I vun rawng leh i taksa ruhte a chak lo em? Dermatomyositis chungchang hi han sawi ila!

A chang chuan vun rawng mak tak tak i nei thin em? I taksa peng hrang hrangah pawh chak lo deuhin i inhria em? Dermatomyositis tih hming pu condition chungchang pawh i hriat a ngai mai thei. Natna hmuh tur awm lo tak a ni a, mahse fimkhur a phu hle.

Dermatomyositis hi eng nge ni?

A awlsam zawngin, dermatomyositis hi thil awm lo tak a ni a, i taksa ruhte a tichak lo va, eczema ang maia vun rawng a siam thin . Natna pawl lian zawk, myopathy an tih zingah a tel a ni. Chumi awmzia chu taksa ruh a nghawng tihna a ni. A châng chuan, a nasat chuan , thawk leh ei pawh a nghawng thei. Ngaihtuah teh, kan taksa ruh (muscles) te hian min che thei a, chuvangin a chhiat chuan a va harsa em.

Dermatomyositis hi taksa ruh natna dang polymyositis an tih chi khat a ni. Amaherawhchu, hetiang hunah hian ruh (muscles) bakah hian vun pawh a nghawng a ni. Chuvangin a hmingah hian ‘derma’ (vun nena inzawm) tih thumal hi dah a ni.

Heng symptoms te hi i neih chuan doctor pan vat a pawimawh. A then phei chuan heng symptoms te hi thla tam tak a la ngai thei. Mahse a chang chuan an rawn lang thuai thei hle. Enkawlna hi tan hmasak a nih chuan harsatna lian tham tak takte chu a tam zawkah chuan ven theih a ni.

A tlem hle nachungin, he natna, dermatomyositis , tia koh hi nunna atana hlauhawm tak a ni thei a, a bik takin a natna lan chhuah tirh atanga kum khatna chhungin. Cancer chi hrang hrang vei theihna a tipung tih hmuhchhuah a ni bawk.

Dermatomyositis leh Lupus hi eng nge an danglamna?

Dermatomyositis hi lupus leh autoimmune natna dangte nen pawh inang deuh deuh a ni. Mahse, mithiamte chuan dermatomyositis hi eng nge a thlen tih chiang takin an la hre lo. Chuvangin autoimmune condition anga classified a ni lo.

Tunah chuan lupus i vei chuan ruh natna, vun sensitivity leh eczema te i nei thei a, chubakah i chhungril lam (a bik takin i thluak, lung, kal leh thinlung)-ah harsatna i nei thei bawk. I symptoms te hi a flare up fo thei a, chutah chuan a reh thei a, chutah chuan wave angin a rawn let leh thei bawk – heng flare-ups te hi kan ti thin.

Mahse, dermatomyositis hi taksa chak lohna leh tissue thihna , vun natna nen a langsar hle. Thisen test, biopsies, leh imaging test hrang hrang hmanga hriat theih a ni.

Dermatomyositis emaw lupus emaw pawh nise, a rang thei ang bera hriatchhuah leh enkawl a pawimawh. Symptom thar i hmuh chuan doctor pan nghal rawh.

He natna hi tuin nge vei tam ber? Engtiang chiahin nge a hluar?

Dermatomyositis hian a takin tu pawh a nghawng thei a, mahse pawl thenkhatah chuan an vei tam zawk. Chung zingah chuan:

• Naupang kum 5 leh 15 inkar te.
• Puitling kum 40 leh 60 inkar.
• Hmeichhia.

Tin , hriat tur chu he natna hi a tlem hle . A vaiin kum khatah mi 100,000 zinga pakhat chauhvin he natna hi an vei thin. Chuvangin hei hi a tlem zia chu i hmu thei ang.

He dinhmun hian engtin nge i taksa a nghawng? Cancer vei theihna a awm em?

Dermatomyositis an tih hian i dam chhung zawng i taksa a nghawng thei a ni.

Ngaihtuah teh, hei hian i taksa ruhte nasa takin a tichhe a nih chuan i taksa peng pakhat chu i hmang dik thei lo emaw, i che thei lo emaw pawh a ni thei. Hei hi a lo thanglian theih nan kum tam tak a ngai tlangpui. Mahse mi thenkhat chuan midang aiin taksa chak lohna nasa tak an nei thuai thei.

