Kua pāngia koe e tētahi puku, e tētahi tipu rerekē rānei i raro i te kiri o tō waewae, o tō ringa rānei, kāore e memeha? Tērā pea kāore e mamae ina pēhia. Engari, ki te mea kei te rahi haere, he mea pea hei āwangawanga māu. I tēnei rā ka kōrero tātou mō tētahi mate pukupuku onge ka puta he tohu rite, engari he mea tika kia mōhio koe ki tēnei. Ko tōna ingoa ko te Clear Cell Sarcoma .
He aha te Clear Cell Sarcoma?
He whakarāpopototanga noa iho, he momo matepukupuku tino onge te sarcoma pūtau mārama e puta ana i roto i ngā kiko ngohengohe . Ka taka ki roto i tētahi kāwai e kiia nei ko te sarcoma . I te nuinga o te wā, ka tīmata ēnei matepukupuku i roto i ngā uaua , arā, ngā kiko e hono ana i ngā uaua ki ngā wheua, me ngā kiko ngohengohe e karapoti ana i ngā uaua, i roto i ō waewae, inā koa ō waewae.
Pērā i ētahi atu momo mate pukupuku, he māmā ake te rongoā i te sarcoma pūtau mārama mēnā ka kitea i mua i te horapa ki ētahi atu wāhanga o te tinana. Ka rongoāhia tēnei mate e ngā tākuta mā te pokanga , ā, mēnā e tika ana , mā te rongoā irahiko me te chemotherapy i ētahi wā. Engari, ahakoa i muri i te rongoā, he nui te tūponotanga ka hoki anō te mate. Koia te take e rapu tonu ai ngā kairangahau hauora i ngā huarahi hou hei rongoā i te sarcoma pūtau mārama.
He aha te pānga o te sarcoma pūtau mārama ki tōku tinana?
He maha ngā wā ka tīmata te sarcoma pūtau mārama i roto i ngā kiko ngohengohe hohonu e karapoti ana i ō uaua me ō uaua, i roto rānei i tētahi paparanga kiko e kiia nei ko te fascia . He rite te fascia ki tētahi whitiki e takai ana i ngā hanganga katoa o tō tātou tinana.
I te tīmatanga, kāore pea koe e kite i tetahi mea. Engari ka kite koe i te tipu o te mate pukupuku, ā, ka huri hei puku ka taea te rongo i raro i te kiri o tō waewae, o tō waewae rānei. Tērā pea ka rite tēnei puku ki tētahi puku e puta mai ana ina pā kino koe ki tō waewae, ki tō waewae rānei, engari ko te rerekētanga nui ko te kore e mimiti haere tēnei puku i roto i te wā . Ka tino puhoi te tipu o te sarcoma pūtau mārama. Heoi, i te wā kua horapa mai i ō kiko ngohengohe hohonu i raro i te kiri, kua tīmata pea te horapa ki ētahi atu wāhanga o tō tinana.
Whakaarohia, ka puta he puku iti ki tō waewae, ā, kāore koe e aro atu, me te whakaaro, "Āe, kua tupu noa tēnei." I muri i ngā wiki, i ngā marama rānei, kei reira tonu, tera pea he nui ake. Mēnā koinei te āhua, he pai rawa atu te rapu tohutohu hauora.
Kei hea te horapa o te sarcoma pūtau mārama?
Ka taea e te sarcoma pūtau mārama te horapa ki ētahi atu wāhanga o te tinana, ko te nuinga:
- Tō pūnaha nakunaku (ara nakunaku)
- NāuKi ngā pukahukahu
- Ko tō pūnaha lymphatic , arā, ko ngā pona lymph me ngā oko lymph i roto i tō tinana.
He āhuatanga noa tēnei?
Kāo, kāore rawa. He momo mate pukupuku tino onge tēnei. Inaa, he momo mate pukupuku onge anō hoki te sarcoma. Hei tauira, i te Hononga o Amerika, tata ki te 1,600 ngā tāngata e kitea ana he sarcoma i ia tau. He tau iti tēnei, tata ki te 1% o ngā mate pukupuku katoa i roto i ngā pakeke. Ko te sarcoma pūtau mārama, he 1% noa iho tēnei o ngā sarcoma katoa. Nō reira, ka taea e koe te whakaaro he aha te onge o tēnei.
