Tiyeni tiphunzire za mayeso a thukuta kuti tiwone ngati muli ndi cystic fibrosis.

Kodi mwana wanu nthawi zina amavutika kupuma, kapena vuto losanenepa? Kapena mumaona chinachake monga chifuwa chosalekeza kapena phokoso la kupuma pachifuwa? Nthawi zina, kumbuyo kwa zinthuzi, pakhoza kukhala matenda omwe sitinamvepo zambiri, koma ndikofunikira kwambiri kudziwa za iwo. Ndicho chimene tikambirana lero. Izi zimatchedwa Cystic Fibrosis , nthawi zina zimafupikitsidwa ngati (CF) . Tiyeni tiwone chomwe chili, momwe chimapezekera, komanso makamaka zina zokhudza 'Kuyesa Thukuta' komwe kumachitika pa izi.

Kodi cystic Fibrosis ndi chiyani kwenikweni?

Mwachidule, cystic fibrosis ndi matenda obadwa nawo . Ndiko kuti, ndi chinthu chomwe chingapatsidwe kuchokera kwa makolo kupita kwa ana. Chomwe chimachitika pamenepa ndichakuti madzi ena m'thupi lathu, makamaka mamina, amakhala okhuthala komanso omata. Taganizirani izi, kodi mamina omwe ali m'mapapo ndi m'mphuno mwa munthu wathanzi sali oterera ngati madzi? Ndiwo omwe amasunga njira zathu zopumira mpweya kukhala zoyera ndikuchotsa majeremusi.

Koma mwa anthu omwe ali ndi cystic fibrosis, mamina awa ndi okhuthala kwambiri, ngati guluu. Choncho mamina awa okhuthala amaikidwa m'ziwalo zofunika monga mapapo ndi kapamba , zomwe zimasokoneza magwiridwe antchito awo abwinobwino. Makamaka mamina awa okhuthala akamasonkhana m'mapapo, njira zopumira zimayamba kutsekeka. Kenako zimakhala zovuta kwambiri kupuma, ndipo matenda amatha kuchitika pafupipafupi. Ngati kapamba wakhudzidwa, mavuto am'mimba ndi kusowa zakudya m'thupi zimatha kuchitika. Sikuti izi zokha, zingakhudzenso malo monga chiwindi, matumbo, ndi ziwalo zoberekera.

Matenda a cystic fibrosis ndi matenda osatha . Izi zikutanthauza kuti amakhalapo kwa nthawi yayitali ndipo sangachiritsidwe kwathunthu. Amaonedwanso ngati matenda opitirira muyeso . Izi zikutanthauza kuti zizindikiro zimatha kuipiraipira pang'onopang'ono pakapita nthawi ndipo mavuto angabuke. Ichi ndichifukwa chake ndikofunikira kwambiri kuzindikira msanga ndikuthana nawo bwino.

Kodi zizindikiro za izi mwa ana ndi ziti?

Ngati mwana wamng'ono, makamaka khanda, ali ndi cystic fibrosis, akhoza kukumana ndi chimodzi kapena zingapo mwa zizindikirozi. Si mwana aliyense amene angakhale ndi zizindikiro zonsezi nthawi imodzi, ndipo kuopsa kwa zizindikirozo kumatha kusiyana malinga ndi mwana. Ndikofunikira kukumbukira zimenezo.

Nazi zina mwa zinthu zimenezi:

• Kulephera kukula bwino: Ngakhale kuti mwana akuyamwitsa bwino ndipo akudya pambuyo pake, sangaonde ndipo angaoneke ngati wochepa thupi poyerekeza ndi ana ena a msinkhu womwewo.
• Chimbudzi chotayirira kapena chamafuta: Nthawi zina chimbudzi cha mwana wanu chingakhale chotayirira kwambiri, chamadzi, kapena chamafuta. Nthawi zina chimbudzicho chingakhale ndi fungo loipa.
• Kuvuta kupuma:Nthawi zonse ndimamva ngati kuti ndi kovuta kupuma, ngati kuti ukupuma pang'ono.
• Kupuma movutikira: Phokoso lopuma movutikira lochokera pachifuwa. Izi zitha kuchitikanso m'matenda monga mphumu, koma ndi chizindikiro chofala kwambiri mu CF.
• Matenda opatsirana m'mapapo pafupipafupi: Mwachitsanzo, chibayo ndi bronchitis ndizofala. Ngati matenda opatsirana m'mapapo amakula kamodzi kapena kawiri pamwezi, ndi chinthu chodetsa nkhawa.
• Matenda obwerezabwereza a sinus: Matenda obwerezabwereza m'mabowo ozungulira mphuno (sinus). Zizindikiro zake ndi monga mphuno yotsekeka, mphuno yotuluka madzi, ndi mphuno yotsekeka.
• Chifuwa chosalekeza, mwina chotupa: Chifuwa chosalekeza chomwe sichikuchira. Chingakhale chifuwa chomwe chimapanga ntchofu yokhuthala.
• Kukula pang'onopang'ono: Kutalika ndi kulemera kwa mwana kumawoneka ngati kukukulira pang'ono poyerekeza ndi ana ena a msinkhu womwewo.
• Nthawi zina khungu la mwana limakhala ndi kukoma kwa mchere: Makolo ena amanenanso kuti akamapaka khungu la mwana wawo lodzaza ndi thukuta, limamveka ngati mchere.

