I fa lei chu an hmui aiin a lian zawk em? Macroglossia chungchang hi han sawi ila!

Mi thenkhat, a bik takin naupang tê tête hian an kâ aia lei lian zawk an nei tih i hre ngai em, i hre ngai em? A châng chuan kâ a\angin lei a rawn chhuak tih i hmu thei bawk. Hei hi medical science-a `Macroglossia` kan tih chu a ni. A hming hi thil lian tak angin a ri mai thei, mahse hlau suh. Vawiin hian he thu hi i hriatthiam theih tur awlsam takin kan sawi dawn a ni.

Chuti a nih chuan, ‘Macroglossia’ hi eng nge ni tak tak? Engtin nge i hriat?

A awlsam zawngin sawi ila, `Macroglossia` hi hmui lian leh te nena inzawm chuan lei lian lo tak a ni. Naupang tê têah a tam ber a, mahse puitlingah pawh a awm thei. A tam zawkah chuan pianpui a ni. Chu chu, `Beckwith-Wiedemann syndrome` emaw `Down syndrome` emaw ang chi genetic condition thenkhat nen a inzawm tihna a ni. Tin, `Macroglossia` hi cancer chi hrang hrang avang te, natna khirh tak avang te, a hnu lama awm vang pawh a ni thei bawk.

‘Ka fa lei hi a lian deuhin a lang a, hei pawh hi a nei em tih ka hre lo’ tiin i ngaihtuah mai thei. Chuvangin, heng symptoms te hi ngaihven rawh:

• Kawngkhar atanga lei chhuak reng reng: Hei hi a lan chhuah dan ber leh langsar ber a ni. Lei chu ka chhunga awm reng theihna tur hmun a awm lo ang mai a ni.
• Thâwk lak harsatna: 1.1.
• A châng chuan i thawk chhuah laiin thawm ri nasa tak, ri sang tak i hre thei a , mi pakhatin a bengchheng ang mai a ni. Damdawi lamah chuan hei hi `stridor` kan ti a.
• A nih loh leh, bengchheng ri nen i thawk thei a , a bik takin mut laiin. Hei hi `stertor` an ti a.
• Chaw ei harsa (dysphagia): Lei lian tak chuan chaw ei tur dik taka chelh, ei leh ei that a ti harsa thei hle. Nausen naupangte chuan nu hnute hmin emaw, bottle atanga in emaw pawh an harsat thei. Chaw ei laiin an chhak ang maiin an inhria thei bawk.
• Drooling: Lei a lian lutuk a, hmui a khar tha thei lo a nih chuan hmui a chhuak fo thei. Pillow chu chil in a hnim tih i hmu mai thei.
• Thusawi harsa: Thusawi lam leh fiah taka sawi chu a harsa thei hle. Hei hi a chhan chu lei hi organ a nih avangin thusawi kawngah nasa takin a pui a ni. Letter i lam thiam loh chuan i thusawi chu a rilru a buai thei hle.

Hriat tur pawimawh tak chu i fa hian heng symptoms pakhat emaw a aia tam emaw a neih chuan Macroglossia a ni thei. Mahse, heng chhinchhiahnate hi damdawi lam dinhmun hnuaia awm pakhatah pawh a tel thei tih hriat reng a pawimawh .

Hei hi natna tlanglawn tak a ni em tih i ngaihtuah mai thei. Dik tak chuan `Macroglossia` hi a awm lo hle. Mi engzat nge nei tih chiang taka sawi a har khawp mai. A chhan chu natna dang chhinchhiahna anga a lan fo vang a ni.

Engvangin nge he `Macroglossia` hi a lo awm? A chhante chu engte nge ni?

Macroglossia hi a chhan hrang hrang a awm. A tlem hle a, mi thenkhat chu hriselna lama harsatna dang nei lovin lei lian tak neia piang an ni. Mahse, damdawi lam dinhmun hnuaia awm (underlying medical condition) chhinchhiahna anga lo awm hi a tam zawk. Heng zinga ṭhenkhat hi pianpui (genetic) a ni thei a, ṭhenkhat erawh chu dam rei zawka lo awm, damdawi lam natna avanga lo awm thei a ni. Surgery leh damdawi lam enkawlna thenkhatah pawh macroglossia a awm thei bawk.

Heng chhante hi eng nge ni tih i lo en ang u.

Congenital (genetic) condition te hi engte nge ni?