Ko wai te mea ka nui ake te tūponotanga ki te pāngia e te sarcoma pūtau mārama?
Ahakoa ka taea te whakawhanake i te sarcoma pūtau mārama i ngā tau katoa, ka kitea pinepine i roto i te hunga rangatahi i waenga i te 15 me te 40 tau te pakeke , inā koa ko te hunga kei roto i ō rātou tau 20 me te 30.
He aha ngā tohu o te sarcoma pūtau mārama?
E ai ki tā tātou i kōrero ai i mua, ko te tohu tino kitea ko te puku e kore e ngaro i raro i te kiri o tō waewae, o tō waewae rānei . Tērā pea ka mamae, ka kore rānei e mamae tēnei puku. Engari, ki te mea kei reira tonu, ā, e ahua ana kei te nui haere, he tohu nui tēnā.
Hei tāpiri, ka puta pea ngā tohu e whai ake nei i muri mai:
- Te ngenge nui rawa atu mō te kore take
- Te whakahekenga taumaha kāore i te whakamāramahia
- Te werawera o te pō
He aha te take o te sarcoma pūtau mārama?
He ahua uaua tēnei. Kua kitea e ngā kairangahau hauora ko te sarcoma pūtau mārama te take o te whakawhitiwhiti wāhi o ngā wāhanga o ngā ira e rua i roto i ngā pūtau o tō tātou tinana, ka hangaia he ira hou kua hanumi .
Hei whakarāpopototanga, koinei te mea ka tupu:
Ina wehea ngā pūtau o tō tātou tinana, i ētahi wā ka whati ngā ira e rua, ā, ka whakawhitiwhiti ngā wahi pakaru tetahi ki tetahi. I tēnei wā, kei roto i ngā wāhanga ira e whakawhitihia ana ngā ira e kiia nei ko EWSR1 me ATF1 . Te āhua nei he mea nui te pūmua i hangaia e te ira EWSR1 mō te mahi a te pūtau. Ka āwhina te ira ATF1 ki te whakahaere i te tipu o te pūtau. Ina hoki mai ēnei ira, ka mutu ngā wāhanga ira kua whakawhitihia ki ngā wāhi hē. Ka kiia tēnei e ngā tākuta he whakawhiti tauutuutu . Kāore anō kia mōhiotia te take tuturu o tēnei.
Kia whakawhitia ki tētahi ira hou, ka huihui ngā ira kua whakawhitia hei hanga i tētahi ira kua hanumi e kiia nei ko EWSR1/ATF1 . E whakapono ana ngā kairangahau ko tēnei ira kua hanumi te tino take o te sarcoma pūtau mārama.
Me pēhea te tautuhi a ngā tākuta i te sarcoma pūtau mārama?
Ina haere koe ki te kite i tētahi tākuta me tētahi puku pēnei, ka tirohia tuatahitia koe e ia, ka tirohia te wāhi o te puku, tōna rahi, me ētahi atu mea. Kātahi ka hiahia pea koe ki tētahi matawai MRI (Magnetic Resonance Imaging - MRI).E taea ana.
Heoi, ka whakaūtia te tātaritanga o te sarcoma pūtau mārama mā te koiora, arā, ko te tango i tētahi wahi iti o te kiko mai i te puku . Ina tirohia tēnei tauira kiko i raro i te karuārai, ka rapua e ngā tohunga mate pukupuku, arā, ngā tohunga e tirotiro ana i te kiko i roto i te taiwhanga, te ira honohono EWSR1/ATF1 i kōrerohia e tātou i mua ake nei.
Me pēhea te rongoā i te sarcoma pūtau mārama?
Ko te whāinga matua a ngā tākuta he aukati i te horapa o te sarcoma pūtau mārama ki ētahi atu wāhanga o te tinana. I te nuinga o te wā, ko te mahi tuatahi ko te mahi pokanga hei tango katoa i te pukupuku . Mena kua horapa te mate pukupuku ki ngā kōpū lymph, ka tangohia hoki aua kōpū lymph. Whai muri i tēnei ko te rongoā āwhina . He maha ngā wā ka uru te rongoā irahiko hei patu i ngā pūtau mate pukupuku e toe ana.
