Kei te pēpeke haere ō uaua, ā, kāore e taea te whakahaere? Me ako tātou mō tēnei (Dystonia)!

Kua kite koe, kua pāngia rānei e te āhua o te whakawhāiti ohorere o ō uaua, te wiriwiri, te mau rānei i tētahi tūranga? I ētahi wā, ka kore e pai, ka mamae hoki. Ka kiia tēnei mate ko te "Dystonia." Ahakoa te āhua nei he raruraru uaua, kei roto i tō tātou roro, i tō tātou pūnaha io rānei te raruraru. Me kōrero taipitopito atu tātou mō tēnei, e tika ana?

He aha rawa te Dystonia?

He kupu ngāwari noa iho, ko te dystonia he mate o te pūnaha io. Ko tōna āhua he whakaheke uaua kāore i te tūpato, kāore hoki e taea e koe te whakahaere, te whakapau kaha rānei. Ko te kupu "dystonia" i ahu mai i ngā kupu Latina "dys" (hē/kino) me te kupu Kariki "tonos" (te pēhanga uaua). Ko tōna tikanga he hē te whakaheke o ngā uaua, he hē.

He aha te rerekētanga i waenga i te Dystonia me te Dyskinesia?

Ahakoa te āhua ōrite o ēnei kupu e rua, he iti noa te rerekētanga.

• Dyskinesia: He kupu Kariki anō hoki tēnei. Ko te tikanga o "Kinesia" he "nekehanga." Ko te tikanga o Dyskinesia he nekehanga e puta hē ana, kāore i te whakaarohia kia puta. He nekehanga koretake ēnei, arā, he nekehanga uaua e puta ana me te kore e taea e koe te whakahaere.
• Dystonia: He momo dyskinesia tēnei. I roto i te dystonia, ka roa te wā e pēhia ana ngā uaua. I runga i te wāhanga o te tinana e pāngia ana, tera pea ka āhua rerekē ō tūnga.

Ko wai ka taea te whakawhanake i te dystonia?

I runga i te pūtake o te dystonia, ka pā ki te tangata katoa. Ko ētahi take he mea motuhake ki te tau, arā, ka pā ki a koe i te whānautanga, i te wā tamarikitanga rānei. Ko ētahi ka pā ki a koe i muri mai i te ao.

Ahakoa e kī ana ngā rangahau e 300,000 pea ngā tāngata i te Hononga o Amerika anake e pāngia ana e te dystonia, e whakapono ana ngā tohunga he nui ake pea te tokomaha tuturu. Nā te mea he maha ngā momo o te dystonia, he uaua ki te tautuhi tika i ētahi wā.

He aha te pānga o te dystonia ki tōku tinana?

He mate roro te Dystonia e pā ana ki te āhua o te whakahaere a tō roro i ngā uaua o tō tinana. Ka pā pea ki ngā uaua rerekē, ki ngā rōpū uaua rānei i ngā huarahi rerekē. He mea ngaro tonu te āhua me te take e puta ai tēnei.

Ka kino ake ngā tohu o te dystonia ina ngenge koe, ina ahotea rānei, ina kai ana rānei koe i ngā mea pēnei i te kawheine, i te waipiro rānei.

Ko ētahi momo dystonia ka puta mai i ngā whakarerekētanga ira, i ngā āhuatanga rānei e whakararuraru ana i te mahi a ētahi wāhanga o te roro. Ka puta te kore mahi tika o ngā pūtau e pāngia ana. Kātahi ka haere ngā tohu hē ki ngā uaua, ka puta te dystonia.

Ka taea hoki te puta o te dystonia i ngā whara, i ētahi atu āhuatanga hauora rānei e whakararuraru ana i te mahi a te roro. Ka taea te kite i ētahi o ēnei āhuatanga mā te matawai whakaahua. Engari i ētahi wā ka puta te dystonia me te kore tetahi o ēnei take.

He aha ngā tohu o te Dystonia?

