Kia ako tātou mō te Guillain-Barré Syndrome (GBS), he mate tauhou e puta ai te ngaronga ohorere o te māramatanga me te ngoikore o te tinana.

Whakaarohia kua pāngia koe e te mamae o te puku, e te makariri rānei i te wiki kua taha ake nei, ā, kua pai koe. Engari kātahi ka tīmata koe ki te rongo i te ngoikore rerekē, mai i ō matimati. I muri i te rā kotahi, e rua rānei, ka horapa tēnei kare ki ō waewae, ka uaua ai te hikoi. Kātahi ka rite ō ringa ki te ngoikore. He ahua whakamataku te rongo mō tētahi mea pēnei, kāore? I tēnei rā ka kōrero tātou mō tēnei mate rerekē, onge hoki e kiia nei ko te Guillain-Barré Syndrome. Ahakoa he ahua uaua te whakahua i te ingoa, he mea nui kia mōhio ki tēnei.

He aha te tikanga o te Guillain-Barré Syndrome (GBS)?

He mate onge te Guillain-Barré Syndrome (GBS) e pōrearea ai te pūnaha ārai mate o te tinana, ka whakaeke i tō tātou ake pūnaha io, inā koa ngā io taha e rere ana ki ō tātou peka me ngā waewae. E kiia ana hoki he mate pūnaha ārai mate .

Whakaarohia ngā io o roto i tō tātou tinana he waea hiko. Pērā i te ārai i ēnei waea hiko, he hipoki tiaki kei te taha o ō tātou io e kīia nei ko te myelin . Ina puta te GBS, ka whakaekea e tō tātou pūnaha ārai mate tēnei hipoki myelin, ā, ka whakangaromia. Kātahi, me te mea kua tangohia te ārai o aua waea hiko, kāore ngā tohu e puta mai ana i te roro mā roto i ngā io e haere tika ana. Koia te take ka tīmata te ngoikore o ngā peka me te ngaro o ō rātou ora.

Ko te rongo pai , mā te maimoatanga tika, ka taea e te nuinga o te tangata te ora katoa mai i tēnei mate , engari ka roa pea te wā.

Ko wai te hunga tino tūpono ka pāngia e te GBS? He pēhea te noa o tōna pānga?

Ka pāngia te tangata katoa o ngā tau katoa e te GBS. Kei roto katoa ngā tamariki nohinohi, ngā taiohi, me ngā kaumātua i te mōrearea. Heoi, e whakaatu ana ngā raraunga he nui ake te tūponotanga o te hunga i waenga i te 30 me te 50 tau te pakeke ki te pāngia e te mate.

He tino onge tēnei mate. I te ao whānui, kotahi i roto i te 100,000 ngā kēhi hou ka pāngia e te GBS i ia tau. Ko te tikanga, i te toharite, kotahi i roto i te 78,000,000 tāngata ka pāngia e tēnei mate i ia tau. Nō reira, ehara i te mate tino noa.

He aha ngā tohu matua o te GBS?

I roto i te GBS, e pā ana ngā tohu ki te kino o ngā io ā-taha e whakahaere ana i ngā mea pēnei i te nekehanga o ō tātou uaua, te mamae, te pāmahana, me te pā.

Ka tīmata mā te ngoikore o te uaua me/ranei te ngoikore o te tinana (paresthesia) . Ka puta ohorere mai ēnei tohu. I te nuinga o te wā ka tīmata i ngā waewae me ngā waewae, ka horapa haere ki runga, ki ngā ringa me te mata. Ka uaua pea te piki arawhata, te hikoi rānei i te ngoikore o ngā waewae.

He rerekē te kaha o te GBS i ia tangata, i ia tangata. Tērā pea ka pāngia ētahi e ngā tohu tino māmā, ā, ka ora ake. Tērā pea ka pāngia ētahi e ngā tohu kino. Kei raro nei ētahi atu tohu ka kitea pea.

He aha ngā raruraru morearea ka puta mai i te GBS?

Ka taea e te GBS te whakararu i te ora mēnā ka pā ki tō tātou pūnaha io motuhake. Ko te pūnaha io motuhake te pūnaha e whakahaere ana i ngā mahi a tō tātou tinana me te kore e mōhiotia e tātou. Hei tauira, ko ngā mea pēnei i te tere o te manawa, te toto toto, me te nakunaku. Ko te ngoikore o tēnei pūnaha e kiia ana ko te dysautonomia .

