Kua rongo koe i tētahi mate onge e whakawhāiti ana i ngā oko toto i roto i te roro? (Te Mate Moyamoya) Me kōrero tātou mō tēnei!

Kua pāngia koe e te ānini nui ohorere, te mamae rānei o te upoko, te ngoikore rānei o te taha kotahi o tō tinana? I ētahi wā, tera pea he take kei muri i ēnei mea kāore e taea e koe te whakaaro. I tēnei rā ka kōrero tātou mō tētahi mate hauora onge engari he tino nui. Ko te ingoa ko te Mate Moyamoya . He ahua rerekē te ingoa, kāore? Kia kite tātou he aha te mea.

He aha te mate Moyamoya?

He māmā noa iho, ko te Mate Moyamoya he mate e pā ana ki ngā oko toto i roto i tō roro. Hei whakamārama, he mate roro . Ko ngā oko toto matua e tuku toto ana ki tō roro ko ngā uaua carotid , e rere ana mai i ngā taha o tō kaki ki tō roro. I roto i tēnei mate, ka āta whaiti, ka ārai rānei tētahi, e rua rānei o ēnei uaua. Ka pā anō hoki ki ngā uaua roro , e tuku toto ana ki ngā wāhanga o mua me waenganui o tō roro.

Whakaarohia, e rua hautoru o mua o tō tātou roro e tukuna ana te toto me te hāora e ēnei uaua toto nui. Nā, he aha te mea ka tupu ina whaiti ēnei? Ka heke te nui o te toto me te hāora e hiahiatia ana e te roro. He rite ki te mea ka purua he paipa wai, ka heke te rere o te wai.

He mīharo ō tātou tinana. Ina āraia tētahi oko toto nui pēnei, ka ngana te roro ki te whakakī i te ngoikoretanga mā te hanga i ngā oko toto hou, iti ake. Engari kāore ēnei oko toto hou i te kaha pērā i ngā oko toto matua. He ngoikore, he iti hoki i te nuinga o te wā. He rite ki tētahi rori nui e āraia ana, ā, e hurihia ana ngā waka mā roto i ngā rori taha iti. Kāore pea ēnei oko toto iti e kaha ki te tuku toto ki te roro. Waihoki, ka pakaru pea ēnei oko toto ngoikore i ētahi wā. Ka taea e tēnei te puta he toto i te roro me te whiu .

He aha te tikanga o te ingoa "Moyamoya"?

He kupu Hapanihi a "Moyamoya". Ko tōna tikanga he "pēhi paowa" he "pēhi paowa" rānei. Ko ngā tākuta Hapanihi ngā tuatahi ki te kite i tēnei mate. I tā rātou tirotiro motuhake i ngā oko toto, e kiia nei ko te angiogram , i kite rātou he piko ngā oko toto iti hou kua hangaia, he rite ki ngā paoa paowa, ki ngā pupuhi paowa rānei. Koia te take i tapaina ai tēnei mate ko "te mate Moyamoya." He ingoa whakamiharo tēnā?

He pēhea te onge o te mate Moyamoya?

He mate tino onge tēnei. Ko te nuinga o te wā ka kitea i Hapani. E kiia ana e rima ngā tāngata mō ia rau mano e pāngia ana e tēnei mate. Ahakoa i roto i tētahi whenua pērā i Amerika, he iti iho i te 5,000 ngā tāngata e pāngia ana e tēnei mate. Nō reira, ka taea te kī he tino onge anō hoki tēnei i Sri Lanka. Engari i ētahi wā, ka puta ngā pūrongo mō ēnei tūroro.

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He aha ngā tohu o te mate Moyamoya?

Ko ngā tohu o tēnei mate ka puta mai i te hekenga o te rere o te toto ki te roro. He maha ngā wā, ko te wā tuatahi ka kitea ai e koe te mate koIna puta he whiu, ina rānei he raupapa o ngā whakaekenga ischemic poto (TIA) . Ka kiia ēnei TIA e ngā tākuta he "ngā whiu iti". Ko te tikanga o tēnei ka mutu te rere o te toto ki te roro mō te wā poto, kātahi ka whakahokia mai. Engari he whakatūpato tēnei.

Ko ētahi atu tohu pea ko:

• Te toto o te roro: Ka puta pea tēnei i te pakū o ngā uaua toto ngoikore i kōrerotia i mua ake nei.
• Te ānini o te upoko: Tērā pea ka pā mai he ānini maha, i ētahi wā ka tino kino.
• Ngā whakaroa whanaketanga: Ina koa ka pāngia ngā tamariki nohinohi e tēnei mate, tera pea ka puhoi ake tō rātou whanaketanga i ētahi atu tamariki.
• Aneurysm: He pupuhi rite ki te poihau i roto i tētahi wāhanga o te uaua toto. Ka taea e ēnei te pahū.
• Ngā nekehanga ā-ringa kore: Te rūrū kore e taea te whakahaere o ngā mea pēnei i ngā peka me ngā waewae.
• Ngā raruraru ki ngā pūkenga hinengaro: Hei tauira, he uaua ki te ako, ki te maumahara, me te arotahi.
• Ngā raruraru pānga: Tērā pea ka puta he panoni ki te tirohanga, te whakarongo, te hongi, te pā, me te reka.
• Ngā mate hopuhopu: Ngā āhuatanga rite ki te mate hopuhopu.