Ko te tohu matua o te dystonia ko ngā nekehanga uaua kāore e taea te whakahaere . Ko ēnei nekehanga he maha:

• He kore whakamarie, he mamae i ētahi wā, ā, ka rite ki te ru hiko.
• Te hokihoki mai (ina koa me ngā wiri).
• Ka rerekē pea te roa o te wā. Ko ētahi ka roa mō ngā hēkona, mō ngā meneti rānei, kātahi ka ngaro. Ko ētahi ka roa mō ngā marama.
• Ka huri hei āhua piko, hei āhua kukume. Ka puta te āhua o te tangata kei roto i tētahi tūranga rerekē.
• Ka kaha ake te mamae o ngā uaua kua pāngia ina whakamahia.

Tērā pea he rerekētanga iti o ngā tohu i runga i te wāhi o te tinana e pāngia ana e te dystonia. E rima ngā huarahi matua e puta ai ngā tohu:

• Te dystonia arotahi
• Te dystonia wāhanga
• Te dystonia maha-aroaro
• Hemidystonia `(Hemidystonia)`
• Dystonia whānui

Kia tirohia takitahitia ēnei e tātou.

Te dystonia arotahi

Koinei te wā ka pāngia te kotahi anake o tō tinana. E ai ki ngā tohunga, e tekau ngā wā ka nui ake te kitea o tēnei momo mate i ētahi atu. Ka rerekē te āhua o tōna putanga mai, i runga i te wāhanga o te tinana e pāngia ana:

• Kamo kanohi: Blepharospasm. Ka tino kino rawa atu tēnei, ā, me kati tonu ētahi kanohi.
• Kauae: Te ngau o ngā niho (Bruxism).
• Ringa, ringaringa rānei: Te wiri, te kikī rānei o te uaua. Ka kiia hoki tēnei ko te "whiu a te kaituhi" me te "whiu a te kaiwaiata". Ka kiia tēnei e ngā kaitākaro korowha me ngā kaitākaro kirikiti ko te "yips". Whakaarohia tō ringa e mārō ana, ā, kāore e taea te tuhituhi, e kore rānei ō maihao e taea te whakahaere ina takaro koe i tētahi mea pērā i te vaiorine.

Te dystonia wāhanga

Koinei te wā e pāngia ai ngā wāhanga e rua, neke atu rānei o te tinana e tata ana tetahi ki tetahi . Hei tauira, ngā wāhanga rerekē o te mata, te upoko me te kaki, te ringa me te ringa o runga rānei. He tauira pai o tēnei ko te dystonia cervical . Ka pā tēnei ki ngā uaua o te upoko me te kaki. Ko tētahi atu tauira ko te mate Meige . Ka pā tēnei ki ētahi wāhanga o te mata.

Te dystonia maha-aroaro

Ka pā tēnei ki ngā wāhanga e rua, neke atu rānei o te tinana kāore e pā ana . Hei tauira, ka pā te dystonia ki ngā ringa e rua. Tardive dyskinesiaHe tauira anō tēnei o tētahi āhuatanga e pā ana ki ētahi wāhanga rerekē o te tinana.

Hemidystonia `(Hemidystonia)`

I ahu mai te kupu "hemi" i te kupu Kariki mō te "haurua." Nō reira, ko te tikanga kotahi anake te taha o tō tinana (te taha matau, te taha maui rānei) ka pāngia. Whakaarohia ngā uaua o tō ringa matau, o tō taha matau rānei o tō mata e neke haere ana me te kore e taea te whakahaere. Ko te whiu tetahi o ngā tino take o te hemidystonia.

Dystonia whānui

Ka pā pea tēnei ki ō waewae me tō tinana (te wāhanga matua o tō tinana e hono ana i ō ringa, ō waewae, me tō upoko) me tō tinana katoa rānei. Koinei te mea ka tupu ina piki haere te dystonia. Ina huri te dystonia arotahi hei dystonia whānui, ka horapa ngā tohu mai i ngā peka ki te tinana.

He aha ngā take o te dystonia?

Ko te dystonia te take o te raruraru o te mahi a tō roro. Ko te nuinga o te wā ka pā ki tēnei he wāhanga o te roro e kiia nei ko te 'Basal Ganglia' . He rōpū hanganga roro tēnei e hono ana i ngā wāhanga rerekē o te roro, ā, e whakarite ana i te mahi tahi a aua wāhanga.

