Kei te pāngia koe e ngā puku i tō tinana? Tērā pea he Follicular Lymphoma. Me kōrero tāua!

Whakaarohia, e kī tonu ana a Samantha Akka he tino ngenge ia, ā, ka werawera ia i te pō. I ētahi wā ka kī anō ia he puku iti kei tōna kaki. Ahakoa kāore ēnei i te whakaarohia i roto i ō tātou oranga o ia rā, he tohu pea ēnei o tētahi mate pēnei i te Follicular Lymphoma. Kaua e manukanuka, ka kōrerohia e mātou tēnei mea kia māmā noa iho, kia mārama ai koe.

He aha te Lymphoma Follicular?

He kupu ngāwari noa iho, he momo mate pukupuku puhoi te tipu o te lymphoma follicular. Hei whakamārama, he mate pukupuku e whanake ana i roto i ō tātou pūtau lymph. Ka taea te whanake i roto i ō kōpuku lymph - i roto rānei i tā tātou karanga, i ō kōpuku lymph - i tō hinu wheua rānei, i roto rānei i ētahi atu whekau o roto. Ko te mea whakamiharo ko ētahi tāngata ka pāngia e tēnei mate me te kore e whakaatu i ngā tohu . Koia te take e kiia ai e ngā tākuta he mate mau tonu . Ko te rongo pai he maimoatanga kei reira. Heoi, i ētahi wā ka hoki mai te mate i muri i te maimoatanga. Engari e whakaaro ana ngā tākuta kāore e roa ka taea te whakaora katoa i tēnei mate mā ngā maimoatanga hou.

Ko wai te mea tino tūpono ka pāngia e tēnei mate?

E ai ki ngā tatauranga, e toru ki te whā ngā tāngata i roto i ia rau mano (tata ki te 3.5) ka pāngia e tēnei mate. Ko te hunga neke atu i te 65 tau te pakeke ka tino pāngia e tēnei mate i te hunga taitamariki. Kua kitea hoki he nui ake te tūponotanga o te pāngia e tēnei mate e ngā tāne i te wāhine.

He aha ngā pānga o te Follicular Lymphoma ki tōku tinana?

Ko te lymphoma follicular he momo lymphoma pūtau-B , he momo lymphoma kore-Hodgkin . Nō reira, ka taea hoki e ia te whakaatu i ngā tohu o te lymphoma kore-Hodgkin, pērā i te pupuhi o ngā kōpū lymph, te kirika, me te werawera i te pō .

Heoi, he tokomaha ngā tāngata ka kitea te mate i mua i te puta o ngā tohu . Mō te tangata kāore he tohu, ā, kei te ora pai, kāore pea ngā tākuta e tīmata wawe i te maimoatanga. Engari, ka whai rātou i tētahi rautaki e kīia nei ko te 'tatari mataara' ko te 'mātakitaki kaha' rānei . Ko te tikanga tēnei kei te aroturuki tonu ngā tākuta i tō hauora me ō tohu.

Ka pā pea tēnei mate ki tō hinengaro i mua i tōna pānga ki tō tinana. Kua whakaatuhia e tētahi rangahau tata nei ko te hunga whai lymphoma follicular me ngā lymphoma puhoi tipu rite tonu ka pāngia e te manukanuka nui rawa atu nā te koretake o te whakaaro "Āhea ka puta mai ngā tohu?" me te "Āhea ka tīmata te maimoatanga?"

He mate kino te Lymphoma Follicular?

Āe, ko te lymphoma follicular tēnā.He mate hauora nui, he uaua hoki tēnei. He maha ngā take mō tēnei:

• Te Hurihanga: I ētahi wā, ka taea e te lymphoma follicular te huri hei momo mate pukupuku kaha ake e kiia nei ko te lymphoma pūtau-B nui e horapa ana (DLBCL) . Ka taea e tēnei te whakaputa i ngā tohu hou, kaha ake, me te horapa o te mate pukupuku ki ētahi atu wāhanga o te tinana. Tata ki te 3 ōrau (3%) o te hunga whai lymphoma follicular ka huri hei DLBCL. Whakaarohia te uaua o te pāngia ohorere e te mate kino.
• Te hokinga mai anō: Ko tētahi atu wero o tēnei mate, i muri i te maimoatanga, ka memeha haere ngā tohu, kātahi ka puta anō i muri i tētahi wā. Nā tēnei huringa o te whakaoranga-te hokinga mai anō-te murunga, ka uaua ki te hunga whai mate nei te whakaaro kua 'mutunga' rātou. Arā, me noho tonu rātou me te mataku iti i roto i ō rātou ngākau.

