Sɔntɛnde, wi kin notis smɔl chenj dɛn na wi pikin dɛn yay. Sɔntɛm i kin tan lɛk se wan yay de bifo smɔl pas di ɔda wan, ɔ di pikin kin tɔk bɔku tɛm se i tan lɛk se i blɔk smɔl. Pan ɔl we wi tink se dɛn tin ya na nɔmal tin, sɔntɛnde, rizin kin de biɛn dis we wi nid fɔ pe atɛnshɔn to. Wan pan dɛn rizin ya kin bi wan sik we dɛn kɔl Optic Glioma. Dis na tכmכro we de divεlכp na di bren. So lɛ wi tɔk bɔt ɔltin insay simpul wɔd tide.
Wetin na Optik Glioma?
Fɔ tɔk am simpul wan, Optic Glioma na wan tumbu we de gro kwik kwik wan na di bren . Dɛn kin si dɛn mɔ pan pikin dɛn we nɔ rich 10 ia yet.Fɔ tru, na 5% nɔmɔ pan ɔl di pikin dɛn bren tumor.
dis tכmכro de divεlכp rawnd di optik nεv, di nεv we de kכnekt wi yay to wi bren. wan kayn sεl de na wi bren we de εp εn gi di nεv sεl dεm we dεn kכl glial sεl dεm. na dεn sεl dεm ya dis tכmכro de stat.
As dis tכmכro de gro, i de bigin fכ prεs pan di yay εn di optik nεv. Dis kin mek yu nɔ si fayn ɛn if dɛn nɔ trit yu fayn, yu kin ivin blaynd . Bɔt bikɔs i kin gro so big, yu nɔ go notis di chenj we yu de si wantɛm wantɛm. I kin afɛkt wan ɔ ɔl tu yay.
Bɔt di bɛst nyus ya na dat, pan ɔl we dis na siriɔs sik, bɔku tɛm dɛn kin mɛn am kpatakpata.
Di men rizin we mek dɛn tumbu ya denja na bikɔs dɛn de na di bren. di optik nεv we wi de kכnekt to di bren tru di כmon sεntrכm na wi bכdi. So as di tumbu de gro, i kin afɛkt dat bak. Dat min se i kin mek di ɔmon nɔ balans, i kin mek i gɛt prɔblɛm fɔ kɔntrol di sɔl ɛn wata we de na di bɔdi, ɛn i kin afɛkt tin dɛn lɛk fɔ want fɔ it ɛn fɔ slip .
Nɔmal wan, wi bren gɛt ‘blɔd-bren barɛri’ fɔ protɛkt am. Dis na wetin de mek infεkshכn nכ de rich na di bren. Bikɔs ɔf dis barɛri, bɔku tɛm, tumbu dɛn lɛk dis nɔ kin skata na do na di bren to ɔda pat dɛn na di bɔdi. כltu, sכm tεm, dat na less dan 5%, i pכsibul fכ dis tכmכro fכ spre pas di bren εn spεnal kכd.
Wetin na di sayn dɛm fɔ dis?
Di sayn dɛm fɔ wan bren tumbu kin difrɛn difrɛn wan bay usay na di bren i kin afɛkt. If na optik glioma, di prɔblɛm dɛn we pɔsin kin si na di men wan dɛn. Bɔt wi kin tink bak bɔt dɛn tin ya as sayn fɔ ɔda sik. Lɛ wi luk wetin na di men sayn dɛm.
| Di sayn we de sho se di sik de | Simpul Ɛksplen |
|---|---|
| Di aybɔl we de kɔmɔt na do (Proptosis) . | I tan lɛk se wan ɔ ɔl tu di yay dɛn de kɔmɔt na do pas aw i fɔ bi. Wi kin se ‘ay dɛn we de kɔmɔt na do lɛk tumor’. |
| Prɔblɛm dɛn we pɔsin kin gɛt we i de si | Yu nɔ de si fayn, i nɔ kin izi fɔ no di kɔlɔ, i nɔ kin si smɔl smɔl na wan ɔ ɔl tu di yay dɛn. Yɔŋ pikin dɛn kin tray fɔ go nia di tɛlivishɔn ɛn wach am. |
| Prɔblɛm dɛn we gɛt fɔ du wit ɔmon | Di wet we pɔsin kin gɛt ɔ we i kin lɔs we i nɔ kin ɛksplen, we i nɔ kin gro fayn (we i nɔ kin gro lɔng), ɛn we i kin bɔn kwik kwik wan. |
| Prɔblɛm dɛn we de na di ɛndokrin sistɛm | Tin dɛn lɛk fɔ pis ɔltɛm ɛn fɔ drink pasmak. |
Wan ɔda tin de we spɛshal. If dɛn dɔn no se yu pikin gɛt wan sik we dɛn kɔl Nyurofibromatosis 1 (NF1) , i go gɛt bɔku prɔblɛm fɔ gɛt Optic Glioma. כlmost 15% pan di pikin dεm we gεt NF1 de divεlכp dεn tכmכro dεm ya. Bɔt di impɔtant tin ya na dat bɔku tumbu dɛn we de divɛlɔp dis we go shrink ɔ stɔp fɔ gro fɔ dɛnsɛf as tɛm de go, we dɛn nɔ go gɛt ɛni tritmɛnt. So nɔto ɔl pikin dɛn we gɛt NF1 go nid tritmɛnt fɔ dis.
Aw dɛn kin no dis sik?
