Kodi mumagona mwadzidzidzi masana? Izi zitha kukhala matenda a Narcolepsy! Tiyeni tikambirane za izi

Kodi munayamba mwamvapo tulo tosatha pamene mukugwira ntchito masana kapena mukucheza ndi anzanu? Mungaganize kuti, "O... sindinagone mokwanira usiku watha." Koma si nkhani yongotopa chabe. Lero tikambirana za vuto lina losiyana pang'ono la tulo. Umenewo ndi vuto lotchedwa Narcolepsy . Ngakhale kuti si lofala kwambiri, ndi chinthu chomwe anthu ambiri amva chifukwa cha zizindikiro zomwe zimagwirizanitsidwa ndi vutoli . Lingathe kuchiritsidwa, koma likhoza kukhudza kwambiri moyo wanu, ntchito, komanso ubale wanu ndi anthu ena.

Kodi Narcolepsy ndi chiyani?

Mwachidule, Narcolepsy ndi matenda amitsempha omwe amayambitsa kugona mwadzidzidzi komanso kosalamulirika masana. Makamaka, ubongo wanu sungayendetse bwino kugona ndi kudzuka. Izi zingakupangitseni kumva tulo tochuluka masana, mosasamala kanthu kuti mumagona tulo tochuluka bwanji usiku.

Kodi zizindikiro zazikulu za matenda a Narcolepsy ndi ziti?

Pali zizindikiro zinayi zazikulu za matenda a Narcolepsy. Koma anthu ambiri samakhala ndi zizindikiro zonse zinayi nthawi imodzi. Anthu ena akhoza kukhala ndi chimodzi kapena ziwiri. Tiyeni tiwone zizindikirozi.

• Kugona Kwambiri Masana : Ichi ndi chizindikiro chofala cha matenda a Narcolepsy. Zili ngati kukhala ndi "kugona" komwe umagona mwadzidzidzi. Kaya mukuchita chiyani, mukumva ngati mukufuna kusiya ndi kugona.
• Cataplexy: Uku ndi kutayika mwadzidzidzi kwa mphamvu ya kulamulira minofu . Nthawi zina kumakhala kofatsa, monga kugwedezeka kwa minofu mbali imodzi ya nkhope kapena khosi. Ngati ndi yoopsa, mungagwe pansi mwadzidzidzi. Tiyeni tikambirane za izi mwatsatanetsatane.
• Kuona zinthu molakwika chifukwa cha tulo : Izi ndi kuona zinthu molakwika komwe kumachitika munthu akagona kapena akamadzuka, ndipo kungakhale koopsa kwambiri.
• Kulephera Kugona : Mwina munamvapo izi ngati "kuopa m'maloto ndipo simungathe kuyenda" kapena monga ena amanenera, "kumva ngati chiwanda chakwera mmwamba." Apa ndi pamene simungathe kusuntha thupi lanu ngakhale mutadzuka, kapena mwina simunadzuke mokwanira. Tiyeni tiwone izi pang'ono.

Zambiri pang'ono zokhudza (Cataplexy)

Tanena kale kuti cataplexy ndi kutayika kwadzidzidzi kwa mphamvu ya minofu. Narcolepsy imagawidwa m'magulu awiri akuluakulu kutengera ngati chizindikiro cha cataplexy ichi chilipo kapena ayi:

• (Nthenda Yoyambitsa Matenda a Chiwindi Mtundu 1) : Mtundu uwu uli ndi chizindikiro cha (Cataplexy) . Pafupifupi 20% ya odwala (Nthenda Yoyambitsa Matenda a Chiwindi) ali m'gulu la matendawa.
• (Narcolepsy Type 2) : Mtundu uwu ulibe chizindikiro cha (Cataplexy) . Ambiri, kutanthauza kuti, pafupifupi 80%, amagwera mu mtundu uwu.

Kawirikawiri, tikagona, ubongo wathu umasiya kulamulira minofu yathu kuti tisachite zomwe tikufuna. Anthu omwe ali ndi vuto la cataplexy amataya minofu mwadzidzidzi, mofanana ndi momwe amachitira akagona REM, ngakhale atakhala maso.

Muzochitika zofatsa, cataplexy ingakhudze minofu ya nkhope ndi khosi yokha - mwachitsanzo, nsagwada ikhoza kugwa. Kapena ingakhudze mbali imodzi yokha ya thupi. Muzochitika zoopsa, cataplexy ingayambitse kugwa mwadzidzidzi, komwe kungaphe. Nthawi zambiri izi zimatenga mphindi zochepa, koma simungathe kulankhula kapena kusuntha panthawiyi.