Tērā pea ka pāngia koe e tētahi, e ētahi rānei o ēnei tohu. Kāore e rite te pānga o ēnei tohu ki te katoa.

He aha te take o te mate Moyamoya?

Ina hoki, kāore anō kia kitea e ngā kairangahau te pūtake o tēnei mate. Heoi, kua kitea he pānga ira tōna , ā, i ētahi wā ka taea te noho hei mate kua riro mai i te tinana nā ētahi atu take. Kei te haere tonu te rangahau mō ngā ira ka taea te tuku i tēnei mate mai i ngā mātua ki ngā tamariki. E whakapaetia ana hoki ko ētahi mea pēnei i te mumura , te mate pāwera rānei i roto i te tinana ka taea te take.

I ētahi wā, ka puta ēnei tohu Moyamoya me ētahi atu mate hauora. Ka kiia tēnei ko te mate Moyamoya , ko te āhuatanga Moyamoya rānei. Hei tauira:

• Te mate Down
• Te mate a Graves ( he mate e pā ana ki te repe tairoi)
• Neurofibromatosis momo 1 (āhua ira)
• Mate toto ( he mate toto)
• Atherosclerosis (ngā putunga ngako i roto i ngā oko toto)

Ko te hunga whai mate pēnei i ēnei ka nui ake te tūponotanga ka pāngia rātou e ngā tohu o te Moyamoya.

He ira tuku iho te mate Moyamoya?

Āe, kua kitea e ngā kairangahau a RNF213Ko ngā whakarerekētanga ira, arā, ko te RNF213, tērā pea te take o ētahi take o te fibromyalgia. E whakaarohia ana ko te pūmua i hangaia e tēnei ira, ko te RNF213, kei roto i te whanaketanga o ngā uaua toto.

Tata ki te 15% o ngā tāngata Hapanihi e pangia ana e te mate Moyamoya, he mema whānau tō rātou e pangia ana e te mate, e tohu ana i te hononga ira. Heoi, kāore anō kia mārama te tauira tuku iho tuturu.

Ko wai te hunga ka nui ake te tūponotanga ka pāngia e te mate Moyamoya?

E ai ki tā mātou i kōrero ai i mua ake nei, he mate onge tēnei. Ahakoa he nui ake te kitea o te mate moyamoya i waenga i ngā tāngata Hapanihi, e puta mai ana i ngā āhuatanga ira, kei te pūrongohia inaianei i waenga i ētahi atu iwi.

Ahakoa kāore anō kia mārama ngā kaipūtaiao ki te tino take, e rua ngā wā ka nui ake te tūponotanga o ngā wāhine ki te pāngia e te mate i ngā tāne.

Ka taea e te mate Moyamoya te pāngia e ngā tau katoa. Heoi, ko ngā tamariki i waenga i te 5 me te 10 tau te pakeke me ngā pakeke i waenga i te 30 me te 50 tau te hunga tino tūpono ka pāngia e te mate.

He aha ngā raruraru pea ka pā mai i tēnei mate?

Ki te kore e rongoatia tika te mate moyamoya, ka puta pea ngā raruraru maha . Ko ētahi o ēnei ko:

• Pararutiki
• Ngā raruraru tirohanga
• Ngā raruraru kōrero
• Ngā mate nekehanga
• Te pakaru o te roro tuturu

Koia te mea nui kia tere te kite me te rongoā i te mate.

Me pēhea koe e mōhio ai mēnā kei a koe te mate Moyamoya?

Mena kei a koe ngā tohu o te mate moyamoya, ka tirotirohia koe e te tākuta, ka pātai atu mō ō tohu. Kātahi, ki te whakapaetia he mate moyamoya, ka tonoa pea e rātou he whakamātautau pēnei i:

• Te tirotiro i te uaua roro: I roto i tēnei whakamātautau, ka whakauruhia he ngongo iti, e kiia nei ko te catheter, ki roto i te uaua i roto i tō ringa, i tō waewae rānei. Kātahi ka werohia he wai motuhake kei roto ko te iodine (te tae rerekē) ki roto i te toto mā te catheter. Kātahi ka tangohia he hihi-X hei tirotiro i te nekehanga o te wai i roto i ngā oko toto. Mā tēnei ka taea e koe te kite i te whaiti o ngā oko toto me te rere o te toto.
• Angiography Resonance Magnetic (MRA): He whakamātautau kore mamae tēnei e whakamahi ana i te papa aukume, ngā ngaru reo irirangi, me te rorohiko hei tirotiro i ō uaua toto.
• Whakaahua Āhua Aukume (MRI): He rite tēnei tikanga ki te MRA. Ka tangohia ngā whakaahua o roto o tō tinana, ā, ka taea te aromatawai i ngā pānga o te mate ki tō roro.