If yu dɔktɔ sɔprayz se yu gɛt dis sik, dɛn go du sɔm tɛst fɔ no if yu gɛt dis sik. Wae dεn dכn no di sik, dεn kin gi di tכmכro ‘grεd’, כ klasification, bay aw i siriכs. Dɛn kin gi dis gred bay we dɛn tek wan smɔl pat pan di tisu frɔm di tɔŋ ɛn chɛk am ɔnda maykroskɔp. Gret 1 ɛn 2 na di tכmכro dεm we nכ gεt lכw grεd. tu tכd pan כl di optik glioma dεm we pikin dεn kin gεt na dis kayn. Gret 3 ɛn 4 na ay-grɛd tɔmɔs.
Dis na di men tɛst dɛm we dɛn kin yuz fɔ no if pɔsin gɛt di sik.
| Tɛst | Wetin dɛn kin du wit dis? (Wetin dɛn kin du?) |
|---|---|
| Wan kɔmplit ɛgzam fɔ di bɔdi | Gɛt ɔndastandin bɔt di pikin in ɔl wɛlbɔdi. Chek tin dɛm lɛk ayt, wet, ɛn growth. |
| Test fɔ si tin | Wan dɔktɔ we de mɛn yay kin mɛzhɔ tin dɛn lɛk fɔ si di yay ɛn fɔ si di kɔlɔ kɔrɛkt wan. |
| CT skan tɛst fɔ du am | Dis kin tek ditayla pikchɔ dɛm fɔ di bren ɛn di nɛv dɛm we gɛt kɔnekshɔn to di yay. I kin ɛp bak fɔ no if tumbu de ɛn usay i de. |
| MRI skan tɛst | Dis tan lɛk CT skan, bɔt i de yuz magnet ɛn redio wev fɔ mek pikchɔ dɛn we klia. I de gi di bɛst tin dɛn bɔt di kayn we aw di tumbu de. |
Dɛn tɛst ya kin gɛt fɔ du wit difrɛn spɛshal pipul dɛn. Fɔ ɛgzampul, wan dɔktɔ we de mɛn pikin dɛn, dɔktɔ we de mɛn nyuro, ɛn dɔktɔ we de mɛn dɛn yay. Dɛn ɔl go kam togɛda, rivyu di tɛst rizɔlt, kam to wan las kɔnklushɔn, ɛn ɛksplen am to yu. If dɛn kɔnfyus di diagnosis, di nɛks tin we yu fɔ du na fɔ pik di bɛst tritmɛnt opshɔn bay yu pikin in wɛlbɔdi ɛn aw di tumbu de tranga.
Wetin na di tritmɛnt dɛm fɔ dis?
Dɔktɔ dɛn kin tink bɔt bɔku tin dɛn we dɛn de pik di bɛst we fɔ mɛn am.
- Di pikin in ej, ɔl in wɛlbɔdi biznɛs, ɛn in mɛdikal istri
- Di kayn, usay di tumbu de, ɛn di sayz we i gɛt
- Di kayn we aw di sik dɔn rich
- Aw di pikin in bɔdi de ansa to mɛrɛsin, tritmɛnt, ɛn ɔpreshɔn (dis rili impɔtant fɔ yɔŋ pikin dɛn) .
- Di spid we de sik kin go bifo
Kimotɛrapi
Bɔku tɛm, dɛn kin trit dɛn tumbu ya wit kemotɛrapi, we min se dɛn kin gi di bɔdi drɔgs we kin kil di kansa sɛl dɛn, we kin mek di tumbu smɔl, ɛn we kin mek pɔsin si bak.
Mɔdan tritmɛnt (Targeted Therapy) .
Nyu tritmɛnt dɛm we dɛn kɔl ‘molecularly targeted therapies’ dɛnsɛf kin rili wok fayn. Dɛn tin ya kin spɛshal fɔ tɔch ɛn atak di kansa sɛl dɛn.
Ɔmon Tɛrapi
if di tכmכro dכn afekt di pat pan di bren we de kכntro di כmon dεm, i kin nid fכ tek כmon riplesmεnt tεrapi fכ kכntrכl di simptom dεm we de kכmכt (e.g., growth retardation).
Ɔpreshɔn
I nɔ kin rili nid fɔ du ɔpreshɔn fɔ dɛn tumbu ya. Dɛn kin tink bɔt ɔpreshɔn nɔmɔ if di tumbu de afɛkt di we aw i de si bad bad wan ɔ if di pikin de fil bad bad wan. If yu dɔktɔ tɛl yu fɔ du ɔpreshɔn, i go sɛn yu to dɔktɔ we de mɛn yu nyuro.
Redyushɔn tɛrapi
If di tumbu nɔ ansa to kemotɛrapi, di nɛks tin we yu go du na redyushɔn tɛrapi. Dis min se dɛn fɔ yuz spɛshal mashin fɔ gi ay ɛnaji rayt to di tumbu, we go pwɛl di kansa sɛl dɛn ɛn mek i smɔl.
Mɛsej we dɛn kin kɛr go na os
- Optik glioma na bren tכmכro we de divεlכp pan pikin dεm, bכt i kin kכl.
- If yu pikin gɛt ɛni sayn lɛk chenj na in yay, wan yay de kɔmɔt bifo, ɔ chenj in ɔmon, kip yu yay pan dɛn. If yu notis ɛnitin lɛk dat, go to dɔktɔ wantɛm wantɛm.
- Dɛn kin yuz tɛst lɛk MRI ɛn CT skan fɔ no dis sik. Nɔ fred, dɛn kin du dɛn tin ya sef wan ɔnda di sɔpɔtishɔn fɔ dɔktɔ dɛn.
- Kimotɛrapi na di tritmɛnt we dɛn kin yuz mɔ. Ɔpreshɔn nɔ kin apin so ɔltɛm.
- If yu gɛt ɛni kwɛstyɔn ɔ dawt bɔt dis, i go fayn fɔ mek yu tɔk bɔt ɔltin opin wan wit yu dɔktɔ.
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