E toru ngā wāhanga matua o te dystonia e wehewehea ana e ngā tohunga:

• Dystonia tuatahi: Ko te dystonia te tino take o tēnei. He idiopathic te nuinga o te wā, arā, kāore e kitea he take. E whakapono ana ngā tohunga he āhuatanga ira anō pea, arā, ka taea te tuku iho i roto i ngā whānau.
• Dystonia tuarua: I tēnei wā, he tohu te dystonia o tētahi atu mate, raruraru rānei.
• Ngā āhuatanga "Dystonia plus": He mate ēnei o te pūnaha io. Ahakoa ko te dystonia te tohu matua, kei reira anō ētahi atu tohu.

Ngā take pea o te dystonia tuarua

Ka puta pea tēnei mō ngā take maha:

• Ngā pukupuku roro
• Ētahi atu mate roro (hei tauira, te mate haurangi, te mate a Parkinson, te mate a Parkinson)
• Te korenga o te hāora i roto i te roro (ina koa i roto i ngā pēpi hou i kore te hāora i te whānautanga)
• Ngā rongoā (ngā rongoā kua tohua, ngā rongoā turekore rānei)
• Ngā mate ira (hei tauira, te mate a Wilson, te mate a Huntington)
• Ngā mate urutā (hei tauira, te mate pukupuku roro)
• Ngā āhuatanga pākia
• Whiu
• Ngā matū paitini (hei tauira, te paihana waro haukini, te paihana konupora)
• Ngā whara roro whara

Ehara te dystonia i te mate hopuhopu. Kāore e taea te hopu mai i ētahi atu tāngata, kāore hoki e taea te hora atu ki ētahi atu.

Me pēhea te tautuhi i te Dystonia?

Ka taea e te tākuta, he tohunga roro, te tātaritanga i te dystonia i runga i ō tohumate, i tētahi whakamātautau roro, me ngā momo whakamātautau hauora. He uaua te tātaritanga i te dystonia i ētahi wā nā te mea ka puta mai ēnei tohumate i ngā āhuatanga maha atu. Nō reira, he mea nui kia whakakorehia ētahi atu āhuatanga, nā te mea ko ētahi o ēnei he āhuatanga ohorere hauora e morearea ana ki te ora.

He aha ngā whakamātautau e whakamahia ana hei tautuhi i te dystonia?

Tērā pea ka mahia ngā whakamātautau taiwhanga, tātaritanga, me ngā whakamātautau "whakaahua" hei tirotiro i te dystonia. Ko ngā whakamātautau e tonoa ana ka whakawhirinaki ki ō tohu me ngā āhuatanga hauora e whakapaetia ana e tō tākuta. Anei ētahi o ngā whakamātautau ka taea te mahi:

• Ngā whakamātautau toto: Ka taea e ēnei te kite i ngā mea maha, pērā i ngā raruraru o te pūnaha ārai mate me ngā paitini (ina koa ko ngā konganuku pērā i te parahi me te konupūmā).
• Matawai CT (Matawai Tomography Rorohiko)
• EEG (Electroencephalogram): He whakamātautau e ine ana i te ngohe hiko o te roro.
• EMG (Electromyogram): He whakamātautau e tirotiro ana i te haere o ngā tohu mā roto i ngā io.
• Whakamātautau ira
• Matawai MRI (MRI - Whakaahua aukume)
• Matawai PET (matawai tomografi tukunga Positron)
• Te pokanga tuaiwi / Te pokanga lumbar

Hei tāpiritanga atu ki tēnei, tera pea ka mahia ētahi atu whakamātautau. Nō reira, he mea pai kia pātai atu ki tō tākuta he aha ngā whakamātautau e tika ana mō tō āhua. Kātahi ka taea e koe te tiki i ngā mōhiohio tino tika e tika ana mō tō āhua.

Me pēhea te rongoā i te dystonia? Ka taea te whakaora katoa?

