Choroid Plexus Carcinoma chu eng nge ni? He thluak cancer hlauhawm tak, mahse hmuh tur awm lo tak hi han sawi ila!

A châng chuan kan hmangaihte, a bikin kan naupang tête tawrh natnate kan ngaihtuah hian phurrit leh hlauhna nasa tak kan nei a ni lawm ni? Vawiin hian thluak cancer chi khat, a nasat deuh, mahse hmuh tur awm lo tak chungchang kan sawi dawn a ni . A hming i hriat veleh hlau nghal suh. A chhan chu, eng natna pawh hriat chian hi a hmachhawn tur chakna ropui tak a ni. Chuvangin, he ``Choroid Plexus Carcinoma`` chungchang hi chipchiar takin han sawi ila.

Choroid Plexus Carcinoma chu eng nge ni?

A awlsam zawngin sawi ila, he `Choroid Plexus Carcinoma` hi kan thluak chhunga tissue bik ``choroid plexus`` an tih atanga lo awm cancer a ni. Ngaihtuah teh, kan thluak chhungah hian hmun hrang hrang leh tissue chi hrang hrang a awm a. He ``choroid plexus`` tissue hi thluak chhunga cavities (``ventricles``) ah a awm a. Tui balloon ang bawkin, he ``choroid plexus`` tissue hian kan thluak leh kan ruhro (spinal cord) te chu a venghim a, a chawm a, chu chu ``cerebrospinal fluid`` (``CSF``) siamna atana puitu ber a ni.

Hei hi malignant tumor a ni a . Chumi awmzia chu a chhunga cell te hi thunun theih lohvin an thang lian a, rang takin an thang lian a, hmun dangah pawh an darh thei tihna a ni. Doctor-te chuan hei hi ``grade 3 choroid plexus tumor'' an ti bawk.Hengte hi an thang chak hle a, ``CSF'' fluid kaltlangin ``central nervous system'' (``CNS`') zawng zawngah darh vek an tum a ni. Chuvangin enkawl hi a chang chuan a harsa deuh thei a ni.

He natna hi engtiang chiahin nge a hluar?

He thu hi i hriat chuan mak i ti mai thei, mahse he natna `choroid plexus carcinoma` an tih hi a takah chuan natna hmuh tur awm lo tak a ni . Ngaihtuah teh, thluaka natna chi hrang hrang 100 zingah hian 1% aia tlem chu `choroid plexus tumor` an ni. `choroid plexus` tumor hi chi thum a awm a. Chung zingah chuan he `choroid plexus carcinoma` hi cancer chi hrang hrang zingah chuan a tlem ber leh awmchhun a ni a, chu chu `malignant` type a ni . Lungchhiatthlâk takin, he natna hian naute leh naupang tê tête a nghawng ber a ni .

He natna lan chhuah dan engte nge ni? Engtin nge kan hriat chian?

Chuti a nih chuan, he natna lan chhuah dan hi engte nge ni? Hei hi tumor lian leh te, thluaka a awmna hmun leh naupang kum a zirin a danglam thei. Mahse, a tlangpuiin, fimkhur tur chhinchhiahna tlemte a awm a:

• Constant feeling of extreme tiredness and lethargy: Naupang chu a dam lo ang mai a ni a, an tlan kual lo va, an khelh thin angin an khel lo. An muhil reng niin a lang.
• Lu na: Naupang tê chuan hei hi a sawi chhuak thei lo mai thei a, mahse an lu an vawn a, an tap fo va, an ei duh loh ang chi thilte hian kan hre thei a ni.
• Thinrimna emaw, buaina emaw: Naupang tê chu a buai a, thlamuan harsa tak a ni thei. Tun hma aiin an rilru a na zawk mai thei.
• Nausea leh luak chhuak: Hei hi a na zual thei a, a bik takin zing lamah.
• Taksa hmun \henkhatah rilru hah emaw, chak lohna emaw: Kut emaw, ke emaw chu a hring vek ang maiin a awm thei.
• Seizures: Sudden convulsions leh hriatna hloh.
• Mit lama harsatna: Mit hmuh lohna (blurred vision) emaw, vawi khatah thlalak pahnih emaw i hmu thei (diplopia). Naupang tê tê chuan an mit a hrual fo thei a, a nih loh leh ngaihtuahna a buai phah thei bawk.
• Lu lian zawk: Nausen naupangteah chuan thluak chhunga pressure a san chuan lu chu a lian thei a, a chhan chu luruh ruhte chu a inzawm kim loh vang a ni.

Heng symptoms pakhat emaw pahnih emaw i neih vang mai maia he natna hi i neih hi hlau suh. Mahse, heng chhinchhiahnate hi a la awm reng a nih chuan doctor pan ngei ngei chu a finthlâk .

