Kua mau tō taurakira ki tētahi wāhi? Me ako tātou mō te taurakira here.

Kua kite koe, tāu tamaiti rānei i tētahi āhua koretake, mamae, huringa rānei o tō tuara, o tō hikoi rānei? I ētahi wā, kua kite pea koe i tētahi puku iti, i tētahi puku rānei i te kiri i raro i tō tuara. Ko tētahi o ngā take o ēnei mea he āhua e kiia nei ko te 'tethered spinal cord' . Tērā pea he ahua whakamataku te ingoa, engari ki te mōhio koe ki tēnei, he maha ngā raruraru ka taea te whakatau. I tēnei rā, ka kōrerohia tēnei e tātou i roto i tētahi huarahi māmā ka taea e koe te mārama.

He aha te 'taura tuaiwi here'?

I roto i ngā kupu māmā noa iho, ko tō tātou taurakira , te muka io matua e rere ana i roto i tō tātou tuaiwi, me neke noa i roto i te tuaiwi. Pērā i te waea i roto i te ngongo. Heoi, i roto i tēnei āhuatanga 'taurakira here', ka piri te taurakira ki te pakitara o roto o te tuaiwi, ki tētahi atu kiko rānei, he āhua rerekē .

Whakaarohia, ka herea e koe he taura ki tētahi wāhi ka tōia ki tētahi atu. Kātahi ka tōia te taura, tika? Koinā hoki te mea e tupu ana i konei. Ina pēhia te taura tuaiwi pēnei, ina piki tātou, ina mahi rānei i ā tātou mahi o ia rā, ka tīmata te tōia o te taura tuaiwi. Ka taea e tēnei tōia te kino i te taura tuaiwi me te whakararu i te rere o te toto ki ngā io e rere ana i roto . Ka kiia hoki tēnei ko te `(Tethered Cord Syndrome)` ko te `(Tethered Spinal Cord Syndrome)` rānei.

He aha tō tātou tuaiwi?

Hei mārama tika ki tēnei, me mārama koe ki te taurakira. He kiko matotoru te taurakira e rere ana mai i te pūtake o tō tātou angaanga ki waenganui o tō tātou tuaiwi. Ka haere ngā tohu io e pā ana ki ngā mea katoa o roto i tō tātou tinana, pērā i te nekehanga me te rongo, mā roto i tēnei taurakira. Arā, he rite ki te pokapū whakahaere o tō tātou tinana.

He aha te rerekētanga i waenga i te 'Tethered Spinal Cord' me te 'Spina Bifida'?

Kua rongo pea koe i tētahi mate e kiia nei ko te 'Spina Bifida'. He mate tēnei e kitea ana i te whānautanga. Tērā pea ka pāngia ngā tamariki e te 'Spina Bifida' e te mate 'Tethered Spinal Cord' i te whānautanga.

He momo kino rawa te myelomeningocele o te spina bifida. Ka puta tēnei ina kore e whanake tika te pito o raro o te tuaiwi o te pēpi me taua wāhanga o te tuaiwi i te wā e whānau ana te pēpi. Kātahi, ina whānau te pēpi , ka kitea pea te tuaiwi ka piri ki te kiri.

Kei reira anō hoki ngā momo spina bifida kāore i te tino kino. Hei tauira, he āhuatanga e kiia nei ko te "Spina Bifida Occulta". I roto i tēnei, tera pea ka piri kē te taurakira ki te pakitara o te awaawa tuaiwi nā te kiko ngako (lipoma) nā te kiko matotoru rānei (filum) i te pito o te taurakira.

He maha ngā tamariki e pangia ana e te spina bifida ka pokangahia i te tīmatanga o te oranga hei wetewete i te taura. Heoi, i ētahi wā ka puta he kiko koha ki te rohe i muri i te pokanga, ā, ka taea te hono anō i te taura ki te tuaiwi.I te pakeketanga o ngā tamariki, ka totoro te taurakira, ka hua ake he āhuatanga e kiia nei ko te 'tethered spinal cord syndrome'.

Ko te mea nui kia mārama ahakoa kāore e kitea mārama te mate e kīia nei ko te 'Spina Bifida', tera pea he mate 'Tethered Spinal Cord'.