Ngati mukuganiza kuti mwana wanu ali ndi chimodzi mwa zizindikiro izi, chinthu chabwino kwambiri choti muchite ndi kupita kwa dokotala wa ana kuti akakupatseni upangiri.

Kodi mayeso a thukuta ndi chiyani ndipo amagwira ntchito bwanji?

Madokotala amazindikira matenda a cystic fibrosis mwa kumufufuza wodwalayo mosamala, kumvetsera zizindikiro zake, ndikuchita mayeso osiyanasiyana. Izi zikuphatikizapo mayeso a majini - omwe ndi mayeso a magazi omwe amafufuza kusintha kwa majini - X-ray ya pachifuwa ndi sinus, ndi mayeso a ntchito ya mapapo.

Komabe, mayeso ofunikira komanso otsimikizika kuti mutsimikizire ngati muli ndi cystic fibrosis kapena ayi ndi mayeso a thukuta. Iyi ndi mayeso osavuta komanso osapweteka. Amayesa kuchuluka kwa chloride mu thukuta lanu. Kodi mukudziwa kuti mchere womwe timadya umapangidwa ndi mankhwala awiri otchedwa chloride ndi sodium? Chifukwa chake, kuchuluka kwa chloride mu thukuta la anthu omwe ali ndi cystic fibrosis ndi kwakukulu kwambiri kuposa kwa munthu wamba.

Chifukwa cha izi ndi chakuti, chifukwa cha vuto la majini lomwe limayambitsa cystic fibrosis, ntchito ya puloteni yomwe imathandiza chloride kuyenda m'maselo athu imachepa. Zotsatira zake, chloride singalowe kapena kutuluka m'maselo moyenera. Apa ndi pamene chloride imasonkhana modabwitsa mu thukuta. Ngakhale zingawoneke zosavuta, iyi ndiyo maziko asayansi oyambira pozindikira matendawa.

Kawirikawiri, madokotala amalimbikitsa mayeso a thukuta ngati mwana ali pachiwopsezo chotenga matenda a cystic fibrosis (monga, ngati wina m'banjamo ali ndi matendawa), kapena ngati akuwonetsa zizindikiro zomwe takambirana kale. Nthawi zina, abale a mwanayo amapemphedwanso kuti achite mayesowa. Izi ndizoona ngati nawonso adalandira majini awa komanso ngati ana awo ali pachiwopsezo chotenga majini awa mtsogolo.

Kodi mayeso a thukuta amenewa amachitidwa bwanji? Kodi ndi chinthu choopa?

Kuyesa thukuta kumeneku kungachitike kwa aliyense wa msinkhu uliwonse. Komabe, makanda obadwa kumene sangakwanitse kutulutsa thukuta lokwanira pa mayesowa m'masiku oyamba a moyo wawo. Chifukwa chake, mayesowa nthawi zambiri amachitikira kwa makanda apakati pa milungu iwiri ndi inayi , pomwe amatha kutulutsa thukuta lokwanira.

Mayeso awa ndi osavuta kuchita, ndipo sakupweteka konse. Choncho musachite mantha, chabwino? Izi ndi zomwe zimachitika:

1. Choyamba, wogwira ntchito zachipatala, kaya namwino kapena dokotala, amapaka gel kapena madzi okhala ndi mankhwala otchedwa pilocarpine pakhungu la mkono wa mwana (nthawi zambiri mkono) kapena mwendo. Pilocarpine ndi mankhwala omwe amalimbikitsa thukuta.

2. Kenako, ma electrode awiri amayikidwa pamalopo ndipo mphamvu yamagetsi yochepa kwambiri, yopanda vuto imaperekedwa kuti ilimbikitse kwambiri ma glands a thukuta ndikupanga thukuta. Izi zimachitika kwa mphindi pafupifupi 5. Palibe kupweteka kapena kupweteka konse. Mwana wamng'ono angamve kunjenjemera pang'ono kapena kutentha m'dzanja lake kapena phazi, koma ndizo zonse. Makanda ambiri samva izi.

3. Kenako, ma electrode amachotsedwa, malo a khungu amatsukidwa, ndipo chipangizo chapadera chotolera thukuta (kaya ndi cholembera cha pulasitiki, pepala losefera, kapena chidutswa cha gauze) chimayikidwa pamalopo. Izi zimasiyidwa pamalopo kwa mphindi pafupifupi 30 kuti thukuta litenge.

4. Pomaliza, chitsanzo cha thukuta chosonkhanitsidwachi chimatumizidwa ku labu kuti chiyeze molondola kuchuluka kwa kloridi komwe kulipo.

Mayeso onsewa amatenga pafupifupi ola limodzi. N'zosavuta kusunga bata la mwana wanu ngati muli ndi chidole kapena botolo la mkaka pafupi.