Engvangin nge hetiang natna hi a lo awm? Eng nge a chhan?

Dik tak chuan doctor-te tan chuan mi thenkhatin choroid plexus carcinoma an vei chhan chiang taka sawi a harsa hle . A tlangpuiin cancer eng pawh hi kan taksaa gene pakhata inthlak danglamna a awm hian a lo awm a, chu chu mutation kan ti a ni. He genetic mutation hian cell hriselte chu cancer cell-ah a siam a, thunun theih lohvin a pung a, tumor-ah a thang lian a, a chang chuan taksa pum puiah a darh bawk.

Hei hi tichhe thei risk factors a awm em?

Tu pawhin he natna hi `choroid plexus carcinoma` an tih hi an nei thei a ni. Mahse, thil thenkhat (`risk factors` kan ti) hian a lo vei theihna chance a tipung thei tih hmuhchhuah a ni. Eng nge an nih i en ang u:

• Aicardi syndrome: Hei hi genetic condition hmuh tur awm lo tak a ni. Hetiang natna neia piang naupangte hian thluak than danah thil danglam engemaw zat an nei a, chu chuan choroid plexus tumor an nei tam zawk a ni. Hei hi rochun a ni tlangpui lo.
• Li-Fraumeni syndrome: Hei hi genetic condition hmuh tur awm lo tak a ni bawk. Hetiang syndrome vei te hian cancer chi hrang hrang an vei tam zawk. Hei hi nu leh pa pakhat atanga naupang hnena gene inthlak danglamna avanga lo awm a ni fo thin.
• Biological sex: A chhan dik tak hriat chian ni lo mah se, statistics atanga a lan dan chuan hmeichhiate hian he natna hi an vei tam deuh hlek a ni.

He natna hi Doctor ten engtin nge an hriat chian? (Diagnosis) tih a ni.

Chuti a nih chuan, engtin nge doctor-te chuan choroid plexus carcinoma i neih leh neih loh an finfiah theih ang? Chu chu i natna lan chhuah dan ngun taka ngaihthlak a, taksa enfiahna leh test chi hrang hrang an tih hian an ti thin. Heng test te hi i kum a zirin a danglam thei a, i fa kum a zirin a danglam thei bawk:

• Cognitive test: Hei hian i hnathawh that dan a test a, chu chu hriatrengna, ngaihtuahna leh zirlai thiamna te hi a ni.
• Neurological exam kimchang: Hei hian taksa peng hrang hrangte mit hmuhna, hriatna, balance issues, reflexes leh coordination te a enfiah ang.
• Thluak MRI (Magnetic Resonance Imaging) scan emaw, imaging test dang (CT scan ang chi): Hei hi test pawimawh ber a ni fo thin. Thluak chhungah tumor a awm em tih te, a lian zia te, khawiah nge a awm tih te, hydrocephalus (thluak chhunga cerebrospinal fluid (CSF) awmkhawm, pressure tihsan) tih natna a awm leh awm loh a lantir thei a ni.
• DNA test (genetic test): He test hi a hmaa kan sawi tawh Li-Fraumeni syndrome emaw Aicardi syndrome ang chi natna nena inzawm genetic change a awm leh awm loh hriat nan tih theih a ni.
• Spinal tap (lumbar puncture): Hei hi hnungzang hnuai lam ah needle te tak te dahin CSF sample tlemte lak a ni. Chumi hnuah laboratory-ah thawn a ni a, cancer cell a awm leh awm loh endik a ni.

Hei hi eng enkawlna nge ni?

Hetiang tumor i nei tih finfiah a nih chuan eng nge i tih leh ang? Enkawlna kawng hrang hrang a awm. A bulpui ber chu surgery a ni .

• Surgery: Neurosurgeon ten thluak surgery an ti a, a theih ang anga tumor chu paih chhuah a ni. Hei hi surgery buaithlak tak a ni. Tumor lak chhuah (biopsy) te chu lakchhuah a ni a, laboratory-ah thawn a ni a, choroid plexus carcinoma nge chi dang a nih leh nih loh finfiah a ni.

He biopsy hian choroid plexus carcinoma a nemnghet a, tumor chu lakchhuah kim theih a nih loh chuan, emaw, cancer a darh tawh a nih chuan nangmah emaw i fa emaw chuan enkawlna dang i mamawh mai thei. Chung zingah chuan:

• Chemotherapy: Hei hian taksain cancer cell thah nan damdawi chi hrang hrang pek a huam a ni. Heng damdawi te hian cancer cell inthen darh chak tak takte chu a that thin.
• Radiation therapy: Hei hian high-energy rays (e.g. X-rays) hmangin cancer cells te chu a target a, a tichhia a ni.