Ko wai te mea tino pāngia e tēnei āhuatanga?

Ko te Tethered Spinal Cord Syndrome he mate e kitea nuitia ana i roto i te hunga e pāngia ana e te open spina bifida. E ai ki ētahi tohunga, tata ki te kotahi i roto i te rua o ngā tamariki e pāngia ana e te myelomeningocele ka pāngia e te tethered spinal cord syndrome. Heoi, e ai ki te kōrero i mua ake nei, ka taea hoki te puta me te kore e kitea te spina bifida.

He aha ngā tohu o te 'taura tuaiwi here'?

Ka rerekē ngā tohu o tēnei mate i ia tangata, i ia tangata. Ka puta ētahi tohu i te whānautanga mai o ētahi pēpi. I te nuinga o te wā, ka puta ēnei tohu i te pakeketanga o ngā tamariki. He onge, kāore pea ētahi tāngata e pāngia e ngā tohu i a rātou e tamariki ana, ā, ka puta pea ngā tohu i muri mai i te oranga, nā te mea kāore i kitea wawetia te mate.

Ka pāngia pea ngā tamariki me ngā pakeke e ngā tohu e whai ake nei e pā ana ki tēnei mate:

• Te uauatanga o te hikoi: Me āwangawanga koe mēnā he rerekē te ara hikoi o te tamaiti, inā koa i te wā e tīmata ana rātou ki te hikoi, mēnā rānei he huringa kei roto i tā rātou tauira hikoi.
• Ngā panonitanga kiri i te tuara o raro: Tērā pea ka kite koe i tētahi rua iti i te tuara o raro, i runga ake i te papa. Tērā pea ka kite koe i te tupu o ngā huruhuru rerekē i taua wāhi. Tērā pea ka kite koe i ngā pukupuku pai, i ngā wāhi kiri kua rerekē te tae , i ngā tohu whānau rānei e kiia nei ko ngā hemangioma. I ētahi wā, ka kite pea koe i ngā tupu iti, rite ki te mole i runga i te kiri (ngā tohu kiri / ngā acrochordon) .
• Te ngoikore, te ngaro rānei o te kare ā-roto o ngā waewae, o te tuara rānei: Ki te mea he maha ngā wā ka ngoikore ō waewae, ka ngaro rānei te kare ā-roto o ō waewae, kia aro atu ki tēnā.
• Te mamae nui o te waewae, o te tuara rānei: Ka horapa pea tēnei mamae ki te pūkahukahu, ki te ira tangata rānei.
• Scoliosis: Mena he āhua piko te tuaiwi ki tetahi taha.
• Ngā raruraru ki te whakahaere mimi me te puku: Ngā raruraru pēnei i te mimi pinepine, te uaua ki te pupuri i te mimi, te uaua rānei ki te whakahaere i ngā nekehanga o te puku.
• Ngā whēkau kī tonu i te wai i roto i te taurakira (Syringomyelia): Ka taea anake te kite i tēnei mā te matawai.
• Te Mimiha o ngā Uaua: Ina koa mēnā he ngoikore, he angiangi ngā uaua o ngā waewae.

Mena kei a koe tētahi, ētahi rānei o ēnei tohu, he pai ake te rapu tohutohu hauora.

He aha ngā take o te 'Tethered Spinal Cord Syndrome'?

Ka taea e tēnei mate te whānau mai i te whānautanga, ka riro mai rānei i muri mai i te ao.

Ngā take whānautanga:

• Ko te matotoru rerekē o te kiko mai i te pito o te taurakira ki te wheua hiku (Sacrum) (Filum Terminale) te tino take.
• Te mate Spina Bifida.

Ngā take i riro mai:

• Te kiko koha i muri i te pokanga tuaiwi.
• Ngā mate urutā.
• Te whara nui o te tuaiwi.
• Ngā pukupuku.

E whakapono ana ētahi kairangahau tera pea ka whai wāhi ngā āhuatanga ira ki ngā āhuatanga pēnei i te spina bifida. Ahakoa kua kitea he hononga i waenga i te myelomeningocele me ngā ira, kāore anō kia whakamātauhia he hononga mārama i waenga i te tethered cord syndrome me ngā ira.

