Sɔntɛnde, yu kin fil lɛk se yu an ɛn fut kin fil lɛk se yu nɔ gɛt bɛtɛ trɛnk, yu kin fil pen, ɔ yu kin swɛt? Pan ɔl we sɔm pipul dɛn kin tink se dɛn tin ya na nɔmal tin, sɔntɛnde, wan siriɔs, rare jenɛtik kɔndishɔn kin de biɛn dɛn. Tide wi de tɔk bɔt wan injɛkshɔn we dɛn kɔl Vutrisiran, we dɛn kin yuz fɔ mɛn dis kayn patikyula sik. Dɛn kin no am mɔ wit di brand nem AMVUTTRA.
Us kayn mɛrɛsin na dis Vutrisiran?
Fɔ tɔk am simpul wan, Vutrisiran na mɛrɛsin we dɛn kin yuz fɔ trit wan sik we nɔ kin apin so ɔltɛm we dɛn kɔl hereditary transthyretin-mediated amyloidosis (hATTR) .
Okay, naw yu go mɔs de wɔnda wetin dis sik gɛt wit dis kayn lɔng nem. Lɛ wi ɛksplen am simpul wan.
Dis na kɔndishɔn we wi kin gɛt frɔm wi jin dɛn. wetin de apin insay dis na dat wan protin we dεn kכl ‘transthyretin’ we de mek na wi liva de chenj in shep abnכmal wan, εn dεn de kכlכm tכgeda εn fכm dεposit dεm we dεn kכl ‘amyloid’ na difrεn pat dεm na di bכdi, spεshal wan na di nεv sεstem. dis abnכmal protin dεm we de dכn kin mek di nεv dεm pwεl.
Na da tɛm de di sayn dɛn we a bin dɔn tɔk bɔt, lɛk pen we gɛt fɔ du wit di nerve, we yu an ɛn fut dɛn kin swɛla, we yu kin fil fɔ spin, we yu nɔ kin fil fayn, ɛn we yu wik, kin apia.
Dis drɔg we dɛn kɔl Vutrisiran de wok bay we i de stɔp fɔ mek da abnɔmal prɔtin de. Di praymar wok we dis drɔg de du na fɔ ridyus di damej pan di nerv dɛm ɛn kɔntrol di simptom dɛm.
Tin dɛn we yu fɔ tɛl yu dɔktɔ bifo yu yuz di mɛrɛsin
Bifo yu dɔktɔ disayd fɔ gi yu dis mɛrɛsin, i go aks yu sɔm kwɛstyɔn dɛn. Da tɛm de, yu fɔ rili tɛl am dɛn tin ya ɛn yu nɔ fɔ ayd dɛn.
- Alɛji: Tɛl wi if yu gɛt ɛni alɛji to Vutrisiran, ɛni ɔda mɛrɛsin, it, day, ɔ tin dɛn we de mek yu nɔ pwɛl.
- Bɛlɛ: If yu gɛt bɛlɛ, yu de tray fɔ gɛt bɛlɛ, ɔ yu tink se yu gɛt bɛlɛ, mek shɔ se yu tɛl yu dɔktɔ.
- If yu na mama we de gi pikin in bɛlɛ: If yu na mama we de gi pikin in bɛlɛ, tɔk to yu dɔktɔ bɔt dat bak.
Aw a go gɛt di injɛkshɔn?
Dis nɔto mɛrɛsin we yu kin tek na os. Na injɛkshɔn we dɛn kin put ɔnda di bɔdi . Yu kin nid fɔ gɛt dis injɛkshɔn ɛvri tri mɔnt.
Dis na ɔspitul ɔ klinik na dɔktɔ ɔ nɔs staf we dɛn dɔn tren fɔ am, so yu nɔ gɛt natin fɔ wɔri bɔt.
Wetin a go du if a mis wan doz fɔ tek mɛrɛsin?
I rili impɔtant fɔ gɛt yu injɛkshɔn di rayt tɛm fɔ dis tritmɛnt. If fɔ sɔm rizin yu nɔ ebul fɔ go di de we yu dɔn sɛtul, kɔl yu dɔktɔ ɔ klinik wantɛm wantɛm ɛn chenj di tɛm. Nɔ skip yu mɛrɛsin.
Wetin fɔ du if dɛn tek di mɛrɛsin tumɔs?
