔda pipul dɛn.
Wetin fɔ du if yu mis wan doz fɔ mɛrɛsin?
If yu fɔgɛt fɔ tek yu mɛrɛsin wan de, skip da doz de. Nɔ wɔri. Jɔs tek yu rɛgyula doz di nɛks de na yu ɔspitul tɛm. Nɔ ɛva tek tu doz wan tɛm fɔ mek di doz we yu dɔn fɔgɛt.
Intarakshɔn wit mɛrɛsin dɛn
Tasimelteon kin intarakt wit sɔm ɔda mɛrɛsin ɛn it dɛn. So, tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek (we ɔda dɔktɔ dɛn gi yu, mɛrɛsin dɛn we yu nɔ de bay, mɛrɛsin dɛn we yu kin yuz fɔ mɛn animal dɛn, vaytamɛn dɛn).
| Posisibul prɔblɛm (intarakshɔn) wit Tasimelteon | |
|---|---|
| Nɔ yuz dɛn tin ya wit Tasimelteon. | |
| Ramɛltiɔn | Vilɔksazin we dɛn kɔl Viloxazin |
| Mek shɔ se yu tɛl yu dɔktɔ bɔt dɛn tin ya bak. | |
| Rum | Prodakt dɛn we gɛt melatonin |
| Fluvoxamine (na mɛrɛsin fɔ mental sik) . | Rifampin (wan antibayɔtik fɔ TB) . |
| Sɔm mɛrɛsin fɔ fungal infɛkshɔn (e.g. ketoconazole) . | Sɔm mɛrɛsin fɔ ay blɔd prɛshɔn ɛn at sik (e.g. metoprolol, propranolol) . |
Tin dɛn we yu fɔ mɛmba we yu de tek mɛrɛsin
- Drowsiness ɛn diziz: Yu kin fil fɔ slip ɔr diziz afta yu dɔn tek dis mɛrɛsin. So, nɔ du ɛni ɔda tin pas fɔ rɛdi fɔ slip afta yu dɔn tek di mɛrɛsin. Nɔ drayv ɔ yuz mashin te yu no aw dis mɛrɛsin de afɛkt yu.
- Nɔ grap wantɛm wantɛm: Nɔ grap we yu sidɔm ɔ kɔmɔt na bed wantɛm wantɛm, mɔ if yu dɔn ol. Dis kin mek yu nɔ gɛt diziz ɛn fɔdɔm.
- Nɔ drink rɔm: Nɔ drink rɔm ɔltogɛda we yu de tek dis mɛrɛsin. Rɔm kin mek di mɛrɛsin nɔ wok fayn.
- Smok: Tɛl yu dɔktɔ if yu de smok. Dis mɛrɛsin kin afɛkt yu wɛlbɔdi difrɛn we pan pipul dɛn we de smok. Dɔn bak, if yu disayd fɔ lɛf fɔ smok, tɛl yu dɔktɔ.
- Ɔvados: If yu tink se yu dɔn tek mɔ mɛrɛsin pas aw yu tink, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital wantɛm wantɛm, ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu.
Sayd ɛfɛkt dɛn we kin apin bikɔs ɔf mɛrɛsin
Lɛk ɛni mɛrɛsin, Tasimelteon kin mek sɔm pipul dɛn gɛt sayd ɛfɛkt. Pan ɔl we bɔku pan dɛn tin ya na smɔl smɔl tin dɛn, sɔm tin dɛn de we wi fɔ no bɔt.
| Sayd ɛfɛkt we pɔsin kin gɛt | Wetin fɔ du |
|---|---|
| If yu gɛt dɛn sik ya, kɔl yu dɔktɔ wantɛm wantɛm. | |
| Alɛji we pɔsin kin gɛt • SMƆL TƆK: Skin rash • SMƆL TƆK: I de it • SMƆL TƆK: Yu de swel na yu fes, yu lip, yu tɔŋ, ɔ yu trot | Dɛn tin ya kin bi sayn fɔ se yu gɛt siriɔs sik. Go to dɔktɔ wantɛm wantɛm. |
| Tin dɛm wae nɔr kin nid fɔ go to dɔktɔ, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Ed de at | If dɛn tin ya de kɔntinyu ɔ de mɔna yu, tɔk to yu dɔktɔ. |
| Drim dɛn we klia ɔ bad bad drim dɛn | |
Aw fɔ kip ɛn trowe mɛrɛsin fayn fayn wan?
- Fɔ kip di mɛrɛsin: Kip di mɛrɛsin bɔtul na frij . Nɔ kip am na friza , bikɔs dis kin mek di mɛrɛsin pwɛl. Kip am usay pikin ɛn animal dɛn we yu lɛk nɔ go ebul fɔ rich.
- di εkspireshכn: wans dεn opin di bכtul, di shelf layf de difrεn dipכnt pan di sayz fכ di bכtul (e.g. 5 wik fכ 48 ml bכtul, 8 wik fכ 158 ml bכtul). If dis tɛm ɔ di de we di bɔtul dɔn pas, trowe di mɛrɛsin we lɛf.
- Fɔ trowe am: Di bɛst we fɔ trowe mɛrɛsin dɛn we yu nɔ yuz ɔ we dɔn pas na fɔ gi dɛn to wan program we gɔvmɛnt de rul fɔ tek drɔgs bak. Aks yu dɔktɔ bɔt dis. If dat nɔ pɔsibul, miks di mɛrɛsin wit sɔntin lɛk pusi dɔti, dɔti, ɔ kɔfi grɔn, put am insay bag we dɛn tayt tayt, ɛn trowe am na di dɔti.
Mɛsej we dɛn kin kɛr go na os
- Tasimelteon na spɛshal mɛrɛsin fɔ slip prɔblɛm wae kin kam wit Smith-Magenis syndrome. Na ɔnda dɔktɔ in advays nɔmɔ dɛn fɔ yuz am.
- Tek di mɛrɛsin di sem tɛm ɛvri nɛt, pan ɛmti bɛlɛ. Nɔ mɛzhɔ wit di spun dɛn we yu gɛt na os, yuz di spɛshal mɛzhɔmɛnt tin we dɛn gi yu.
- Yu kin fil lɛk se yu de slip afta yu dɔn tek di mɛrɛsin, so nɔ drayv ɔ du ɛnitin we yu nid fɔ pe atɛnshɔn to.
- I impɔtant fɔ tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn we yu de tek, ɛni ɔda sik we yu gɛt, ɛn ɛni alɛji we yu gɛt.
- Nɔ drink rɔm ɔltogɛda we yu de tek di mɛrɛsin.
- If yu si sayn dɛm fɔ siriɔs alɛji (skin rash, swel), go to dɔktɔ wantɛm wantɛm.
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