Aw e kin anɔynt sɔm pipul dɛn fɔ gɛt ston na dɛn kidni ɔltɛm? Dis kin kɔmɔn mɔ fɔ pɔrsin wae gɛt jɛnɛtik kɔndishɔn lɛk sistinuria. So if yu dɔktɔ dɔn gi yu mɛrɛsin we dɛn kɔl Tiopronin fɔ kɔntrol dis sik, i rili impɔtant fɔ mek yu no bɔt am gud gud wan. Insay dis atikul, wi go tɔk bɔt dis mɛrɛsin insay simpul wɔd dɛn.
Wetin na Tiopronin?
Fɔ tɔk am simpul wan, Tiopronin na spɛshal mɛrɛsin we de wok bay we i de tay to wan amino asid we dɛn kɔl sistin na wi bɔdi. Naw yu go mɔs de wɔnda wetin i bi.
Imajin, pɔsin we gɛt sistinuria gɛt bɔku bɔku kemikal we dɛn kɔl sistin we de kɔmɔt na in bɔdi, mɔ na in urine. We di sistin de bɔku na di urine, dɛn kin gɛda togɛda, gɛda togɛda, ɛn at, ɛn mek ston dɛn na di kidni . Dis na sik we de mek pɔsin fil pen bad bad wan.
so wetin Tiopronin de du na we i de tay pan dεn ekstra sistin dεm ya na di urine εn tכn dεm to wan kכmpawnd we de sכlv. Dɔn di sistin dɛn kin gɛda togɛda ɛn stɔp fɔ mek ston. Dat min se di men wok we dis mɛrɛsin de du na fɔ mek di kidni ston nɔ kam bak . Na Sri Lanka, yu kin fɛn dis mɛrɛsin ɔnda brand nem lɛk Thiola EC.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin fɔ tek mɛrɛsin
Bifo yu gi yu Tiopronin, yu dɔktɔ go aks yu sɔm kwɛstyɔn dɛn, bɔt mek shɔ se yu aks dɛn kwɛstyɔn ya yusɛf.
- Ɔda kidni sik dɛm: Bɔt ɛni ɔda kidni sik we yu dɔn gɛt.
- Alɛji: Mek shɔ se yu tɛl yu dɔktɔ if yu gɛt ɛni alɛji to Tiopronin, ɛni ɔda mɛrɛsin, it, day, ɔ tin dɛn we de mek yu nɔ pwɛl.
- Bɛlɛ: Tɛl wi if yu gɛt bɛlɛ, ɔ yu plan fɔ bɔn pikin jisnɔ.
- If yu na mama we de gi pikin in bɛlɛ: I rili impɔtant fɔ tɛl di dɔktɔ if yu na mama we de gi pikin in bɛlɛ.
Bay dis infɔmeshɔn, di dɔktɔ go disayd if dis mɛrɛsin fayn fɔ yu ɔ nɔ fayn fɔ yu ɛn di doz we dɛn fɔ gi yu.
Di kɔrɛkt we fɔ yuz di mɛrɛsin
Fɔ mek yu gɛt di bɛst pan di mɛrɛsin, yu nid fɔ yuz am lɛk aw dɛn tɛl yu fɔ yuz am.
- Aw fɔ tek: Swɛla dis tablɛt ɔl wit wan glas wata.Yɛs. Dɛn tin ya kin kam lɛk tablɛt dɛn we kin kɔmɔt delay we dɛn mek fɔ mek di bɔdi tek am smɔl smɔl. So, dɛn nɔ fɔ chew, krɔs, ɔ brok.
- If yu gɛt prɔblɛm fɔ swɛla: If yu gɛt prɔblɛm fɔ swɛla di pil ɔl, tɔk to yu dɔktɔ bɔt am. Sɔntɛnde, dɛn kin advays yu fɔ krɔs di pil ɛn miks am wit sɔntin lɛk apul sos. Bɔt nɔ ɛva brok ɔ krɔs di pil we yu nɔ aks yu dɔktɔ.
- Tɛm: Tray fɔ tek yu mɛrɛsin di sem tɛm ɛvride , lɛk aw yu dɔktɔ tɛl yu.
- Fɔ it: Yu kin tek dis mɛrɛsin bifo ɔ afta yu it. Bɔt if yu bɛlɛ at ɔ yu nɔs afta yu dɔn tek di mɛrɛsin, if yu tek am wit it, dat kin ɛp fɔ mek yu nɔ fil fayn.
- Fɔ pikin dɛn: Dɛn fɔ tek tɛm wit spɛshal tin we dɛn de gi dis mɛrɛsin to yɔŋ pikin dɛn. So, na di advays we dɔktɔ gi yu nɔmɔ.
Wetin fɔ du if yu mis wan doz fɔ mɛrɛsin?
If yu mis wan doz, tek am jɔs afta yu mɛmba. Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek yu nɛks doz we yu mɛmba, skip di doz we yu mis ɛn tek yu nɛks doz di tɛm we yu dɔn sɛtul. Nɔ tek dabl doz fɔ ɛni rizin.
