Sɔntin de we strenj bɔt yu blɔd vesel dɛn? Lɛ wi lan bɔt dɛn tin ya (Vascular Malformations)?

Yu tink se say dɛn de na yu skin we dɔn chenj in kɔlɔ, we tan lɛk smɔl smɔl bɔmp dɛn, ɛn sɔntɛnde i kin at? Ɔ wan strenj ples de na yu bɔdi we dɛn bɔn yu pikin wit, bɔt i tan lɛk se i de big? Dɛn tin ya kin bi simpul tin dɛn. Bɔt sɔntɛnde, dɛn tin ya kin bi sayn fɔ wan abnɔmal tin we dɛn kɔl Vascular Malformations , we na abnɔmal tin na di blɔd vesel, ɔ fɔ se, di blɔd vesel. So, nɔ wɔri. Lɛ wi tɔk bɔt dis ditayli ɛn jɔs tide.

Wetin na vaskul malfɔmeshɔn? Fɔ tɔk am simpul wan...

Vascular malformations na abnɔmal ɔ chenj na di blɔd vesel dɛm na wi bɔdi. Bɔku tɛm, dɛn tin ya kin apin we dɛn bɔn am. Bɔt sɔntɛnde, dɛn kin apin we dɛn smɔl, we dɛn yɔŋ, ɔ ivin we dɛn big.

Tink bɔt di blɔd vesel sistɛm we de rɔn ɔlsay na wi bɔdi lɛk wan nɛtwɔk we gɛt rod dɛn. Sɔntɛnde, we dɛn bil dɛn rod ya, smɔl smɔl tin dɛn we nɔ pafɛkt ɛn miskɔnekshɔn kin apin. Na dat de apin na ya bak.

Dɛn vaskyuɛl malfɔmeshɔn ya kin apin ɛnisay na yu bɔdi, frɔm yu ed to yu fut finga dɛn. Sɔntɛnde dɛn kin tan lɛk sɔft tisu mas , pen , swel , ɔ skin kɔlɔ kin chenj . Sɔm kin apia na di fes, nɛk, nia di bren, ɔ di spɛnal kɔd. Ɔda wan dɛn kin tan lɛk bɔn mak ɔ rɛd spat.

Na smɔl tɛm nɔmɔ, dɛn kin kam bak afta dɛn dɔn gɛt trauma ɔr ɔda tin, ɔr ivin we dɛn dɔn big. If dɛn kin mek pɔsin fil pen, i kin mek pɔsin nɔ ebul fɔ si, i kin mek i nɔ ebul fɔ du tin dɛn we i kin du ɛvride, i kin mek i blɔd, ɔ i kin mek ɔda prɔblɛm dɛn, dɛn nid fɔ trit dɛn vaskul dɛn ya we nɔ fayn.

Usay na di bɔdi dɛn tin ya kin apin bɔku tɛm?

di wɔd "vaskul" min "rilayt to blɔd vesel dɛm." So dis sik kin afɛkt ɛni blɔd vesel na wi sakulayshɔn sistɛm. i kin afekt di limfatik vεsul dεm bak na wi limfatik sistεm.

Di kayn blɔd vesel dɛm we kin afɛkt na:

• di atεri dεm εn atεriכl dεm - dis na di bכdi we de kכri bכdi we gεt כksijεn frכm di at to כda כgan dεm.
• kapilari dεm - Na nεtwכk we de fכm bכku bכku bכku bכdi dεm.
• di vein dεm εn di venul dεm - na dεn wan ya de bכn yus bכdi frכm di כgan dεm bak to di at.
• Limfatik chanɛl dɛn- dεn ya de transpכt limf fכluid na di bכdi.

Wetin na di men kayn vaskulεr malfכmeshכn?

Sɔntɛnde, dɛn tin ya kin tan lɛk bɔn mak na di pikin in skin. Ɔ, lɛk aw wi bin dɔn tɔk, dɛn kin divɛlɔp ɛnisay na di bɔdi, ivin di bren ɛn di spɛnal kɔd. Dɔktɔ dɛn kin no di kayn we bay di kayn blɔd vesel we di sik afɛkt.

