Obulwadde bwa MRKH (Obulwadde bwa Mayer-Rokitansky-Küster-Hauser) kye ki? Tukyogere ku nsonga eno?

Muwala wo, oba omwana omuto gw’omanyi, tannatandika nsonga ku mutindo ogusaanira emyaka gye? Oba, oluusi awulira obulumi oba obutabeera bulungi ng’agezaako okwegatta? Leero tugenda kwogera ku mbeera y’obulamu ey’enjawulo eyinza okuvaako ebintu bino, naye nga si ya bulijjo nnyo era abantu si bangi abagiwuliddeko. Kino kiyitibwa obulwadde bwa Meyer-Rokitansky-Küster-Hauser syndrome , oba ``MRKH syndrome'' mu bufunze. Wadde erinnya lino liyinza okulabika ng’ewanvuye katono, eno embeera y’obuzaale etali ya bulijjo ekwata abakyala. Ka tukyogereko mu ngeri ennyangu, mu ngeri gy’osobola okutegeera.

Ddala obulwadde bwa MRKH kye ki?

Mu ngeri ennyangu, MRKH syndrome mbeera ng’obukyala n’ennabaana by’omukyala tebikula bulungi oba nga tebitondeddwa mu bujjuvu ng’azaalibwa. Kilowoozeeko ng’ennyumba ezimbiddwa ng’ebisenge ebimu tebikoleddwa bulungi. Kyokka, emirundi egisinga, enkwaso n’enkwaso z’abantu abalina embeera eno zikola mu ngeri eya bulijjo . Ate era ebitundu by’ekyama eby’ebweru, kwe kugamba, ekitundu ekya wansi eky’obukyala, ekifo ekigguka mu bukyala, enseke, enseke, n’enviiri ezikula nga zibyetoolodde, biba bya bulijjo. Omusulo tegukosebwa, kale tewali buzibu mu kufulumya musulo.

Wabula mu bika ebimu eby’obulwadde bwa MRKH, wayinza okubaawo obuzibu obumu mu nkula y’ebitundu ebirala, gamba ng’ensigo n’omugongo.

Ebiseera ebisinga, embeera eno ezuulibwa ku myaka emito, kwe kugamba, ku myaka 15-16, ng’okugenda mu nsonga tekutandika. Kino kiri bwe kityo kubanga nnabaana takula mu bujjuvu, n’olwekyo okugenda mu nsonga tekubaawo. Oluusi ng’ogezaako okwegatta, obukyala buyinza okuwulira nga buluma oba nga buzibu kubanga buba bumpi ate nga bufunda.

Olw’okuba nnabaana takula mu bujjuvu oba taliiwo, tekisoboka kufuna lubuto na kuzaala mwana nga toyambiddwa musawo mu mbeera eno. Naye singa enkwaso zikola era ng’amagi gakolebwa , eby’okulonda nga ``IVF - in vitro fertilization`` ne ``surrogacy`` bisobola okulowoozebwako. Bw’oba ​​olina essuubi ly’okuzaala, kikulu nnyo okwogera n’omusawo wo ku nsonga eno. Olwo basobola okukuwabula ku ngeri gy’oyinza okulondamu ekusaanira.

Amannya amalala agawerako gakozesebwa ku `(MRKH syndrome)`:

• Obutabeera na nnabaana n’obukyala mu buzaale (CAUV) .
• Agenesis y’obukyala
• Enkola ya Müllerian agenesis
• Obulwadde bwa Müllerian aplasia (MA) .
• Obulwadde bw’amatu mu bitundu by’ekyama (GRES) .

Waliwo ebika by’obulwadde bwa MRKH?

Yee, waliwo ebika bibiri ebikulu ebya `(MRKH syndrome)`:

• Ekika 1:Mu kika kino, enkwaso n’enseke zikola bulungi, naye ekitundu eky’okungulu eky’obukyala, omumwa gwa nnabaana ne nnabaana bizibikira oba tebiri mu kifo. Kyokka kino tekikosa bitundu birala byonna mu mubiri.