He natna hi ``Macroglossia'' tia koh hi genetic disease engemaw zat nen a inzawm a ni. Chung zinga ṭhenkhat chu hetiang hi a ni:

• Beckwith-Wiedemann syndrome: Hei hi naupangte thanlenna tichhe thei natna a ni. Chutah chuan naupang taksa lian leh te, chhungril lam chu a pangngai aia lianin a lo lian ta a ni. Tin, naupang he natna vei te hi naupang cancer thenkhat vei theihna a sang hle bawk. A pawimawh ber chu Beckwith-Wiedemann syndrome vei naupang 90% vel chuan macroglossia an nei a, chu chu lei lian tihna a ni.
• Hurler/Hunter syndrome - mucopolysaccharidosis: Hei hi natna chi khat a ni a, kan taksain sugar molecule a tihchhiat dan a nghawng a ni. Hetiang dinhmunah hian lei pawh a lian thei bawk.
• Down syndrome: Hei hi i hre tawh mai thei. Down syndrome vei naupang hi extra chromosome neia piang an ni. Hei hian an thluak leh taksa hmasawnnaah danglamna a thlen thei a, taksa leh rilru lama harsatna a thlen thei a ni. Macroglossia hi Down syndrome natna vei tam tak a ni bawk.

Acquired condition te chu engte nge ni?

A châng chuan, nau piang laia awm lo damdawi lam thil ṭhenkhat avângin lei chu a lian thei a ni. Entirnan, metabolic emaw endocrine natna emaw, hypothyroidism ang chi condition emaw, diphtheria ang chi infection emaw avanga lo awm thei a ni.

Chutiang dinhmun thenkhat chu hetiang hi a ni:

• Amyloidosis: Hei hi protein pakhat nena inzawm natna a ni. Hetah hian he protein hi tissue leh organ-ah a awm a, chu chuan hna a thawk tha thei lo. Ka chhunga Amyloidosis natna lan chhuahna ber chu Macroglossia a ni.
• Hypothyroidism natna: 1.1.Hei hi a awm dan tlangpui a ni. Heta thil thleng chu i thyroid gland hian thyroid hormone a siam chhuak tlem a, thisenah a chhuah tir a ni. Hei hian i metabolism a ti slow hle. Hypothyroidism hi macroglossia thlentu a ni a, a bik takin naupangte zingah hian a awm fo thin.
• Acromegaly: Hei hi natna awm lo tak a ni. Heta thil thleng hi i taksain growth hormone a siam tam lutuk hi a ni. Acromegaly vei te hian lei, hmui, kut leh ke lian lo tak tak an nei a.
• Diphtheria: Hei hi hri kai theih a ni. Hei hian lei a ti na thei bawk.

Eng tumor chi nge macroglossia thlentu?

Macroglossia hi benign leh cancerous tumor thenkhat chhinchhiahna a ni thei bawk.

• Lymphangioma: Hei hi cancer ni lo, lymphatic system-a lo awm a ni. Ka chhunga mucous membrane-ah fluid-filled lumps a siam thei a, chu chuan lei a ti lian thei bawk.
• Hemangioma: Hengte pawh hi cancer nei lo tumor an ni bawk. Thisen kalna atanga siam an ni.
• Lymphoma: Hei hi cancer a ni a, lymphatic system a nghawng a ni.

Engtin nge doctor-te hian he natna hi dik taka an hriat theih?

Nang emaw i fa emaw doctor i hmuh chuan an tih hmasak ber tur chu taksa enfiahna a ni . Hei hian lei, lu leh kawrte ngun taka enfiah a huam ang. Chumi hnuah chuan macroglossia leh a chhan awm thei thil awm thei zawng zawng hriat theihna turin test eng emaw zat an nei thei a ni.

Chutiang test thenkhat chu:

• `CT Scan` (Computed Tomography - CT scan): Hei hian X-ray leh computer hmangin i emaw i fa emaw hmui, lu leh kawr atanga three-dimensional (3D) image chiang tak lak a huam a ni. Hei hian a chhunga thil awmte chu a hriat chian zawk theih phah a ni.
• Magnetic Resonance Imaging (MRI) scan: Hei hi natna nei lo test a ni a, magnet lian tak, radio wave leh computer hmangin taksa chhunga taksa peng leh thil awmte chu chiang takin a la thei a ni.

Heng test atanga information an hmuh atang hian doctor-te chuan macroglossia awm chhan leh a enkawlna tur dik ber an hre thei a ni.

He natna ‘Macroglossia’ an tih hi enkawl nan eng nge tih theih ang?

A châng chuan mak tak maiin naupang ṭhenkhat, an naupan laia macroglossia vei te, an lo puitlin chuan an hmai ruhte chu a lo ṭhang lian a, chu chuan lei chu ka chhungah a luh theihna tur hmun a siamsak a, he dinhmun hi a mah chauhin a ṭha chho ta a ni. Taksa nena inmil suit ang bawkin hmui pawh hi lei nena inmil turin a lo thang lian thin.