Dis na sɔm pan di kayn dɛn we pipul dɛn kin si mɔ:

• Venous malformation: Dis na di kayn we we dɛn kin gɛt mɔ. As di nem sho, i de divɛlɔp insay wan vein. Vein na di blɔd vesel dɛm na wi bɔdi we de kɛr blɔd we nɔ gɛt ɔksijɛn go bak na di at. Dɛn tin ya kin tan lɛk blu kɔlɔ, ɛn sɔntɛnde i kin mek yu fil pen fɔ tɔch.
• Arteriovenous malformation (AVM): Dis na abnכmal fכs fכ di atεri dεm εn di vein dεm. Nɔmal wan, di at dɛn kin dɔn na di kapilari dɛn, dɔn di vein dɛn kin bigin. Bɔt insay AVM, di blɔd we de kɔmɔt na di at dɛn kin flɔ dairekt insay di vein dɛn, tru wan bɔndɛl we nɔmal we dɛn kɔl nidus . dis AVM kכndyushכn kin afekt di bren כ di spεnal kכd.
• kapilari telangiectasia: dis na sכmכl εria we di kapilari dεm na di bren de big. Bɔku tɛm, dɛn tin ya nɔto prɔblɛm. Bɔt, na smɔl tɛm nɔmɔ, dɛn kin mek blɔd kɔmɔt , we na blɔd.
• di kכva malfכmeshכn dεm: insay dis kכndishכn, di kapilari dεm na di bren de pak tayt tayt wan, we de fכm lכng "kכvεn dεm." Blɔd de flɔ rili sloslo tru dɛn ol dɛn ya.
• di limfatik malfכmeshכn dεm: insay dis, di limfatik dakt dεm de big εn fכm sist dεm we fulכp wit wata. dεn kin si dεn tin ya bכku tεm na di sכft tisu dεm lεk di fes, nεk, εn di aksila rijyכn dεm.

Wetin na di difrεns bitwin vaskulכr malfכmeshכn εn εmangiomas?

Dɛn tu tin ya kin apin bikɔs ɔf di vaskyuɛl anomaly. Dɛn tu kin apia lɛk spat, we fiba di mak we dɛn bɔn am. Bɔt klia difrɛns de bitwin dɛn tu.

• εmangiomas: Dis na tכmכro dεm we nכ de kכnsa (benign) vaskulεr tכmכro dεm. Dɛn kin fɔm we di blɔd vesel dɛn kin gɛda ɔnda di skin. di tכp we dεn kכl "strawberry hemangiomas" kin apin afta dεn bכn pikin. Dɛn kin gro kwik kwik wan insay di pikin in fɔs siks mɔnt. Bɔt dɛn tumbu ya nɔ kin mek prɔblɛm ɛn bɔku tɛm dɛn kin go fɔ dɛnsɛf if dɛn nɔ gɛt tritmɛnt. If hemangioma big, i de ambɔg sɔm tin dɛn we pɔsin kin du, i kin mek pɔsin fil pen, ɔ i kin mek i gɛt ɔda prɔblɛm, dɛn kin kɔntrol am wit mɛrɛsin we kin mek i smɔl kwik kwik wan. Nɔto ɔltɛm dɛn kin nid fɔ du ɔpreshɔn.

• Vaskul Malfɔmeshɔn dɛn:dis na tin dεm we de de we dεn bכn am, bכt i nכ kin si te i pikin כ big. Dɛn kin gro smɔl smɔl. Dɔn bak, dɛn kin skata dip dip wan insay di tisu ɛn strɔkchɔ dɛn we de rawnd ɛn mek prɔblɛm. Bɔku tɛm, di vaskul malfɔmeshɔn dɛn kin nid fɔ gɛt tritmɛnt.

Fɔ tɔk am simpul wan: Ɛmanjiɔma na wan fayn tɔŋ we kin go fɔ insɛf. כltu, vaskulכr malfכmeshכn na kכndishכn dεm we de kכntinyu we kin gro εn mek prכblεm. So i impɔtant fɔ no difrɛns bitwin dɛn tu tin ya.

Wetin na di slo-flɔ ɛn fast-flɔ vaskyuɛl malfɔmeshɔn?

bכku vaskulכr malfכmeshכn dεm de fכl insay di "slow-flow" kεtכgrεf. Dis min se blɔd de muv rili sloslo tru di blɔd vesel dɛn we di sik afɛkt. εgzampl dεm fכ dis na di venכs, limfatik, כ כl tu (venolymphatic) malfכmeshכn dεm.

כltu, wan AVM (Arteriovenous malformation) na "fast-flow" vaskulכr malfכmeshכn. Insay dis, blɔd kin kɔmɔt na di at dɛn to di vein dɛn wit ay spid, bɔku tɛm i kin pas tru wan blɔd vesel we nɔmal we dɛn kɔl nidus . We blɔd de travul dis fast na big AVM, di at fɔ wok tranga wan. Dis kin mek yu at pwɛl mɔ ɛn mɔ .

