Sɔntɛnde wi kin gɛt sɔm sik dɛn bikɔs ɔf di rizin dɛn we wi kin gɛt frɔm wi jɛnɛtiks. ‘Cystinuria’ na wan pan dɛn kayn tin ya. Bikɔs ɔf dis, yu kin de sɔfa wit ston na yu kidni ɔltɛm. So, wan spɛshal mɛrɛsin we dɔktɔ dɛn kin gi fɔ stɔp fɔ mek dɛn kayn kidni ston ya na ‘Tiopronin’. Lɛ wi tɔk bɔt dis mɛrɛsin ditayli tide.
Wetin na Tiopronin?
Fɔ tɔk am simpul wan, tiopronin na wan mɛrɛsin we de tay pan wan kemikal na yu bɔdi we dɛn kɔl sistin. Kidni ston dεm kin fכm we dis sistin de bכku na di bכdi fכ pכsin we gεt sistinuria. So dis drɔg de wok bay we i de stɔp di sistin we de bɔku ɛn i de ridyus di risk fɔ mek pɔsin gɛt ston na in kidni. Bɔku tɛm, dɔktɔ dɛn kin tɛl yu fɔ du dis we ɔda tritmɛnt dɛn nɔ dɔn wok.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu tek dis mɛrɛsin
Bifo yu dɔktɔ gi yu dis mɛrɛsin, i rili impɔtant fɔ gi yu kɔmplit diskripshɔn bɔt yu wɛlbɔdi kɔndishɔn. Speshali, yu fɔ rili tɛl dɛn bɔt dɛn tin ya:
- If yu gɛt ɛni ɔda sik we gɛt fɔ du wit di kidni.
- If yu bin dɔn gɛt alɛji fɔ Tiopronin ɔ ɛni ɔda mɛrɛsin, it, ɔ day.
- If yu de tray fɔ gɛt bɛlɛ ɔ yu dɔn gɛt bɛlɛ.
- If yu na mama we de gi pikin in bɛlɛ.
Bay dis infɔmeshɔn, di dɔktɔ go disayd if dis mɛrɛsin fayn fɔ yu ɔ nɔ fayn fɔ yu.
Aw a fɔ yuz di mɛrɛsin?
Yu kin gɛt di bɛst rizɔlt if yu yuz dis mɛrɛsin kɔrɛkt wan.
Dɛn fɔ tek dis mɛrɛsin wit wata. I bɛtɛ fɔ tek am di sem tɛm ɛvride, jɔs lɛk aw yu dɔktɔ tɛl yu fɔ tek am. Kɔntinyu fɔ tek am te yu dɔktɔ tɛl yu fɔ stɔp.
Di tin we impɔtant pas ɔl bɔt dis na dat yu fɔ tek dis pil pan ɛmti bɛlɛ. Dat min se yu fɔ tek am at le wan awa bifo yu it, ɔ tu awa afta yu it. Na da tɛm de di mɛrɛsin go absɔb fayn fayn wan insay di bɔdi.
Yu tink se dɛn fɔ gi pikin dɛn dis mɛrɛsin?
If yu de gi pikin dɛn dis mɛrɛsin, tɔk to yu dɔktɔ bɔt am. Sɔntɛnde, ivin we dɛn gi pikin dɛn mɛrɛsin, spɛshal tin dɛn de we dɛn fɔ tink bɔt.
Wetin fɔ du if yu tek bɔku mɛrɛsin?
If yu tink se yu dɔn tek mɔ pan dis mɛrɛsin pas aw dɛn tɛl yu fɔ tek am, nɔ de te . Go na di ɔspitul we de nia yu Imejɛnsi Dipatmɛnt (ETU) wantɛm wantɛm. Ɔ kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital fɔ advays.
Wetin a go du if a mis wan doz fɔ tek mɛrɛsin?
If yu fɔgɛt fɔ tek wan doz, tek am jɔs lɛk aw yu mɛmba. Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek yu nɛks doz, skip di doz we yu mis ɛn tek yu nɛks doz di tɛm we yu dɔn sɛtul. Nɔ ɛva tek dabl doz.
Wetin na de tin wae yu fɔ tek tɛm wit we yu de tek dis mɛrɛsin?