Kei te rangahauhia e ngā kairangahau hauora ētahi atu maimoatanga i tēnei wā. Hei tauira, kei te titiro rātou ki te whai huatanga o te rongoā ārai mate ki te whakahaere i te sarcoma pūtau mārama. Kei te whakamātautau hoki rātou mēnā ka taea e ngā rongoā e whakamahia ana hei rongoā i ētahi atu momo mate pukupuku te āwhina i te aukati i te horapa o te sarcoma pūtau mārama.
Ko te mea nui, he mate ka hoki anō te mate pukupuku pūtau mārama. Mēnā ka tupu tēnā, me nui ake pea te pokanga me te rongoā irahiko. Nā te mea ka tere te horapa, ka tirotirohia koe e ngā tākuta i ia wā kia kite ai mēnā ka puta he pukupuku hou.
Ka taea e au te whakaiti i te mōrearea o te whakawhanake i te sarcoma pūtau mārama?
Engari, kāore he mea ka taea e koe te mahi hei whakaiti i tō tupono ki te whakawhanake i tēnei mate. Nā te mea kāore anō kia tautuhia e ngā kairangahau hauora ētahi āhuatanga mōrearea motuhake mō te whakawhanake i te sarcoma pūtau mārama. Ko te āhuatanga mōrearea he mahi, he āhuatanga rānei e whakanui ake ana i te tupono ki te whakawhanake i tētahi mate.
Ka taea te whakaora katoa i te sarcoma pūtau mārama?
Ka taea e ngā tākuta te rongoā i te sarcoma pūtau mārama, arā, ka taea e rātou te tango i te pukupuku me te ngana ki te whakahaere i tōna horapa. Heoi, ehara i te mate e taea te rongoā katoa . He maha ngā wā, ka horapa te sarcoma pūtau mārama ki ētahi atu wāhanga o te tinana i te wā e tautuhia ai. Nā tēnei ka uaua ake te rongoā. He nui ake te tūponotanga ka hoki mai anō i muri i te maimoatanga.
He aha te roanga o te oranga o te tangata e pāngia ana e te sarcoma pūtau mārama?
Ko te roanga o te oranga he whakatau tata mō te roa o tō oranga, i runga i tō hauora whānui me ngā āhuatanga whaiaro. I whakaatuhia i roto i tētahi arotake i te tau 2018 o te US National Cancer Database, i roto i te hunga he clear cell sarcoma,I kīia hoki e 50% i ora tonu i muri i te rima tau i muri i te tātaritanga, ā, 38% i ora tonu i muri i te tekau tau i muri i te tātaritanga .
Ahakoa e kōrero ana tātou mō te roanga o te oranga, mō ngā reiti oranga rānei, he mea nui kia mahara he whakatau tata noa iho ēnei, ehara i te matapae. Ko te roanga o te oranga he whakatau tata i runga i te taupori katoa. Ko ngā reiti oranga mate pukupuku he whakatau tata i runga i te roa o te oranga o te tangata i muri i te maimoatanga mō tētahi momo mate pukupuku. He maha ngā āhuatanga ka pā ki te roanga o te oranga o te tangata, ki ō rātou tūponotanga rānei ki te ora i te mate pukupuku. Mena he sarcoma pūtau mārama tōu, ka taea e tō tākuta te hoatu ki a koe ngā mōhiohio pai rawa atu mō ngā mea hei tumanako atu.
Ka taea te whakamate i te sarcoma pūtau mārama?
Ae, ka mate pea. I te nuinga o te wā, ko te hunga kua horapa te sarcoma pūtau mārama ki ētahi atu wāhanga o te tinana ka mate wawe atu i te hunga e whiwhi maimoatanga ana i mua i te horapa o te mate pukupuku.
Āhea ahau me toro atu ki taku tākuta?
Nā te mea ka hoki anō te sarcoma pūtau mārama i muri i te maimoatanga, ka hiahia pea tō tākuta kia kite i a koe i ia toru marama mō ngā tau tuatahi e rua i muri i te otinga o te maimoatanga, i runga i tō āhua. He mea nui kia tirotirohia koe i ia wā i ia wā i muri mai.
