Kodi inuyo kapena munthu amene mumamudziwa ali ndi khansa yotchedwa multiple myeloma ? Ngati ndi choncho, izi ndi zokhudza chithandizo chapamwamba kwambiri komanso chapadera. Dokotala wanu mwina anakuuzani za chithandizochi. Sichili ngati mapiritsi wamba. Chimagwiritsa ntchito maselo anu kuti chiwaphunzitse kulimbana ndi khansa. Tiyeni tikambirane mwachidule.
Mwachidule, kodi mankhwala awa otchedwa Idecabtagene Vicleucel ndi chiyani?
Dzina lina la izi ndi ABECMA. Iyi si piritsi wamba kapena katemera. Iyi ndi mankhwala apadera kwambiri. Kunena zoona, iyi ndi mankhwala omwe amatenga maselo anu oteteza thupi, kuwasintha mu labu kuti athe kulimbana ndi maselo a khansa , kenako nkuwabwezeretsa m'thupi lanu.
Taganizirani izi motere. Tili ndi maselo m'thupi mwathu omwe ali ngati asilikali omwe amazindikira ndikuukira adani. Timawatcha maselo oteteza thupi. Koma nthawi zina maselo a khansa awa ndi achinyengo kwambiri. Amabisala kwa asilikaliwa.
Kotero chomwe chithandizochi chimachita ndichakuti, mumatenga ena mwa asilikaliwa (maselo oteteza thupi) m'thupi lanu ndikuwapatsa "maphunziro" apadera kuti athe kuzindikira maselo a khansa. Kenako mumabwezeretsa asilikali ophunzitsidwawo m'thupi lanu. Tsopano akudziwa momwe angapitire mwachindunji ku maselo a khansa ndikuwawononga. Izi zimaletsa kufalikira kwa maselo a khansa, kapena kuchepetsa kwambiri.
Kodi njira yoperekera chithandizochi imagwira ntchito bwanji?
Ichi si chinthu chomwe chingachitike tsiku limodzi. Ichi ndi chinthu chomwe chimachitika m'magawo angapo.
1. Kusonkhanitsa maselo anu: Chinthu choyamba chomwe mungachite ndikusonkhanitsa maselo ena oteteza thupi kuchokera m'magazi anu. Izi zimachitika kudzera mu makina apadera. Izi zimachitika milungu ingapo isanafike.
2. Kusintha kwa maselo (maphunziro): Maselo omwe atengedwa kuchokera kwa inu amatumizidwa ku labotale yapadera. Kumeneko, maselowa amasinthidwa majini kuti athe kuzindikira ndikulimbana ndi maselo a khansa.
3. Kukonzekera thupi lanu: Masiku angapo maselo anu ophunzitsidwa asanabwezeretsedwe m'thupi lanu, mudzapatsidwa chithandizo cha chemotherapy kuchipatala. Izi ndi kukonzekera thupi lanu kulandira maselo atsopano ophunzitsidwa.
4. Kupereka chithandizo: Pomaliza, maselo ophunzitsidwa amaperekedwa kudzera mu mtsempha ( infusion) .) imalowetsedwa m'thupi lanu. Zonsezi zimachitika kuchipatala kapena kuchipatala, motsogozedwa ndi gulu lachipatala.
Mudzapatsidwa kabuku kapadera (MedGuide) kokhudza chithandizochi. Ndikofunikira kwambiri kuwerenga ndi kumvetsa mosamala. Ngati pali chilichonse chomwe simukumvetsa, musaope kufunsa dokotala.
Zinthu zomwe muyenera kuuza dokotala wanu musanayambe kulandira chithandizo
Kuti mukhale otetezeka, ndikofunikira kuti muuze dokotala wanu zonse zokhudza thanzi lanu musanayambe kulandira chithandizochi. Onetsetsani kuti mwawauza makamaka za izi.
| Matenda kapena vuto | N’chifukwa chiyani zimenezo n’zofunika? |
|---|---|
| Ngati muli ndi matenda pakali pano | Popeza mankhwalawa amakhudza chitetezo cha mthupi, matenda omwe alipo kale akhoza kukulirakulira. |
| Ngati muli ndi vuto la kutupa | Popeza chithandizochi chimalimbikitsa chitetezo cha mthupi, pali chiopsezo chowonjezera mavuto otere. |
| Ngati mwalandira katemera posachedwapa kapena muli pafupi kulandira katemera | Katemera wina (makamaka katemera wa kachilombo kamoyo) angagwirizane ndi mankhwalawa. |
| Ngati muli ndi ziwengo ku mankhwala ena, zakudya kapena zinthu zina | Ngati muli ndi mbiri ya ziwengo, ndikofunikira kuti gulu lachipatala lidziwe za izi. |
| Ngati muli ndi pakati kapena mukufuna kutenga mimba | Palibe chidziwitso chokwanira chokhudza ngati mankhwalawa ndi otetezeka panthawi ya mimba. Kuyezetsa mimba kuyenera kuchitika musanayambe kulandira chithandizo kuti muwonetsetse kuti mulibe mimba. |
| Ngati mayi akuyamwitsa mwana wake | Lankhulani ndi dokotala wanu ngati zosakaniza zomwe zili mu mankhwalawa zitha kupita kwa mwana wanu kudzera mu mkaka wa m'mawere. |
Zinthu zofunika kusamala kwambiri panthawi ya chithandizo komanso pambuyo pake
Mukalandira chithandizochi, muyenera kudzisamalira bwino kwambiri. Gulu lachipatala lidzakuyang'aniraninso mosamala.