Chinthu china chapadera chokhudza cataplexy ndichakuti imatha kuyambitsidwa ndi malingaliro ena. Imatha kuchitika makamaka mukasangalala, mukuseka, kapena mukuseka. Imathanso kuchitika mukadabwa, mukuopa, kapena mukukwiya, koma si kawirikawiri.

Matenda a Cataplexy amatha kuwoneka mosiyana pang'ono mwa ana ndi omwe ali ndi miyezi isanu ndi umodzi zizindikiro zikayamba kuwonekera. Angakhudze mwadzidzidzi, kutulutsa lilime lawo, kapena kumva kufooka kwa minofu komwe sikukugwirizana ndi momwe akumvera.

Zambiri zokhudza kufooka kwa tulo

Tikagona, ubongo umasiya kulamulira minofu yathu kuti isagwire ntchito pa zomwe timaona m'maloto athu. Koma tikadzuka, ulamuliro uwu uyenera kugwiranso ntchito bwino. Koma ngati muli ndi vuto la kugona, thupi lanu sililandiranso ulamuliro wa minofuyo. Mutha kupuma ndikusuntha maso anu, koma simungathe kulankhula kapena kusuntha ziwalo zina za thupi lanu.

Kuona zinthu m'maganizo nthawi zambiri kumakhala kofala kwambiri panthawi ya kufooka kwa thupi. Kungakhale koonekera bwino, nthawi zina koopsa kwambiri. Mwamwayi, kufooka kwa thupi nthawi zambiri kumatenga mphindi zochepa (ngakhale kuti munthu amene akuvutika nako angamve ngati nthawi yayitali).

Kodi pali zizindikiro zina?

Kuwonjezera pa zizindikiro zinayi zazikulu, anthu omwe ali ndi vuto la narcolepsy angakumane ndi zizindikiro zina ndi machitidwe ena. Zina mwa izo ndi izi:

• Kuyenda Mwachangu : Anthu omwe ali ndi vuto la narcolepsy nthawi zina amatha kupitiriza kusuntha ziwalo za thupi, monga manja awo, ngakhale atagona.
• Kulephera kukumbukira kapena Kuiwala : Anthuwa nthawi zambiri amaiwala zomwe adachita asanagone.
• Kulankhula mwadzidzidzi akamagona : Munthu amene ali ndi vuto la narcolepsy anganene mwadzidzidzi zinazake (nthawi zambiri zosamveka bwino kapena zosafunikira panthawiyo). Izi zikachitika, angadzukenso kwathunthu. Koma nthawi zambiri sazikumbukira.

Ndani amadwala matenda a narcolepsy? Kodi ndi ofala bwanji?

Madokotala nthawi zambiri amazindikira matenda a narcolepsy mwa anthu azaka zapakati pa 5 ndi 50. Komabe, amapezeka kwambiri kwa achinyamata , azaka zapakati pa 18 ndi 25. Amuna nthawi zambiri amakhala ndi vutoli.

Matenda a narcolepsy si matenda ofala kwambiri.Kafukufuku akusonyeza kuti anthu pakati pa 25 ndi 50 pa anthu 100,000 padziko lonse lapansi ali ndi matendawa. Komabe, chifukwa zimatenga zaka zambiri kuti adziwe matendawa, n'zovuta kunena kuti ndi anthu angati omwe ali nawo.

Kodi matenda a narcolepsy amakhudza bwanji thupi langa?

Kuti timvetse vuto la narcolepsy, zimathandiza kudziwa pang'ono momwe tulo lathu limagwirira ntchito. Pali magawo angapo akuluakulu a tulo lathu:

• Gawo 1: Kugona pang'ono . Iyi ndi gawo lalifupi. Limayamba mukangogona. Limapanga pafupifupi 5% ya tulo lanu lonse.
• Gawo Lachiwiri: Kugona Mozama . Izi ndi zozama pang'ono. Zimapanga pafupifupi 45%-50% ya tulo tonse (kuchuluka kumeneku kumawonjezeka pamene tikukalamba).
• Gawo 3: Kugona Pang'onopang'ono . Pafupifupi 25% ya tulo lonse (izi zimachepa ndi ukalamba). N'zovuta kwambiri kudzutsa munthu amene ali mu siteji iyi. Ngati mumudzutsa mwadzidzidzi, adzalowa mu mkhalidwe wa chifunga cha m'maganizo wotchedwa "sleep inertia". Kuyenda m'tulo ndi kulankhula m'tulo kumachitikanso mu siteji iyi.
• (REM) Kugona : (REM) imayimira (Rapid Eye Movement) , zomwe zikutanthauza kuti maso amayenda mofulumira. Ndi panthawiyi pamene timalota. Munthu akakhala mu (REM) tulo, amatha kuona maso akuyenda pansi pa zikope.