Kodi zotsatira za mayesowa zikuti chiyani?

Chabwino, tsopano tiyeni tiwone zomwe zotsatira za mayeso a thukuta awa zikunena. Ngati mwana ali ndi cystic fibrosis, mayeso a thukuta adzawonetsa kuti pali chloride yochulukirapo kuposa yachibadwa mu thukuta lake.

Ponena za miyeso yoyezedwa, izi ndi izi (miyeso iyi ingasiyane pang'ono kuchokera ku labu kupita ku labu, koma nthawi zambiri imakhala motere:

• Ngati kuchuluka kwa chloride m'thupi la mwana wanu kuli kokwera kuposa 60 mmol/L (millimol/lita) : N'zotheka kuti ali ndi cystic fibrosis.Kawirikawiri, ngati zotsatira ngati izi zapezeka, mayesowo amachitidwanso kuti atsimikizire.
• Mlingo wa chloride wa mwana ndi wochepera 30 mmol/L (millimol/lita) (malangizo ena amati ndi wochepera 40 mmol/L): Tinganene kuti alibe cystic fibrosis.
• Ngati mulingo wa chloride wa mwana wanu uli pakati pa 30 ndi 59 mmol/L ( m'malo ena 40-59 mmol/L): Izi zimaonedwa ngati zotsatira zapakati kapena zopinga . Pankhaniyi, mayesowo angafunike kubwerezedwa . Mayeso ena, monga kuyezetsa majini, angafunikenso kuti athetse mitundu ina ya CF.

Chofunika kwambiri ndichakuti zotsatira izi ziyenera kumasuliridwa ndi dokotala. Choncho, zotsatira zikabwera, chinthu chabwino kuchita ndikulankhula ndi dokotalayo za izi ndikutsatira malangizo ake. Musachite mantha.

Kodi mumakonzekera bwanji mwana wanu kuti akayezedwe thukuta? Kodi muyenera kuchita chilichonse chachikulu?

Izi n'zosavuta kwa amayi ndi abambo onse. Simukuyenera kuchita chilichonse chapadera kuti mukonzekeretse mwana wanu kuti ayezedwe thukuta.

• Palibe chifukwa chosinthira kapena kusiya kudya zakudya za mwana (kachitidwe kake kodyetsa, zakudya zolimba ngati apatsidwa), zochita zake, kapena mankhwala omwe mwanayo akumwa asanayesedwe. Chitani izi mwachizolowezi.
• Chinthu chokhacho ndichakuti, musapake mafuta kapena mafuta odzola pakhungu la mwana wanu kwa maola 24 mayeso asanayambe. Makamaka musapake chilichonse pa mkono kapena mwendo womwe ukuyesedwa. Izi zitha kukhudza zotsatira za mayeso.

Mwaona, n'zosavuta kwambiri. Valani mwana wanu zovala zopepuka komanso zomasuka patsiku la mayeso.

Zinthu zofunika kwambiri zomwe tiyenera kukumbukira kuchokera munkhaniyi (Uthenga Wopita Nawo Kunyumba)

Chabwino, ndikukhulupirira kuti tsopano mwamvetsa bwino zomwe takambirana lero, Cystic Fibrosis ndi Kuyesa Thukuta. Ngakhale izi zingawoneke ngati nkhani yovuta, sizili zovuta mukamvetsetsa zoyambira. Kuchokera pa zomwe takambirana, nazi zinthu zina zomwe muyenera kukumbukira:

• Matenda a cystic fibrosis (CF) ndi matenda a majini omwe amachititsa kuti mamina a thupi azikhuthala, makamaka omwe amakhudza mapapo ndi dongosolo logaya chakudya.
• Dziwani zizindikiro: Ngati muli ndi chimodzi kapena zingapo mwa zizindikirozi, monga kuchepa thupi, kupuma movutikira, chifuwa chosatha, kapena ndowe zamafuta, onani dokotala ndikukambirana nazo.
• Kuyesa thukuta ndiye mayeso akuluakulu komanso odalirika kwambiri potsimikizira cystic fibrosis: kumayesa kuchuluka kwa chloride mu thukuta.
• Kuyezetsaku sikupweteka ndipo ndi kotetezeka: choncho musaope kutenga mwana wanu kuti akachite izi.
• Ndikofunikira kwambiri kuzindikira matendawa msanga:Chifukwa chake, njira zofunikira zochiritsira ndi kusamalira zitha kuyambika mwachangu, kuchepetsa mavuto omwe mwana angakumane nawo ndikuwathandiza kukhala ndi moyo wabwino komanso wathanzi.

Ngati inu kapena munthu amene mumamudziwa ali ndi vutoli, chinthu chabwino kuchita ndi kusachita mantha kapena kukhulupirira chilichonse chomwe mwapeza pa intaneti, koma kulankhula ndi dokotala wodziwa bwino ntchito yake. Adzakutsogolerani bwino ndikukupatsani chithandizo chomwe mukufuna.

` Cystic Fibrosis, mayeso a thukuta, chloride, ana, matenda a majini, matenda a m'mapapo