- Kuyang'aniridwa ndi chipatala: Mukalandira chithandizo, mudzasungidwa m'chipatala kwa masiku osachepera 7 ndipo gulu lachipatala lidzakuyang'anirani tsiku lililonse.
- Kuyezetsa magazi : Muyenera kuyezetsa magazi nthawi zonse.
- Kuyendetsa ndi kugwiritsa ntchito makina: Izi ndizofunikira kwambiri. Muyenera kupewa kuyendetsa kapena kugwiritsa ntchito makina olemera kwa milungu yosachepera 8 (miyezi iwiri) mutatha kulandira chithandizo, chifukwa mankhwalawa angakhudze kuyang'ana kwanu, luso lanu lopanga zisankho, komanso kulinganiza bwino zinthu.
- Khadi la Chikwama cha Odwala: Mudzapatsidwa khadi lapadera. Lisungeni nthawi zonse . Liwonetseni kwa dokotala aliyense ndi namwino amene akukuthandizani. Lili ndi chidziwitso chokhudza zotsatirapo zoyipa zomwe mungakumane nazo.
- Kuopsa kwa matenda: Mankhwalawa amawonjezera chiopsezo chanu chotenga matenda. Ngati mukuyamba zizindikiro monga malungo, kuzizira, kupweteka pakhosi, kapena chifuwa , musadzipatse mankhwala ndipo imbani dokotala nthawi yomweyo . Chepetsani kukhudzana ndi anthu odwala.
- Musapereke chilichonse: Simungapereke magazi, ziwalo, minofu, kapena maselo mutalandira chithandizochi.
- Kuopsa kwina kwa khansa: Mankhwalawa ali ndi chiopsezo chochepa chotenga mitundu ina ya khansa. Lankhulani ndi dokotala wanu za izi.
Nanga bwanji ngati nditamwa mankhwala ochulukirapo?
Popeza mankhwala awa amaperekedwa ndi gulu lachipatala kuchipatala, palibe mwayi woti mutenge mankhwala opitirira muyeso. Ngati pali vuto lililonse, gulu lachipatala lidzadziwitsa nthawi yomweyo ETU (Emergency Treatment Unit) kapena National Poisons Information Centre ku Colombo National Hospital .
Kodi zotsatirapo zake zingakhale zotani?
Monga mankhwala aliwonse amphamvu, mankhwalawa akhoza kukhala ndi zotsatirapo zake. Ena amafunika thandizo lachipatala mwamsanga, pomwe ena ndi abwinobwino.
| Zotsatira zoyipa | Kufotokozera |
|---|---|
| Ngati mukukumana ndi zizindikiro izi, uzani dokotala wanu nthawi yomweyo. | |
| Matenda a ziwengo | Kutupa pakhungu, kuyabwa, kutupa kwa nkhope, milomo, lilime kapena pakhosi. |
| Matenda Otulutsa Cytokine (CRS) | Malungo, kuzizira, kutopa kwambiri, nseru, mutu, chizungulire, kupuma movutikira, kugunda kwa mtima mofulumira. (Izi zimachitika chifukwa chitetezo cha mthupi chimakhala chochita zinthu mopitirira muyeso) |
| Mavuto a mitsempha | Kusokonezeka, kuvutika kuyenda, kulephera kukhazikika, kukomoka, kuvutika kulankhula, kusintha kwa masomphenya. |
| Zizindikiro za matenda | Malungo, kupweteka kwa thupi, pakhosi, chifuwa, mabala osachiritsa, ululu pokodza. |
| Kutupa kapena kutuluka magazi kosazolowereka | Ngakhale chiphuphu chaching'ono chingayambitse bala lalikulu, kutuluka magazi m'mphuno ndi m'kamwa. |
| Maselo ofiira ochepa m'magazi | Kutopa kosazolowereka, chizungulire, mutu, komanso kupuma movutikira. |
| Izi nthawi zambiri sizimakhala zoopsa, koma ngati zikupitirira, uzani dokotala wanu. | |
| Zotsatira zoyipa zofala | Kusokonezeka m'mimba, kutopa, mutu, kusowa chilakolako cha chakudya, kupweteka kwa minofu, nseru, kutupa kwa akakolo, manja, kapena mapazi. |
Uthenga Wopita Nawo Kunyumba
- Idecabtagene Vicleucel ndi mankhwala apamwamba kwambiri komanso opangidwa ndi munthu payekha omwe amagwiritsa ntchito maselo anu oteteza thupi polimbana ndi khansa.
- Uwu ndi chithandizo chomwe chimaperekedwa m'njira zingapo, kuchipatala, motsogozedwa ndi dokotala.
- Nthawi zonse dziwani za zotsatirapo zoyipa zomwe zingachitike (CRS, matenda amitsempha) mukalandira chithandizo. Chifukwa chake, kuyang'aniridwa ndi dokotala ndikofunikira.
- Pewani kuyendetsa galimoto kapena kugwiritsa ntchito makina kwathunthu kwa milungu yosachepera 8 mutatha kulandira chithandizo.
- Nthawi zonse sungani 'Khadi la Chikwama cha Odwala' lomwe mwapatsidwa ndipo liwonetseni kwa madokotala.
- Ngati mukupeza zizindikiro zilizonse za matenda, monga malungo kapena chifuwa, dziwitsani dokotala wanu nthawi yomweyo.
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