Dɛn kin gi dis na ɔspitul say so di chans fɔ mek dis apin rili smɔl. Bɔt if yu tink se yu dɔn tek di mɛrɛsin pasmak, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital wantɛm wantɛm ɔ go na di Imejɛnsi Dipatmɛnt (ETU) na di ɔspitul we de nia yu.
Tin dɛn we yu fɔ mɛmba we yu de tek dis mɛrɛsin
Yu dɔktɔ go de wach yu kɔndishɔn ɔltɛm we yu de tek dis mɛrɛsin, so i rili impɔtant fɔ atɛnd yu apɔntinmɛnt dɛn di rayt tɛm.
- Vitamin A lɛvɛl: Yu vaytamɛn A lɛvɛl kin go dɔŋ we yu de tek dis mɛrɛsin. So, i go mɔs bi se yu dɔktɔ go tɛl yu wan vaytamɛn A fɔ tek ɛvride. I impɔtant fɔ tek am jɔs lɛk aw yu dɔktɔ tɛl yu. Dɔn bak, tɔk to yu dɔktɔ bɔt it dɛn we gɛt vaytamɛn A (e.g., karɔt, swit pata, spinach, eg).
- Di chenj we yu de si: If yu notis ɛni chenj na yu yay, lɛk we yu nɔ de si fayn ɔ we yu nɔ de si fayn na nɛt, nɔ ignore am. Ripɔt am to yu dɔktɔ wantɛm wantɛm .
- Ɔda mɛrɛsin dɛn: Tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn we yu de tek (inklud vaytamɛn dɛn, ɛbul mɛrɛsin dɛn, ɛn sɔpɔtmɛnt dɛn). Dis mɛrɛsin nɔ go ebul fɔ miks wit ɔda mɛrɛsin, bɔt i bɛtɛ fɔ mek yu tɛl yu dɔktɔ.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, sɔm pipul dɛn kin gɛt sayd ɛfɛkt. Nɔto ɔlman go ɛkspiriɛns dɛn. Bɔt, i impɔtant fɔ no bɔt dɛn tin ya.
| Vutrisiran sayd ɛfɛkt dɛn | |
|---|---|
| Siriɔs sayd ɛfɛkt dɛm we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
| Alɛji Riakshɔn dɛn | Skin rash, it, swel na di fes, lip, tong ɔ trot. |
| Vishɔn kin chenj | Ɛni chenj na di vishɔn, lɛk we yu nɔ de si fayn ɔ we yu nɔ de si fayn. |
| I nɔ kin izi fɔ yu fɔ blo | Fɔ blo shɔt, i nɔ kin izi fɔ blo. |
| Di at rit we de go dɔŋ | Diziz, fil fɔ diziz, fɔ fɔdɔm, fɔ taya pasmak. |
| Sayd ɛfɛkt dɛm wae nɔr kin siriɔs, bɔt yu fɔ ripɔt to yu dɔktɔ if dɛn kɔntinyu fɔ de | |
| Pen na di jɔyn dɛn | Pen na di jɔyn dɛn. |
| Injɛkshɔn sayt diskɔmfɔt | Rɛd, pen, ɔ swel usay dɛn gi di injɛkshɔn. |
Dis list nɔ de inklud ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. If yu notis ɛni ɔda tin, tɔk to yu dɔktɔ bɔt am.
Mɛsej we dɛn kin kɛr go na os
- Vutrisiran na spɛshal injɛkshɔn we de trit wan rare, jenɛtik nyurolɔjik kɔndishɔn we dɛn kɔl hATTR .
- Na wan dɔktɔ we tren na ɔspitul ɔ klinik kin gi dis mɛrɛsin. Yu nɔ go ebul fɔ kip am ɔ yuz am na os.
- I rili impɔtant fɔ tɛl yu dɔktɔ bɔt ɔl yu alɛji ɛn if yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛ bifo yu bigin fɔ trit yu.
- We yu de tek dis mɛrɛsin, tek vaytamɛn A sɔpɔtmɛnt lɛk aw yu dɔktɔ tɛl yu ɛn ripɔt ɛni chenj we yu si na yu yay.If dis apin, i impɔtant fɔ tɛl yu wantɛm wantɛm.
- If yu gɛt ɛni siriɔs sayd ɛfɛkt lɛk fɔ swel na yu fes ɔ yu nɔ go ebul fɔ blo, go to dɔktɔ wantɛm wantɛm.
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