Kodi ziphuphu pakhungu lanu ndi minofu yanu ndi zofooka? Tiyeni tikambirane za dermatomyositis!

Kodi nthawi zina mumamva ziphuphu zachilendo pakhungu? Kodi mumamvanso kufooka pang'ono m'minofu yanu? Mwina mufunikanso kudziwa za matenda otchedwa dermatomyositis. Ndi matenda osowa, koma ndi oyenera kuwadziwa.

Kodi Dermatomyositis ndi chiyani?

Mwachidule, dermatomyositis ndi matenda osowa omwe amafooketsa minofu yanu ndikuyambitsa ziphuphu zomwe zimaoneka ngati eczema . Ndi matenda a gulu lalikulu la matenda otchedwa myopathy. Izi zikutanthauza kuti zimakhudza minofu. Nthawi zina, ngati zakula kwambiri , zimatha kukhudza kupuma ndi kumeza. Taganizirani izi, minofu yathu ndi yomwe imatipangitsa kusuntha, kotero zimakhala zovuta kwambiri zikawonongeka.

Dermatomyositis ndi mtundu wina wa matenda ena a minofu otchedwa polymyositis. Komabe, pankhaniyi, kuwonjezera pa minofu, khungu limakhudzidwanso. Ndicho chifukwa chake mawu oti 'derma' (okhudzana ndi khungu) amawonjezeredwa ku dzinalo.

Ngati muli ndi zizindikiro izi, ndikofunikira kupita kwa dokotala nthawi yomweyo. Nthawi zina, zizindikirozi zimatha kutenga miyezi kuti ziwonekere. Koma nthawi zina zimatha kuwoneka mwachangu kwambiri. Ngati chithandizo chayamba msanga, mavuto akuluakulu amatha kupewedwa kwambiri.

Ngakhale kuti vutoli, lotchedwa dermatomyositis , likhoza kukhala pachiwopsezo chachikulu, makamaka mkati mwa chaka choyamba zizindikiro zitayamba. Zapezekanso kuti likuwonjezera chiopsezo chotenga mitundu ina ya khansa.

Kodi pali kusiyana kotani pakati pa Dermatomyositis ndi Lupus?

Matenda a dermatomyositis ndi matenda omwe ali ofanana ndi matenda a lupus ndi matenda ena a autoimmune. Komabe, akatswiri sakudziwabe chomwe chimayambitsa dermatomyositis. Ichi ndichifukwa chake sichimayikidwa ngati matenda a autoimmune.

Tsopano, ngati muli ndi lupus, mungamve kupweteka kwa mafupa, kukhudzidwa ndi khungu ndi eczema, komanso mavuto a ziwalo zanu zamkati (makamaka ubongo wanu, mapapo, impso, ndi mtima). Zizindikiro zanu nthawi zambiri zimatha kukulirakulira kenako n’kutha, kenako n’kubwereranso m’mafunde - timazitcha kuti kukulirakulira.

Komabe, dermatomyositis imadziwika ndi kufooka kwa minofu ndi kufa kwa minofu , pamodzi ndi ziphuphu pakhungu. Zimapezeka kudzera mu mayeso a magazi, biopsy, ndi mayeso osiyanasiyana ojambula.

Kaya ndi dermatomyositis kapena lupus, ndikofunikira kuzindikira ndi kuchiza mwamsanga. Ngati muwona zizindikiro zatsopano, pitani kuchipatala nthawi yomweyo.

Ndani amene ali ndi mwayi waukulu wopeza matendawa? Kodi ndi ofala bwanji?

Matenda a khungu amatha kukhudza aliyense, koma magulu ena ali ndi mwayi waukulu woti adwale matendawa. Izi zikuphatikizapo:

• Ana aang'ono azaka zapakati pa 5 ndi 15.
• Akuluakulu azaka zapakati pa 40 ndi 60.
• Akazi.

Tiyeneranso kudziwa kuti matendawa ndi osowa kwambiri . Pa avareji, munthu m'modzi yekha pa anthu 100,000 amadwala matendawa pachaka. Kotero mutha kuwona momwe izi zilili zosowa.

Kodi vutoli limakhudza bwanji thupi lanu? Kodi chiopsezo cha khansa n'chiyani?

Matenda otchedwa dermatomyositis angakhudze thupi lanu moyo wanu wonse.

Tangoganizirani, ngati izi zikuwononga minofu yanu kwambiri, simungathe kugwiritsa ntchito kapena kusuntha gawo la thupi lanu bwino. Izi nthawi zambiri zimatenga zaka kuti zikule. Koma anthu ena akhoza kukhala ndi kufooka kwakukulu kwa minofu mofulumira kuposa ena.

Chinanso n'chakuti dermatomyositis yapezekanso kuti imawonjezera chiopsezo chotenga mitundu ina ya khansa .

