Yu ɔ sɔmbɔdi na yu famili gɛt sistik fibrosis? If na so, yu dɔktɔ go dɔn gi yu wan pil we de miks tu mɛrɛsin dɛn we dɛn kɔl Tezacaftor ɛn Ivacaftor. Yu kin gɛt dis ɔnda di brand nem Symdeko. Dis na smɔl spɛshal mɛrɛsin. So tide, lɛ wi tɔk insay wan rili simpul ɛn fayn fayn we bɔt wetin dis mɛrɛsin rili de du, aw fɔ yuz am ɛksaktɔli, us tin dɛn fɔ tek tɛm wit, ɛn us sayd ɛfɛkt dɛn i kin mek.
Wetin kin rili apin wit dis mɛrɛsin?
Fɔ tɔk am simpul wan, sistik fibrosis na sik we kin kam bikɔs ɔf wan prɔblɛm we de na wi bɔdi we de kɔntrol di balans we di sɔl ɛn wata gɛt na wi bɔdi. dis kin mek di tin dεm we de kכmכt, spεshal wan na di lכng εn di dijestiv sistεm, lεk mכkus, kin tik bכku εn stika. Infakt, i tan lɛk glu. Dis tik tik mכkus de mek i at fכ brith na di lכng, εn i kin mek yu gεt infεkshכn bכku tεm .
Tink bɔt am lɛk di smɔl smɔl domɔt dɛn we de na wi bɔdi in sɛl dɛn, usay sɔl ɛn wata de go insay ɛn kɔmɔt na di sɛl dɛn. Insay sistik fibrosis, dɛn domɔt ya nɔ de wok fayn.
Dis na di say we dɛn tu drɔgs ya, Tezacaftor ɛn Ivacaftor, kin kam in. Wetin dɛn drɔgs ya kin du na fɔ go na dɛn get dɛn we nɔ de wok fayn (protein) ɛn ɛp dɛn fɔ wok fayn . we di sכl εn wata muvmεnt kam bak dis we, di tik tik mכkus de kכmכt sכmtεm sכmtεm εn i izi fכ pul am na di lכng. Dɔn i kin izi fɔ blo, ɛn dɛn kin kɔntrol bɔku pan di sayn dɛm.
Tin dɛn we yu fɔ tɛl yu dɔktɔ bifo yu tek mɛrɛsin
Bifo yu bigin fɔ tek dis mɛrɛsin, i rili impɔtant fɔ tɛl yu dɔktɔ bɔt yu kɔmplit wɛlbɔdi kɔndishɔn. Na bikɔs sɔm tin dɛn de we yu nid fɔ tek tɛm wit spɛshal we we yu de yuz dis mɛrɛsin. Mek shɔ se yu tɛl dɛn bɔt dɛn tin ya mɔ.
- If yu gɛt sik na yu kidni .
- If yu gɛt ɛni sik na yu liva . Dis rili impɔtant, bikɔs dis mɛrɛsin kin kɔmɔt na di bɔdi tru di liva .
- If yu gɛt alɛji to Tezacaftor, Ivacaftor, ɔ ɛni ɔda mɛrɛsin, it, ɔ day .
- If yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛNem dɛn.
- If yu na mama we de gi pikin in bɛlɛ .
Bay dis infɔmeshɔn, di dɔktɔ go disayd if dis mɛrɛsin fayn fɔ yu ɔ nɔ rayt fɔ yu, ɔ if dɛn nid fɔ chenj di doz.
Dɛn fɔ yuz di mɛrɛsin di rayt we.
Fɔ mek yu gɛt di bɛst pan dis mɛrɛsin, i rili impɔtant fɔ tek am kɔrɛkt wan.
- Tek wit it: Yu fɔ tek dis pil wit it we gɛt fat . Fɔ ɛgzampul, eg, pinat bɔta, chiz, milk, yogɔt, ɔ it we gɛt smɔl kokonat ɔyl. Dis na di bɛst we fɔ tek di mɛrɛsin.
- Tek am di sem tɛm: Tray fɔ tek yu mɛrɛsin di sem tɛm ɛvride as yu ebul. Lɛf lɛk 12 awa bitwin di mɔnin ɛn ivintɛm dos.