• Ekika 2: Mu kika kino, ng’oggyeeko ekitundu eky’okungulu eky’obukyala, omumwa gwa nnabaana, ne nnabaana okuzibikira oba obutabeera mu kifo, wayinza n’okubaawo obuzibu obumu ku nseke, enkwaso, omugongo, ensigo oba ebitundu ebirala.

Embeera eno ya bulijjo etya?

MRKH syndrome mbeera etali ya bulijjo nnyo . Bukwata abawala nga omu yekka ku buli 4,500. Kale tekyewuunyisa nti tetuwulidde nnyo ku nsonga eyo.

Bubonero ki obulaga obulwadde bwa MRKH?

Obubonero bw’obulwadde bwa MRKH buyinza okwawukana okusinziira ku kika ky’olina.

Emirundi egisinga, obubonero obukulu bwe butabeera mu nsonga (amenorrhea) ng’owezezza emyaka 16. Kano kabonero akalaga nti nnabaana oba obukyala tebukula bulungi. Wabula olw’okuba enkwaso zikola bulungi, obubonero obulala obukwatagana n’okugenda mu nsonga, gamba ng’okuzimba n’okukyukakyuka mu mbeera, busobola okubaawo ne bwe kiba nga tewali musaayi.

Olw’okuba olina chromosomes n’obusimu bw’omukazi, ofuna enkula y’okwegatta eya bulijjo, gamba ng’amabeere n’okukula enviiri mu nnyindo n’ebitundu by’ekyama. Wabula oyinza okufuna obulumi oba obutabeera bulungi ng’osoose okugezaako okwegatta mu bukyala. Kino kiri bwe kityo kubanga obukyala bwo bugonvu, bufunda ate nga bumpi okusinga ku bwa bulijjo.

Bw’oba ​​olina Type 2 MRKH, oyinza n’okufuna obubonero obulala nga:

• Ebizibu by’ekibumba, oba okulemererwa kw’ekibumba ekimu oba byombi.
• Ebizibu ku mugongo gw’omugongo oba obulema obulala mu nkola y’amagumba.
• Obuzibu mu kuwulira.
• Ebizibu ebimu ku mutima.

Kiki ekivaako MRKH?

Abanoonyereza n’okutuusa kati tebamanyi kituufu kivaako bulwadde bwa MRKH. Kyokka, bakimanyi nti kizingiramu obuzibu obumu ku buzaale n’ensengekera z’obutonde (chromosomes). Wabula tebasobodde kugisiba ku ggiini emu entongole. Ekikulu si kintu maama kye yakola oba kyeyakola ng'ali lubuto . Kale tokyeraliikirira.

Enkola y’okuzaala y’omukazi etandika okukula mu wiiki ezisooka ng’ali lubuto. Enseke, nnabaana, omumwa gwa nnabaana, n’ekitundu eky’okungulu eky’obukyala bikolebwa okuva mu kintu ekiyitibwa emikutu gya Müllerian . Mu bantu abalina obulwadde bwa MRKH, emikutu gino egya Müllerian tegikula mu bujjuvu. Tekinnamanyika lwaki kino kibaawo mu bantu abamu. Kyokka olw’okuba enkwaso zikula nga zaawukana ku nkola endala ez’okuzaala, ebiseera ebisinga enkwaso tezikosebwa.

Omanya otya mu bukakafu oba olina MRKH?

Abasawo batera okuzuula obulwadde bwa MRKH syndrome ng’omuwala omuto alemereddwa okugenda mu nsonga ezisooka.

