Nɔ Giv Up: Tru Stori bɔt Liv wit Bren Kansa

Ivin we wi yɛri di wɔd "kansa," bɔku pan wi kin fred. Ɛn we wi yɛri di wɔd "bren kansa," da fred de kin bɔku mɔ ɛn mɔ. Bɔt yu dɔn yɛri bɔt pipul dɛn we de go bifo pas di statystik ɛn mɛrɛsin infɔmeshɔn bɔt dis sik ɛn fes am wit maynd ɛn op we nɔ de shek, ɛn liv wit am? Dis atikul de tɔk bɔt di stori dɛn bɔt rial pipul dɛn we de win layf lɛk dat. Dɛn stori ya de tich wi bɔku tin bɔt layf ɛn op.

Lives beyond statistics: Lɛ wi yɛri dɛn stori ya

We wi yɛri bɔt bren kansa, mɔ di kayn we we siriɔs lɛk ``Malignant Glioma,'' bɔku tɛm wi kin yɛri nɔto so gud nyus. Bɔt dɛn pipul ya we wi go tɔk to naw na dɛn dɔn pruv se ɔl dɛn peshɛm stori dɛn de nɔ rayt. Sɔm pipul dɛn dɔn de fɛt dis sik fɔ pas tɛn ia, ɛn dɛn dɔn liv dɛn layf di bɛst we.

Jim in stori: "Kansa nɔ ebul kɔntrol mi layf".

Imajin se Jim lɛk spɔt ɛn i kin du ɛksɛsayz ɔltɛm. I bin ivin tren fɔ rɔn maratɔn. Wan de insay 1998, we i bin de tren, wantɛm wantɛm i bin gɛt wan sik we dɛn kɔl seizure , we na wan sik we fiba we pɔsin kin gɛt fit. Wan say na in bɔdi bin go swɛ kpatakpata. Jim bin tɔk se: “A nɔ bin no wetin bin de apin da tɛm de.”

Ivin we in padi dɛn se, "Nɔ, nɔ, na natin," dɛn fos am fɔ kɛr am go na ɔspitul. Afta bɔku tɛst, di nɛks de di dɔktɔ dɛn gi am di bad nyus. "Di situeshɔn rili siriɔs. Yu gɛt bren tumor."

Fɔs dɛn bin no se na `(Oligodendroglioma)`, leta dɛn kɔnfyus se na siriɔs kayn kansa we dɛn kɔl `(Malignant Glioma).` Dɛn nɔ bin ebul fɔ pul di tumbu kɔmplit wan bay ɔpreshɔn bikɔs dɛn bin rap am rawnd di `(motor strip)`, we na wan impɔtant pat na di bren we de kɔntrol muvmɛnt.

Bɔt Jim nɔ bin giv ɔp. I bigin fɔ tek redyushɔn ɛn kemotɛrapi . Insay da tɛm de, i mared ɛn bɔn bɔy pikin. I bin kɔntinyu fɔ ple spɔt we i bin de fɛt di kansa. "Evri taim we di kansa kom bak, i tek mi tu or tri dez fo get bak fo mai fut. Bot a disayd, a no go let dis kansa kontrol mai laif. A go tek mi laif bak. "

Jim stil de alayv tide, i de fɛt kansa ɛn ɛp ɔda pipul dɛn. I rili gladi afta in las MRI ripɔt. Na bikɔs di tumbu dɔn bigin fɔ smɔl bak. Jim tɛl ɔlman se, "Kip op. Yu go si bɔku statystik. Nɔ aks fɔ di wɔs. Luk ɔl di opshɔn dɛn. Di big tin na fɔ rili kip op. "

Maria in stori: "A bin no se a nɔ go day".

Dɛn bin no bak se Maria gɛt dis sik afta i bin fit wantɛm wantɛm fɔ ``Seizure''. Di dɔktɔ dɛn se i gɛt wan siriɔs kayn kansa we dɛn kɔl ``Glioblastoma''. Afta dɛn du di ɔpreshɔn, dɛn bin gi am redyushɔn ɛn kemotɛrapi bak.

