I chau a, i chau fo em? A chang chuan heng thilte hi thil pangngaiah kan ngai a, mahse a hnungah hian thisen kaihhnawih natna a awm thei. Beta Thalassemia hi kan gene-ah hian thlah khat atanga thlah dangah kan inkai darh thin a, mahse enkawl theih a ni. Hemi chungchangah hian mi tam tak chuan hlauhna leh rinhlelhna an nei a. Chuvangin vawiin hian he thu hi chiang tak leh awlsam takin sawi ila.
A awlsam zawngin sawi ila, beta thalassemia chu eng nge ni?
A awlsam khawp mai. Kan thisenah hian red blood cells an tih cell kan nei a. Heng cell te hian kan taksa peng zawng zawngah oxygen an phur lut a ni. Thisen sen (red blood cells) te chu he hna hi dik taka thawk thei tura puitu protein bik a awm a, chu chu hemoglobin .
Tunah chuan beta thalassemia vei tan chuan taksain he protein hemoglobin an tih hi a siam chhuak tawk lo. Chuti a nih chuan eng nge thleng? Thisen sen (red blood cells) te hian an hna an thawk tha thei lo va, an chhe nghal vat thin.
Thisen sen hrisel tak tak a awm loh chuan taksain a mamawh oxygen a hmu lo. Hetiang dinhmun hi anemia kan ti a ni . Anemia hian chau, chak lohna leh thawk hahdam lohna a thlen thei a ni. Hetiang dinhmun hi a la awm zel chuan kan taksa peng pawimawh tak takte pawh a tichhe thei bawk.
Beta thalassemia chi hrang hrangte chu engte nge ni?
Beta thalassemia hi a nasat dan azirin chi thum a awm a. Hei hi chiang taka hriatthiam a pawimawh hle.
| Thalassemia chi khat a ni | Hrilhfiahna awlsam tak |
|---|---|
| Beta thalassemia natna tenau a ni | Hei hi natna chi hrang hrang zingah chuan a nasat ber a ni. Mi thenkhat chuan symptoms an nei lo tak tak thei a, a nih loh leh mild anemia chauh an nei thei bawk. Mi thenkhat chuan gene an nei tih pawh hre lovin an dam chhung zawng an kal thin. Hei hi thalassemia trait an ti bawk. |
| Beta thalassemia inkar a ni | Hei hi a moderate condition a ni. Heng mite hian thisen tlakchham (anemia) vangin symptoms an nei thei a ni. A \henah chuan thisen pek ang chi enkawlna a ngai mai thei. |
| Beta thalassemia natna lian tak a ni | Hei hi natna a nasat ber stage a ni. ‘Cooley’s anemia’ an ti bawk. Heng mite hian thisen tlakchhamna nasa tak an nei thei a, nunna atana hlauhawm thei a ni. Chuvangin thisen pek mumal leh damdawi lam enkawlna bik neih a pawimawh hle. |
He natna lan chhuah dan engte nge ni?
Mi hrang hrangah symptoms a inang lo thei a, thalassemia i neih chi leh a nasat dan azirin a inang lo thei.
- Thalassemia minor vei chuan symptom a nei lo thei.
- Thalassemia intermedia leh major vei te hian a hnuaia symptoms pakhat emaw a aia tam emaw an nei thei a ni:
- Pale skin: Thisen tlakchham vangin vun hi a dum a, a rawng a danglam thin.
- Chauhna leh chak lohna nasa tak: Lethargic, chau reng reng.
- Abdominal bloating: Pum chu hmalam pan a chhuak a, hei hi taksa peng hrang hrang, thin leh ril (spleen) te a lian vang a ni.
- Zun rawng dum: Zun chu a rawng a dum a.
- Growth retardation: Naupang taksa thanlenna hi naupang dang aiin a zawi zawi zawk.
- Facial bone deformities: A nasat deuh deuhah chuan hmai ruh pianzia a inthlak thin.
- Jaundice: Vun sen leh mit var.
Naupang tê chu a naupan laiin a damlo fo a, ei a duh lo a, a sen a nih chuan, i ngaihven ngei tur a ni a, i doctor nen inbiakna neihpui tur a ni
He natna hi engtin nge kan hriat theih ang?
He natna hi kum 6 leh 12 inkar vel a ni tlangpui a, thisen tlakchhamna (anemia symptoms) avanga doctor i pan hunah emaw, chhan dang avanga thisen test pangngai tih lai pawhin a lo lang thei a ni.
A châng chuan thisen tlakchhamna (anemia) i hmuh hian a chhan chu iron tlakchham vang niin i ngai sual mai thei. Chutiang huna iron tablet i pek chuan thalassemia vei tan a pawi thei hle. Chuvang chuan natna dik tak hriat chian nan hematologist pan a pawimawh hle.
