Ka pāngia koe e te ānini i ētahi wā, kāore he take? Kua pāngia rānei koe e te mate haurangi? I te wā o te matawai roro, i kī pea tō tākuta he toto toto iti kei roto i tō roro? He mea noa te mataku me te manukanuka ina rongo koe i tētahi mea pēnei. Engari kaua e manukanuka. I te nuinga o te wā, ehara tēnei i te mea kino. I tēnei rā ka kōrero tātou mō tēnei 'toto toto toto', e kiia nei i roto i te rongoā ko 'Cavernous Malformation'. Me kōrero noa tātou mō tēnei, i roto i tētahi huarahi e mārama ai koe.
He aha te Korehanga o te Kōhatu Cavernous?
Ki te kī māmā noa, ko te 'Cavernous Malformation' he puku rerekē i hangaia e ngā uaua toto iti o te tinana, e kiia nei ko ngā capillaries, ka raranga tahi. He rite ki te rāhipere i te tirohanga tuatahi. Kei roto i tēnei puku he maha ngā kōhao iti kua kī tonu i te toto.
Whakaarohia, he pakari ngā pakitara o ō tātou uaua toto noa. Engari he tino angiangi, he ngoikore hoki ngā pakitara o ngā uaua toto i roto i tēnei 'Cavernous Malformation'. Ā, kāore he tautoko tika. Koinei te tīmatanga o te raruraru. Nā te ngoikore o ēnei pakitara, i ētahi wā he nui te tūponotanga ka turuturu te toto i roto i ēnei uaua ki roto i ngā kiko e karapoti ana.
Ko te nuinga o te wā ka kitea tēnei āhuatanga i roto i tō tātou roro me te taurakira . Koia hoki te take e kiia ai ko te 'Cerebral Cavernous Malformation'. Heoi, i ētahi wā ka puta mai i ngā wāhi pēnei i te kiri, te ate, me ngā kanohi.
He rerekē ngā ingoa ka tapaina e ngā tākuta mō tēnei mate. Nō reira, kaua e manukanuka mēnā ka kite koe i tētahi o ēnei ingoa i roto i tō pūrongo, he rite tonu te tikanga o aua ingoa katoa.
- Ngā Ana
- Ngā Hemangioma Ana
- Ngā ngoikoretanga o te roro
- Ngā Angioma Ana
He tino morearea ēnei Kore-ā-roto o te Ana?
Ko te pātai nui rawa atu a te tini tāngata ina rongo rātou i tēnei ingoa, "He mate pukupuku tēnei? He kino tēnei?" Tuatahi, ehara i te mate pukupuku .
Engari he rerekē te mōrearea o tēnei āhuatanga i ia tangata, i ia tangata. E whakawhirinaki ana ki ētahi āhuatanga:
- Te rahi o te puku: Te rahi.
- Te maha o ngā puku: E hia ngā puku pēnei kei roto i tō tinana.
- Tauwāhi: Kei hea i roto i te roro e noho ana?
- Te tūponotanga o te toto: Tērā pea ka pahū, ka puta he toto nui.
Nā te mea he angiangi ngā pakitara o ēnei uaua toto, ka tūpono te toto. Ka taea e te toto i roto i te roro te whakaputa i ngā āhuatanga pēnei i te haurangi, te pararutiki, te whiu rānei. Mena he nui te toto, ka tūpono pea te ora.
Heoi, ko te mea nui hei maumahara māu i konei, ko te nuinga o ngā Cavernous Malformations kāore e puta he raruraru nui . He maha ngā tāngata e ora ana me te kore e mōhio kei a rātou ēnei.
Nō reira, kia tino mōhio ai koe ki tō āhua, he pai ake te kōrero mārire ki tō tākuta. Māna e arotake tō pūrongo matawai, ā, ka whakamārama i ngā mōrearea e pā ana ki tō āhua.
He aha ngā tohu o tēnei mate?
Ko te nuinga o te hunga e pāngia ana e tēnei mate, kāore he tohu. Engari ki te pā mai, he tohu tēnei kei te turuturu te toto iti mai i te uaua toto. Ka tīmata ēnei tohu i waenganui i te 20 me te 60 tau te pakeke.
