Omusaayi gwo gukendeera? Ka twogere ku mbeera eno ey'akabi eyitibwa Aplastic Anemia!

Ate era owulira ng’okooye era ng’okooye buli kiseera? Osanga obuzibu okussa ne bw’oba ​​okoze ekintu ekitono? Oba omala kufuna biwundu n’okuvaamu omusaayi buli wamu ku mubiri gwo? Oluusi tuyinza obutafaayo nnyo ku bino ng’ebintu ebya bulijjo. Kyokka oluusi wayinza okubaawo ekintu eky’amaanyi ennyo ekikwese emabega w’obubonero buno. Aplastic Anemia y’emu ku bulwadde obwo obutatera kulabika, kwe kugamba, tebutera kulabibwa, naye buyinza okuba obulwadde obw’akabi ennyo. Kale leero kino tugenda kwogera mu bujjuvu era mu ngeri ennyangu, naawe osobole okufuna okutegeera okulungi ku kino.

Mu ngeri ennyangu, aplastic anemia kye ki?

Mu ngeri ennyangu, aplastic anemia (aplastic anemia) bwe buba ng’obusimu bw’amagumba obuli munda mu mibiri gyaffe tebukola bulungi. Omanyi ekitundu ky’amagumba gaffe ekiyitibwa bone marrow kye kifuula obutoffaali obumyufu, obutoffaali obweru, n’obutoffaali obuyitibwa platelets emibiri gyaffe bye gyetaaga. Kale, aplastic anemia ebaawo ng’obusimu bw’amagumba tebusobola kukola butoffaali buno bulungi.

Kiringa ekkolero ly’omusaayi okuggalwawo mu bwangu. Kiki ekibaawo olwo? Omubiri gufiirwa obutoffaali bw’omusaayi bwe gwetaaga. Kino kyongera obulabe bw’okukwatibwa yinfekisoni ez’amaanyi , kizibuwalira okukomya okuvaamu omusaayi, era kiyinza okuvaako ebizibu ebirala ng’endwadde z’omutima. Waliwo obujjanjabi obufuga obubonero. Kyokka, engeri yokka ey’okukiwonya ddala kwe kusimbuliza obutoffaali obusibuka mu mubiri .

Embeera eno ya bulijjo etya? Tusaanidde okutya bwe tutyo?

Mu butuufu, obulwadde buno obuyitibwa Aplastic Anemia tebutera kubaawo katono . Ekyo kitegeeza nti si bulwadde obukwata buli muntu. Ng’ekyokulabirako, mu Amerika, abantu abali wakati wa 300 ne 900 bokka be bazuulibwa n’obulwadde buno buli mwaka. Mu Bulaaya, okunoonyereza kulaga nti embeera eno ekosa abantu nga babiri ku buli bukadde.

Wadde nga buyinza okukwata omuntu yenna ow’emyaka gyonna, businga kubeera mu bantu abali wakati w’emyaka 15 ne 25 n’abantu abasukka mu myaka 60. N’olwekyo, teweeraliikiriranga kiteetaagisa kuwulira ng’okooye buli kiseera n’okwebuuza oba olina obulwadde buno. Kyokka kikulu okumanya obubonero bw’obulwadde buno.

Bubonero ki obulaga obulwadde bwa Aplastic Anemia?

Obubonero bw’obulwadde buno tebulabika omulundi gumu. Ebiseera ebisinga, obubonero buno bulabika mpolampola mu wiiki oba emyezi. N’olwekyo oyinza obutalaba njawulo eriwo mu kusooka. Kyokka, abantu abamu bayinza okufuna obubonero obw’amaanyi mu bwangu. Kebera olabe oba olina obubonero buno:

• Yinfekisoni z’akawuka (nga ssennyiga n’omusujja) zitera okubaawo, era zitwala ekiseera kiwanvu okuwona okusinga bulijjo.
• Okuwulira obukoowu obuyitiridde buli kiseera n’okukoowa.
• Ebiwundu birabika mu mubiri gwonna, oba n’ekiwundu ekitono kitwala ekiseera kiwanvu okulekera awo okuvaamu omusaayi.
• Okuwulira obuzibu mu kussa (dyspnea) ., naddala ng’okola emirimu emitonotono.
• Langi y’olususu eringa eyakaayakana okusinga eya bulijjo.
• Okuziyira.
• Okulumizibwa omutwe.
• Omusujja.