Aw dɛn tin ya kɔmɔn?

Vaskul malfɔmeshɔn na tin dɛn we nɔ kin apin so ɔltɛm. Dɛn kin apin na lɛk 1% pan ɔl di pikin dɛn we dɛn bɔn. Fɔ dɛn wan ya, di venɔs malfɔmeshɔn, we na di kayn we we bɔku pipul dɛn kin gɛt, kin afɛkt lɛk wan pan ɛvri 5,000 to 10,000 pipul dɛn.

Wetin kin mek di vaskul dɛn nɔ fayn?

bכku tεm, dεn kin kכz dεm bay wan abnכmaliti na di divεlכpmεnt fכ di bכdi vεsεl dεm εn/כ di limfatik chεnal dεm we di pikin de gro na di mama in bεlε (in utero). Dis min se dɛn kin bɔn pikin dɛn .

Nɔto ɔltɛm, di damej pan di blɔd vesel dɛn we pɔsin injuri kin go we pɔsin nɔ notis ɛn i kin tɔn to vaskul malfɔmeshɔn as tɛm de go. di venכs mכlfכmeshכn kin apin bak fכ di fכs tεm afta aksidεnt כ biכs fכ di כmon dεm we de chenj we i de bכn כ we i bεlε .

insay wan kes we nכ kin apin, sכm pipul dεn kin gεt jεnεtik mכtεshכn we de inkrεs di risk fכ divεlכp vaskulכr malfכmeshכn. Risach pipul dɛn stil de lan mɔ bɔt dɛn tin ya we kin mek pɔsin gɛt jɛnɛtiks.

Udat de pan big risk fɔ gɛt dɛn tin ya?

Sɔm pipul dɛn kin gɛt chenj dɛn na dɛn jɛnɛtiks we kin mek dɛn gɛt bɔku prɔblɛm wit dɛn vaskul dɛn. Sɔm pan dɛn tin ya na:

• Blu rɔba bleb nevus sindrom: Dis kin mek yu venus malfɔmeshɔn na yu intestinal ɛn dijestiv sistɛm. I kin mek bak yu skin gɛt dak blu, rɛd, ɔ blak.
• CLOVES syndrome (congenital lipomatous overgrowth, vaskulכr malfכmeshכn, epidamal nevi εn spayna difכmiti): Dis de mek AVM dεm fכm na yu spεnal kכd. I kin mek bak yu gɛt skɔliosis ( we di spayna kɔba), di fat tisu dɛn we de gro, ɛn dak rɛd rash.
• Hereditary hemorrhagic telangiectasia (dεn kin kכl am bak Osler-Weber-Rendu syndrome): Dis kin mek abnכmal tangle, כ AVM, na sכm sכm kapilari dεm.
• Klippel-Trenaunay syndrome (KTS): dis kin mek di bכn mak dεm we dεn kכl rεdish-pכpul we dεn kכl "port-wine stains", bon כ tisu dεm de gro, εn malfכmeshכn we involv vein כ limfatik chanεl dεm.
• Parkes Weber syndrome: Dis kin mek AVM fɔm na yu an ɔ yu leg.

If yu gɛt jɛnɛtik kɔndishɔn lɛk dis, i impɔtant fɔ no bɔt dɛn.

Wetin na di sayn dɛm we de sho se di vaskul dɛn nɔ de wok fayn?

Di simptom dɛm dipen pan di kayn malfɔmeshɔn. Wan vaskul malfɔmeshɔn we de afɛkt yu skin kin tan lɛk wan rayz rɛd, blu, pepul, brawn, ɔ blak bɔn mak . Dɛn spat ya kin swel, blɔd, ɔ i kin mek pɔsin fil pen.

If yu gɛt AVM na yu bren , yu nɔ go gɛt ɛni sayn te i blɔd. If yu bren AVM blɔd, yu kin gɛt ed pen, yu kin gɛt sik, ɔ paralayz na wan say na yu bɔdi .

Venus malformations kin mek yu fil pen, swel, blɔd kin rɔtin prɔblɛm, ɛn ɔgan dɛn kin pwɛl.

Aw yu kin no dɛn tin ya? Aw dɔktɔ kin fɛn dis?

Bikɔs nɔr kin ɔltɛm mek yu gɛt dis sik, sɔmtɛm dɔktɔ dɛn kin no di sik we dɛn de du tɛst fɔ ɔda prɔblɛm.