Kāore he rongoā mō te dystonia, engari ka taea te rongoā . He maha ngā maimoatanga e whakawhirinaki ana ki te take o te mate me ngā tohu kei a koe. Ka taea e tō tākuta te āwhina i a koe ki te whakatau ko ēhea ngā kōwhiringa maimoatanga e pai ana māu.

Tērā pea ka kī atu tō tākuta kia karohia te kawheine me te waipiro, nā te mea ka kino ake ngā tohu o te dystonia mō ētahi tāngata.

He aha te momo rongoā, te momo maimoatanga rānei e whakamahia ana?

Ko te maimoatanga mō te dystonia e whakawhirinaki ana ki te take me ō tohumate. Ko ngā maimoatanga noa ko:

• Te whakaohooho roro hōhonu (DBS): He tikanga pokanga tēnei. Ka whakauruhia ngā hiko ki roto i tō roro. Ka tukuna e ēnei hiko he iahiko ngawari ki tētahi wāhanga motuhake o tō roro. Ka taea e tēnei te āwhina i ngā tohu o te dystonia. Koinei te tikanga pokanga e whakamahia whānuitia ana, e whai hua ana hoki mō te dystonia.
• Ngā rongoā:Ka taea te rongoā mā te rongoā i runga i te pūtake o te dystonia. Ko te rongoā (kotahi, neke atu rānei) ka hoatu ka whakawhirinaki ki ngā tohu me te pūtake (mēnā he) o te dystonia.
• Werohanga paitini botulinum: Ko te paitini botulinum – e mōhiotia ana e te tini ko te ingoa waitohu Botox® – ina werohia ki te wāhi tika ka taea te aukati i ngā tohu io mō ngā wiki, i ētahi wā he marama. Mā tēnei ka ārai i ngā tohu e puta ai te dystonia kei tae atu ki ngā uaua. He maimoatanga pai tēnei mō te dystonia focal me ētahi tohu o te dystonia segmental.
• Te whakaora tinana, te whakaora mahi me te whakaora kōrero: Ina puta te dystonia i tētahi āhuatanga hauora rangitahi, ka taea e ēnei whakaora te āwhina i te tangata kia urutau, kia ora rānei i te dystonia.

Ko ngā raruraru me ngā pānga taha ka puta mai i te maimoatanga ka whakawhirinaki ki ētahi āhuatanga, pērā i te tikanga maimoatanga. Ka taea e tō tākuta te aromatawai i tō āhua me te whakamārama i ngā mea ka taea e koe te tumanako.

Me pēhea taku tiaki i ahau anō me te whakahaere i aku tohumate?

He raruraru te dystonia ki te pūnaha io. Ko te tikanga tēnei kāore e taea e koe te tautuhi me te rongoā i a koe anō. Ka taea hoki te hono atu ki ngā mate kino, e morearea ana ki te ora, nō reira he mea nui kia kite tonu koe i te tākuta .

Ko te roa o te wā e pai ake ai tō wairua me tō oranga i muri i te maimoatanga, e whakawhirinaki ana ki ngā mea maha, tae atu ki te take i puta ai tō dystonia, te kaha o tōna mate, ngā maimoatanga i whiwhi koe, me ētahi atu āhuatanga hauora kei a koe. Ka taea e tō tākuta te kī atu ki a koe te roa o te wā e pai ake ai tō wairua me tō oranga.

He aha te tirohanga mō te dystonia? He aha ngā mea ka taea e au te tumanako mēnā kei a au tēnei mate?

Ko te tirohanga mō te dystonia e whakawhirinaki ana ki ngā mea maha, tae atu ki te take, te tau e pāngia ai koe, te wāhi o te tinana e puta ai ngā tohu, tō hītori hauora, me ngā maimoatanga e whiwhi ana koe. Mā tō tākuta koe e kōrero pai mō te tirohanga mō tō āhua.