- Swɛla di tablɛt ɔl: Nɔ brok, krɔs, ɔ chew di tablɛt. Swɛla di tablɛt ɔl wit wan glas wata . Bikɔs dɛn mek dɛn tablɛt ya fɔ sɔlv sloslo na di bɔdi, if yu brok dɛn, dat kin chenj di we aw di mɛrɛsin de wok.
- Grep Jus: Wan ɔda tin we rili impɔtant na fɔ nɔ ɛva tek dis mɛrɛsin wit grep jus. I kin rili afɛkt di we aw di mɛrɛsin de wok fayn. Dɔn bak, stɔp fɔ it grep.
- Nɔ stɔp: Nɔ stɔp fɔ tek yu mɛrɛsin te yu dɔktɔ tɛl yu fɔ tek am. Kɔntinyu fɔ tek am ilɛksɛf yu fil fayn.
Wetin a go du if a mistek tek bɔku mɛrɛsin?
Imajin se na aksidɛntli yu dɔn tek bɔku pils. If dis apin , go na di ɔspitul Imejɛnsi Dipatmɛnt (ETU) we de nia yu ɛn nɔ de te. Ɔ kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital fɔ advays.
Wetin fɔ du if yu mis wan doz fɔ mɛrɛsin?
Imajin se yu fɔgɛt fɔ tek yu mɛrɛsin na 8 oklɔk mɔnin. If yu mɛmba arawnd 12 noon, we min se i pas 6 awa te yu tek di nɛks doz, tek di doz we yu mis jɔs lɛk aw yu mɛmba. Bɔt if i nɔ rich 6 awa te yu tek di nɛks doz, skip di doz we yu mis ɛn tek di nɛks doz di tɛm we yu dɔn sɛtul. Nɔ ɛva tek tu dos wan tɛm.
Ɔda mɛrɛsin dɛm wae kin miks wit dis mɛrɛsin
Dis mɛrɛsin kin miks wit sɔm ɔda mɛrɛsin dɛn. So, i impɔtant fɔ tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek (inklud vaytamɛn dɛn, ɛbul mɛrɛsin dɛn, ɛn sɔpɔtmɛnt dɛn).
| Tayp fɔ mɛrɛsin | Ɛgzampul dɛn |
|---|---|
| Nɔ tek dis mɛrɛsin wit dɛn wan ya ɔltogɛda | |
| Sɔm mɛrɛsin dɛn we kin mek pɔsin sik | Kabamazɛpin, Fɛnobarbital, Fɛnitɔyn |
| Sɔm mɛrɛsin dɛn we de mek pɔsin gɛt TB | Rifampin, Rifabutin, ɛn ɔda pipul dɛn |
| Ɛrbal suplimɛnt | Sɛnt Jɔn in Wɔt |
| Wan drink we dɛn kin drink | Grepfruit jus we dɛn kin mek |
| Tɛl yu dɔktɔ as intarakshɔn wit dɛn tin ya kin apin. | |
| Sɔm antibayɔtik dɛn | Klaritromaysin, Ɛritromaysin |
| Antifungals dɛn we dɛn kin yuz | Flukonazɔl, Itrakonazɔl, Kɛtokonazɔl |
| Di tin dɛn we de mek di bɔdi nɔ ebul fɔ fɛt di sik | Sayklɔspɔrin, Sirolimus, Takrɔlimus |
| Wan mɛrɛsin fɔ at sik | Digoxin we dɛn kin yuz |
Dis list nɔ kɔmplit, so tɛl yu dɔktɔ bɔt ɔltin we yu de yuz.
Tin dɛn we yu fɔ tek tɛm wit we yu de tek mɛrɛsin
Yu dɔktɔ go de wach yu ɔltɛm we yu de tek dis mɛrɛsin.
- Chek-ap ɔltɛm: Yu dɔktɔ go tɛl yu fɔ kam na di klinik di de dɛn we dɛn dɔn sɛtul. Nɔ skip dɛn tin ya. Dis impɔtant fɔ si if yu sik de kam fayn ɔr nɔr de bɛtɛ.
- Blɔd tɛst: I go mɔs bi se yu dɔktɔ go ɔda fɔ mek dɛn du sɔm blɔd tɛst we yu de tek dis mɛrɛsin. Dɛn go chɛk yu liva ɛnzaym dɛn, mɔ yu liva ɛnzaym dɛn. Dis na nɔmal tin, so nɔ wɔri. Na fɔ mek shɔ se di mɛrɛsin de wok fɔ yu ɛn nɔ de afɛkt yu liva.