Ovados fɔ yuz am
If yu tink wantɛm wantɛm se yu dɔn tek mɔ pas di doz we dɛn tɛl yu fɔ tek fɔ dis mɛrɛsin, go wantɛm wantɛm na di Imejɛnsi Dipatmɛnt (ETU) na di ɔspitul we de nia yu. Ɔ kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital fɔ advays.
Sɔm sayd ɛfɛkt dɛn we pɔsin kin gɛt we yu de tek di mɛrɛsin
Lɛk ɛni mɛrɛsin, Tiopronin kin mek sɔm pipul dɛn gɛt sayd ɛfɛkt. Wi kin sheb dɛn tin ya to tu men grup dɛn.
| Sayd ɛfɛkt we pɔsin kin gɛt | Tɔk bɔt |
|---|---|
| If dɛn sayn ya apin, go to yu dɔktɔ wantɛm wantɛm. | |
| Alɛji we pɔsin kin gɛt | Skin rash, it, swel na di fes, lip ɔ tong. |
| Siriɔs prɔblɛm dɛn we kin apin na di skin | Skin de rεd, blista, pεl (ivin insay di mכt). |
| Di sayn dɛn we de sho se di blɔd sɛl nɔ bɔku (Anemia) . | Unusual taya, paleness, faint, tranga fɔ blo. |
| Ɔda siriɔs sayn dɛn | Fiva, joyn pen, mɔt sos, swel na di anklɛ, fut, ɔ an, i nɔ izi fɔ pis ɔ chenj di urine, i nɔ kɔmɔn fɔ brus ɔ blɔd de kɔmɔt. |
| If dɛn sayn ya nɔ de apin ɔ i de mɔna yu, tɛl yu dɔktɔ. | |
| Prɔblɛm dɛn we de na di dijestiv sistɛm | Nɔs, vɔmit, bɛlɛ at, dayarɛa. |
| Ɔda smɔl smɔl tin dɛn | Chenj in teist na di mɔt, taya, wrinkling ɔ tin na di skin. |
Ɔda tin dɛn we yu fɔ tek tɛm wit we yu de tek di mɛrɛsin
- Mɛdikal tɛst: I rili impɔtant fɔ go na di klinik dɛn di tɛm we yu dɔn sɛtul lɛk aw yu dɔktɔ tɛl yu fɔ du. Dɛn go nid fɔ du blɔd ɛn urine tɛst fɔ chɛk aw yu de du.
- Fɔ it ɛn wata: Dɛn go aks yu fɔ fala spɛshal it we yu de tek dis mɛrɛsin. Dɛn go aks yu bak fɔ drink bɔku wata ɛvride. Aks yu dɔktɔ ɔmɔs wata yu fɔ drink ɛvride ɛn us it dɛn fayn/bad fɔ it.
- Alkol: Nɔ drink rɔm ɔltogɛda we yu de tek dis mɛrɛsin. Alkol ɛn dis mɛrɛsin kin mek pɔsin gɛt bad bad tin fɔ du.
- Ɔda mɛrɛsin dɛn: Nɔ fɔgɛt fɔ tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn we yu de tek (inklud vaytamɛn dɛn, ɛbul mɛrɛsin dɛn, ɛn sɔpɔtmɛnt dɛn).
Di we aw dɛn kin kip ɛn trowe mɛrɛsin
- Storage: Dis mɛrɛsin yaKip am na say we sef usay pikin dɛn ɛn animal dɛn we dɛn kin mɛn nɔ go ebul fɔ rich. I bεst fכ kip am na nכmal rum tεmprachכ (bitwin 15-30 digri sεlshiכs).
- Aw fɔ trowe am: I rili impɔtant fɔ trowe di mɛrɛsin dɛn we dɔn pas ɔ we yu nɔ yuz fayn fayn wan. Nɔ ɛva was di mɛrɛsin dɛn dɔŋ di tɔylɛt. Di bɛst we na fɔ pul di pils dɛn na di bɔtul, miks dɛn wit sɔntin lɛk ti lif we dɛn dɔn yuz ɔ kɔfi grɔn, put dɛn insay wan bag we dɛn kɔl polythene we dɛn dɔn sidɔm tayt, ɛn trowe dɛn na di dɔti.
Mɛsej we dɛn kin kɛr go na os
- Tiopronin na spɛshal mɛrɛsin we dɛn kin gi fɔ mek di kidni ston nɔ kam bikɔs ɔf di kɔndishɔn we dɛn kɔl cystinuria.
- Tek di doz we yu dɔktɔ tɛl yu ɔltɛm, di rayt tɛm. Nɔ brok ɔ krɔs tablɛt dɛn we yu nɔ gɛt dɔktɔ advays.
- Tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin ɛn alɛji dɛn we yu gɛt bifo yu bigin fɔ tek di mɛrɛsin.
- If yu gɛt ɛni siriɔs sayd ɛfɛkt lɛk fɔ gɛt siriɔs skin lɛsin, swɛlin, taya we nɔ kɔmɔn, ɔ fɔ blɔd, go to dɔktɔ wantɛm wantɛm.
- I rili impɔtant fɔ go na di mɛdikal klinik dɛn di de dɛn we dɛn dɔn sɛtul ɛn du di tɛst dɛn we yu nid.
- Drink inof wata ɛvride lɛk aw yu dɔktɔ advays yu.
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