Thil dang chu dermatomyositis hian cancer chi hrang hrang vei theihna a tipung tih hmuhchhuah a ni bawk .

Dermatomyositis leh cancer natna a awm bawk

Dermatomyositis vei zinga 15% vel chuan an naupan laiin cancer an vei thin. Dermatomyositis vei zinga cancer chi hrang hrang hmuh tam ber chu:

• Ovarian cancer a ni
• Lung cancer a ni
• Lymphoma natna a ni
• Hnute cancer a ni
• Colon cancer a ni

Chuvangin, i cancer hlauhawmna leh eng test nge i mamawh theih tih doctor nen inbiakna neih a pawimawh hle.

He natna lan chhuah dan engte nge ni?

Dermatomyositis chhinchhiahna lian ber leh langsar ber pahnih chu taksa ruh chak lohna leh vun rawng a ni.

Mi thenkhat chuan taksa ruh chak lohna leh vun vun natna pahnih hi a rualin an nei thei bawk. Mahse, a châng chuan chhinchhiahna pakhat chu a dang tel lovin kar tam tak, thla tam tak, a nih loh leh kum tam tak chhûng pawh a awm thei a ni.

Muscle chak lohna

Muscle chak lohna hian nitin thil engemaw tih a ti harsa thei che a ni. Entir nan:

• Thut ding chungin.
• Thut atanga tho tur (chair emaw sofa emaw atanga tho tur).
• Stairs ah chuan a chho ta a.
• Khum a mut atanga tho chhuak.
• I sam sil.

Hetiang thil awlsam tak tak i tih theih loh chuan i tanpui theih lohzia hi han ngaihtuah teh.

Eczema natna a awm

Dermatomyositis hian i vunah (a bik takin ni chhuahna hmunah ) a ti na thei a ni. Vun rawng a inthlak thei a, a hring thei bawk. He vun rawng hi a lo lang tam berna hmunte chu:

• Mitmeng leh mit vel.
• Chhung leh ke hmalam (a chang chuan ‘V-sign rash’ an ti).
• Kawng leh ke hnunglam (‘shawl sign rash’ an ti bawk).
• Luruh a ni.

Symptom dang a awm bawk

Tin, dermatomyositis hian natna lan chhuahna a thlen thei bawk a, chungte chu:

• Kut vun rawng danglam leh bumps te, a bik takin kut zungtang vel (a then chuan Gottron papules an tih) te.
• Calcium hi vun hnuaiah emaw, taksa ruh chhungah emaw, connective tissue-ah emaw a awm thin.
• Khup emaw, elbow emaw-ah lumps a awm.
• Nail vel vun a hrual leh nail tip-a thisen kalna hmuh theih te.
• Joint natna.

Mi thenkhat (a bik takin naupang te) chuan dermatomyositis an nei a, puitling an nih chuan an outgrow a, symptoms an nei leh ngai lo. Mahse, 80% vel chu a chronic a ni ta a – chu chu a lo let leh fo tihna a ni – dam chhung zawngin symptoms a thlen thin.

Eng thilin nge hei hi a thlen?

Mithiamte chuan dermatomyositis hi a chhan dik tak an la hre lo a, mahse a thlentu nia ngaih thil engemaw zat a awm a:

• Genetic factors: Zirna thenkhatah chuan dermatomyositis hi genetic disease a ni thei tih an sawi a, chu chu thlah kal zelah a kai darh thei tihna a ni.
• Autoimmune issues: Sawi tawh ang khan dermatomyositis hi autoimmune natna tam tak nen a inang a, taksa immune system hian tissue hrisel tak tak a bei thin.
• Viral infection: Mi thenkhat chuan virus infection an nei thei tih finfiahna engemaw zat a awm a, chu chu a reh hnuah pawh dermatomyositis an tih natna a thlen thei a ni.
• Environment factors: Zirchianna thenkhatah chuan boruak bawlhhlawh tamna hmun emaw boruak quality tha lo hmuna chengte chu dermatomyositis an vei tam zawk tih hmuhchhuah a ni bawk.

He natna hi engtin nge an hriat chhuah?