Jjukira nti obumu ku bubonero buno buyinza n’okuva ku ndwadde endala ezitali za maanyi nnyo. Okugeza, kya bulijjo okuwulira ng’okooye n’okufuna omusujja ng’olina omusujja. Kale tosattira singa oba olina obubonero buno bumu oba bubiri n’olowooza nti olina obulwadde bwa aplastic anemia. Wabula bw’oba ​​omaze wiiki eziwera ng’owulira bulungi era nga buli kiseera owulira ng’okooye mu ngeri etagumiikiriza, mazima ddala kirungi okugenda ew’omusawo akuwe amagezi.

Lwaki aplastic anemia ebaawo? Biki ebivaako?

Mu butuufu, abakugu n’okutuusa kati tebamanyi bulungi lwaki abantu abamu bafuna obulwadde bwa aplastic anemia. Naye emirundi mingi kiva ku kuba nti abaserikale baffe bennyini abaziyiza endwadde —enkola etukuuma obutakwatibwa ndwadde —batutegeera bubi era ne balumba obusigo bwaffe obw’amagumba, ne basaanyaawo obutoffaali obusibuka awo. Obutoffaali buno obusibuka mu musaayi bwe bukola obutoffaali obupya.

Ng’oggyeeko ekyo, ensonga endala eziwerako ziyinza okukosa kino:

Ezimu ku mbeera z’obujjanjabi:

• Endwadde z’abaserikale b’omubiri , gamba nga lupus, ndwadde abaserikale baffe mwe balumba omubiri gwaffe.
• Yinfekisoni ezimu ez’akawuka, okugeza, akawuka nga Epstein-Barr virus, cytomegalovirus (CMV), parvovirus B19 , ne human immunodeficiency virus (HIV) .
• Paroxysmal nocturnal hemoglobinuria mbeera efunibwa nga obutoffaali obumyufu bumenyeka mangu.
• Oluusi olubuto luyinza okuba nga lwe luvaako kino, naye tekitera kubaawo nnyo.

Embeera eziva mu milembe:

Mu bantu abamu, aplastic anemia eyinza okukwatagana n’obulwadde bw’okulemererwa kw’obusimu bw’amagumba obusikira. Bino biyitibwa ‘obulwadde bw’okulemererwa kw’obusimu bw’amagumba obusikira’. Ebimu ku byokulabirako bye bino:

• Okukendeera kw’omusaayi mu Fanconi
• Obulwadde bwa Dyskeratosis obuzaalibwa nabwo
• Obulwadde bwa Shwachman-Diamond
• Okukendeera kw’omusaayi mu mubiri (Diamond-Blackfan).
• Obulwadde bwa Pearson syndrome

Ebimu ku bujjanjabi:

Obujjanjabi obumu nabwo byongera ku bulabe bw’okufuna embeera eno.

• Ebimu ku bujjanjabi bw’endwadde z’abaserikale b’omubiri.
• Radiation ne chemotherapy ku kookolo. Olw’okuba buno bujjanjabi bwa maanyi nnyo, busobola okwonoona obusigo bw’amagumba.

Ate era, okumala ebbanga eddene ng’olina eddagala erimu eriyitibwa carcinogens , gamba nga arsenic ne benzene , kiyinza okwongera ku bulabe buno.

Kino kiyinza okuleeta bizibu ki?

