Ina whiwhi koe i te maimoatanga whai muri i te tātaritanga o te mate pukupuku B-Cell Lymphoma, i tētahi rā ka mea tō tākuta, "Kei roto koe i te 'whakamaramatanga'." He kupu whakamarie, he kupu tumanako hoki tēnā. He tohu nui tēnei i roto i tō haerenga maimoatanga. He kupu ngāwari noa iho, ko te tikanga kua kore tō mate pukupuku e kaha, kua wehe atu rānei i tō tinana.
He aha ngā momo 'murunga'?
Mā tō tākuta koe e kī atu kei te 'whakaora' koe mēnā ka kitea e ngā matawai kua tino heke te mate pukupuku i roto i tō tinana, kāore rānei he tohu o te mate pukupuku e kitea. E rua ngā momo matua o tēnei. Me titiro tātou he aha ēnei.
| Momo murunga | He aha te tikanga o tēnā? |
|---|---|
| Whakakorenga Wāhanga | Ko te tikanga o tēnei he iti ake tō mate pukupuku lymphoma pūtau-B i tō mua, engari kei roto tonu i tō tinana. Ko te tikanga o tēnei kua memeha haere te haurua o te mate pukupuku. |
| Murunga Katoa | I tēnei āhuatanga, kāore e kitea e tō tākuta tētahi tohu o te mate pukupuku i roto i ngā matawai, i ētahi atu whakamātautau rānei. Heoi anō, tera pea kei te toe tonu ētahi pūtau mate pukupuku i roto i te tinana. Engari he iti rawa , kāore e taea te kite i roto i ngā whakamātautau. |
Kei te ngana ngā tākuta katoa kia tino ora tō tinana. Mō ētahi momo lymphoma, he nui te tūponotanga ka tutuki taua whāinga. Engari mō ētahi atu momo, ahakoa he ora hapa noa iho, ka kiia he angitu nui.
Ko te tikanga o te 'murunga hara' kua ora katoa koe?
Anei tētahi mea tino nui. Ahakoa kei roto koe i te 'whakamaaramatanga', tera pea ka hoki mai tō lymphoma. Engari nā te mea kāore te mate pukupuku e kaha ana i taua wā, tera pea ka taea e koe te whakamutu i te maimoatanga, te okioki rānei i te maimoatanga.
Kāore e taea e tetahi te kī kia pēhea te roa o te murunga hara , koia te take me aroturuki tonu koe me tō tākuta i tēnei.
Nā reira, me haere tonu koe ki te kite i tō tākuta mō ngā whakamātautau kia mōhio ai kāore tō lymphoma e tipu anō, e hoki mai anō rānei. Ko ētahi tākuta e whakamahi ana i te kupu "cured" mō ngā tūroro kua 5 tau neke atu rānei e noho ana i te wā e marino ana.
Mō ētahi tāngata, kāore te lymphoma e memeha rawa. Ka huri hei mate mau tonu, pērā i te mate huka, te mate rumatiki rānei. I roto i ēnei āhuatanga, me haere tonu pea koe ki te tango i tētahi momo maimoatanga hei aukati i te horapa o te mate pukupuku me te whakahaere i ō tohumate.
Me pēhea te tirotiro a te tākuta mō te hokinga mai o te mate pukupuku? (Te hokinga mai o te mate pukupuku)
Ka tirotirohia koe e tō tākuta mō ngā tohu o te hokinga mai o te lymphoma (ka hoki anō). Mēnā ka puta tēnā, me tīmata anō te maimoatanga.
I te tīmatanga, me toro atu koe ki tō tākuta i ia torutoru marama. Engari i te mea ka noho kore mate pukupuku koe mō ngā marama, mō ngā tau rānei, ka heke pea te auau o ngā tirotiro hauora.
I ia wā, ka tirotirohia koe e te tākuta, ka pātai atu mēnā he tohu hou kei a koe. Tērā pea ka whakahaerehia e rātou he whakamātautau toto, ā, i ētahi wā he matawai CT , he matawai PET rānei.