Mā ēnei whakamātautau ka taea e ngā tākuta te whakatau tika mēnā kei a koe te mate Moyamoya.

He aha ngā wāhanga o te mate Moyamoya?

He mate e ahu whakamua ana te mate Moyamoya.He mate. Arā, ki te kore e rongoatia, ka kino haere te mate. Ka whakamahia e ngā tākuta tētahi whakarōpūtanga e kiia nei ko "ngā wāhanga Suzuki" hei whakaahua i te kaha o te mate. Ka whakamahia e rātou ngā mōhiohio mai i te matawai MRA hei whakatau i te wāhanga o te mate kei roto koe. Ko ēnei wāhanga Suzuki, i roto i ngā kupu māmā, koia ēnei:

• Wāhanga 1: He whaiti, he aukati rānei kei te taha o roto o te uaua carotid anake.
• Wāhanga 2: Kua tīmata te angiangi o ngā peka pito katoa o te uaua carotid. Kāore e kitea nuitia ana aua uaua toto "paoa" (ngā mea iti, āhua paoa) i runga i te angiogram.
• Wāhanga 3: E kitea mārama ana ngā uaua toto i runga i te angiogram. Ka kitea mārama te āhua o te "pēhi paoa".
• Wāhanga 4: Ka tīmata te mimiti haere o ngā oko toto i roto i te roro. I tō rātou tūranga, ka tīmata te hanga o ngā oko toto rerekē (ngā oko toto whakawhiti-dural).
• Wāhanga 5: Ka heke haere te maha o ngā uaua toto, ā, ka nui ake ngā uaua toto rerekē ka puta.
• Wāhanga 6: Kua tata ngaro katoa ngā oko toto i roto i te roro. Kua tino whaiti, kua āraia rānei te uaua carotid.

Mā te mārama tika ki ēnei wāhanga ka āwhina i ngā tākuta ki te whakamahere i te maimoatanga.

He aha ngā maimoatanga mō te mate Moyamoya?

I te rongoā i te mate moyamoya, ko te whāinga matua he whakahaere i ngā tohu me te ngana ki te ārai i te kino haere o te mate. Mō tēnei, ka tohua pea e tō tākuta ētahi rongoā māu:

• Āpipirini: Ka āwhina te āpipirini ki te aukati, ki te whakaiti rānei i ngā toto totoka i roto i ngā oko toto iti, ngoikore hou.
• Ngā rongoā ārai-hopu: Ka hoatu ēnei hei ārai i ngā hopukanga haurangi (ngā haruru) i puta mai i te haurangi.
• Ngā rongoā ārai toto: He rongoā whakaiti toto ēnei. Ka āwhina i te aukati i te toto kia kore e totohu. Heoi, he mōrearea kei roto i ēnei rongoā, arā, ki te puta he toto, ka uaua ki te whakamutu. Nō reira, ka hoatu ēnei rongoā e ngā tākuta me te tūpato, engari i roto i ngā take motuhake anake.
• Ngā aukati hongere konupūmā: Ka taea e ēnei te āwhina ki te whakaiti i te ānini e puta mai ana i te migraines. Heoi, ka taea hoki e ēnei rongoā te whakaheke i te toto toto, ka piki ake ai te mōrearea o te whiu. Nō reira, ka whakamahia anake i ngā wā motuhake.

Engari kia maumahara, kāore e taea e ēnei rongoā te aukati i te whaiti o ngā oko toto. Nō reira, ka kino haere pea te mate. Mēnā ka puta tēnei, ka tūtohu pea tō tākuta kia pokangahia koe. Mō tēnei pokanga:

• Te waihanga i tētahi ara toto hou mā te karo i te uaua kua āraia, me te whakamahi i ngā uaua hauora i te tumuaki.
• Te huri i te rere o te toto ki ngā wāhanga o te roro e pāngia ana.
• Te whakatuwhera i ngā oko toto kua whaiti.

Mā tō tākuta koe e whakamārama taipitopito ko tēhea pokanga e tino tika ana mō tō āhuatanga, ōna pānga taha, me ngā raruraru pea.

Ka taea te ārai i te mate Moyamoya?