Ko ngā raruraru matua ka puta mai i te GBS ko:

• Ngā arrhythmias o te ngākau
• Te kore pumau o te toto toto (tino tiketike, tino iti rānei)
• Ngā raruraru o te pūnaha nakunaku
• He uaua ki te whakahaere i te mimi, pērā i te pupuri i te mimi

Nā te mea ka pā mai pea ngā raruraru pēnei, ka puritia ngā tūroro GBS ki te wāhanga tiaki nui (ICU) o te hōhipera, ā, ka tirotirohia tonutia.

He aha te take e puta ai te GBS? He aha te take?

Kāore anō kia mōhiotia te tino pūtake o te GBS, engari e kīia ana e ngā tākuta he mate pukupuku i muri i te pangia, he mate pūnaha ārai mate . Me whakamārama noa iho.

1. Muri i te pangia: Ko te tikanga o te kupu "Mui i te pangia " ko "i muri." Ko te tikanga ka puta te mate i muri i te whakaoranga o tētahi atu mate. Tata ki te 70% o te hunga kua pāngia e te GBS kua pāngia e tētahi momo mate i roto i te wiki ki te ono wiki i muri i te tīmatanga o ngā tohu.

2. Ārai Mate: Kua kōrerohia tēnei e tātou i mua. Ko tēnei mate ka puta mai i tētahi urupare rerekē mai i tō tātou ake pūnaha ārai mate. I muri i te whawhai ki tētahi mate, ka pōrearea ngā pūnaha ārai mate o ētahi tāngata, ka tīmata ki te whakaeke i ō rātou ake io.

3. Neuropathy: Ki te kī ngāwari, ko te kino ki ngā io. I roto i te GBS, ko te kino kei ngā io ā-taha.

Ngā āhuatanga matua e whai wāhi ana ki te puta mai o te GBS

Kua tautuhia e ngā kairangahau ētahi mate urutā nui me ētahi atu take e whai wāhi ana ki te whanaketanga o te GBS.

• Te mate korere, te mate manawa rānei: Tata ki te 2 i roto i te 3 o ngā tāngata whai GBS ka pāngia e te mate korere, e te mate manawa rānei i ētahi wiki i mua i te putanga mai o ngā tohu. Ko te Campylobacter jejuni , he huakita e puta ai te mate korere, kua tautuhia hei tino take o te GBS.
• Ngā mate huaketo: Kua pūrongohia kua pāngia ētahi tūroro GBS e ngā mate huaketo pēnei i te rewharewha, te cytomegalovirus, te huaketo Epstein-Barr, me te huaketo Zika .
• Ngā Werohanga: I roto i ngā wā tino onge , kua pūrongohia ka puta te GBS i ngā rā, i ngā wiki rānei i muri i te whiwhinga o ētahi werohanga. Heoi, ko te mea nui kia mārama ki konei ko ngā painga o te werohanga he nui ake i tēnei mōrearea tino onge . Kua whakaatuhia e ngā rangahau he nui ake te mōrearea o te whakawhanake i te GBS mai i te pangia e te rewharewha i te mōrearea o te whakawhanake i te GBS mai i te whiwhi i te werohanga rewharewha.
• Pokanga:Waihoki, he tino onge te puta o te GBS i muri i ētahi pokanga.

Me pēhea te tātaritanga o te GBS?

Ka tātaritatia te GBS e ngā tākuta i runga i ō tohu me tō hītori hauora. Ka pātai atu tō tākuta ki a koe mō te tīmatanga me te wā i tīmata ai ō tohu, me te mea kua pāngia koe e ētahi mate tata nei. Kātahi ka whakahaerehia he whakamātautau tinana, inā koa hei tirotiro i te ngoikore o ngā uaua me te heke o ngā urupare uaua hohonu, pērā i ngā turi.

Heoi, i te mea he maha atu ngā mate pūnaha io e rite ana ngā tohu ki te GBS, ka tūtohu te tākuta i ētahi whakamātautau hei whakakore i ētahi atu mate, hei whakaū hoki i te āhua o te GBS.