Mena ka kitea he tohu o te mate pukupuku i roto i ēnei whakamātautau, ka mahia he koiora hei whakaū mēnā kua hoki mai anō te lymphoma. I roto i tēnei whakamātautau, ka tangohia e te tākuta tētahi wāhanga iti, te pūnga katoa rānei o te pūnga lymph, ka tukuna ki te taiwhanga hei tirotiro mō ngā pūtau mate pukupuku.
He aha ngā tohu o te hokinga mai o te mate?
Ka puta ngā tohu ina hoki mai anō te mate pukupuku pūtau-B (ka hoki anō). Tērā pea he rite tonu ō tohu ki tō te wā tuatahi i pangia ai koe e te mate, tērā pea he rerekē ō tohu i tēnei wā.
Ko te mea nui, ka taea hoki ēnei tohu te puta mai i ētahi atu mate. Hei tauira, ko te kirika me te pupuhi o ngā repe he tohu pea nō te mate urutā, pērā i te rewharewha. Nō reira kaua e mataku kua hoki mai te mate pukupuku nā te mea kua pāngia koe e ēnei tohu. Engari ki te kite koe i tētahi mea pēnei, he pai ake kia kite i te tākuta me te tirotiro.
| Ngā tohu noa o te hokinga mai o te lymphoma | |
|---|---|
| Ngā kōpuku lymph pupuhi (ngā tohu) | Te pupuhi o te kaki, o ngā kēkē, o te uma rānei. |
| Kirika | Te kirika e puta mai ana, kāore he take motuhake. |
| Te werawera o te pō | Nui rawa te werawera i te pō, ā, mākū ana ngā whāriki moenga. |
| Mahi uaua | Te ngenge nui rawa atu, nui atu i te mea noa. |
| Te whakahekenga taumaha | Te whakaheke taumaha koretake, me te kore he kaha. |
He aha ngā maimoatanga mō te hokinga mai o te mate?
Tērā pea ka tūtohu tō tākuta kia whakahokia te maimoatanga kotahi i hoatu ki a koe i mua, ka tūtohu rānei i tētahi maimoatanga hou. Ka whakawhirinaki te maimoatanga ka whiwhi koe ki ētahi āhuatanga.
- Te momo lymphoma pūtau-B kei a koe.
- He aha ngā maimoatanga kua riro i a koe i mua, me te angitu o aua maimoatanga.
- He aha ngā pānga taha i pā ki a koe i ngā maimoatanga o mua, me te nui o te raruraru i pā ki a koe.
- Ngā hua o āu whakamātautau.
- Ō tohumate.
- Kia pēhea te roa mai i tō maimoatanga whakamutunga?
Ko ngā maimoatanga mō te hokinga mai o te lymphoma ka uru pea ki:
- He momo rerekē o te chemotherapy i tō te momo o mua.
- Te rongoā irahiko .
- He whakawhitinga pūtau take .
- Ngā raau taero kua arotahihia .
Hei tāpiritanga, ka tūtohu pea tō tākuta i te rongoā ārai mate . Hei tauira:
- Ngā paturopi monoclonal
- Te rongoā pūtau-T CAR
He maha ngā wā, ko te maimoatanga e hoatu ana ina hoki mai te mate ka paku kaha ake i te maimoatanga i hoatu i te wā i kitea tuatahitia ai koe he mate pukupuku pūtau-B.
Karere Tangohia ki te Kāinga
- He tino pai te taahiraa 'whakamāmā' i roto i tō haerenga maimoatanga matepukupuku. Ko tōna tikanga kua kore te matepukupuku e kaha, kua iti rānei tōna rahi.
- E rua ngā momo 'Mutunga': 'Wāhanga' me te 'Katoa'.
- Ko te 'whakamarama i te mate' ehara i te mea ko te tikanga kua "ora katoa." Nō reira, he mea nui kia kite i tō tākuta i te wā tika mō ngā whakamātautau whai muri.
- Ki te puta anō ngā tohu pēnei i te kirika me te pupuhi o ngā kōpū waikura, kaua e mataku, engari kaua e whakahawea, me toro atu ki tō tākuta tonu mō ētahi tohutohu.
- He waimarie, ahakoa ka hoki anō te lymphoma (ka hoki anō), kei reira anō ngā maimoatanga whai hua mō tēnā. Nō reira kaua e mutu te tumanako.
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