Dermatomyositis ndi khansa

Pafupifupi 15% ya anthu omwe ali ndi dermatomyositis amadwala khansa akakula. Mitundu yodziwika kwambiri ya khansa yomwe imapezeka mwa anthu omwe ali ndi dermatomyositis ndi iyi:

• Khansa ya m'chiberekero
• Khansa ya m'mapapo
• Lymphoma
• Khansa ya m'mawere
• Khansa ya m'matumbo

Choncho, ndikofunikira kwambiri kulankhula ndi dokotala wanu za chiopsezo chanu cha khansa komanso mayeso omwe mungafunike.

Kodi zizindikiro za matendawa ndi ziti?

Zizindikiro ziwiri zazikulu komanso zodziwika bwino za dermatomyositis ndi kufooka kwa minofu ndi kutupa pakhungu.

Anthu ena amatha kukhala ndi kufooka kwa minofu komanso kutupa pakhungu nthawi imodzi. Komabe, nthawi zina chizindikiro chimodzi chingakhalepo kwa milungu ingapo, miyezi, kapena zaka popanda china.

Kufooka kwa minofu

Kufooka kwa minofu kungakupangitseni kukhala kovuta kuchita zinthu zina za tsiku ndi tsiku. Mwachitsanzo:

• Kukhala molunjika.
• Kudzuka kuchokera pamalo okhala (monga pampando kapena pa sofa).
• Kukwera masitepe.
• Kudzuka kuchokera pabedi.
• Kutsuka tsitsi lanu.

Tangoganizirani momwe mungadzimverere wopanda thandizo ngati simungathe kuchita zinthu zosavuta ngati izi.

Chikanga

Matenda a khungu (dermatomyositis) angayambitse ziphuphu pakhungu lanu (makamaka m'malo omwe amawotchedwa ndi dzuwa ). Khungu likhoza kusintha mtundu ndi kutupa. Malo omwe amapezeka kwambiri ziphuphuzi ndi awa:

• Nsidze ndi kuzungulira maso.
• Kutsogolo kwa chifuwa ndi mapewa (nthawi zina kumatchedwa 'V-sign rash').
• Kumbuyo kwa khosi ndi mapewa (komwe kumatchedwanso 'shawl sign rash').
• Chigaza.

Zizindikiro zina

Komanso, dermatomyositis ingayambitsenso zizindikiro monga:

• Kusintha kwa mtundu wa khungu ndi ziphuphu m'manja, makamaka mozungulira mapewa (nthawi zina amatchedwa Gottron papules).
• Calcium imayikidwa pansi pa khungu, mkati mwa minofu, kapena m'maselo olumikizana.
• Mabondo kapena zigongono.
• Khungu losweka mozungulira msomali ndi mitsempha yamagazi yomwe imawonekera kumapeto kwa msomali.
• Kupweteka kwa mafupa.

Anthu ena (makamaka ana aang'ono) amadwala dermatomyositis, amakula akakula, ndipo sadzakhalanso ndi zizindikiro. Komabe, pafupifupi 80% ya milandu, imakhala yosatha - zomwe zikutanthauza kuti imabwereranso mobwerezabwereza - ndipo imayambitsa zizindikiro kwa moyo wonse.

Kodi n’chiyani chimayambitsa izi?

Akatswiri sakudziwabe chomwe chimayambitsa dermatomyositis, koma pali zinthu zingapo zomwe zikuganiziridwa kuti zimayambitsa izi:

• Zinthu zokhudza majini: Kafukufuku wina akusonyeza kuti dermatomyositis ikhoza kukhala matenda a majini, zomwe zikutanthauza kuti imatha kufalikira kwa mibadwomibadwo.
• Mavuto a chitetezo chamthupi: Monga tanenera kale, dermatomyositis ndi matenda ofanana ndi matenda ambiri a chitetezo chamthupi omwe chitetezo chamthupi chimaukira minofu yathanzi.
• Matenda opatsirana ndi mavairasi: Pali umboni wina wosonyeza kuti anthu ena akhoza kukhala ndi matenda opatsirana ndi mavairasi, ngakhale atachira, zomwe zingayambitse matenda otchedwa dermatomyositis.
• Zinthu Zachilengedwe: Kafukufuku wina wapezanso kuti anthu okhala m'madera omwe ali ndi mpweya woipa kwambiri kapena mpweya woipa amakhala ndi chiopsezo chachikulu cha matenda a dermatomyositis.

Kodi matendawa amapezeka bwanji?

Matenda a khungu nthawi zambiri amapezeka kudzera mu mayeso a magazi ndi zitsanzo zazing'ono zomwe zimatengedwa kuchokera pakhungu ndi minofu yanu (biopsy) .