Heng enkawlna pakhat emaw a aia tam emaw hi hman dun theih a ni. Hei hi specialist doctor team-in an rel a, damlo dinhmun leh tumor awm dan ang chi thil tam tak ngaihtuah a ni.

Operation hnua harsatna awm thei te chu engte nge ni?

Surgery dang ang bawkin thluak surgery hnuah pawh harsatna a awm theihna chance tlemte chauh a awm. A tlangpui lo mah se, a chang chuan thil hmuh theih ṭhenkhat chu:

• Thluak a thisen chhuah emaw, a hring emaw.
• Ngaihtuah harsa, buaina emaw, delirium emaw.
• Lu na reng reng.
• Surgery hmuna natna hrik awm.
• Hriatrengna hloh emaw, tawng harsa emaw.

Heng thilte hi Doctor ten an hriattir lawk ang che.

He natna hi enkawlna thar siam chhuah a ni em?

Awle! Medical science hi ni tin hma a sawn zel a. Chuvangin, zirchianna chuan he natna enkawlna thar, hlawk zawk, ``choroid plexus carcinoma.`` hi a zawng chhunzawm zel a ni.`` Chung zinga ṭhenkhat chu zirchianna stage (``clinical trial``)-ah an la awm mai thei. Entirna tlemte chu hetiang hi a ni:

• Immunotherapy: Hei hi hmanraw ngaihnawm tak a ni. Mahni immune system (natna laka min vengtu system) tihchak a, cancer cell zawng chhuak leh tichhe thei damdawi pek a ni.
• Targeted therapy: Hei hian cancer thlentu genetic change bik target tu leh chu inthlak danglamna chauh nghawng thei damdawi pek a ni. Hei hian cell hriselte a tichhe tlem zawk a ni.

Heng enkawlna tharte hi i doctor nen inbiakna hmangin i hre belh thei ang.

Enkawlna hnua dam lehna chu eng ang nge ni?

Enkawlna hnua dam leh hun chhung, hnathawhna emaw, sikul emaw i kal leh theih hun tur pawh hi thil engemaw zatah a innghat a ni. Chung zinga ṭhenkhat chu hetiang hi a ni:

• I kum leh i hriselna zawng zawng.
• Tumor awmna hmun, a lian leh te, leh tumor engzat nge awm tih te.
• Chemotherapy emaw radiation therapy emaw ang chi enkawlna dang i dawng a nih chuan an nghawng dan.

Chuvangin, i doctor thupek dik taka zawm a pawimawh . Damna kalphung a kal tha em tih enfiah nan doctor-te chuan thluak `imaging` test (e.g. `MRI scans`) neihpui turin an ti fo ang che. I dam thuai theih nan engkim dik taka tih hi a pawimawh hle.

He natna hi eng prognosis nge ni?

He zawhna hi mi tam tak rilruah phurrit lian ber a ni. Choroid plexus carcinoma, chu chu dam leh theihna chance leh dam rei zawng hi mi hrang hrangah a inang lo hle. A nghawngtu thil pawimawh engemaw zat a awm a:

• Damlo kum (naupang te tan result a inang lo thei).
• Damlo hriselna dinhmun zawng zawng.
• Surgery neih laiin tumor pumpui lakchhuah a nih leh nih loh, a then chauh lakchhuah a nih pawhin. (Tumor hi lakchhuah vek theih a nih chuan a hmalam hun chu a tha tawk hle.)

Tin, heng thilte hian thlirna pawh a nghawng bawk:

• Surgery emaw, enkawlna dang emaw (`recurrence`) hnua tumor a lo let leh chuan.
• Cancer hi a awmna hmun atanga taksa peng dang, entirnan, ruhro (spinal cord)-ah a darh (metastasis) a nih chuan.

Mi zawng zawng hi an inang vek lo va, chuvangin i dinhmun a zirin i medical team-te hnenah eng nge beisei tur tih zawh hi a tha ber a, a dik ber bawk.

Statistically chuan choroid plexus carcinoma vei kum nga chhunga dam rei zawng zawng chu 40% leh 60% inkar a ni. Chumi awmzia chu he natna vei hmuhchhuah mi 10 zinga 4 atanga 6 te chu kum nga emaw a aia rei emaw an dam dawn tihna a ni. Mahse, a hmaa kan sawi tawh ang khan genetic condition Li-Fraumeni syndrome nei tan chuan he percentage hi 30 % vel a ni an ti .