Ngati mulibe vuto la narcolepsy, mukagona, mumayamba mu gawo loyamba, kenako pitani ku magawo awiri ndi atatu. Mumazungulira pakati pa magawo awa, kenako mumalowa mu REM sleep, komwe mumayamba kulota. Pambuyo pa REM cycle yoyamba, mumayamba cycle yatsopano ndikubwerera ku gawo loyamba kapena lachiwiri. Nthawi zambiri cycle imodzi imatenga mphindi 90. Anthu ambiri amadutsa pafupifupi cycle zinayi kapena zisanu usiku uliwonse (ngati agona kwa maola 8).

Koma ngati muli ndi vuto la narcolepsy, nthawi yanu yogona siichitika choncho. M'malo mwake, mumagona tulo ta REM nthawi yomweyo mukangogona . Usiku wonse, mumagona nthawi yochepa, nthawi zambiri osamaliza nthawi yogona yachizolowezi.

Mu matenda a narcolepsy, ngakhale mutagona bwino bwanji usiku, mumamva tulo tosatha masana. N'zovuta kwambiri kusiya kugona. Koma tulo tomwe timabwera masana timakhala tafupi (pafupifupi mphindi 15-30). Mukadzuka, mumamva kuti mwatsitsimuka ndipo mwakonzeka kuchita zomwe munkachita kale. Komabe, chifukwa chakuti izi zimachitika kangapo patsiku ndiye kuti matenda a narcolepsy amasokoneza kwambiri moyo wanu.

Kodi ndi zinthu ziti zomwe zimayambitsa matenda a narcolepsy?

Zomwe zimayambitsa matenda a narcolepsy zimasiyana malinga ndi mtundu wa matenda a narcolepsy omwe muli nawo, koma zonse zimakhudza gawo lapadera la ubongo wanu lotchedwa hypothalamus , lomwe limayang'anira kugona ndi kudzuka.

Zifukwa za (Mtundu 1 wa Narcolepsy)

Mu 1998, ofufuza anapeza mankhwala otchedwa orexins (nthawi zina amatchedwa hypocretins) . Awa amagwiritsidwa ntchito ndi ma neuron ena (maselo a muubongo) kutumiza mauthenga. Ma neuron omwe amagwiritsa ntchito orexins amapezeka mu gawo la ubongo lotchedwa hypothalamus. Ma neuron awa ndi omwe amathandiza kwambiri kuti tikhale maso.

Milingo ya Orexin nthawi zambiri imapezeka mu cerebrospinal fluid (CSF) - gawo lochepa la madzi lomwe limazungulira ubongo ndi msana. Komabe, mwa anthu omwe ali ndi vuto la narcolepsy, kuchuluka kwa orexin mu CSF kumakhala kochepa kwambiri kapena sikungatheke kuwonedwa. Izi zikutanthauza kuti maselo omwe amapanga orexin asiya kugwira ntchito kapena awonongedwa ndi china chake.

Kafukufuku wina akusonyeza kuti chifukwa chomwe ma neuron awa sagwira ntchito mwina ndi vuto la chitetezo chamthupi . Izi zikutanthauza kuti chitetezo chamthupi chanu chimaukira ma neuron omwe amapanga ndikugwiritsa ntchito orexin, kapena orexin yokha, kapena zonse ziwiri.

Pafupifupi 90%-95% ya anthu omwe ali ndi matenda a Narcolepsy amtundu woyamba ali ndi kusintha kwa majini komwe kumakhudza chitetezo chawo chamthupi (komwe kumadziwika kuti HLA-DQB1*06:02 ). Komabe, pafupifupi 25% ya anthu onse ali ndi kusinthaku koma alibe matenda a Narcolepsy. Chifukwa chake, akatswiri sayesa kusinthaku, ndipo sakudziwa kuti kumachita bwanji. Palinso umboni wina wosonyeza kuti vutoli likhoza kuchitika m'mabanja. Ngati wachibale woyamba (kholo, m'bale, mwana) ali ndi matenda a Narcolepsy, muli pachiwopsezo chachikulu chotenga matendawa.

Komabe, matenda a mtundu woyamba a narcolepsy amathanso kuyamba pambuyo pa matenda enaake a mavairasi ndi mabakiteriya, makamaka mavairasi a chimfine monga chimfine cha H1N1 ndi mabakiteriya omwe amayambitsa strep throat. Akatswiri amakhulupirira kuti izi zitha kukhala chifukwa chakuti matenda nthawi zina angayambitse kusintha ndi kusokonekera kwa chitetezo chamthupi.