We yu de tek dis mɛrɛsin, yu fɔ go to yu dɔktɔ ɔltɛm fɔ chɛk yu sik. Yu kin nid bak fɔ du blɔd ɛn urine tɛst fɔ si if di mɛrɛsin de wok ɛn if ɛni sayd ɛfɛkt de.
Dɔn bak, dɛn kin aks yu fɔ fala spɛshal it. So tɔk to yu dɔktɔ bɔt di it ɛn vaytamɛn dɛn we yu fɔ de tek. Di tin we impɔtant pas ɔl fɔ mek yu nɔ gɛt ston na yu kidni na fɔ drink bɔku wata. Aks yu dɔktɔ ɔmɔs wata yu fɔ drink fɔ wan de, ɛn mek shɔ se yu drink da kayn wata de.
Di tin we impɔtant pas ɔl: If yu na mama we de gi pikin in bɛlɛ, nɔ gi yu pikin in bɛlɛ ɔltogɛda we yu de tek dis mɛrɛsin. Tɔk to yu dɔktɔ bɔt dis.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, Tiopronin kin mek sɔm sayd ɛfɛkt. Bɔt, nɔto ɔlman kin gɛt dɛn. Sɔm dɛn kin rili siriɔs, so i impɔtant fɔ no bɔt dɛn.
| Tiopronin sayd ɛfɛkt dɛn | |
|---|---|
| Sayd ɛfɛkt dɛm we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
| Alɛji we pɔsin kin gɛt | Skin rash, it, swel na di fes, lip ɔ tong. |
| Di chenj dɛn we de apin na di urine | urine dak, i nɔ izi fɔ pis, ɔ di chenj we yu de mek di urine. |
| Ɔda sayn dɛm na di bɔdi | Fiva, joyn pen, mɔt sos, swel na di anklɛ, fut ɔ an, swɛlin gland ɛn pen. |
| Siriɔs riakshɔn dɛn na di skin | Skin de rεd, blista, pεl (ivin insay di mכt). |
| Di sayn dɛn we de sho se di rɛd blɔd sɛl dɛn nɔ de bɔku (Anemia) . | Fɔ fil taya ɔ taya pasmak, fɔ fɔdɔm, fɔ gɛt prɔblɛm fɔ blo. |
| Blɔd we nɔ de kɔmɔt fayn | Brus ɔlsay na di bɔdi ɔ blɔd we de kɔmɔt frɔm ivin smɔl injuri. |
| Sayd ɛfɛkt dɛm we dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu ɔ de mɔna am | |
| Prɔblɛm dɛn we de na di dijestiv sistɛm | Dayarɛa, nɔs, vɔmit, bɛlɛ nɔ de fil fayn. |
| Ɔda smɔl smɔl tin dɛn | Chenj na di teist fɔ it, taya, wrinkling ɔ tin na di skin. |
Aw yu fɔ kip yu mɛrɛsin?
- Mek shɔ se yu kip dis mɛrɛsin usay pikin dɛn nɔ go ebul fɔ rich .
- I bɛtɛ fɔ kip am na rum tɛmpracha (bitwin 15 ɛn 30 digri sɛlshiɔs).
- Kip di mɛrɛsin insay di ɔrijinal bɔtul we i kam insay.
- Trowe di mɛrɛsin we dɔn pas ɛn yu nɔ yuz am.
Mɛsej we dɛn kin kɛr go na os
- Tek Tiopronin tablɛt ɔltɛm we yu ɛmti bɛlɛ. Dat min se wan awa bifo yu it ɔ tu awa afta yu it.
- Drink bɔku wata ɛvride, lɛk aw yu dɔktɔ se. Dis impɔtant fɔ mek yu nɔ gɛt ston na yu kidni.
- Nɔ ɛva mis yu dɔktɔ in apɔntinmɛnt ɛn di tɛst dɛn we yu dɔn plan fɔ du.
- If yu gɛt siriɔs sayd ɛfɛkt ɔ yu tek bɔku mɛrɛsin, go to dɔktɔ wantɛm wantɛm .
- If yu gɛt ɛni kwɛstyɔn ɔ wɔri bɔt dis mɛrɛsin, tɔk to yu dɔktɔ bɔt am opin wan.
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