Dɔktɔ dɛn kin yuz spɛshal imej tɛst fɔ luk aw di blɔd de flɔ ɛn fɔ no if di vaskul dɛn nɔ fayn. Dɛn tɛst ya na:

• Ultrasound , we dɛn kin kɔl bak vaskul ɔltra saund .
• MRI (Magnetic Resonance Imaging) , we gɛt bak wan tɛst we dɛn kɔl MR Angiogram (MRA) .
• CT scan (Computed Tomography scan), we gɛt bak wan tɛst we dɛn kɔl CT angiogram .
• Angiogram ɛn/ɔ venogram .
• X-ray we dɛn kin du ɔltɛm .

Dɛn tɛst ya kin si klia wan aw di blɔd vesel dɛn we de na di say de, di we aw di blɔd de flɔ, ɛn if ɛnitin de we nɔ de mek di blɔd smɔl ɔ dil.

Wetin na di tritmɛnt fɔ dis?

di men gol fכ tritmεnt fכ vaskulכr malfכmeshכn na fכ minimiz di simptom dεm εn ridyus di kכmplikεshכn dεm we kin apin. Malfɔmeshɔn we nɔ de kɔz ɛni prɔblɛm nɔ kin nid fɔ gɛt tritmɛnt ɛn dɛn kin jɔs si am as tɛm de go.

Di tritmɛnt dipen pan di kayn blɔd vesel we di sik afɛkt. Bɔku tɛm, dɛn tritmɛnt ya kin gɛt fɔ du wit fɔ lɔk ɔ ɔpreshɔn fɔ pul di blɔd vesel we dɔn afɛkt. Bɔku malfɔmeshɔn dɛn kin trit yuz minimal invasive tɛknik dɛn . Dɔktɔ dɛn kin yuz we dɛn lɛk:

• Sklerotɛrapi: Insay dis, dɛn kin put spɛshal mɛrɛsin insay di blɔd vesel we di sik afɛkt, we kin mek di blɔd vesel smɔl ɛn lɔk.
• Catheter embolization: Insay dis prosidur, dɛn kin pas wan smɔl tiub (catheter) tru wan blɔd vesel ɛn dɛn kin sial di abnɔmal blɔd vesel frɔm insay.
• Laser tritmɛnt: Dɛn kin yuz dis fɔ sɔm tin dɛn we nɔ fayn na di skin.
• Radiation therapy (radiosurgery): Dɛn kin yuz dis fɔ sɔm dip, at fɔ ɔpreshɔn malfɔmeshɔn.

Sɔntɛnde, yu dɔktɔ kin tɛl yu fɔ du bayɔpsi , we min se yu fɔ tek wan pat pan di tisu fɔ chɛk am. dis kin εp fכ kכnfכm di diagnosis εn/כ fכ gεt tisu fכ jεnεtik tεst .

Bikɔs vaskul malfɔmeshɔn na kɔmpleks ɛn rare kɔndishɔn, i bɛtɛ fɔ manej dɛn wit tim aprɔch we gɛt bɔku spɛshal pipul dɛn .

Dɛn tin ya kin kam bak afta dɛn dɔn trit am?

Yes, vaskulכr malfכmeshכn kin kam bak ivin afta dεn tritmεnt. So, yu kin nid fɔ gɛt fɔl-ɔp visit ɛn tɛst ɔltɛm fɔ no ɛni malfɔmeshɔn we de kam bak kwik kwik wan.

Wan we de fɔ mek dɛn tin ya nɔ fɔm?

Vascular malformations are often congenital , we min se rili no we nɔ de fɔ mek dɛn nɔ apin.

Bɔt if pɔsin na yu famili gɛt wan sik we de mek yu bɔdi nɔ fayn, yu go nid fɔ go to pɔsin we de advays yu bɔt yu jɛnɛtiks.Dis spɛshal dɔktɔ kin ɛksplen to yu di opshɔn dɛm wae de fɔ ridyus de risk fɔ pas dis sik to yu pikin dɛm.

Wetin na di kɔmplikɛshɔn dɛm we kin apin bikɔs ɔf dɛn vaskul malfɔmeshɔn ya?

Sɔm malfɔmeshɔn nɔ kin mek ɛni prɔblɛm ɛn dɛn kin jɔs si dɛn. Bɔt bɔku tɛm, dɛn kin mek pɔsin fil pen ɛn swel .

Sɔm tin dɛn we nɔ fayn kin mek pɔsin fil pen, ɔ in mɔsul, jɔyn, ɔ nerv kin ambɔg, we kin mek i nɔ ebul fɔ du ɛksɛsayz, spɔt, wok, ɔ du tin dɛn we pɔsin kin du ɛvride .