Heng statistics te hian hlauthawng suh. Hengte hi averages chauh a ni. Mi tinte dinhmun, enkawl dan leh indona a inang lo. Medical science hmasawnna avang hian heng dinhmunte hi nitin a tha chho zel a ni.

Engtikah nge doctor kan hmuh tak tak ang?

Nangmah emaw i fa emaw hian a chunga kan sawi tak symptom pakhat emaw a aia tam emaw i neih chhunzawm zel a nih chuan, a bik takin a hnuaia mi hi i hmuh chuan hun khawhral lovin doctor thiam tak i pan ngei tur a ni :

• Nungchang inthlak danglamna chiang tak. Entirnan, buai thut, thinrim lutuk, buaina.
• Thâwk harsa.
• Kal harsa, balance hloh.
• Sudden seizures (`Seizures`) a awm.
• Lu na na tak, tuar theih loh.
• Mit emaw, tawng emaw a inthlak danglam nghal.

Doctor hnena zawh tur pawimawhte chu engte nge ni?

I doctor i hmuh hian i dinhmun chiang zawka i hriat theih nan hetiang zawhna hi i zawt thei ang. I rilrua thil awm zawng zawng zawh hlau suh:

• "Doctor, kei/ka fa hian eng thluak tumor chi nge kan neih chiah?"
• "Hemi atana enkawlna tha ber berte chu engte nge ni? Chung zingah chuan eng nge ka/ka fa tan a tha ber?"
• "Enkawlna hnuah eng side effect nge awm thei?"
• "Engzat nge kei/ka fa hian `imaging` scan ang chi test neih a mamawh ang?"
• "Hetiang dinhmun hi ka/ka fa hian engtin nge an thlir?"

Chhungkaw tan thu pakhat, a bik takin nu leh pa te hnenah...

I fa chu choroid plexus carcinoma a vei tih hmuhchhuah a nih chuan i khawvel pum pui a lo tlakbuak ang maia inhriat chu thil pangngai tak a ni. Engkim hi a thleng rang hle. Doctor team lian tak i hmu ang a, chung zingah chuan neurologist thar leh oncologist te pawh an tel ang. I calendar-ah hian test, doctor appointment leh surgery te a khat ang. A tir lama i rilru hahna hnuah chuan result a lo chhuah leh hun tur chu rei tak i nghah a ngai dawn a, a hnua i tih tur atan. He nghah hun hi a buaithlak hle thei a, a harsa thei hle bawk.

Mahse, chutih hun chhunga i fate nena hun tlemte i hman theih apiang chu a hlu a ni. A mut theih nan lullaby thar zir la, a duh ber cartoon emaw movie emaw en dun la, hlimna thlen thei tur thil thar in tih dun theih tur zawng chhuak rawh.

Tunah hian nun a harsa a, scan leh tur, test report lo awm tur ngaihtuah chungin. Mahse chu scan emaw report emaw chuan eng thil pawh tilang se, i lungkhamna leh hlauhnate chu dah bovin, i naute nena hun hlu tak i hman avangin i hlim thei reng a ni. Nangmah chauh i ni lo. Mi tanpui thei tur leh ngaithla thei tur che mi tam tak an awm.

A tawp berah chuan hriat reng tur pawimawh ber ber (Take-Home Message) .

Okay, chuti a nih chuan he hun rei tak chhunga sawiho tawh ``Choroid Plexus Carcinoma'' chungchanga i hriat reng tur pawimawh ber berte kha han khaikhawm ila?

• Choroid Plexus Carcinoma hi cancer chi khat, a tlem hle a, mahse a pung chak hle a , thluak tissue-ah a lo awm a, chu chu choroid plexus an ti a ni. A bik takin naupang leh nausen te a nghawng nasa hle .
• Mut tam lutuk, lu na reng, luak chhuak fo, seizure, emaw, a chhan hriat loh avanga mit lama harsatna nei ang chi symptom pakhat emaw a aia tam emaw i neih chuan hun khawhral suh la, doctor lam pan nghal rawh
• Enkawlna hman ber chu surgery, chemotherapy, leh radiation therapy te hi a ni . A châng chuan heng enkawlna pakhat aia tam pawh hman theih a ni.
• Hei hi zinkawng harsa leh harsa tak ni mah se, nangmah emaw, i chhûngkaw zînga mi tu emaw chuan hetiang dinhmun hi i hmachhawn a nih chuan, nangmah chauh i ni lo tih hre reng ang che . Hei hi i medical team, chhungte leh i thiante puihnain paltlang rawh. He inbeihnaah hian positive leh chak taka awm hi a pawimawh hle.

He thu hi i tan a tangkai ngei kan beisei. Mi zawng zawng tan hriselna tha!

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