• Te tirohanga mō te dystonia tuatahi: I te nuinga o te wā, ki te puta wawe te dystonia tuatahi i te ao, kāore pea i te pai te tirohanga. Nā te mea ka taea e te dystonia tuatahi te horapa mai i te arotahi (i te wāhi kotahi) ki te whānui (ki te tinana katoa). Ko te wawe o te whanaketanga o te mate i te ao, ka nui ake te tūponotanga ka horapa. He pai te tirohanga mō te dystonia arotahi nā te mea he iti noa te wāhi o te tinana e pāngia ana.
• Te tirohanga ki te dystonia tuarua: Ko te nuinga o tēnei e whakawhirinaki ana ki te mate pūtake. Mena ka taea te rongoā i te mate pūtake, ā, ka taea te whakakore, he pai ake te matapae. Heoi, ki te mea nā te mate mau tonu i puta, kāore i te pai te matapae. Heoi, tera ētahi wā ka taea te whakahaere me te whakaora i te dystonia ahakoa ētahi mate mau tonu.

Kia puta te dystonia tuatahi, ka noho tonu tēnei mate mō te wā roa. Ka taea te rongoā, engari kāore e taea te whakaora katoa, ā, e kore e pai ake i a ia anō .

He wā poto noa iho pea te dystonia tuarua. Kei te pūtake o te mate. He nui ake te tūponotanga ka puta mai i ngā mate pāwera, ngā whara, me ētahi rongoā.

Me pēhea te whakaiti i te mōrearea o te dystonia, te ārai rānei i te katoa?

Ka puta ohorere te dystonia, nō reira kāore e taea te ārai. Kāore hoki e taea te whakaiti i tō tuponotanga ki te whakawhanake i te dystonia tuatahi. Ka taea te tuku iho, ka taea rānei te whanake mō te kore take mārama.

Heoi, ka taea e koe te ārai, te whakaiti rānei i te tūponotanga o te whakawhanake i ētahi o ngā āhuatanga e whai wāhi ana ki te dystonia tuarua . Anei ētahi mea ka taea e koe te mahi:

• Kai i tētahi kai taurite, kia mau tonu hoki tō taumaha hauora. He maha ngā mate e pā ana ki tō pūnaha tohanga toto me te hauora o te ngākau, inā koa ko te whiu, ka kino pea ngā wāhanga o tō roro, ka puta ai te dystonia.
• Kaua e warewarehia ngā mate pāwera. Me tere te rongoā i ngā mate kanohi me ngā mate taringa. Mēnā ka horapa ēnei mate ki te roro, ka noho hei tūmomo mōrearea nui. Ka taea e ngā mate te whakamumura i te roro (encephalitis), ka arahi pea ki te dystonia.
• Mauria ngā taputapu tiaki. Ka taea e ngā whara roro te kino i tō roro, ā, ka puta te dystonia.
• Whakahaerehia ō āhuatanga hauora. Ko ngā āhuatanga roa pēnei i te mate huka momo 2, te toto toto tiketike, me te mate haurangi ka puta, ka whai wāhi atu rānei ki ētahi atu āhuatanga ka arahi ki te dystonia.

Me pēhea taku tiaki i ahau anō?

Mena he dystonia tōu, he maha ngā mea ka taea e koe te mahi hei tiaki i a koe anō:

• Āta karohia te kawheine me te waipiro mēnā kāore i te tūtohutia e tō tākuta. Ka taea e ēnei te whakararu i ngā tohu o te dystonia.
• Whakahaerehia tō ahotea. Ka taea e te manukanuka me te ahotea te whakararu i te dystonia. Ka taea e koe te whakaiti i tēnei mōrearea mā te mahi i ngā mea pēnei i te whakaaroaro, te whakangungu whakangā, me te whakakorikori tinana.
• Āta karohia ngā mahi e kino ake ai ō tohu. Ko ētahi momo dystonia ka puta ake i ētahi wā. Mā te karo i aua wā, ki te taea, ka āwhina i te whakaiti i te kaha o ō tohu.
• Akohia me pēhea te whakahaere i tō āhua.Ka taea te whakahaere i ngā momo dystonia mā te whakamahi i ngā "tinihanga ā-pārongo". Ko te kupu matua mō tēnei ko "geste antagoniste" (he kupu Wīwī te tikanga "tohu ritenga kē"). Ka taea e ēnei momo tohu te whakapai ake i ngā tohu o te dystonia mō te wā poto. Engari kāore ngā tohunga i te tino mārama he aha tēnei e puta ai. Hei tauira, mā te pā ki te kauae, ki te taha rānei o te mata ka āwhina i te whakaiti i ngā tohu o te dystonia cervical (he āhuatanga e pā ana ki ngā uaua o te kaki). Ka taea e tō tākuta te kite mēnā ka aro koe ki ēnei momo tohu, ā, ka ako i a koe me pēhea te whakamahi.
• Tangohia tika tō rongoā. Mena kei te tango koe i te rongoā mō te dystonia, tangohia kia rite ki te whakahaunga. Mā te whakamutu ohorere i te rongoā ka kino ake ngā tohu o te dystonia, ka pā mai rānei ētahi atu pānga taha.