Omuntu alina obulwadde bwa aplastic anemia ayinza okufuna ebizibu nga bino, ebimu ku byo biyinza okutta obulamu bwe:

• Okukendeera kw’omusaayi: Kino kitegeeza nti omusaayi gukendeera mu mubiri. Kino kiyinza okuvaako ebintu ng’okukoowa ennyo n’okukaluubirirwa okussa.
• Yinfekisoni ez’amaanyi: Obutoffaali obweru bwe bukendeera, obusobozi bw’okuziyiza endwadde bukendeera.
• Okuvaamu omusaayi omungi: Olw’okukendeera kw’obutoffaali obukola omusaayi, kitwala ekiseera ekiwanvu omusaayi okuzimba.
• Omutima obutatambula bulungi (Arrhythmia) oba omutima okulemererwa.
• Myelodysplastic syndrome mbeera obutoffaali mu busimu bw’amagumba mwe bukula mu ngeri etaali ya bulijjo.

Aplastic Anemia ezuulibwa etya?

Abasawo bazuula obulwadde buno nga bakukebera, nga bakukebera omusaayi, n’oluusi okukebera obuzaale. Ebigezo bino biyinza okuli:

• Complete blood count (CBC) with differential: Kino kipima omuwendo gw’obutoffaali obumyufu, ebika byonna ebitaano eby’obutoffaali obweru, n’obutoffaali obukola omusaayi mu musaayi gwo.
• Peripheral blood smear: Omusaayi guggyibwa ne gukeberebwa mu microscope okukebera endabika n’enkula y’obutoffaali bw’omusaayi n’obutoffaali obukola omusaayi.
• Omuwendo gw’obutoffaali obuyitibwa reticulocyte count: Kino kipima omuwendo gw’obutoffaali obumyufu obupya obutondeddwa, obutakuze (reticulocytes).
• Okusiba obusigo bw’amagumba n’okukebera obusimu bw’amagumba: Mu kino, akatundu akatono ak’obusimu bw’amagumba kaggyibwa, ebiseera ebisinga okuva mu ggumba ly’ekisambi, nga babudamya. Oluvannyuma kikeberebwa mu microscope okulaba embeera yennyini ey’obusimu bw’amagumba. Kino kye kigezo ekikulu okukakasa nti omuntu azuuliddwa.

Obujjanjabi bwe buruwa?

Enkola z’obujjanjabi zaawukana okusinziira ku mbeera gy’olimu. Ng’ekyokulabirako, abantu abamu bafuna obulwadde bwa aplastic anemia nga kiva ku bujjanjabi bwa kookolo oba obujjanjabi bw’endwadde z’abaserikale b’omubiri. Mu mbeera ng’ezo, abasawo bayinza okugezaako okukyusa mu bujjanjabi obwo.

Singa obutoffaali bwo buba wansi okusinga ku bwa bulijjo naye nga tolina bubonero bunene, omusawo ayinza okugamba nti olina obulwadde bwa aplastic anemia obw’ekigero. Mu mbeera eno, omusawo wo ajja kulondoola obulamu bwo n’omuwendo gw’omusaayi buli kiseera. Mu ngeri eno, osobola okubaako ky’okolawo amangu singa embeera yo erabika ng’egenda yeeyongera okwonooneka.

Obujjanjabi bw’abalwadde abayi ennyo abalina obulwadde bwa aplastic anemia mulimu:

• Eddagala eriweweeza ku busimu bw’omubiri: Eddagala lino likola nga lifuga emirimu gy’abaserikale b’omubiri n’okugikomya okulumba obusigo bw’amagumba go. Eby’okulabirako by’eddagala lino mulimu empiso ya antithymocyte globulin (Atgam®) ne cyclosporine (Sandimmune®) .
• Okuteekebwamu omusaayi:Kino kizingiramu okukyusa obutoffaali obumyufu n’obutoffaali obuyitibwa platelets ebiweddewo. Kino tekiwonya bulwadde buno, wabula kiyamba okumalawo obubonero.
• Eddagala eritta obuwuka: Abantu abalina obulwadde bwa aplastic anemia bali mu bulabe obw’okufuna obulwadde bwa bakitiriya. Kale, eddagala eritta obuwuka liweebwa okujjanjaba yinfekisoni.
• Okusimbuliza obutoffaali obusibuka mu mubiri (allogeneic stem cell transplantation): Buno bwe bujjanjabi obusinga ku bulwadde buno. Mu nkola eno, obutoffaali obusibuka obulungi okuva mu muntu omulamu obulungi (emirundi mingi omuntu ow’omu maka oba omugabi akwatagana) busimbibwa mu busimu bw’amagumba bw’omulwadde obwonooneddwa. Oluvannyuma lwa kino, obutoffaali obupya obulamu butandika okutondebwawo.