Zifukwa za (Mtundu wachiwiri wa Narcolepsy)

Ngakhale kuti pali zambiri zodziwika bwino zokhudza zomwe zimayambitsa matenda a mtundu woyamba wa Narcolepsy, osati kwambiri za matenda a mtundu wachiwiri a Narcolepsy. Akatswiri sakumvetsabe chifukwa chake matenda a mtundu wachiwiri a Narcolepsy amayamba. Koma akuganiza kuti akhoza kukhala ndi zifukwa zofanana. Mwachitsanzo, zitha kukhala chifukwa cha kuwonongeka kochepa kwa ma neuron omwe amagwiritsa ntchito orexin, kapena vuto la momwe orexin imayendera muubongo.

Matenda a Narcolepsy achiwiri

Nthawi zina, vuto la narcolepsy lingayambitsidwe ndi kuwonongeka kwa hypothalamus yanu. Kuwonongeka kumeneku kungayambitsidwe ndi zinthu monga kuvulala mutu (concussions), kuvulala mu ubongo (traumatic brain injuries), sitiroko, ndi zotupa mu ubongo.

Matenda a narcolepsy angakhalenso chizindikiro cha matenda ena osagwirizana omwe mwina mudalandira. Zitsanzo:

• (Autosomal Dominant Cerebellar Ataxia, Narcolepsy ndi Kusamva (ADCADN))
• (Autosomal Dominant Narcolepsy, Matenda a Shuga a Mtundu wa 2 ndi Kunenepa Kwambiri)

Kodi matenda a Narcolepsy ndi opatsirana?

Ayi, matenda a Narcolepsy si matenda opatsirana. Simungawatenge kuchokera kwa wina, ndipo wina sangawatenge kuchokera kwa inu.

Kodi mungazindikire bwanji matenda a narcolepsy?

Zizindikiro zanu zingapangitse dokotala kuganiza kuti muli ndi vuto la kugona tulo tofa nato. Komabe, zizindikiro za vuto la kugona tulo tofa nato zimafanana ndi za matenda ena ambiri a ubongo ndi tulo. Chifukwa chake, ndikofunikira kudziwa ngati muli ndi vuto la kugona tulo tofa nato.Zingathe kuzindikirika bwino kokha kudzera mu mayeso enaake ozindikira matenda.

Dokotala asanachite mayeso ambiri akuluakulu a narcolepsy, choyamba amafufuza ngati mukugona mokwanira. Izi nthawi zambiri zimachitika pogwiritsa ntchito njira zosavuta zomwe zimayang'anira momwe mukugona ndi momwe mukudzukira. Chitsanzo ndi actigraphy . Izi zimaphatikizapo kugwiritsa ntchito chipangizo, monga wotchi yapadzanja, kuti muwone momwe mukuyendetsera (monga momwe mukugona komanso momwe mukudzukira).

Ndi mayeso ati omwe amagwiritsidwa ntchito pozindikira matenda a narcolepsy?

Pali mayeso angapo omwe angagwiritsidwe ntchito kuti adziwe matenda a narcolepsy:

• Kuphunzira za Kugona (Polysomnogram) : Kuyesaku kumagwiritsa ntchito masensa osiyanasiyana kuti ayang'anire momwe mumagona. Gawo lalikulu la kafukufuku wathunthu wa kugona, wotchedwa polysomnogram , ndikugwiritsa ntchito electroencephalogram (EEG) . Masensawa amayang'anira mafunde a ubongo wanu. Izi zimathandiza madokotala kuona gawo lomwe muli nalo la kugona mphindi iliyonse. Anthu omwe ali ndi vuto la kugona amagona mofulumira kuposa masiku onse, kotero mayesowa amatha kuzindikira izi. Amalembanso nthawi yomwe amadzuka ali mtulo. Chifukwa china chomwe mayesowa alili ofunikira ndikuti kugona kwambiri masana kungakhalenso chizindikiro cha matenda otchedwa sleep apnea . Kuphunzira za kugona kungatsimikizire kuti mulibe sleep apnea.
• Mayeso Ochedwa Kugona (MSLT) : Mayesowa amayesa momwe mumagona mosavuta masana. Amaphatikizapo kugona kangapo mkati mwa nthawi inayake. Angadziwe ngati muli ndi tulo tochuluka masana. Ichi ndi chizindikiro chofala cha matenda obwera chifukwa cha tulo tofa nato. Nthawi zambiri amachitidwa tsiku lotsatira maphunziro ogona usiku.
• Kuyesa Kusamalira Kugalamuka : Kuyesa kumeneku kumayesa momwe mungakhalire maso masana, ngakhale mutakhala kuti mukugona mosavuta. Sikuti nthawi zambiri kumagwiritsidwa ntchito poyesa matenda a narcolepsy, koma kungathandize kuthetsa mavuto ena. Ndikofunikanso kuona ngati mankhwala olimbikitsa akugwira ntchito.
• Kupopera Msana (Lumbar Puncture) : Kuyeza kumeneku kumatha kuzindikira kuchuluka kwa orexin mu cerebrospinal fluid (CSF) yanu. Iyi ndi njira yofunika kwambiri yodziwira matenda a Narcolepsy a Mtundu 1. Kuchuluka kwa orexin kungakhale chizindikiro chakuti munthu amene ali ndi Narcolepsy sanayambebe kudwala matenda a cataplexy, koma kungakhale chizindikiro chakuti akhoza kukhala ndi cataplexy mtsogolo. Komabe, popeza kuchuluka kwa orexin sikusintha mwa anthu omwe ali ndi matenda a Narcolepsy a Mtundu 2, nthawi zonse izi sizimakhala mayeso ozindikira matenda.