Dokotala wanu adzayesa magazi anu kuti awone:

• Kaya pali kuchuluka kwa ma enzyme enaake a minofu omwe akusonyeza kuwonongeka kwa minofu.
• Ma antibodies a autoimmune ndi maselo omwe amasonyeza kuti chitetezo cha mthupi chikuyankha ku chinthu chomwe chimazindikira kuti ndi choopsa.

Mungafunikenso kutengedwa biopsy ya pakhungu kuchokera ku ziphuphu. Dokotala wanu angafunenso kutenga biopsy ya minofu kuti aone ngati minofu yanu yatupa.

Mungathenso kuchita chimodzi mwa mayeso angapo ojambulira zithunzi. Mayesowa amalola dokotala wanu kufufuza minofu yanu, mitsempha, mapapo, ndi ziwalo zina. Mayesowa angathandize kudziwa ngati zizindikiro zanu zili chifukwa cha dermatomyositis kapena vuto lina. Mayeso ojambulira zithunzi omwe amagwiritsidwa ntchito pozindikira dermatomyositis ndi awa:

• Chithunzi cha Magnetic Resonance (MRI)
• X-ray ya pachifuwa.

Nthawi zina, dokotala wanu angakupatseninso mayeso otchedwa electromyography (EMG). Mayesowa amayesa ntchito yamagetsi yomwe imachitika minofu kapena mitsempha ikalimbikitsidwa.

Kodi imachiritsidwa bwanji?

Nazi zina mwa njira zomwe zingagwiritsidwe ntchito pochiza dermatomyositis:

• Corticosteroids: Mankhwala amtundu uwu amachepetsa kutupa kwa minofu yanu.
• Kuchiza ndi thupi: Kuchiza ndi thupi (ndi kuchita masewera olimbitsa thupi) kungathandize kukonzanso kuwonongeka komwe minofu yanu yawononga. Minofu yanu ikakhala yolimba, idzatha kupirira kuwonongeka komwe kumachitika chifukwa cha dermatomyositis.
• Mankhwala oletsa chitetezo chamthupi: Mankhwalawa amaletsa chitetezo chamthupi chanu kuti chisaukire maselo ndi minofu yathanzi. Angachepetse kuwonongeka komwe chitetezo cha thupi lanu chimachita ku minofu yanu.
• Immunoglobulin yolowetsedwa m'mitsempha (IVIg): IVIg ndi yowonjezera ku plasma yanu yamagazi, yomwe ndi gawo la immunoglobulin yomwe imapezeka mwachibadwa m'magazi anu. Chithandizo cha IVIg chingaperekedwe pamodzi ndi mankhwala oletsa chitetezo chamthupi, kapena ngati chithandizo china.
• Chithandizo cha kulankhula: Ngati muli ndi kufooka kwa minofu yomwe ili mkati kapena mozungulira pakhosi panu, chithandizo cha kulankhula chingalimbikitse minofu yomwe ili pakhosi panu yomwe imakuthandizani kumeza chakudya.

Mtundu wa chithandizo chomwe mukufuna chidzadalira komwe zizindikiro zanu zili komanso momwe zilili zoopsa. Lankhulani ndi dokotala wanu za zomwe mungayembekezere komanso nthawi yomwe chithandizo china chingafunikire.

Kodi mungatani kuti muthane ndi zizindikiro?

Kuthana ndi zizindikiro za dermatomyositis kungakhale njira yayitali - mwina moyo wanu wonse.

• Ngati dokotala wanu, katswiri wa zamaganizo, kapena katswiri wa za kulankhula akupatsani masewera olimbitsa thupi, chitani monga momwe mwalangizidwira, malinga ndi kuchuluka kwa nthawi zomwe akukuuzani. Izi zidzakuthandizani kuti minofu yanu ikhale yolimba momwe mungathere.
• Imwani mankhwalawo monga momwe dokotala wanenera, kwa nthawi yonse.
• Pewani kukhudzidwa ndi kuwala kwa UV. Chepetsani nthawi yanu padzuwa, pewani kugwiritsa ntchito mabedi opaka utoto m'nyumba, ndipo khalani m'nyumba kapena mumthunzi mukakhala panja.
• Nthawi iliyonse ukadziwa kuti ukutulukaGwiritsani ntchito mafuta oteteza ku dzuwa. Onetsetsani kuti mafuta oteteza ku dzuwa anu ali ndi SPF yosachepera 50, ndipo gwiritsaninso ntchito maola awiri aliwonse.

Ngati muli ndi dermatomyositis, ndikofunikira kukaonana ndi dokotala nthawi zonse. Iye akhoza kuyang'anira zizindikiro zanu ndikuwona ngati pali kusintha kulikonse mu minofu kapena khungu lanu.

Kodi mungayembekezere chiyani mukakhala ndi matendawa?