Biki ebiva mu bujjanjabi buno?

Ebizibu ebivaamu nabyo byawukana okusinziira ku bujjanjabi:

• Obulwadde bwa graft-versus-host: Buno buzibu obuyinza okubaawo mu kiseera ky’okusimbuliza obutoffaali obusibuka mu mubiri (allogeneic stem cell transplantation) . Kino kitegeeza nti obutoffaali obusimbibwa bukola ku mubiri gw’omulwadde.
• Eddagala eriweweeza ku busimu bw’omubiri lyongera obulabe bw’okukwatibwa obulwadde.
• Okwongera ku muwendo gw’ekyuma mu mubiri olw’okuteekebwamu omusaayi emirundi mingi (hemochromatosis / iron overload).

Kino kisobola okuziyizibwa?

Ebyembi, mu kiseera kino tewali ngeri emanyiddwa ey’okuziyiza okukendeera kw’omusaayi mu mubiri (aplastic anemia).

Kisobola okuwonyezebwa ddala?

Yee, mu mbeera ezimu, okusimbuliza obulungi obutoffaali obusibuka mu mubiri (allogeneic stem cell transplantation) kuyinza okuwonya ddala obulwadde buno. Okutwalira awamu, abaana n’abantu abali wansi w’emyaka 40 batera okutuuka ku buwanguzi mu bujjanjabi buno okusinga abantu abakulu.

Emikisa ki egy’okuwonawo?

Kino ddala kisinziira ku bintu bingi. Emyaka gyo, obujjanjabi bw’ofuna, obuzibu bw’obulwadde bwo, n’ebirala Okunoonyereza okumu kwalaga nti okutwalira awamu, abantu 96% baawona oluvannyuma lw’okusimbuliza obutoffaali obusibuka mu mubiri. Okunoonyereza kwe kumu era kwazuula nti abaana n’abantu abakulu 100% abali wansi w’emyaka 40 baali balamu oluvannyuma lw’emyaka etaano nga bajjanjabiddwa.

Kyokka, ebibalo bino byesigamiziddwa ku by’ayitamu ekibinja ekinene eky’abantu. Ziyinza obutakukosa mu ngeri y’emu. Bw’oba ​​olina ekibuuzo kyonna ku nsonga eno, kirungi okwogera n’omusawo wo. Asobola okukuwa amawulire agatuukana n’embeera gy’olimu.

Bwemba nnina Aplastic Anemia, nneerabirira ntya?

Bw’oba ​​olina embeera eno, kikulu okwerabirira obulungi. Kikulu okugoberera enteekateeka y’obujjanjabi bw’omusawo wo mu butuufu n’okufaayo ku bubonero bwo. Osobola n’okukola ebintu bino:

• Weewale emirimu egiyinza okuleeta obuvune obusingako. Oli mu bulabe bwa maanyi obw’okuvaamu omusaayi. N’olwekyo, kirungi okwewala emizannyo nga rugby, hockey, n’okumegganyizibwa.
• Weekuume ku buwuka n’obuwuka.Otera okufuna yinfekisoni. Buuza omusawo wo ku ddagala erigema erikusaanira. Naaba nnyo mu ngalo era weewale abantu abalwadde (nga abalina omusujja, ssennyiga oba okutabuka olubuto).
• Funa ekiwummulo ekimala. Okuva bwe kiri nti okukendeeza omusaayi kizibu kya kino, oyinza okuwulira ng’okooye nnyo n’okussa obubi. Era kiyinza okuba ekizibu okukola emirimu egya buli lunaku. N’olwekyo, wummulamu era weebaka bulungi nga kyetaagisa, so si ng’osobola.
• Lya emmere ennungi. Endya ennungi omuli ennyama etaliimu masavu, enva endiirwa, ebibala n’emmere ey’empeke esobola okukuyamba okutumbula amaanyi go. Bw’oba ​​osobola okufuna amagezi okuva eri omukugu mu by’endya, osobola okuyiga engeri y’okuganyulwamu ennyo mu mmere gy’olya.
• Funa dduyiro. Dduyiro omutono asobola okuyamba okukendeeza ku situleesi. Kyokka kakasa nti oyogera n’omusawo wo nga tonnatandika kukola dduyiro mupya.