Mayeso ena

Anthu omwe ali ndi vuto la narcolepsy akhoza kuyesedwanso zinthu zina zambiri. Mwachitsanzo, ngati muli ndi vuto la cataplexy, likhoza kufanana ndi zizindikiro zokhudzana ndi mayendedwe a matenda ena a ubongo, monga khunyu. Chifukwa chake, madokotala angayese kaye matenda akuluakulu monga khunyu. Chifukwa chake, zingatenge nthawi kuti adziwe matenda a narcolepsy. Dokotala wanu ndiye munthu wabwino kwambiri woti afotokoze mayeso omwe muyenera kuchita komanso chifukwa chake akuchitidwa.

Kodi matenda a narcolepsy amachiritsidwa bwanji? Kodi angachiritsidwe?

Matenda a Narcolepsy amatha kuchiritsidwa, koma sangachiritsidwe . Chithandizo nthawi zambiri chimayamba ndi mankhwala. Koma kusintha zochita zanu za tsiku ndi tsiku komanso moyo wanu kungathandizenso. Matenda a Narcolepsy nthawi zambiri amayankha bwino chithandizo. Izi zingathandize kuchepetsa kusokonezeka komwe kumachitika chifukwa cha zizindikiro.

Kumbukirani, matenda a narcolepsy ndi matenda omwe munthu amakhala nawo kwa moyo wake wonse, koma sakuipiraipira pakapita nthawi.

Kodi mankhwala a matenda a narcolepsy ndi ati?

Mankhwala ndi mankhwala ochizira matenda obwera chifukwa cha tulo. Mankhwala ambiri amalimbikitsa kugona kwambiri masana. Komabe, mankhwala ena amakhudzanso zizindikiro zina. Nazi mitundu ina ya mankhwala omwe angaperekedwe pa vutoli:

• Mankhwala Odzuka : Izi nthawi zambiri zimakhala mankhwala oyamba. Zitsanzo zake ndi Modafinil ndi Armodafinil . Mankhwalawa amalimbikitsa mitsempha yanu. Izi zingathandize kuchepetsa kutopa komanso kuchuluka kwa kugona masana.
• Amphetamines ndi Zolimbikitsa Zofanana ndi Amphetamine : Mankhwala monga methylphenidate (omwe amadziwika ndi mayina a Ritalin®, Concerta®, Qullivant®) ndi kuphatikiza kwa amphetamine/dextroamphetamine (omwe amadziwika ndi dzina la Adderall®).
• Mankhwala Oletsa Kuvutika Maganizo : Izi zitha kuphatikizapo Serotonin-Norepinephrine Reuptake Inhibitors (SNRIs) (monga Venlafaxine - yomwe imadziwika kuti Effexor®), Selective Serotonin Reuptake Inhibitors (SSRIs) (monga Fluoxetine - yomwe imadziwika kuti Prozac®), kapena Tricyclic Antidepressants (monga Clomipramine kapena Protriptyline - izi sizikugwiritsidwa ntchito kawirikawiri).
• (Sodium Oxybate) : Mankhwalawa amakuthandizani kugona bwino komanso amachepetsa kuchuluka kwa (Cataplexy). Chifukwa cha zotsatira za mankhwalawa, amalamulidwa mosamala m'maiko ambiri. Komabe, nthawi zambiri amagwiritsidwa ntchito pochiza (Type 1 Narcolepsy).
• Mankhwala omwe amakhudza histamine : Chitsanzo cha mankhwala otere ndi Pitolisant.Ichi ndi choletsa histamine receptor. Mankhwala oletsa ma receptor ndi mankhwala omwe amaletsa mankhwala ena m'thupi lanu kuti asamamatire ku maselo. Izi zimachepetsa kapena kuletsa maselo kuchita zinthu zina.