Me pēhea te mōhio ki te 'taura tuaiwi here'?

Ko te tikanga ka tātaritatia tēnei mate e te tākuta roro . Ka tirotirohia koe, e tāu tamaiti rānei e ia, ka pātai atu mō ō tohumate. Hei tāpiri, ka mahia ngā whakamātautau whakaahua e whai ake nei:

• Matawai MRI (Atahanga Āhua Aukume): Koinei te whakamātautau e whakamahia whānuitia ana hei tātaritanga i tēnei mate. Ka whakamahia ngā aukume me ngā ngaru reo irirangi hei kite mārama i te taurakira, ngā io, me ngā kiko e karapoti ana.
• Myelogram: I roto i tēnei, ka werohia he tae motuhake ki roto i te pēke e hipoki ana i te taurakira (te pēke thecal). Kātahi ka tangohia he hihi-X hei tirotiro mēnā kei te pēhia te taurakira e te taurakira.
• Matawai CT (Tomography Rorohiko): Ka whakamahia he rorohiko motuhake me te hihi-X hei tirotiro i roto i te tinana. I ētahi wā ka mahia he matawai CT i muri i te myelogram hei tirotiro i te nekehanga o te tae huri noa i te taurakira.
• Matawai Ultrasound: Ka whakamahia e tēnei he ngaru oro auau teitei hei tirotiro i roto i te tinana. He maha ngā wā ka whakamahia hei tirotiro i te nekehanga o te taurakira i roto i te tuaiwi i roto i ngā pēpi nohinohi .

Me pēhea te rongoā i te taurakira e herea ana?

Ko te pokanga te maimoatanga matua mō tēnei mate. Ko te momo pokanga e mahia ana ka whakawhirinaki ki ētahi āhuatanga, hei tauira:

• Te matotoru o tō `(Filum Terminale)`.
• Te wāhi e pēhia ai te taurakira.
• He pakeke koe, he tamaiti rānei?

Ko te tikanga ka mahia tēnei pokangaHe tākuta te taote pokanga roro e tohunga ana ki te pokanga roro me te tuaiwi. Ka tapahia tuatahitia e ia he wahi iti ki te tuara o raro. Kātahi, mā te whakamahi i ngā taputapu pokanga, ka tangohia marietia te kiko whara, ka wetekina te taurakira mai i te taurakira.

He aha ngā mea ka tupu i muri i te pokanga 'tethered spinal cord'?

I muri i te pokanga, ka taea e koe, e tāu tamaiti rānei te hoki anō ki ngā mahi māmā noa i muri tata mai. Heoi, me karohia ngā mahi uaua, pērā i te hiki i ngā mea taumaha, mō ngā wiki e ono ki te waru, neke atu rānei, e ai ki ngā tohutohu a tō tākuta. Me hoatu he wā ki te patunga kia ora pai ai.

Tērā pea ka hiahia ētahi tāngata ki te whakaora tinana, ki te whakaora mahi rānei i muri i te pokanga hei āwhina i a rātou ki te whakahoki mai i te mahi kua ngaro. Ka mahia tēnei pokanga hei aukati i ngā kino atu ki ngā io. Heoi, kāore pea e taea te whakatika katoa i ngā kino o te io kua puta kē. Nō reira, tērā pea ka mau tonu te ngoikore o te uaua, ngā raruraru nekehanga rānei o ētahi tāngata i muri i te maimoatanga.

Ka taea te ārai i tēnei āhuatanga?

Engari, kāore he huarahi hei ārai i te taurakira e herea ana. Heoi, ki te whiwhi koe i te maimoatanga i te wā wawe, ka taea e koe te whakakore i ngā tohu. Nō reira, ki te whakapae koe kei a koe, kei tāu tamaiti rānei tētahi o ēnei tohu, me toro atu ki te tākuta tonu.

He aha te tirohanga mō te mate 'tethered spinal cord'?