He aha ngā pātai me pātai atu e au ki taku tākuta?
He mate tino onge te sarcoma pūtau mārama. Ka taea e ia te whakamate i te ora. Mena ka kitea koe kei te pāngia e tēnei mate, me pātai atu pea koe ki tō tākuta i ēnei pātai:
- Kei hea te pukupuku? He aha te rahi?
- Kua horapa te pukupuku ki ētahi atu wāhi o tōku tinana?
- He aha ngā maimoatanga e taunaki ana koe?
- He aha ngā pānga taha o te maimoatanga?
- Mena ka pokangahia ahau, he aha te tūponotanga ka hoki mai anō te pukupuku?
- He whakamātautau haumanu kei reira ka taea e au te whakaaro?
Whakarāpopototanga me te Karere Tangohia ki te Kāinga
He mate tino uaua te Clear Cell Sarcoma. He tino onge. He torutoru noa ngā tāngata ka pāngia i te tau. Ā, he puhoi rawa te tipu. Ka horapa te sarcoma, ā, ka mate pea i te wā e kite ai te nuinga o te tangata i ngā huringa i roto i ō rātou tinana.
Engari kia maumahara, ka taea e ngā tākuta te rongoā i te sarcoma pūtau mārama. Ka taea e rātou te tango i te pukupuku mā te pokanga, ā, ka taea hoki e rātou te hoatu maimoatanga ki a koe hei patu i ngā pūtau matepukupuku e toe ana. Engari, he maha ngā wā ka hoki mai anō te sarcoma pūtau mārama. Nō reira , he mea nui kia tirotirohia koe i ia wā, kia mōhio hoki ki ngā huringa katoa o tō tinana.
Kei te rapu ngā kairangahau hauora i ngā huarahi hou hei rongoā i te sarcoma pūtau mārama. Mena he sarcoma pūtau mārama tōu, kei te wātea ngā whakamātautau haumanu hou.Ki te hiahia koe ki te ako atu mō tēnei mea, pātai atu ki tō tākuta, ā, rapua he tohutohu. Kaua e mutu te tumanako. Mā te tohutohu hauora me te tautoko tika, ka taea e koe te aro atu ki tēnei wero.
👩🏽⚕️ Ngā pātai tāpiri (FAQs)
💬 He mate pukupuku kiri (Melanoma) te Clear Cell Sarcoma (CCS)?
Kāo! He momo 'Sarcoma' kino tēnei (matepukupuku kiko ngohengohe). Ina tirohia i raro i te karuārai, he rite tonu te āhua o ngā pūtau e hanga ana i tēnei mate ki te melanoma, he matepukupuku kiri (koia hoki i huaina ai ko Melanoma o ngā wāhanga ngohengohe). Heoi, kāore tēnei matepukupuku e hanga i roto i te kiri, engari i roto i ngā kiko ngohengohe e kapi ana i ngā uaua, ngā uaua, me ngā hononga.
💬 Kei hea te nuinga o te wā e puta mai ai ēnei pukupuku i te tinana?
I te nuinga o te wā (neke atu i te 75%) ka puta ēnei pukupuku ki ngā pito o raro o te hunga rangatahi (20-40 tau te pakeke). Ka puta tuatahi mai hei puku kore mamae huri noa i ngā uaua o te waewae, te pona waewae, me te turi.
💬 He morearea tēnei mate pukupuku? He mate whakamate?
He pukuriri rawa tēnei, kāore he kakau. He puhoi rawa te tipu, nō reira kāore ngā tūroro e aro atu, engari ka horapa ki ngā kōpū lymph me ngā pukahukahu (Metastasis). Nō reira, he mea nui kia tangohia katoatia te puku me te wāhi 'nui' e karapoti ana mā te tango whānui ā-rohe, ā, ka tukuna he maimoatanga irahiko.
` sarcoma pūtau mārama, mate pukupuku kiko ngohengohe, pukupuku waewae, pukupuku waewae, sarcoma, tohumate mate pukupuku, maimoatanga mate pukupuku
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