- Ay ɛgzam: Dɛn kin aks yu bak fɔ du ay ɛgzam bifo yu bigin di mɛrɛsin ɛn we yu de tek am. If yu notis ɛni chenj na yu yay (lɛk we yu nɔ de si fayn, we yu si ring rawnd layt) , tɛl yu dɔktɔ wantɛm wantɛm.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, dis wan kin mek sɔm bad bad tin dɛn apin. Nɔto ɔlman kin gɛt dɛn. Bɔt i impɔtant fɔ no bɔt dɛn.
| Tayp fɔ di sayd ɛfɛkt | Sayn dɛn |
|---|---|
| Siriɔs sayd ɛfɛkt dɛm we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
| Alɛji we pɔsin kin gɛt | Skin rash, it, swel na di fes, lip, tong ɔ trot, i nɔ izi fɔ blo. |
| Di sayn dɛn we de sho se pɔsin in liva wund | Pen na di ɔp rayt bɛlɛ, yu nɔ de want fɔ it, yu nɔ de fil fayn, yu de stɔl we gɛt layt kɔlɔ, yu de urine we gɛt dak yɔlɔ ɔ brawn, yu yay ɔ yu skin de yɔlɔ, ɛn yu de fil se yu taya pasmak. |
| Di chenj dɛn we de apin na di we aw pɔsin de si tin | Blɔr vishɔn, si ring rawnd layt, lɔs vishɔn. |
| Sayd ɛfɛkt dɛn we nɔ kin siriɔs, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Ed de at | Jɛnɛral ed pen. |
| Diziz we pɔsin kin gɛt | Diziz we pɔsin kin gɛt . |
| Vɔmit | Fɔ fil lɛk se yu go vɔmit (Nausea). |
| Sinus pen | Fɔ fil pen ɔ tayt rawnd yu fes ɔ fɔrɛst. |
If yu gɛt ɛni ɔda kayn sik we nɔ kɔmɔn we dɛn nɔ tɔk bɔt na dis list, duya tɛl yu dɔktɔ bɔt dɛn bak.
Aw fɔ kip mɛrɛsin fayn fayn wan?
- Kip am fa frɔm pikin dɛn: Ɔltɛm kip mɛrɛsin usay pikin ɛn animal dɛn we yu de mɛn nɔ go ebul fɔ rich, na ples we lɔk.
- Di rayt tɛmpracha: Stɔr am na rum tɛmpracha (bitwin 20 ɛn 25 digri sɛlshiɔs). Protɛkt frɔm ɔt ɛn mɔs we pasmak.
- Mɛrɛsin dɛn we dɔn dɔn: Nɔ yuz mɛrɛsin dɛn we dɔn pas di de we dɛn fɔ dɔn. Trowe dɛn fayn fayn wan.
- Aw fɔ trowe am: Nɔ flash di mɛrɛsin dɛn we yu nɔ yuz dɔŋ di tɔylɛt ɔ dairekt insay di dɔti. Aks yu dɔktɔ bɔt di kɔrɛkt we fɔ trowe dɛn.
Mɛsej we dɛn kin kɛr go na os
- Tezakaftɔ we de na di wɔl; Ɔltɛm tek di mɛrɛsin we dɛn kɔl Ivacaftor wit it we gɛt fat. Dis kin ɛp fɔ mek di bɔdi tek di mɛrɛsin fayn fayn wan.
- Nɔ drink grep ɔ grep jus ɔltogɛda we yu de tek dis mɛrɛsin.
- Mek shɔ se yu tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn, vaytamɛn dɛn, ɛn tradishɔnal mɛrɛsin dɛn we yu de tek.
- If yu mis wan doz, tek di doz we yu mis onli if i pas 6 awa te yu neks doz. If nɔto dat, skip am. Nɔ ɛva tek tu dos di sem tɛm.
- If yu gɛt siriɔs sayd ɛfɛkt, lɛk we yu de si chenj, yu skin ɔ yu yay we yɔlɔ, go to yu dɔktɔ wantɛm wantɛm.
- Dis atikul na fɔ jɔs fɔ no bɔt ɔltin. Ɔltɛm fala di advays we yu dɔktɔ gi yu.
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