Ngakhale pali njira zingapo zothandizira akuluakulu (narcolepsy), njira zothandizira ana ndizochepa kwambiri. Dokotala wa ana kapena katswiri wa ana anu angakuuzeni bwino njira zothandizira zomwe zilipo kwa inu komanso zomwe akulangizani.

Zovuta/zotsatira zoyipa za chithandizo

Mankhwala ambiri omwe amagwiritsidwa ntchito pochiza matenda a narcolepsy ndi zizindikiro zake ali ndi mwayi waukulu wogwirizana ndi mankhwala ena. Kuthamanga kwa magazi ndi kugunda kwa mtima kosasinthasintha ndi mavuto awiri okha omwe angachitike ndi mtundu uliwonse wa mankhwala olimbikitsa. Makamaka, Sodium Oxybate ndi yoopsa kwambiri ikaphatikizidwa ndi mankhwala ena omwe amasokoneza dongosolo la mitsempha. Komanso, musagwiritse ntchito mankhwalawa ndi mowa .

Kawirikawiri, dokotala wanu ndiye munthu wabwino kwambiri wokuuzani zotsatirapo zake, mavuto ake, ndi momwe mankhwala amagwirizanirana ndi zomwe muyenera kudziwa. Iye angapereke chidziwitso chogwirizana ndi matenda anu, mbiri yanu yaumoyo, komanso momwe zinthu zilili pa moyo wanu.

Kodi ndingadzisamalire bwanji ndikusamalira zizindikiro zanga?

Simuyenera kuyesa kudzizindikiritsa nokha kapena kuchiza matenda a narcolepsy . Izi zili choncho chifukwa zizindikiro za matendawa zimapezekanso m'matenda ena akuluakulu, monga kupuma movutikira ndi khunyu. Komanso, vutoli lingapangitse zinthu zina, monga kuyendetsa galimoto ndi kusambira, kukhala zoopsa. Chifukwa chake, nthawi zonse pitani kwa dokotala kuti akuthandizeni kuzindikira ndi kulandira chithandizo .

Kodi ndidzakhala bwino nthawi yayitali bwanji nditatha kulandira chithandizo?

Nthawi yomwe imatenga kuti chithandizo chiyambe kugwira ntchito, kapena kuti zotsatira za chithandizo zimveke, zimadalira zinthu zambiri. Dokotala wanu ndiye munthu wabwino kwambiri woti akuuzeni zomwe mungayembekezere kutengera matenda anu, nthawi yomwe mankhwalawo angatenge kuti agwire ntchito, komanso nthawi yomwe zizindikiro zanu zisinthe.

Kodi kukula kwa matenda obwera chifukwa cha kutopa kungachepe kapena kupewedwa?

Nthawi zambiri, vuto la narcolepsy limayamba mwadzidzidzi. Chifukwa chake, sizingatheke kuchepetsa chiopsezo cha matendawa kapena kuletsa kukula kwake.

Kodi ndiyenera kuyembekezera chiyani ngati ndili ndi matenda a Narcolepsy?

Matenda a narcolepsy nthawi zambiri si owopsa. Koma kugona mwadzidzidzi komanso kosalamulirika kumatha kusokoneza kwambiri moyo. Anthu omwe ali ndi vutoli akhoza kukhala osatha kuyendetsa galimoto (kanthawi kochepa kapena kosatha - zimatengera zizindikiro ndi momwe alili).

Ngakhale kuti matenda a narcolepsy nthawi zambiri si owopsa, mu matenda a narcolepsy a mtundu woyamba, pali chiopsezo chowonjezeka cha kuvulala chifukwa cha kugwa panthawi ya cataplexy. Matenda a narcolepsy angayambitsenso zinthu zoopsa poyendetsa galimoto, pogwiritsa ntchito zida zamagetsi kapena makina olemera, kapena kusambira.

Pamene ana ayamba kukhala ndi vuto la kugona tulo

Ana omwe ali ndi vuto la narcolepsy nthawi zambiri amavutika ndi zotsatira za vutoli. Kugona masana kungapangitse kuti zikhale zovuta kuyang'ana kwambiri ntchito za kusukulu, kusunga ubale wabwino ndi anthu ena, komanso kutenga nawo mbali pazochitika za kusukulu ndi zina zomwe zimachitika kunja kwa sukulu.