• Te Whakamātautau Hiko-miomio (EMG) me ngā Whakamātautau Arataki Io: Ka taea e ēnei whakamātautau te aromatawai i te hauora me te mahi a ō uaua me ngā io e whakahaere ana i aua uaua.
• Te Tātari Tuaiwi/Te Wero Tuaiwi: Ko te werohanga o tētahi ngira iti ki roto i tō tuara o raro hei tango i tētahi tauira iti o te wai cerebrospinal (CSF), e karapoti ana i tō roro me tō taurakira. Tata ki te 80% o ngā tūroro e pāngia ana e te GBS he nui ake ngā taumata pūmua i roto i tēnei wai.
• Matawai MRI: Tērā pea ka tūtohuhia kia whakamahia he matawai MRI o tō tuaiwi.

He aha ngā maimoatanga mō te GBS?

Mena ka tāpaetia koe kei te mate koe i te GBS, tera pea ka whakaurua koe ki te wāhanga tiaki nui (ICU) o te hōhipera kia whiwhi ai i te maimoatanga tonu mō ngā raruraru i kōrerotia i mua ake nei, pērā i te uaua ki te manawa me ngā huringa o te toto toto.

Kāore anō kia kitea he rongoā motuhake mō te GBS. Heoi anō, e rua ngā maimoatanga matua hei whakaiti i te kaha o te mate, hei whakapoto hoki i te wā whakaora.

Mena ka tīmatahia tētahi o ēnei maimoatanga i roto i ngā wiki e rua i muri i te tīmatanga o ngā tohu, ka taea te whakapoto i te wā whakaora.

Whakaoraora

I te pai haere o tō āhua, ka taea pea koe te whakawhiti ki tētahi pokapū whakaora. I reira, ka āwhina ngā kaiwhakaora hinengaro i a koe ki te whakahoki mai i tō kaha me te hoki ki te taumata e taea ai e koe te mahi i ngā mahi o ia rā ko koe anake.

• Whakaora Tinana: Ka whakaratohia ngā mahi whakakori tinana me ngā maimoatanga hei whakapakari anō i te kaha o ngā uaua me te whakahaere i te mamae me te kōpiko.
• Whakaora Mahi: Ka āwhina i a koe ki te ako ki te mahi i ngā mahi o ia rā pēnei i te whakakakahu me te kai anō i runga i te haumaru me te ngāwari.
• Whakaora Kōrero: Mena he uaua ki a koe te horomi, te kōrero rānei, ka taea e mātou te āwhina i a koe kia hoki mai anō aua pūkenga.

He aha te heke mai mō te tangata whai GBS?

Ko te nuinga o te hunga whai GBS ka ora ake i roto i ētahi marama. Heoi, ko ētahi tāngata, inā koa ko ngā pakeke, ka mau tonu te ngoikore o te uaua i muri i ngā tau e toru. Tērā pea ka roa ake te tukanga whakaora mō ētahi tāngata.

Ko te rongo pai, ka taea e te hunga e ora mai ana i te GBS te ora i te roanga o te oranga noa . Ko te mōrearea o te mate i te wā o te mate he iti iho i te 2%. Ko te nuinga o tēnei nā ngā maimoatanga tiaki nui matatau e wātea ana i ēnei rā.

Ka taea te ārai i te GBS?

I te nuinga o te wā, kāore e taea te ārai i te GBS. Kāore anō kia mōhiotia e ngā kairangahau he aha te take e pāngia ai ētahi tāngata e te GBS ina pangia rātou e te mate, ā, ko ētahi kāore.

Engari ka taea e tātou te whakaiti i te mōrearea ki tētahi taumata mā te tiaki i a tātou anō i ngā mate ka arahi atu ki te GBS.

• Horoia pai ō ringaringa ki te hopi i ngā wā katoa.
• Me noho tawhiti atu i te hunga e pāngia ana e ngā mate hopuhopu pērā i te mate korere me te makariri.
• Hei pupuri i te kaha o tō pūnaha ārai mate, kai i ngā kai totika me te whakakori tinana.
• Me whiwhi i ō werohanga katoa i te wā tika.

He mate kino te GBS ka taea te huri i tō ao. Engari ko te mea pai rawa atu, mā te maimoatanga tika me te whakaora, ka taea e te nuinga o te tangata te hoki ki te oranga noa. Ka roa, ka hoha hoki te haerenga ki te whakaoranga. Kaua e mangere ki te rapu tautoko mai i ō tākuta, nēhi, me tō whānau me ō hoa i te ara.