Mahse, hei hi a ni reng reng lo. Doctor-te chuan macroglossia an enkawl hian a chhan bulpui (underlying condition) chu an hmuchhuak hmasa a, an enkawl hmasa thin. Chumi hnuah chauh chuan macroglossia symptoms chu an enkawl thei a ni.

Macroglossia enkawlnaah hian:

• Damdawi: Lei hring hring tihziaawmna turin damdawi corticosteroid ang chi hi pek theih a ni.
• Orthodontic treatment: Lei lian takin ha awmna hmun a nghawng a nih chuan he enkawlna hian a siamthat theih nan a pui thei a ni.
• Surgery: Thil engemaw takah chuan, a bik takin thawk harsa emaw, ei harsa emaw ang chi harsatna na tak a awm chuan lei lian leh te tihtlem nan operation neih a ngai mai thei. Mahse, macroglossia vei zinga 10% vel chauhvin operation an mamawh a ni.

Ka fain macroglossia a vei theihna chu ka tihtlem thei ang em?

A tam zawkah chuan macroglossia hi pianpui a ni a, chu chu genetic condition nen a inzawm tihna a ni a, chuvangin a venna tur engmah kan ti thei lo. Amaherawhchu, a châng chuan natna hrik kai avâng pawh a ni thei a, chuvangin chutiang hri kai laka invênhimna chuan he hlauhawmna hi eng emaw chen a tihziaawm thei a ni. Entirnan, diphtheria ang chi natna laka vaccine lak a pawimawh.

Ka fa hian Macroglossia a vei a nih chuan eng nge ka beisei ang?

Tunah chuan macroglossia hi a tlangpuiin harsatna hnuaia awm chhinchhiahna a ni tih kan hre ta a, chu chu pianpui natna emaw, natna dang emaw pawh ni se. Chuvangin, a pawimawh ber chu chu dinhmun hnuaia awm chu hriatchhuah leh enkawl hi a ni.

I fa hian macroglossia a vei a nih chuan a chhan bulpui (underlying condition) chu enkawlna a dawng tawh mai thei. I ngaih pawimawh ber tur chu chu enkawlna ruahmanna zawm chu a ni tur a ni. Hemi chungchang hi i doctor nen sawiho rawh. I beisei tur leh engtikah nge i hmuh leh tur tih a hrilh ang che.

Doctor hnenah eng zawhna nge ka zawh ang?

I fain macroglossia a neih chuan zawhna tam tak i nei ngei ang. Engvangin nge hetiang hi a lo awm tih leh enkawlna atanga beisei tur eng nge ni. I doctor zawh theih tur zawhna thenkhat chu hetiang hi a ni:

• `Macroglossia` tih hi eng nge ni tak tak?
• Chu chuan engtin nge ka fa chu a nghawng ang? Nitin nun a nghawng dawn em ni?
• Engvangin nge ka fa hian `Macroglossia` a neih? A chhan bulpui ber chu eng nge ni?
• Eng enkawlna nge i rawt? Chu enkawlnate chu engtiang chiahin nge a hlawhtlin?
• Eng chen nge enkawl a nih dawn? Eng side effect nge ka beisei theih ang?
• In lama ka naute enkawl dan bik a awm em? (e.g. chaw pek, muttir) .

Heng zawhnate hi zawh hreh ngai suh. I rinhlelhna zawng zawng tihfai a pawimawh hle. Doctor chuan engkim a hrilhfiah ang che.

A tawp berah chuan thil hriat reng tur (Take-Home Message) .

Macroglossia emaw, lei lian zawk emaw hi a hlauhawm deuhin a ri thei. Mahse, a hnuaia damdawi lam dinhmun chhinchhiahna a ni fo. A pawimawh ber chu hlauthawng lova, damdawi lam pan vat hi a ni.

• I fate lei chu a danglam bik taka lian nia i ngaih chuan, emaw, kan sawi tawh ang chi natna lan chhuahna an neih chuan naupang doctor emaw, beng, hnar leh beng (ENT) surgeon emaw pan rawh.
• Macroglossia hi a chhan bulpui hriatchhuah a, a dik taka enkawl a, control theih a ni.
• Naupang thenkhat tan chuan he dinhmun hi an lo puitlin chuan a mah chauhin a lo tha chho thei a ni.
• Doctor-te thupek ngun taka zawm a, naupangte mamawh puihna leh hmangaihna pek hi a pawimawh hle.

Nangmah chauh i ni lo tih hre reng ang che. Nu leh pa dang pawhin hetiang dinhmun hi an tawk ve bawk. Damdawi lam kaihhruaina dik leh i inpekna nen chuan i fa tan rah tha ber i hmu thei ang.

`Macroglossia, Lei lian, Naupang lei, Thâwk harsa, ei harsa, Macroglossia, Beckwith-Wiedemann syndrome, Down syndrome, Lei lian, Lei natna