Kāore anō kia kitea he huarahi kua whakamātauhia hei ārai i te mate Moyamoya, e puta mai ana i ngā āhuatanga ira. Heoi, ka taea te whakaiti i te mōrearea o te whakawhanake i te mate Moyamoya mā te whakahaere i ngā āhuatanga mōrearea e pā ana ki ngā uaua toto me te whakaiti i te mōrearea o te atherosclerosis .

Waihoki, ki te mea kei a koe te mate Moyamoya, mā te tango i te rongoā i tohua e tō tākuta kia rite ki te whakahaunga ka āwhina i te whakahaere i ō tohu me te ārai i ngā raruraru.

He aha ngā mea ka taea e te tangata e pangia ana e tēnei mate te tumanako?

Mō te tini o te tangata, ka kino haere te mate Moyamoya i roto i te wā. I te mea ka whaiti haere ngā oko toto, ka pāngia pea rātou e te whiu . Ki te kore e rongoatia, ka taea e te mate Moyamoya te arahi ki te kino nui o te pūnaha io, te whiu, tae noa ki te mate.

Heoi, ka taea e ētahi tāngata te noho pumau mō ngā tau maha, kāore he tohu. Ina tīmata te puta o ngā tohu, ka tūtohu pea te tākuta kia pokangahia.

He aha te roanga o te oranga o te tangata e pāngia ana e te mate Moyamoya?

Ki te kitea wawetia te mate, ā, ka tīmata wawe te rongoā, ka taea e te hunga whai mate Moyamoya te ora i te oranga noa.

Heoi, ki te kore e rongoatia, ka mate pea tēnei mate. Koia te mea nui o te tautuhi wawe me te maimoatanga.

Āhea te tangata e pāngia ana e te mate Moyamoya me rapu awhina hauora ohorere?

Ki te pāngia koe e ētahi tohu o te whiu , me rapu tonu koe i te awhina hauora ohorere . He mea nui te wā ki konei.

E whakamahi ana te American Stroke Association i tētahi kupu whakarāpopoto e kīia nei ko FAST hei whakangāwari i te maumahara a te tangata. Me titiro tātou ki tōna tikanga i te reo Sinhala:

• F - Te piko o te mata: Kei te ahua ngoikore tetahi taha o tō mata? Ki te ngana koe ki te menemene, ka piko tetahi taha o tō mata?
• A - Ngāwari te ringa: Ka taea e koe te hapai i ngā ringa e rua? Ka taka tetahi ringa ki raro?
• S - Te uaua o te kōrero: He pōturi tō kōrero? He puhoi rānei? Ka taea e koe te whakahoki i tētahi rerenga kōrero māmā?
• T - Kua tae ki te wā hei waea atu ki ngā ratonga ohorere: Ki te kite koe i tētahi o ēnei tohu o te whiu, waea atu ki te 911 tonu ka tikina he waka tūroro, haere rānei ki te hōhipera tonu. He mea nui te wā!

Ko ētahi atu tohu o te whiu ka uru atu ki te tīmatanga ohorere o:

• Pōhēhētanga
• Te ngenge i tetahi taha o te tinana
• Ngā raruraru tirohanga
• Te uaua ki te hikoi
• He tino mamae te upoko

He mate onge te mate Moyamoya, ka arahi pea ki ngā whiu me ngā toto toto i roto i te roro. Ahakoa kāore anō kia kitea e ngā kairangahau te tino take, he nui ake te kitea i roto i ngā tāngata Hapanihi. Mena kei a koe ētahi o ngā tohu o Moyamoya, me toro atu ki te tākuta tonu. Ko te tātaritanga wawe me te maimoatanga o te mate Moyamoya te mea nui hei whakatau i te ora me te mate. He mea nui hoki kia mōhio ki ngā tohu o te whiu me te mahi tonu mena ka puta.

Whakarāpopototanga (Karere hei tango ki te kāinga)

Nō reira, ko tāku tumanako kua mārama kē koe ki te mate Moyamoya i kōrerohia e tātou i tēnei rā. Anei ētahi mea nui hei maumahara māu:

• He mate onge tēnei e whakawhāiti ai ngā oko toto i roto i te roro.
• Tērā pea ka puta ngā tohu pēnei i te whiu , te ānini , me ngā haurangi .
• He mea tino nui kia tere te kite me te rongoā i te mate.
• Kei roto i te maimoatanga ngā rongoā, ā, mēnā e tika ana , te pokanga bypass .
• Mā te mōhio ki ngā tohu o te whiu (FAST) ka ora ai.

Mena kei a koe, kei tētahi rānei e mōhio ana koe, ēnei tohu, rapua he tohutohu hauora. Kaua e manukanuka, he otinga kei reira mō ngā mea katoa. Ko te mea nui ko te tere o te mahi.

Moyamoya , ngā mate roro, te whiu, ngā uaua toto, ngā mate pūnaha io, ngā mate ira, ngā ānini