Omutendera ogusooka mu kuzuula embeera eno kwe kukebera omubiri . Omusawo ajja kuyingiza engalo eriko ggalavu mu bukyala n’agipima obuziba n’obugazi bwayo. Okukebera kuno kusobola okuzuula MRKH kubanga obukyala buba bumpi. Oluvannyuma, oyinza okusabibwa okukeberebwa ebifaananyi, gamba ng’okukebera amaloboozi amangi oba MRI (magnetic resonance imaging) scan, okulaba oba nnabaana wo, enseke, ensigo oba ebitundu ebirala bikosebwa. Oluusi, oyinza okukeberebwa omusaayi okukebera obusimu bwo.

Bujjanjabi ki obuweebwa MRKH?

Obujjanjabi bw’obulwadde bwa MRKH bwawukana okusinziira ku biruubirirwa byo n’obubonero bwo. Waliwo obujjanjabi obw’okulongoosa n’obutali bwa kulongoosa. Ebimu ku bino mulimu okulongoosa obukyala, okugaziya obukyala, n’okukyusa nnabaana.

Okugaziwa kw’obukyala

Engeri emu abasawo gye bakozesa okugolola obukyala kwe kukozesa ebyuma ebiyitibwa vaginal dilators . Zino zikolebwa mu buveera oba silikoni era zijja mu buwanvu n’obugazi obw’enjawulo. Ebyuma bino ebiringa ttanka biyamba okugaziya n’okugolola obukyala okuva munda. Omusawo ajja kukunnyonnyola engeri esinga obulungi ey’okukozesaamu eddagala erigaziya obukyala okusinziira ku mbeera gy’olimu.

Vaginoplasty (okulongoosa obukyala okuddamu okuzimba) .

Okulongoosa obukyala nkola ya kulongoosa okukola obukyala . Abasawo abalongoosa balina engeri eziwerako gye bayinza okukolamu enkola eno. Ebiseera ebisinga, bakola ekituli ne bakibikkako ebitundu by’omubiri ebiggiddwa mu kitundu ekirala eky’omubiri gwo. Kino kikusobozesa okwegatta mu ngeri eya bulijjo.

Okukyusa nnabaana

Okukyusa nnabaana kuyinza okuwa omukyala alina obulwadde bwa MRKH omukisa okuzaala omwana. Kino kikwekweto kinene. Kizingiramu okukyusa nnabaana okuva ku muntu agaba nnabaana okudda mu mukazi atalina. Kino kiwa abantu abalina MRKH omukisa okusitula n’okuzaala omwana waabwe. Okukyusa nnabaana tekunnaba kukolebwa nnyo mu bitundu by’ensi byonna, naye kuyinza okuba obujjanjabi obulungi ennyo mu biseera eby’omu maaso.

Embeera eno esobola okuziyizibwa?

Nedda, tewali ngeri yonna gye tuyinza kuziyiza bulwadde bwa MRKH . Kiyinza okubaawo mu bantu abatafunangako, oba kiyinza okuba nga kya buzaale. Nga bwe kyayogeddwako emabegako, tekiva ku buzaale bumu obw’enjawulo.

Abantu abalina MRKH basobola okuzaala omwana?

Yee, abantu abalina `(MRKH syndrome)` basobola okuzaala omwana!Singa enkwaso zo zikola, amagi go osobola okugagatta n’ensigo ne gazaala ng’okozesa enkola ya in vitro fertilization (IVF). Olwo embuto ekyusibwa n’eweebwa maama atwala olubuto/omusika . Kino kitegeeza nti ojja kuzaala omwana alina obuzaale bwo, ng’akulira mu lubuto lw’omukyala omulala omulamu obulungi.

Bizibu ki ebirala eby’obulamu ebiyinza okuva ku MRKH?