Ddi lw’osaanidde okulaba omusawo?

Kuba essimu y’omusawo wo mu bwangu mu mbeera eno:

• Bw’oba ​​olina omusujja gwa diguli 38 (diguli 100.4 Fahrenheit) oba okusingawo .
• Singa obubonero bwo bweyongera.

Bibuuzo ki bye nnina okubuuza omusawo?

Bw’oba ​​olina aplastic anemia, oyinza okubuuza omusawo wo ebibuuzo bino:

• Kiki ekisinga okuvaako embeera yange?
• Embeera yange ya maanyi?
• Bujjanjabi ki bw’oteesa?
• Biki ebiva mu bujjanjabi buno?
• Sirina bubonero bwonna. Nnaaba nneetaaga obujjanjabi?
• Nnina obubonero. Bujjanjabi ki bwe nnyinza okukozesa?

Aplastic Anemia kookolo?

Nedda.Aplastic anemia si kookolo. Kyokka, abantu abamu abalina obulwadde bwa aplastic anemia bali mu bulabe bw’okufuna ekika kya kookolo w’omusaayi ayitibwa leukemia .

Aplastic anemia bulwadde bwa musaayi obutatera kulabika naye nga bwa maanyi. Ebiseera ebisinga kibaawo ng’abaserikale b’omubiri balumba obusimu bwo obw’amagumba, ne bubalemesa okukola obutoffaali bw’omusaayi n’obutoffaali obuyitibwa platelets omubiri gwo bwe gwetaaga. Waliwo ebintu bingi ebiyinza okuvaako ensonga eno, n’olwekyo oyinza okuba nga weeraliikirira era ng’otya. Kyokka, wadde ng’abasawo bayinza obutasobola kuzuula kintu kituufu ekivaako embeera eno, embeera eno esobola okujjanjabibwa n’oluusi n’ewona. Bw’oba ​​olina aplastic anemia, omusawo ajja kukunnyonnyola obujjanjabi obukusaanira n’ebizibu ebivaamu. Kale, beera muvumu era ogoberere amagezi g’omusawo wo.

Obubaka Obutwala Awaka okuva gye Tuli

Aplastic Anemia eyinza okukutiisa ng’owulira erinnya. Kubanga mbeera ya maanyi. Naye jjukira nti waliwo obujjanjabi obubujjanjaba. Singa otegeera obubonero nga bukyali, n’onoonya omusawo n’otandika obujjanjabi, emirundi mingi osobola okufuga embeera eno, n’otuuka n’okugiwonya.

Ekisinga obukulu, bw’oba ​​olina obukoowu obutannyonnyolwa, ng’otera okulwala oba ng’ovaamu omusaayi mu ngeri etaali ya bulijjo, tomala gasimbira ekkuuli n’olaba omusawo akukebere. Gy’okoma okukimanya amangu, gy’okoma okukimanya nti obujjanjabi bujja kuba bulungi. Si ggwe wekka, era abasawo, ab’omu maka n’emikwano bonna baliwo okukuyamba mu lugendo luno.

` Aplastic Anemia, Aplastic Anemia, Anemia, Obusigo bw’amagumba, Endwadde z’omusaayi, Okusimbuliza obutoffaali obusibuka mu mubiri, Abaserikale b’omubiri