He aha ngā tohu o te Lymphoma Follicular?

He maha ngā tohu noa ka kitea i roto i tēnei mate. Engari kia maumahara, ahakoa kei a koe ēnei tohu, ehara i te mea kei a koe tēnei mate. Engari he mea nui kia mōhio koe ki ēnei mea.

• He pupuhi ngā kōpū waikura i te kaki, i ngā kēkē, i te rohe o te uma rānei, kāore he mamae. Ka kiia ēnei he pupuhi ngā kōpū waikura, koinā te tikanga.
• He kirika, kāore he mate, he mate rānei i puta mai.
• Te whakahekenga taumaha, kāore he take e kitea ana. Me āwangawanga koe, inā koa kua heke te taumaha o tō tinana mā te 10%, neke atu rānei, i roto i ngā marama e 6 kua pahure .
• Te werawera me te mātao. Ina koa mēnā he nui rawa tō werawera ka mākū tō moenga i te pō (te werawera pō) ā, ka mau tonu, he tohu pea tēnei nō tētahi mate hauora.
• Ngenge. Ehara tēnei i te ngenge noa. He ngenge nui e uaua ai te mahi i ngā mahi tino taketake o ia rā .

He aha te take o te Lymphoma Follicular?

Ina hoki, kāore anō kia mōhiotia e ngā kairangahau ngā tino take o tēnei mate. Engari kua kitea e rātou i roto i te 85 ōrau (85%) o ngā take, ko te tino take o tēnei mate ko ngā huringa o roto i ō tātou ira . Nā ēnei huringa, he mea rerekē, he mate pukupuku rānei, ka tīmata ngā pūtau ki te wehewehe me te whakanui me te kore e taea te whakahaere.

Me pēhea te tautuhi a ngā tākuta i te lymphoma follicular?

He maha ngā whakamātautau ka whakamahia e ngā tākuta hei whakatau tika mēnā kei a koe tēnei mate.

• Ko te koiora koiora: Ko te tango i tētahi wahi iti o te kiko mai i tētahi kōpuku lymph e pupuhi ana.He whakamātautau miroiti tēnei hei tirotiro mēnā he pūtau matepukupuku kei roto. Koinei te huarahi matua hei whakaū i te mate .
• Matawai PET (Positron Emission Tomography - matawai PET): Ka taea e tēnei matawai te whakaatu i te kaha o ngā pūtau matepukupuku, te tawhiti kua horapa, me te taumata o te matepukupuku.
• Matawai CT (Tomography Rorohiko - matawai CT): Mā tēnei ka āwhina i ngā tākuta ki te kite i te wāhi kei roto i te tinana te matepukupuku, tōna rahi, me te āhua o tana urupare ki te maimoatanga.

He aha ngā wāhanga o te Lymphoma Follicular?

Pērā i ngā mate pukupuku katoa, he rerekē ngā wāhanga o te lymphoma follicular. Ka whakamahia ēnei wāhanga e ngā tākuta hei whakatau i te momo maimoatanga pai rawa atu. E whā ngā wāhanga matua (I ki te IV):