Kei te ripanga i raro nei ētahi o ngā tohumate e tino kitea ana.
| Tohu | Whakaahuatanga |
|---|---|
| Ngā mate hopuhopu | He tohu tēnei e kitea whānuitia ana. |
| Ānini | Ngā ānini maha, ngā ānini rerekē rānei. |
| Te ngoikore o te tinana, te ngoikore rānei | Te ngoikore, te māuiui rānei i te taha kotahi o te ringa, te waewae, te mata rānei. |
| Ngā raruraru tirohanga | Te tirohanga pōuri, te tirohanga takirua, te ngaronga rānei o te tirohanga. |
| Ngā take taurite | Te ngaro o te taurite me te hinga i a koe e hikoi ana, e tū ana rānei. |
| Ngā huringa o te kōrero | Te kōrero pōturi, te uaua rānei ki te kimi kupu. |
| Ētahi atu āhuatanga | Pōuriuri, ngenge, ngaro te mahara, ngoikore te whakarongo, wiriwiri. |
He aha te take o tēnei āhuatanga?
I te nuinga o te wā, arā, i roto i te 80% o ngā take, kāore ngā tākuta e mōhio ki te tino take o ēnei 'Cavernous Malformations'. Ka puta 'i ētahi wā'.
Engari i roto i te 20% o ngā take, he hononga ira tōna . Ko te tikanga ka taea te tuku iho i te mate mai i tētahi whakatipuranga ki tētahi whakatipuranga. E toru ngā ira kua tautuhia hei take:
- `CCM1 (KRIT1)`
- `CCM2`
- `CCM3 (PDCD10)`
He whakarāpopototanga noa iho, ko ēnei ira te mea e hanga ana i ngā pūmua e hono ana i ngā pūtau i roto i ō tātou oko toto, e pupuri ana hoki i a rātou kia kaha. Ina he hapa, he rerekētanga rānei i roto i ēnei ira, ka ngoikore ngā hononga i waenga i aua pūtau. Koinā te wā e puta ai ēnei totoka toto ngoikore, rerekē.
Ka tukuna iho tēnei āhuatanga i roto i te tauira "Autosomal Dominant". Ko te tikanga ka pāngia te tamaiti e tēnei āhuatanga ahakoa ka riro mai i a ia tētahi o ngā ira hapa mai i te whaea, i te pāpā rānei. Mena kei a koe tēnei āhuatanga ira, e 50% te tūponotanga ka riro mai i tāu tamaiti. Mena kei tētahi o tō whānau tēnei āhuatanga, ki te mea rānei he nui atu i te kotahi o ēnei ira kei tētahi, he nui ake te tūponotanga he take ira.
Me pēhea te tātaritanga a te tākuta i tēnei?
He maha ngā wā, ka kitea tūponotia tēnei mate i te wā o te matawai roro mō tētahi atu take, pērā i te ānini, i te aituā rānei, i muri rānei i te putanga mai o ngā tohu pērā i te haurangi.
Ko te whakamātautau matua e whakamahia ana hei tautuhi i tēnei ko te matawai MRI (Magnetic Resonance Imaging) .
- MRI auau: Ka taea e tēnei te kite mārama i ngā mea pēnei i te wāhi me te rahi o te puku.
- MRI Motuhake (Whakaahua Taumaha-Whakaraerae): He matawai tairongo ake tēnei. Ka taea e ia te kite i ngā toto toto iti rawa, me ngā tohu o ngā toto toto iti rawa o mua. Mā ēnei mōhiohio ka āwhina i tō tākuta kia mārama ki tō mōrearea ā muri ake nei.
Hei tāpiritanga, ka taea te whakahaere i tētahi whakamātautau ira hei tirotiro i te hītori whānau, ā, ki te tika, hei whakatau mēnā he mate ira.
He aha ngā maimoatanga e wātea ana?
Ehara i te mea ko te hunga katoa kua kitea he mate pukupuku kawa e hiahiatia ana he pokanga. Ko te maimoatanga e whakawhirinaki ana ki ō tohu, te wāhi o te puku, me te mea kei te toto.
1. Te Aroturuki
Mena kāore he tohu, ā, kāore hoki he toto e puta mai ana i te puku, ka whai tonu tō tākuta i te huarahi "tatari mataara".
- Ngā matawai MRI i ngā wā auau: Ka mahia ngā matawai kotahi i te tau hei tirotiro i ngā panonitanga o te rahi o te pukupuku me te toto hou.
- Te mōhio ki ngā tohumate: Ka whakamōhiotia koe mō ngā tohumate hei āwangawanga māu, me te wā me whakamōhio tonu atu ki te tākuta.