Palibe mankhwala ochiritsira matenda a dermatomyositis, kotero mutha kuyembekezera kuti zizindikiro zanu zidzatha moyo wanu wonse.

Ngakhale mutalandira chithandizo, pafupifupi 80% ya anthu ali ndi dermatomyositis yosatha (nthawi zina imatchedwa polycyclic dermatomyositis). Izi zikutanthauza kuti zizindikiro zanu zitha kubwera ndi kutha moyo wanu wonse. Pitani kwa dokotala mukangoona zizindikiro zilizonse za zizindikiro zomwe zikuipiraipira.

Pafupifupi anthu awiri pa atatu aliwonse omwe ali ndi dermatomyositis amakhala ndi vuto linalake la thupi chifukwa cha kuwonongeka kwa minofu.

Matenda a dermatomyositis amapha anthu pafupifupi 5% omwe apezeka ndi matendawa. Chiwopsezochi chimakhala chachikulu kwambiri m'chaka choyamba atapezeka ndi matendawa. Komabe, anthu pafupifupi 20% omwe ali ndi matendawa amatha kuchira kwa nthawi yayitali. Izi zikutanthauza kuti akhoza kukhala popanda zizindikiro kwa nthawi yayitali.

Zizindikiro zina ndi zinthu zina zingawonjezere chiopsezo cha imfa. Zitsanzo zake ndi izi:

• Ngati chithandizo chachedwa ndi miyezi yoposa isanu ndi umodzi.
• Ngati muli ndi zaka zoposa 60.
• Ngati mukukumana ndi zizindikiro zoopsa.
• Ngati muli ndi zizindikiro pakhosi, m'mapapo, kapena pamtima.
• Ngati muli ndi khansa kapena ngati yayamba kumene.

Kodi muyenera kupita kwa dokotala liti?

Ngati muwona kufooka kwatsopano m'minofu yanu, makamaka ngati muli ndi ziphuphu pakhungu, pitani kwa dokotala nthawi yomweyo. Dermatomyositis ikapezeka msanga, mumayamba kulandira chithandizo mwachangu. Izi zitha kuchepetsa chiopsezo cha zizindikiro zazikulu ndi zovuta zina.

Mufunseninso kuti muyenera kupita kwa dokotala kangati kuti aone zizindikiro zanu ndi kusintha kwa minofu kapena khungu lanu.

Ndi mafunso ati omwe muyenera kufunsa dokotala wanu?

Ndizachilendo kukhala ndi mafunso mukaphunzira za matenda ngati awa. Mutha kufunsa dokotala wanu mafunso monga:

• Kodi ndili ndi dermatomyositis kapena vuto lina?
• Ndi mayeso amtundu wanji omwe ndiyenera kuchita?
• Kodi ndi chithandizo chamtundu wanji chomwe ndikufuna, ndipo chingatenge nthawi yayitali bwanji?
• Kodi ndikufunika kuyezetsa khansa?

Ndi zachilendo kumva mantha kwambiri ukadziwa kuti uli ndi matenda monga dermatomyositis.N'zodabwitsa kudziwa za matenda omwe angakupheni kwa moyo wanu wonse. Koma chitanipo kanthu pang'onopang'ono. Mukapezeka ndi matendawa msanga, mumayamba kulandira chithandizo mwachangu.

Lankhulani ndi dokotala wanu za kukonzekera ulendo wanu wochiza ndi kuthana ndi zizindikiro. Iye adzakufotokozerani zomwe mungayembekezere kenako ndi kusintha komwe muyenera kuchita kuti mukonzekere ngati zizindikiro zanu za dermatomyositis zikuipiraipira.

Zinthu zoti mukumbukire mwachidule

Dermatomyositis ndi matenda osowa omwe amayambitsa kufooka kwa minofu ndi ziphuphu pakhungu.

• Izi zitha kuchitika mwa aliyense, koma zimachitika kwambiri mwa ana azaka zapakati pa 5-15, akuluakulu azaka zapakati pa 40-60, ndi akazi.
• Ndikofunikira kwambiri kufunafuna upangiri wa dokotala mukangoona zizindikiro. Kulandira chithandizo mwachangu kungathandize kuchepetsa mavuto.
• Ngakhale kuti palibe mankhwala ochiritsira matendawa, zizindikiro zake zimatha kuthetsedwa ndi chithandizo ndi kuyang'aniridwa.
• Komanso lankhulani ndi dokotala wanu za chiopsezo chanu cha khansa.
• Musadandaule, simuli nokha. Mothandizidwa ndi madokotala ndi okondedwa anu, mutha kuthana ndi vutoli.

Matenda a khungu, kufooka kwa minofu, matenda a pakhungu, ziphuphu, matenda odziteteza ku matenda a autoimmune, chiopsezo cha khansa, chithandizo cha thupi