• Wāhanga I: Kei roto i te kotahi, neke atu rānei ngā rohe o te kōpū lymph te mate pukupuku. Tata ki te 25 ōrau (25%) o ngā take lymphoma follicular ka kitea i tēnei wā.
• Wāhanga II: Kei roto i ngā rohe e rua, neke atu rānei o ngā kōpū lymph kei runga ake, kei raro iho rānei i te diaphragm (te uaua e wehe ana i tō tātou uma me te puku). Tata ki te 15 ōrau (15%) o ngā tūroro ka kitea te mate pukupuku i tēnei wā.
• Wāhanga III: Kei roto i ngā kōpū lymph i ngā taha e rua o te diaphragm (i runga ake nei, i raro iho hoki) te mate pukupuku. Tata ki te 26 ōrau (26%) o ngā tūroro ka tautuhia te mate i tēnei wā.
• Wāhanga IV: Kua horapa te mate pukupuku ki tua atu i ngā pona lymph, ki te hinu wheua, ki ētahi atu pūnaha okana rānei . Tata ki te 27 ōrau (27%) o ngā tūroro ka kitea te mate i tēnei wāhanga tino matatau.

Me pēhea te rongoā i te Lymphoma Follicular?

Kāore ngā tākuta e whakamahi i te maimoatanga kotahi mō te katoa ina rongoāhia ana te lymphoma follicular. He maha ngā āhuatanga e whakatau ana i te maimoatanga, tae atu ki te āhua o te tūroro me te wāhanga o te mate. I ētahi wā, ka whakamahia he huinga o te 'tatari mataara' me ētahi atu maimoatanga.

• Te tatari mataara, te tirotiro kaha rānei: Mena ka tūtohu tō tākuta i tēnei huarahi, me toro atu koe ki tō tākuta i ia wā, me whai whakamātautau tinana, whakamātautau toto, me ngā karapa . Ko te tikanga o tēnei me tatari kia puta mai ngā tohu, kia kino haere rānei te mate.
• Whakaora irahiko: Ka taea te whakamahi i tēnei momo whakaora irahiko i ngā wā tōmua o te mate, ina noho noa te mate pukupuku ki tētahi wāhi. Ka whakamahia e ia ngā hihi kaha-nui hei whakangaro i ngā pūtau mate pukupuku.
• Te rongoā paturopi monoclonal:He maimoatanga uaua tēnei. He māmā noa iho, ka whakamahia he momo paturopi i hangaia motuhake i roto i te taiwhanga . Ka taea e ēnei paturopi te kimi i ngā pūtau matepukupuku, ā, ka whakangaro i a rātou.
• Te rongoā matū: He mea tēnei e rangona ana e te tini tāngata ina kōrerohia ana mō te maimoatanga matepukupuku. Kei roto ko te whakamahinga o ngā rongoā motuhake hei whakangaro i ngā pūtau matepukupuku . Ka taea te hoatu ko te rongoā matū anake, te hoatu tahi rānei me ētahi atu maimoatanga.
• Whakaora arotahi: Ko ngā rongoā e whakamahia ana i roto i tēnei momo whakaora ka arotahi, ka whakaeke noa i ngā pūtau matepukupuku, me te kore e whara i ngā pūtau hauora noa . Ka taea e tēnei te whakaiti i ngā pānga taha.
• Ārai Mate: He maimoatanga tino whakamere tēnei. Ka mahi mā te whakaoho i tō ake pūnaha ārai mate ki te whawhai ki te mate pukupuku. Ka whakanui ake i te hanga o ngā pūtau e whawhai ana ki ngā pūtau mate pukupuku, ka āwhina rānei i ngā pūtau hauora ki te kite me te whakaeke i ngā pūtau mate pukupuku.
• Te whakawhitinga wheua/pūtau take: Mena ka hoki anō te lymphoma follicular i muri i te chemotherapy, ka tūtohu pea ngā tākuta i tēnei maimoatanga. Ko te tikanga o tēnei ko te whakakapi i te wheua mate ki te wheua wheua hauora, ki ngā pūtau take rānei.

Ka taea te ārai i te lymphoma follicular?

Engari, kāore anō kia kitea e ngā kairangahau tētahi huarahi motuhake hei whakaiti i te tūponotanga o te whakawhanaketanga o tēnei mate. Mena he āwangawanga, he ruarua rānei āu mō tēnei mea, ko te mea pai ko te toro atu ki tō tākuta me te kōrero mō tō hītori hauora me tō hītori hauora whānau. Kātahi ka taea e te tākuta te hoatu ki a koe ngā tohutohu e tika ana.