Twayogeddeko emabegako nti abantu abalina ``Type 2`` MRKH nabo basobola okufuna obuzibu ku bitundu ebirala, gamba ng'ensigo, omugongo, oba omutima. Okugatta ku ekyo, ebizibu ebirala eby‟obulamu ebitera okubeera mu bantu abalina ``Type 2`` MRKH bye bino:

• Ebizibu ebikwata ku mugongo gw’omugongo.
• Obulwadde bwa scoliosis.
• Obuzibu bw’ekibumba, gamba ng’ensigo okugattibwa wamu oba obutabaawo kibumba kimu oba byombi (renal agenesis).
• Okwongera ku bulabe bw’amayinja mu kibumba, yinfekisoni z’omusulo, n’okuzibikira kw’omusulo.
• Obuzibu mu kuwulira.
• Obulwadde bw’omutima.

Ebizibu by’enkola y’okuzaala bitera okuva mu bantu abalina MRKH. Ng’oggyeeko obutasobola kufuna lubuto oba kuzaala mwana waabwe, abalina nnabaana atakula nabo basobola okufuna embeera nga endometriosis.

Nga bino byonna bibaawo, kya bulijjo okuwulira situleesi mu nneewulira . Omusawo ayinza okukuwa amagezi okwegatta ku kibiina ekiyamba oba okunoonya ekitongole ekikubuulirira ku by’omwoyo, gamba ng’obujjanjabi obw’okutegeera n’enneeyisa (CBT), okukuyamba okugumira embeera eyo. Ebintu bino bisobola okuyamba ennyo.

Tekyewuunyisa nti okuzuula nti olina obulwadde bwa Mayer-Rokitansky-Küster-Hauser (MRKH) kiyinza okukuwuniikiriza ennyo. Bw’oba ​​ozaalibwa nnabaana oba obukyala obutakula, oyinza obutakimanya okutuusa ng’okyali muto era ng’obadde waakatandika okugenda mu nsonga. Wadde si mbeera ya bulabe eri obulamu, esobola okuleeta situleesi ey’amaanyi, okukosa obusobozi bw’omukyala okufuna embuto n’okwegatta. Mu mbeera ezimu, kiyinza okukosa ebitundu by’omubiri ebirala ne kyongera obulabe bw’embeera z’obulamu ezimu.

Ebintu ebikulu by'olina okukuuma mu birowoozo (Take-Home Message)

Okay, kale kati olina okutegeera okulungi ku bye tubadde twogerako, ``MRKH syndrome.'' Ekisinga obukulu okujjukira nti toli wekka . Waliwo abantu abalala mu nsi ababeera n’embeera zino.

• Bw’oba ​​olina obubonero nga buno, kikulu nnyo okulaba omusawo omulungi n’okuzuula ekituufu .
• Waliwo obujjanjabi obusobola okukozesebwa. Yogerako n’omusawo wo olonde obujjanjabi obusinga okukuyamba.
• Toggwaamu ssuubi eri abaana. Nga tulina tekinologiya nga `(IVF)` ne `(surogacy)`, waliwo emikisa okutuukiriza ekirooto ekyo.
• Naawe faayo ku bulamu bwo obw’omutwe.Bwe kiba kyetaagisa, noonya okubudaabudibwa era weegatte ku bibiina ebiyamba n‟abantu ababadde n‟ebyo ebifaananako bwe bityo. Kino kijja kukuwa amaanyi mangi.
• Guno si musango gwo. Eno mbeera ya butonde eyinza okutuuka ku muntu yenna.

Omusawo wo, era nga kiyinzika okuba nga ttiimu y’abakugu, ajja kukuwa obuwagizi n’obulagirizi bwe weetaaga okugenda mu maaso ne `(MRKH syndrome)` eno. Bamwesige. Bw’oba ​​olina ekibuuzo ekirala kyonna ku nsonga eno, totya kukibuuza. Beera mulamu bulungi!

` Obulwadde bwa MRKH, Mayer-Rokitansky-Küster-Hauser Syndrome, okuzimba obukyala, okuzimba nnabaana, obulamu bw’abakyala, obulamu bw’okuzaala, obulwadde bw’okugenda mu nsonga