"A tel mi se, either a de liv or a de dai. Bot a bin no se a no go dai. A bin get plenti konfidens. A bin rili strong. A se, 'A no go let dis win mi.'"

I biliv se i bin gɛt dis trɛnk frɔm in mama ɛn papa. Dɛn kam na Amɛrika as pɔlitikal rɛfyuji frɔm Kiuba, lɛf ɔltin biɛn ɛn kam wit big maynd. Maria se: “Dat na bin di fɔs lɛsin we wi lan bɔt fɔ gɛt maynd.”

In MRI ripɔt dɛn dɔn sho se nɔbɔdi nɔ chenj fɔ pas fayv ia. Dat min se di kansa de kɔntrol am. Maria in mɛsej klia. "No giv op. No lisin to di statistik. Bikos plenti tins fit hapun. A biliv se mai rikova na mirekul."

Sarah in stori: "A fil big pis insay".

Sera bin de wok na wan ɔfis ikwipmɛnt stɔ. In wok na fɔ tich kɔstɔma dɛn aw fɔ yuz mashin. Wantɛm wantɛm, i bigin fɔ notis difrɛns. "We a de explein printa to kostoma, a de los track of wetin de hapun fo mai ed fo midul di tok-tok. A no fit finish am."

Na da sem tɛm de, i bigin fɔ gɛt ed pen ɛvride, ɛn dis nɔ bin kɔmɔn fɔ am. I bin tek wan wik ɔf ɛn dɛn bin du ful mɛdikal chɛk-ap. Wan ``CT scan``, wan ``MRI``, ɛn afta ɔl dis, i gɛt di bad nyus. I bin gɛt wan bren tumor bak we dɛn kɔl ``Glioblastoma``.

Afta di ɔpreshɔn, i bin gɛt wan fit bak. Na da tɛm de i kam fɔ no se i bin dɔn gɛt smɔl smɔl fit dɛn lɛk dis bifo, ivin we i de wok na kɔmpyuta.

Sera in man dɔn day ɛn i gɛt et pikin dɛn. Bɔt in at rili fayn. "A no de fol. A no de let mi sef fol. A de fil big pis insaid. Mi rilijos fet de helep mi to de kolhat."

Wetin wi kin lan frɔm dɛn stori ya?

Wi kin tɔk bɔt sɔm tin dɛn we wi kin tɔk bɔt frɔm dɛn tri stori ya.

1. Nɔ ignore di sayn dɛm wae nɔr kin izi fɔ yu: If yu gɛt nyu, unusual symptom dɛm, lɛk wae yu kin gɛt sik wae de kam kwik kwik wan, yu ed kin at bad bad wan ɔltɛm, ɔr yu kin fɔgɛt kwik kwik wan, nɔr dismis dɛm as "normal." Si yu dɔktɔ wantɛm wantɛm fɔ advays. Fɔ no di sik kwik kwik wan rili impɔtant fɔ tritmɛnt.

2. Op ɛn gud tin: Di men tin we de insay ɔl di tri stori dɛn na op. Dɛn kin sho wi aw i impɔtant fɔ tink gud wan bɔt layf ɛn nɔ giv ɔp fɔ fɛt, ivin we di sik rili bad.

3. Strɔng sɔpɔt sistɛm: Fambul, padi, ɛn rilijɔn biliv na big tin we kin mek pɔsin gɛt trɛnk we tin tranga lɛk dis. Di filin se nɔr de yu wan kin briŋ big kɔmfɔt pan yu maynd.

Bren kansa na prɔblɛm. Na tru dat. Bɔt nɔto di ɛnd fɔ layf. If dɛn gɛt di rayt mɛrɛsin, dɛn gɛt strɔng maynd, ɛn di wan dɛn we dɛn lɛk de sɔpɔt dɛn, dɛn kin ebul fɔ win dis prɔblɛm. Jim, Maria, ɛn Sera na fayn ɛgzampul dɛn bɔt dat.