Mā te maimoatanga, ka taea e te nuinga o te tangata te noho noa i te oranga. Ko te tere o te whiwhinga maimoatanga mō te taurakira e herea ana e whakatau ana i ō tupono ki te ora katoa. Ko ētahi tohu, pērā i te uaua ki te whakahaere i te nekehanga, te ngoikore, te ngoikore rānei, kāore pea e memeha katoa, inā koa mēnā ka mahia te pokanga i muri mai i te oranga.

Me nui ake i te kotahi te pokanga e hiahiatia ana e au, e taku tamaiti rānei?

Mō te nuinga o te tangata , he nui te pokanga kotahi hei rongoā i te taurakira e herea ana. Heoi, tata ki te kotahi i roto i te rima o ngā tamariki e hiahia ana kia neke atu i te kotahi te pokanga. Ko ngā tohu o te taurakira e herea ana ka kino ake, ka hoki mai rānei i ngā wā tipu tere (ngā tere tipu). I ēnei wā, ka hiahiatia pea tētahi atu pokanga i muri i te tipu roa o te tamaiti. Ko ngā tamariki i waenga i te 7 me te 12 tau te hunga tino mōrearea ki te hiahia ki tētahi atu pokanga.

He aha ngā pātai me pātai atu e au ki taku tākuta?

Mena kei a koe, kei tāu tamaiti rānei tētahi mate 'tethered spinal cord', ki te whakaaro rānei koe kei a koe tētahi, he mea pai kia pātai atu koe ki tō tākuta i ēnei pātai:

• Ngā tohu tōmua o te 'taura tuaiwi here'He aha?
• He aha ngā whakamātautau e mahia ana hei tautuhi i tēnei mate?
• He aha ngā kōwhiringa maimoatanga mō tēnei?
• He aha te tūponotanga ka hoki anō ngā tohu i muri i te maimoatanga?

Ka taea te noho noa i te ao noa me te mate 'tethered spinal cord'?

Āe. He tokomaha te hunga e whiwhi maimoatanga wawe ana mō te taurakira here ka taea te noho noa me te whai roanga oranga noa.

Ko te taurakira here he hononga rerekē o te taurakira ki te pou tuaiwi. He mea noa te mataku ina mōhio koe, tāu tamaiti rānei kei a koe tēnei mate, engari mā te maimoatanga wawe ka āwhina i te whakamamae i ngā tohu me te whakaora anō hoki. He hononga tata tēnei mate ki te spina bifida, he hapa whānau kāore e whanake tika te taurakira, te tuaiwi rānei. Waihoki, he maha ngā tamariki kua pokangahia mō te myelomeningocele ka whanake he taurakira here. Ki te kite koe, tāu tamaiti rānei i tētahi o ēnei tohu, rapua tonutia he awhina hauora.

Ngā mea tino nui hei maumahara māu (Karere hei kawe ki te kāinga)

Āe, me whakarāpopoto e au ētahi o ngā kōrero tino nui i roto i ngā mea kua kōrerohia e tātou:

• Ko te taurakira here he āhuatanga e mau ai, e totoro ai te taurakira ki roto i te tuaiwi.
• Ka kitea pea tēnei i te whānautanga mai, ka whanake rānei i muri mai i te ao . He nui ake te mōrearea o ngā tamariki e pāngia ana e te spina bifida.
• He rerekē ngā tohu: te mamae o te tuara me te waewae, te ngoikore o te tinana, te uaua ki te hikoi, te rerekētanga o te kiri, me ngā raruraru ki te whakahaere i te pūkahukahu/puku.
• He mea nui te matawai MRI ki te tautuhi i te mate.
• Ko te pokanga te maimoatanga matua. Mā tēnei ka mutu te kino o ngā io.
• Ko te wawe o te whiwhi maimoatanga, ko te nui ake o te tūponotanga ka ora koe. Tērā pea ka mau tonu ētahi tohu.
• Kaua e manukanuka! Mā te maimoatanga tika, ka taea e koe te noho i te oranga noa.
• Mena kei a koe, kei tāu tamaiti rānei tētahi o ēnei tohu, kaua e whakaroa , engari me toro atu ki te tākuta.

Ko tāku tumanako ka whai hua ēnei kōrero ki a koe. Kia ora tonu!

Tuaiwi , taurakira, spina bifida, mate pūnaha io, pokanga, hauora o te tamaiti, mamae tuara