Chhungkaw hrang hranga kal a nih avangin i chhungte emaw, i chhungte emaw-ah thalassemia vei an awm thei. Tin, he natna hi Asia, Middle East, Italy, leh Greece ram atanga lo kalte zingah a hluar zawk bawk.
He natna hriat theihna atana test hman ber thenkhat chu:
- Complete Blood Count (CBC): Hei hian i thisen chhunga thisen sen, thisen var leh platelet awm zat, a lian leh te, a puitlin dan a enfiah a ni.
- Hemoglobin electrophoresis: Hei hi i thisenah hemoglobin chi hrang hrang leh engzat nge awm tih chiang taka hriat nan hman a ni.
- Nu naupai test: Nu naupaiin thalassemia carrier state a neih chuan Chorionic villus sampling (CVS) emaw Amniocentesis ang chi test te hmangin nausen pum chhunga naute pawh a nghawng tawh em tih hriat theih a ni.
Enkawlnate chu engte nge ni?
I enkawlna tur chu i thalassemia chi leh a nasat danah a innghat ang.
- Natna nei lo (Minor): Enkawlna engmah a ngai lo mai thei.
- Intermediate condition-a awmte tan: A châng chuan, natna emaw, hri kai emaw a awm hunah thisen pek a ngai mai thei.
- Condition na tak (Major) nei tan chuan: Heng mite hian thisen tlakchhamna nasa tak an neih avangin thisen pek mumal hi a pawimawh hle.
Thisen pek fo hian taksaah a tul lova iron a tipung thei a ni. Hei hi ``Iron overload'' an ti a, he iron tam lutuk hian thinlung leh thin ang chi taksa peng hrang hrangah a pungkhawm thei a, a tichhia thei bawk. Chumi ven nan chuan taksa atanga thir tam lutuk paih chhuah nan treatment an nei thin. Iron chelation therapy an ti a . Hei hi pill emaw injection emaw angin pek thin a ni.
Tin, doctor-in a tih angin a hnuaia enkawlna te hi i hmang thei bawk ang:
- Spleen lakchhuahna surgery neih a ni.
- Bone marrow thlak danglam a ni .
- Tunlai enkawlna gene therapy ang chi te.
Thalassemia natna vei hian engtin nge hrisel taka kan nun theih ang?
Thalassemia natna vei nun chu harsa tak ni thei mah se, mahni inenkawlna tur thil tam tak i tih theih a awm.
Thil i tih theihte
- Ei leh in hrisel: Thlai leh thlai chi tam zawk ei thin ang che. Mahse, iron tamna ei tur (sa, sangha, thlai thenkhat, leh iron-fortified cereals) i tihtlem tur em tih doctor zawt rawh .
- Exercise neih fo: Exercise nem tak tak, kea kal leh cycle khalh ang chi te hmang thin ang che.
- Doctor thupek zawm rawh: Thisen pek ni leh damdawi ei hun tur dik takin zawm rawh. Ni ruat saah doctor hmu rawh.
- Infection laka invenna: Kut sil fo thin ang che. Damlote lakah inthiarfihlim rawh.
- Vaccine lak: I doctor-in a rawt vaccine zawng zawng, flu vaccine ang chi chu a hun takah la rawh.
- I rilru hriselna hi han ngaihtuah teh: He zinkawng hi mahni chauha paltlang a harsa khawp mai. I chhungte leh i thiante nen inbia ang che. A tul chuan rilru lam doctor emaw psychologist emaw tanpuina la rawh.
Enkawltu te tan thurawn
Thalassemia vei naupang emaw chhungkaw member emaw enkawltu i nih chuan i chanvo hi a pawimawh hle.
I rilru put hmang \ha tak hi i fa tan chakna nasa tak a ni. I fa hnenah, "Hei hi i nunpui thei tur hian i chak em em a ni," tiin hrilh fo ang che. Enkawlna thar avang hian thalassemia vei te chu dam rei tak, hlawhtling takin an nung thei tih hre reng ang che.
Take-Home Thuchah a ni
- Beta thalassemia hi thisen natna a ni a, thisen atanga lo piang, mahse enkawl theih a ni.
- Hei hi level hrang hrang a awm a, minor atanga major thlengin.
- Damlo natna khirh tak (major) nei tan chuan thisen pek mumal (thisen pek) leh chelation therapy te hi a pawimawh hle.
- Enkawlna dik leh nunphung \ha an neih chuan thalassemia vei te chu dam rei tak, hrisel tak leh hlawhtling takin an nung thei a ni.
- Nang emaw i fa emaw hian symptoms i neih emaw, rinhlelhna i neih emaw chuan doctor hnenah thurawn dil nghal rawh .
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