Big big, ay flɔ malfɔmeshɔn kin mek yu at nɔ wok fayn as tɛm de go .

di vaskul malfכmeshכn na di sכlid כgan dεm lεk di liva, kidni, כ uterus kin mek di כgan dεm nכ de wok fayn εn כda kכmplikεshכn dεm.

sכm vaskulכr malfכmeshכn dεm lεk AVM dεm na di bren כ spεnal kכd kin ridyus di כksijεn blכd we de rich na di bren. Dis kin mek yu gɛt prɔblɛm dɛn we go mek yu layf de pan denja, lɛk:

• Aneurysms ( we di blɔd vesel in wɔl wik ɛn bulg lɛk balyɔn) .
• Ɛmoraji we de insay di kraynia
• Strɔk we pɔsin kin gɛt

Wetin na di tumara bambay fɔ pipul dɛm wae gɛt dis sik? Aw dis kin afɛkt dɛn layf?

Vaskul malfɔmeshɔn, we tan lɛk bɔn mak, kin afɛkt di we aw pɔsin de luk ɛn aw i kin gɛt kɔnfidɛns pan insɛf. Dis kin mek yu gɛt saykilɔjik kɔndishɔn lɛk pwɛl hat ɛn wɔri . Bɔt bɔku pan dɛn malfɔmeshɔn ya kin ansa fayn we dɛn trit dɛn.

Mɔ siriɔs malfɔmeshɔn, lɛk AVM dɛn na di bren, kin mek pɔsin in layf de pan denja if dɛn bigin fɔ blɔd.

Bɔt, di impɔtant tin na dat, bɔku pan di malfɔmeshɔn dɛn kin trit ɛn dɛn kin ansa fayn to tritmɛnt. So, i impɔtant fɔ mek yu go to di rayt dɔktɔ we yu nɔ fɔ panik.

Wetin yu fɔ aks yu dɔktɔ?

If yu gɛt ɛni dawt bɔt dis sik, ɔ if dɛn dɔn no se yu gɛt dis sik, yu kin aks yu dɔktɔ dɛn kwɛstyɔn ya:

• Aw a bin gɛt dis vaskul malfɔmeshɔn? (Wetin na di kɔz?)
• Us kayn vaskul malfɔmeshɔn a gɛt?
• Wetin na di bɛst tritmɛnt fɔ mi?
• Wetin na di prɔblɛm ɔr sayd ɛfɛkt dɛm wae di tritmɛnt kin gɛt?
• A fɔ wɔri bɔt di sayn dɛn we de sho se a gɛt prɔblɛm dɛn? Wetin na dɛn sayn dɛn de?

Aks dɛn kwɛstyɔn ya ɛn ɔndastand wetin de apin to yu klia wan.

Fɔ dɔn, di tin dɛn we impɔtant pas ɔl fɔ mɛmba (Take-Home Message) .

Okay, so lɛ wi jɔs luk di men pɔynt dɛn we yu nid fɔ mɛmba frɔm wetin wi dɔn tɔk bɔt.

• Vaskul malfɔmeshɔn na tin dɛn we nɔ kin apin so ɔltɛm na di blɔd vesel dɛn, we kin de bɔku tɛm we dɛn bɔn am.
• Dɛn tin ya kin apin ɛnisay na di bɔdi , sho difrɛn sayn dɛm, ɔr sɔmtɛm nɔr kin sho ɛni sayn atɔl.
• Hemangiomas ɛn Vascular Malformations na tu difrɛn tin dɛn. I impɔtant fɔ no di difrɛns bitwin dɛn tu.
• Difrɛn tritmɛnt dɛn de fɔ dis sik. Yu dɔktɔ go disayd di bɛst tritmɛnt fɔ yu sik.
• Sɔm siriɔs kayn, mɔ di AVM dɛn na di bren, kin mek prɔblɛm dɛn, so i impɔtant fɔ mek di dɔktɔ de wach am fayn fayn wan.
• If yu ɔ yu pikin gɛt ɛni wan pan dɛn sik ya, nɔ panik ɛn go to dɔktɔ fɔ advays.

Mɛmba se nɔto yu wan de dil wit dis sik. If yu gɛt di rayt infɔmeshɔn ɛn mɛrɛsin sɔpɔt, yu kin ebul fɔ mɛn dis sik fayn fayn wan.

` Vaskul malfכmeshכn, blכd vεsul abnכmaliti, bכn mak, AVM, venus malfכmeshכn, blכd vεsul prכblεm, sik dεm we dεn bכn wit