2. Te whakahaere i ngā tohu mā te rongoā
Mena kei a koe ngā tohu pēnei i te haurangi, te ānini rānei nā te puku, ka tohua e tō tākuta he rongoā hei whakahaere i aua tohu. Kāore ēnei rongoā e whakaora i te puku, engari ka taea e rātou te āwhina ki te whakahaere i te mamae e pā mai ana.
3. Tangohanga Pokanga
E taunakitia ana te pokanga i roto i ētahi wā motuhake anake.
- Mena he nui atu i te kotahi ō toto kua pāngia e ngā tohu .
- Mena kua pāngia te pūnaha io e te toto (hei tauira, te ngaronga o te rongo i tetahi taha o te tinana, ngā panonitanga o te tirohanga), ā, kei te kino haere te āhua i ia rā, i ia rā.
- Mena he mate haurangi tōu e kore e taea te whakahaere mā te rongoā.
- Mena kei te wāhi ka taea te tango haumaru i te pukupuku, me te kore e kino nui ki te roro.
Ko te whakatau kia pokangahia, kia kore rānei, ka mahia e te taote pokanga roro i muri i te kōrero roa ki a koe mō ngā painga me ngā huakore o te pokanga.
He aha taku e taea ai hei whakaiti i te mōrearea o te toto?
Ahakoa kāore he huarahi hei ārai i te hanganga o ēnei puku, he iti noa ngā mea ka taea e koe te mahi hei whakaiti i te tūponotanga o te toto, te pahū rānei. Ko te tikanga o tēnā ko te tiaki pai i tō hauora whānui.
- Kia mau tonu te toto totoka hauora, te cholesterol, me ngā taumata huka toto .
- Mena kei te tango koe i ētahi rongoā, pērā i ngā rongoā whakaiti toto , kōrero ki tō tākuta mēnā ka pāngia tēnei mate.
- Whakakorikori tinana mō te 30 meneti pea i te nuinga o ngā rā o te wiki.
- Āta karohia te whakamahi i ngā hua tupeka (te momi hikareti) .
- Tūtaki ki te tākuta i te wā kua whakaritea mō tētahi tirotiro hauora , ka pātai atu mēnā he pātai, he āwangawanga rānei āu.
Āhea ahau me haere ki ETU i ngā rā tata nei?
He mea tino nui tēnei. Ki te mōhio koe he 'Cavernous Malformation' tōu, ā, ka puta whakarere mai ngā tohu e whai ake nei, kaua e moumou taima , engari me haere tonu ki te Wāhanga Maimoatanga Ohotata (ETU) o te hōhipera tata .
- Ki te pāngia koe e te mate haurangi mō te wā tuatahi i roto i tōu ao.
- Ki te mea ka pāngia tetahi taha o te tinana (ringa, waewae, mata) e te ngoikore haere.
- Ki te rerekē whakarere tō tirohanga (hei tauira, ka kite koe i tētahi mea, kātahi ka rua ngā mea, kātahi ka ngaro tō tirohanga).
- He ānini nui ohorere, kāore e taea te whakamanawanui.
- Ki te mea ka uaua haere te kōrero.
He tohu pea ēnei o te toto i roto i te roro, ka arahi pea ki tētahi mate e kiia nei ko te whiu, nō reira he mea nui kia rapu wawe i te maimoatanga.
Karere Tangohia ki te Kāinga
- Ko te "Cavernous Malformation" he hanganga toto rerekē, ehara i te matepukupuku i roto i te roro, i te taurakira rānei. I te nuinga o te wā, ehara i te mate morearea.
- Ko ētahi o ngā tohu ko te ānini, te haurangi, me te ngoikore o te tinana. Heoi, ko ētahi tāngata kāore pea e pāngia e tetahi tohu puta noa i ō rātou oranga.
- Ko te huarahi pai ki te whakaū pono i tēnei āhuatanga ko te matawai MRI.
- Ko te maimoatanga e whakawhirinaki ana ki ō tohu, mēnā kei te toto koe, me te wāhi kei reira te puku. Kāore e hiahiatia ana te pokanga mō te katoa.
- Ki te pāngia koe e ngā tohu pēnei i te ngaronga ohorere o te māramatanga i te taha kotahi o te tinana, te haurangi mō te wā tuatahi, te ānini nui rānei, haere tonu ki te Tari Whawhati Tata (ETU).
- Kōrero ki tō tākuta mō ngā pātai, ngā āwangawanga, ngā ruarua rānei kei a koe mō tō āhua. He mea nui ake te tiki tohutohu tika mai i te tākuta i te whakamataku i a koe anō mā te rapu mōhiohio i runga i te ipurangi.
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