Kia pēhea te roa ka taea e koe te ora me te Follicular Lymphoma?

E ai ki tā tātou i kōrero ai i mua, he mate puhoi te tipu o te lymphoma follicular, he mate mau tonu . Ko te tikanga ka taea e koe te noho me tēnei mate mō te wā roa. Kua whakaatuhia e ngā rangahau tata ki te haurua (tata ki te 50%) o te hunga kua tāpaetia ki tēnei mate ka ora mō te tata ki te 20 tau . Waihoki, tata ki te 90% o ngā tūroro kei te ora tonu i roto i te 5 tau i muri i te tāpaetanga o te mate. Nō reira e whakaatu ana tēnei ahakoa he mate whakamate tēnei, tera pea ka ora tahi rātou.

Me pēhea taku tiaki i ahau anō?

He mea tino nui te tiaki i a koe anō ina noho tahi koe me te mate pukupuku. Anei ētahi mea hei āwhina i a koe i a koe e whawhai ana ki tēnei mate:

• Whakawhanakehia ngā tikanga kai pai me te whakakori tinana.Pātai atu ki tētahi tohunga kai, ki tētahi tākuta rānei, mō tētahi kai hauora e pai ana ki a koe. He tino pai hoki te whakakori tinana mō te tinana.
• He tohu noa te ngenge o tēnei mate, ā, he pānga taha anō hoki o te maimoatanga. Nō reira, whakarongo ki tō tinana. Ina ngenge koe, okioki kaua i te wā e taea ana e koe, engari i te wā e tika ana hoki.
• Tērā pea me noho koe me tēnei mate pukupuku mō te wā roa . He tino rongo pai tēnā. Heoi, he uaua pea te noho me tētahi mate pūmau ki te hinengaro. Nō reira, he tino āwhina te kōrero ki tētahi kaiwhakaora hinengaro, te whakauru atu rānei ki tētahi rōpū tautoko mō te hunga whai mate pēnei i a koe. He kaha nui hoki te mōhio kāore koe i te mokemoke.

Āhea ahau me toro atu ki taku tākuta?

Kia kitea tō mate pukupuku follicular, ka whakaritea e tō tākuta he wā tirotiro hei aroturuki i tō āhua me tō maimoatanga. Kia mau ki ēnei wā tirotiro.

Heoi, ki te kite koe i ētahi huringa o tō tinana, i ētahi tohu hou rānei (ngā tohu o te lymphoma follicular), me toro atu ki tō tākuta i te wā e taea ai, ka kōrero atu ki a ia. Ko te wawe o te kitenga, ko te māmā ake o te rongoā.

Karere Whakamutunga mō te Tango ki te Kāinga

Ka mataku tātou i te kupu mate pukupuku, kāore? Ahakoa he mate pukupuku puhoi te tipu pērā i te Follicular Lymphoma, ehara i te mea ngāwari. Tērā pea kāore he tohu mō ngā tau. Engari ina puta mai ngā tohu, me haere pea koe i roto i te huringa maimoatanga, te murunga, te hokinga mai, me te maimoatanga anō. Tērā pea ka whakaaro koe, 'Āhea ahau ka whakakore i tēnei?'

Engari ko te mea nui ko te kaua e whakarērea te tumanako. Kei te rapu tonu ngā kairangahau i ngā maimoatanga hou hei whakaora i tēnei mate.

Mena kei a koe te Follicular Lymphoma, kōrero ki tō tākuta, kia mārama hoki ki ngā kōwhiringa maimoatanga e wātea ana ki a koe. Kaua e wehi ki te pātai. Mā te mōhiotanga me te tautoko tika, ka whai mana koe ki te aro atu ki tēnei wero!

` Lymphoma Follicular, Lymphoma, Matepukupuku, Ngā Pūnaha Lymph, Ngā Tohu, Te Maimoatanga, Lymphoma Pūtau-B