Dermatomyositis hi thisen test leh i vun leh taksa ruh atanga sample te te lak (biopsies) hmanga hriat theih a ni tlangpui.

I doctor chuan i thisen a test ang a, hetiang hian a hmu ang:

• Muscle chhiatna tilangtu muscle enzyme bik level sang tak a awm em tih.
• Autoantibodies hi immune system-in thil hlauhawm nia a hriat thil pakhat a chhanletna cell a ni.

Tin , vun biopsy lak a ngai thei bawk. I doctor pawhin i taksa ruh chhunga a hring awm leh awm loh enfiah turin muscle biopsy a la duh mai thei bawk.

Imaging test engemaw zat zinga pakhat i nei thei bawk. Heng test te hian i doctor chuan i taksa ruh, nerve, lung leh taksa peng dangte a enfiah thei a ni. Heng test te hian i symptoms te hi dermatomyositis vang emaw, harsatna dang vang emaw a nih leh nih loh hriat nan a pui thei a ni. Dermatomyositis hriat theihna atana imaging test hman tlanglawn ber berte chu:

• Magnetic Resonance Imaging (MRI) hmanga tihchhuah a ni.
• Chest X-ray neih a ni.

A then phei chuan i doctor chuan electromyography (EMG) tih test pawh a ti thei bawk. He test hian muscle emaw nerve emaw a tihchak hian electrical activity a teh thin.

Engtin nge enkawl a nih?

Dermatomyositis enkawlna atana hman theih thenkhat chu hetiang hi a ni:

• Corticosteroids: Hetiang damdawi chi hian i taksa ruh (muscle) a hring (swelling) a ti tlem a ni.
• Physical therapy: Physical therapy (leh exercise a tlangpuiin) hian i taksa ruh chhiatna chu a siam thar leh thei a ni. I taksa ruhte a chak poh leh dermatomyositis avanga chhiatna chu an tuar thei zawk ang.
• Immunosuppressant damdawi: Heng damdawi te hian i immune system hian cell leh tissue hrisel tak tak a beih loh nan a titawp thin. I taksa defense system-in i taksa ruh a tihchhiatna chu an tihtlem thei a ni.
• Intravenous immunoglobulin (IVIg): IVIg hi i thisen plasma-a supplement a ni a, hei hi immunoglobulin component a ni a, i thisenah a pianphungah a awm a ni. IVIg enkawlna hi immunosuppressive damdawi nena hman dun theih a ni a, enkawlna dang angin pek theih a ni bawk.
• Speech therapy: I kawr chhung emaw, a chhehvel emawa taksa ruh chak lohna i neih chuan speech therapy hian i kawr chhunga thau te chu a tichak thei a, chu chuan ei tur i ei theih nan a pui thei a ni.

I mamawh enkawlna chi chu i natna lan chhuahna hmun leh a nasat danah a innghat ang. I doctor nen eng nge i beisei tur tih leh engtikah nge enkawlna thenkhat a mamawh theih ang tih sawipui rawh.

Engtin nge symptoms te hi kan enkawl ang?

Dermatomyositis symptoms enkawl hi hun rei tak chhunga tih tur a ni mai thei – i dam chhung zawng pawh a ni mai thei.

• I doctor, physical therapist, a nih loh leh speech therapist-in exercise a pek che chuan, a tih ang chiah khan ti rawh, vawi engzat nge an hrilh che. Hei hian i taksa ruhte chu a chak thei ang bera awm tir turin a pui ang.
• Damdawi chu doctor-in a tih ang chiah chiah, a hun chhung zawng zawng ei tur a ni.
• UV rays laka inhriat loh tur. Ni chhuahnaah i hun hman tlem la, indoor tanning bed hmang lo la, pawn lama i awm laiin in chhungah emaw, thlamuang takin emaw awm rawh.
• I chhuah dawn tih i hriat apianginSunscreen hmang rawh. I sunscreen hian SPF 50 tal a neih ngei ngei tur a ni a, darkar hnih danah hnawih leh thin ang che.

Dermatomyositis i vei chuan doctor pan fo a pawimawh. I natna lan chhuah dan a enfiah thei a, i taksa ruh emaw, i vun emaw a danglamna a awm leh awm loh a enfiah thei bawk.

He natna nen hian eng nge i beisei theih ang?