Komabe, matenda a Narcolepsy ndi matenda. Motero, ana omwe ali ndi matenda a Narcolepsy ali ndi ufulu wotetezedwa mwalamulo. Malamulo amalamulanso kuti masukulu azitha kupeza njira zowathandizira. Mwachitsanzo, kusintha nthawi ya makalasi, kupatula nthawi yogona kapena yopumula, komanso kupangitsa kuti ana azitha kumwa mankhwala kusukulu mosavuta. Dokotala wa ana a mwana wanu kapena akatswiri ena angakuthandizeni kupeza mayankho omwe angathandize mwana wanu.

Kwa akuluakulu ogwira ntchito (Narcolepsy)

Monga momwe ana amatetezedwera ndi lamulo m'masukulu, akuluakulu omwe ali ndi vuto la narcolepsy nawonso amatetezedwa ndi lamulo. Kusankhana wina chifukwa cha matenda, kuphatikizapo narcolepsy, n'koletsedwa (mwachitsanzo, ku United States, motsatira lamulo la Americans with Disabilities Act).

Chifukwa cha chitetezo chalamulo chimenecho, anthu omwe ali ndi vuto la narcolepsy amatha kulankhula ndi owalemba ntchito kuntchito kwawo ndikupeza malo ogona kuti apitirize kugwira ntchito pamene akusamalira vuto lawo.

Kodi ndiyenera kudzisamalira bwanji? (Upangiri wothandiza)

Ngati muli ndi vuto la narcolepsy, pali zinthu zingapo zomwe mungachite kuti muchepetse vuto lanu ndikupindula kwambiri ndi chithandizo chanu. Zambiri mwa zinthuzi zimaphatikizapo kukhala ndi zizolowezi zabwino zogona (Ukhondo Wabwino Wogona) komanso kusintha nthawi yanu ndi zochita zanu.

• Khalani ndi chizolowezi chogona nthawi zonse : Kukhala ndi chizolowezi chogona ndi kudzuka nthawi imodzi kungathandize kuti tulo tanu tizikhala bwino.
• Konzani nthawi yogona : Konzani nthawi yogona yomwe ingakuthandizeni kugona mokwanira malinga ndi msinkhu wanu. Komanso, patulani nthawi yopumula ndikukhazika mtima pansi musanagone.
• Chepetsani kuwala kowala ndi zipangizo zamagetsi : Kuwala kochokera ku zipangizozi nthawi yogona ingasokoneze kayendedwe ka thupi lanu la kugona ndi kudzuka.
• Pewani kumwa mowa, caffeine, kusuta fodya, komanso kudya nthawi yogona isanafike nthawi yogona.: Ngati mukumva njala musanagone, chakudya chopepuka ndi chabwino kwambiri. Ngati mukumwa mankhwala enaake, muyenera kusiya kumwa mowa kotheratu (dokotala wanu adzakuuzani ngati mwapatsidwa mankhwala otere). Akatswiri amalangizanso kuti musiye kusuta fodya kotheratu (kuphatikizapo ndudu, ndudu zamagetsi ((vaping)), ndi fodya wopanda utsi ((fodya wopanda utsi))).
• Khalani ndi zochita zolimbitsa thupi : Ngakhale zitakhala ngati kuyenda, kukhalabe ndi zochita zolimbitsa thupi kungakuthandizeni kugona bwino.
• Kugona pang'ono : Anthu omwe ali ndi vuto la narcolepsy nthawi zambiri amamva bwino akagona pang'ono. Zingathandize kudziwa nthawi zomwe mumagona kwambiri patsiku ndikukonza nthawi zomwe mumagona panthawiyo.

Pewani zochita zoopsa, kapena samalani.

Matenda obwera chifukwa cha nthenda yotaya magazi (narcolepsy) angayambitse ngozi zoopsa, ngakhale zoopsa. Kuti mudziteteze nokha komanso anthu omwe ali pafupi nanu, musayendetse galimoto pokhapokha ngati dokotala wakupatsani chilolezo .

Ngati mukuona zizindikiro za matenda obwera chifukwa cha tulo pamene mukuyendetsa galimoto, siyani kuyendetsa galimoto nthawi yomweyo ndipo funsani dokotala wanu. Ngakhale izi zingakhale zovuta, ndikofunikira kupewa ngozi yoopsa kapena yosintha moyo chifukwa chogona mukamayendetsa galimoto.