Āhea ahau me toro atu ki te tākuta? Āhea ahau me rapu awhina ohorere?

Mena he dystonia tōu, me toro atu koe ki te tākuta mō ngā tirotiro hauora e ai ki ngā taunakitanga a tō tākuta. Tirohia tō tākuta mēnā ka rerekē, ka kino rānei ō tohu, inā koa mēnā ka pāngia tō oranga o ia rā. Tirohia hoki tō tākuta mēnā kāore e whai hua ngā rongoā, ngā maimoatanga rānei, mēnā rānei he pānga taha kāore e taea te tu atu, he pānga kino rānei.

Āhea ahau me haere ki te Tari Whawhati Tata (ETU) ?

Mena kei a koe ētahi o ngā tohu e tohu ana i te whiu, me haere koe ki te rūma whawhati tata. Kia mahara ki te waea atu ki te 1990 (te ratonga waka tūroro whawhati tata o Sri Lanka) mō ngā tohu whiu, ā, kia mahara ki te kī TERE .

• Kanohi (W): Ka piko tetahi taha, ngā taha e rua rānei o te kanohi ina ngana te tangata ki te menemene?
• A (Ringa): Ina ngana te tangata ki te hapai i ōna ringa e rua, ka iri tetahi o ōna ringa ki raro?
• K (Kōrero): Ka taea e te tangata te kōrero mārama, me te mārama ki ngā kōrero a ētahi atu?
• T (Wā): Ki te pāngia tetahi e ēnei tohu, waea atu ki te 911 tonu! He whakataetae te whiu ki te wā. Ko te maimoatanga wawe te huarahi pai ki te whakatutuki i tētahi putanga pai me te whakaora.

He mate roro te Dystonia e kore ai e taea te whakahaere i te nekehanga o ō uaua. He maha ngā take e pā mai ai, mai i ngā mate tuku iho ki ngā mate poto noa iho.

Ko ētahi mea e whakaaro ana ahau he mea nui māu (Karere hei tango ki te kāinga)

Nō reira, ko tāku tumanako kei te mārama koe ki tā tātou i kōrero ai mō Dystonia. Kia maumahara, ahakoa he mate uaua tēnei, kāore koe i te mokemoke .

• Mena kei a koe, kei tētahi atu rānei e mōhio ana koe, kaua e mangere ki te toro atu ki te tākuta . Ko te wawe o te tautuhi i te mate, ko te māmā ake o te rongoā.
• Kāore e rite ana ngā dystonia katoa, nō reira kōrero ki tō tākuta mō ngā maimoatanga e pai ana mō tō āhua.
• I ētahi wā, mā te whakarerekē i ngā momo noho (pēnei i te whakaiti i te kawheine me te waipiro, me te whakaiti i te ahotea) ka āwhina i te whakahaere i ngā tohumate.
• Kia ata whai i ngā tohutohu a tō tākuta. Tangohia tō rongoā kia rite ki te whakahaunga. Kaua e mutu te tango i a koe anō.

Ko te tumanako ka whai hua ēnei mōhiohio ki a koe. Kia ora tonu!

` Dystonia, Mate pūnaha io, Ngā whakahekenga uaua, Ngā nekehanga koretake, Ngā āhuatanga roro, Dyskinesia, Dystonia, Mate pūnaha io, Ngā whakahekenga uaua, Ngā nekehanga koretake, Ngā āhuatanga roro, Dyskinesia