Dermatomyositis hi damdawi nghet tak a awm lo a, chuvangin i dam chhung zawnga i natna lan chhuah dan tur i enkawl theih beisei theih a ni.

Enkawlna nei pawhin mi 80% velin chronic dermatomyositis (a then chuan polycyclic dermatomyositis an ti) an nei thin . Hei hian i dam chhung zawngin i symptoms te chu a lo thleng thei tihna a ni. I natna lan chhuahna a zual zel tih i hriat veleh doctor pan rawh.

Dermatomyositis vei hmun thuma ṭhena hmun hnih vel chuan taksa ruh tihchhiat vangin taksa lama harsatna eng emaw tak an nei ṭhin.

Dermatomyositis hi he natna vei hmuhchhuah zinga 5% velin an thihpui thei a ni. He hlauhawmna hi a bik takin natna hmuhchhuah kum khatnaah a sang hle. Mahse, dermatomyositis vei zinga 20% vel chu hun rei tak chhunga remission-ah an kal thin. Hei hian symptom nei lovin rei tak an khawsa thei tihna a ni.

Symptom thenkhat leh thil dangin thihna a tipung thei a ni. Entirnan:

• Thla ruk aia tam enkawlna a tlai chuan.
• Kum 60 aia upa i nih chuan.
• Symptom na tak tak i neih chuan.
• I rilruah, i lungah emaw, i thinlungah emaw symptom i neih chuan.
• Cancer i neih emaw, a thar a lo awm emaw chuan.

Engtikah nge doctor i hmuh ang?

I taksa ruh chak lohna thar i hmuh chuan, a bik takin vun rawng i neih chuan doctor pan nghal rawh. Dermatomyositis i hmuhchhuah hma chuan enkawlna i tan hma thei ang. Hei hian natna lan chhuahna na tak leh harsatna dang a thlen theihna a ti tlem thei a ni.

Tin, i natna lan chhuah dan leh i taksa ruh emaw vun emaw a inthlak danglam dan enfiah turin doctor i hmuh fo tur tih zawt bawk ang che.

I doctor hnenah eng zawhna nge i zawh tur?

Hetiang natna chungchang kan hriat hian zawhna neih hi thil pangngai tak a ni. I doctor hnenah zawhna i zawt thei ang:

• Dermatomyositis emaw, natna dang emaw ka nei em?
• Eng ang test nge ka tih ngai?
• Eng ang enkawlna nge ka mamawh a, eng chen nge a daih ang?
• Cancer screening ka mamawh dawn em?

Dermatomyositis ang chi natna i nei tih i hriat chuan hlauhna tak tak i neih hi thil pangngai a ni.Nun chhung zawnga natna hlauhawm tak, thihna thlen thei dinhmun hriat chu thil mak tak a ni. Mahse, step khat khatin la rawh. I natna hmuhchhuah hma chuan enkawlna i tan hma thei ang.

I enkawl dan tur ruahmanna leh symptom management journey chungchang i doctor nen sawiho rawh. Ani chuan a hnua i beisei tur leh i dermatomyositis symptoms a zual zel a nih chuan inbuatsaih nan eng inthlak danglamna nge i tih tur tih a sawifiah ang.

Thil hriat reng tur tawi te tein

Dermatomyositis hi natna hmuh tur awm lo tak a ni a, taksa ruh chak lohna leh vun vun rawng a siam thin.

• Hei hi tu chungah pawh a lo awm thei a, mahse naupang kum 5-15 inkar, puitling kum 40-60 inkar, leh hmeichhiaah a tam zawk.
• Symptoms i hriat veleh doctor thurawn lak a pawimawh hle. Enkawl vat chuan harsatna a tihziaawm thei.
• Hei hi damdawi nghet awm lo mah se, a natna lan chhuah dan chu enkawl leh enkawl dan hmangin a thunun theih a ni.
• I cancer hlauhawmna chungchang pawh i doctor nen sawiho bawk ang che.
• Lungngai suh, nangmah chauh i ni lo. Doctor leh i hmangaih tak takte puihnain he dinhmun hi i tuar chhuak thei a ni.

` Dermatomyositis, taksa ruh chak lohna, vun natna, vun natna, autoimmune natna, cancer hlauhawmna, taksa enkawlna