Malo ena omwe matenda a narcolepsy angakhale oopsa kwambiri ndi m'madzi . Ngati muli ndi matenda a narcolepsy, ndikofunikira kwambiri kuvala jekete lopulumutsira moyo bwino mukamasambira kapena pa bwato lililonse kapena chombo cha m'madzi chomwe chimalimbikitsa chitetezo cha moyo. Popanda chotetezera moyo, kugona tulo m'madzi kungakhale ndi zotsatirapo zoopsa.

Kodi ndiyenera kupita kwa dokotala liti?

Ngati mwadzidzidzi mwagona tulo tosayembekezereka, ndi chizindikiro chakuti muyenera kupita kwa dokotala. Izi sizikutanthauza kuti muli ndi vuto la narcolepsy, komanso zingasonyeze matenda osiyanasiyana. Zina mwa izo ndi zazikulu. Nthawi zambiri, mukachedwa kupeza matenda ndi chithandizo, chiopsezo cha zovuta chimakula kapena chithandizocho sichigwira ntchito bwino.

Kodi ndiyenera kupita ku Chipinda Chothandizira Anthu Odwala Mwadzidzidzi (ETU) liti?

Ngati mwadzidzidzi mwagwa kapena kutaya chikumbumtima, pitani kuchipatala nthawi yomweyo kapena kuchipinda chodzidzimutsa. Ichi ndi chizindikiro chachikulu cha matenda ambiri, kuphatikizapo matenda a mtima, sitiroko, ndi kugunda kwa mtima kosasinthasintha. Matendawa ndi adzidzidzi azachipatala ndipo amafunika chithandizo chachangu.

Kuvulala kokhudzana ndi kugwa ndi kuvulala komwe kumachitika mukagwa mwadzidzidzi, monga kukokedwa kapena kutaya chidziwitso.Pali chiopsezo chovulala. Nthawi zonse funsani upangiri kwa dokotala ngati mukuganiza kuti mwavulala mutu, khosi, kapena gawo lina lililonse la msana wanu. Kusweka ndi kuvulala kwa msana kungayambitse kuwonongeka kosatha, kufooka kwa ziwalo, komanso imfa.

Ngati mwagwa, ndipo mukumwa mankhwala aliwonse ochepetsa magazi , makamaka ngati mwagunda mutu, muyenera kupeza chithandizo chamankhwala mwachangu. Kugwa ndi kuvulala kungayambitse kutuluka magazi mkati mwa thupi. Mukufunika chithandizo chamankhwala kuti muwonetsetse kuti mulibe kuvulala kulikonse komwe kungayambitse mavuto oopsa.

Zinthu zofunika kwambiri zomwe muyenera kukumbukira (Uthenga Wopita Nawo Kunyumba)

Kotero, ndikukhulupirira kuti mwatha kukumbukira zina mwa zinthu zofunika kwambiri kuchokera pa zomwe takambirana (Narcolepsy).

• Matenda a narcolepsy si tulo tokha tomwe timayambitsidwa ndi kutopa, koma ndi vuto la ubongo lomwe limayambitsa kulamulira kugona ndi kudzuka.
• Dziwani zizindikiro zazikulu za kugona kwambiri masana, kufooka kwa minofu mwadzidzidzi, kuona zinthu molakwika chifukwa cha kugona, komanso kufooka kwa tulo . Si zizindikiro zonsezi zomwe zimachitika kwa aliyense.
• Choyambitsa vutoli nthawi zambiri chimakhala kuchepa kwa orexin ya mankhwala muubongo, kapena mavuto a chitetezo chamthupi.
• Matenda a narcolepsy amafunika mayeso apadera azachipatala kuti azindikire. Choncho musafulumire kuganiza nokha.
• Ngakhale kuti izi sizingachiritsidwe kwathunthu, ndi vuto lomwe lingathetsedwe kwambiri ndi mankhwala ndi kusintha moyo .
• Ganizirani mosamala za chitetezo. Samalani kwambiri mukayendetsa galimoto, kusambira, komanso kugwira ntchito pamalo okwera. Tsatirani malangizo a dokotala.
• Ngati muli ndi zizindikiro izi, musaope kupita kwa dokotala. Simuli nokha. Thandizo lilipo.

Ndikukhulupirira kuti izi zikuthandizani. Ngati inu kapena munthu amene mumamudziwa akukumana ndi vuto lamtunduwu, ndi bwino kupeza upangiri wa dokotala mwachangu momwe mungathere.

Matenda obwera chifukwa cha kulephera kulankhula, kugona kwambiri masana, kutopa, kupuma movutikira, kuona zinthu molakwika m'tulo, orexin, matenda a ubongo